DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 ## **STAND AGAINST MND ANNUAL RETURN FINANCIAL YEAR ENDING 30 MARCH 2021** Stand Against MND was formed in January 2020 by Sam Perkins following his diagnosis of motor neurone disease (MND) the in March 2019. The purpose of the charity is two-fold: (1) to raise funds and awareness to support research into a cure for MND and (2) to provide funds to palliative care services that assist those who are affected by MND, including those diagnosed with MND, but also their family and friends. Since its formation, the charity has achieved its objectives through a range of fundraising activities and promotional events including: Christmas campaigns, selling bespoke art work, Sam personally appearing on TV and radio broadcasts, and of course the support of individual fundraisers such as Team SAM participating in the East Leake Triathlon, virtual cycling challenges and running marathons. Due to the global coronavirus pandemic, we have had to become more creative in how we achieve our objectives. We are pleased that we and our supporters have risen to that challenge! ## **A message from our founder, Sam Perkins:** _“Being diagnosed with MND at the age of 37 was devastating. The offers of help and support which flooded in from family and friends as they shared in my shock gave me a great deal of comfort. With support from my wife Emma, we decided to a harness that goodwill and attempt to make a difference for the MND community and the future prospects for treatments for the disease._ _Founding Stand Against MND is a point of great pride, but little could we have known that_ _our first year of existence would coincide with a global pandemic. This created huge challenges for all charities and destroyed plans which we had for our first year._ _I would like to take this opportunity then, to place on record my thanks to the trustees, our fundraisers, supporters and donors for delivering an exceptional first year. The dedication and imagination everyone continues to show is inspiring, providing a plentiful source of fuel in my own Stand Against MND. Thank you and here’s to our continued success.”_ |||General Overview| |---|---|---| ||Section 1|| |||| |||Trustee Report| ||Section 2|| |||| |||Accounts| ||Section 3|| |||| Stand Against MND is a charitable incorporated organisation Registration Number: 1187436 Registered Address:12 Leveret Way, East Leake, Loughborough, Leicestershire, LE12 6XX info@standagainstmnd.com **1** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 ## **1. GENERAL OVERVIEW** ## **Finances** The charities financial period runs from 1 April to 31 March. Income for the financial year ending 31 March 2021 was £43,421. Spending for the financial year ending 31 March 2021 was £16,748.00. The charity trustees received no remuneration for the work they did as trustees. The Trustees declare that there have been no serious incidents and, as such, no serious incidents have been reported to the Charity Commission. ## **Fundraising** The charity raises funds from the public without engaging with professional fundraisers. The charity worked informally, without the need for a formal written agreement, with a small number of commercial organisations in the FYE 31 March 2021 including, VFE, the Nottinghamshire Hospice and Nottingham Forest Football Club. The charity did not receive income from contracts with central government or local authorities or from outside the United Kingdom. ## **Donations** The charity made two donations in FYE 31 March 2021: - 1) £5,000 to the Nottinghamshire Hospice; and - 2) £10,000 to the Motor Neurone Disease Association – research fund. ## **Trustee payments** Through the business, Aloha Creative Limited, Rebecca Clark (trustee and director of Aloha Creative Limited) received payment for graphic design and printing services provided to the charity. **2** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 ## **2. TRUSTEE REPORT** Paragraph references in the tables below are to SORP FRS 102. ||| |---|---| |**Charity name**|Stand Against MND| |**Other name the charity uses**|SAM| |**Registered charity number**|1187436| |**Charity’s principal address**|12 Leveret Way, East Leake, Loughborough,
Leicestershire, LE12 6XX| ||||| |---|---|---|---| |**Trustee name**|**Office (if any)**|**Dates acted if**
**not for whole**
**year**|**Name of person (or**
**body) entitled to**
**appoint trustee (if**
**any)**| |Alan Samuel Perkins|Founder and Chair|N/A|N/A| |Emma Reid|Secretary|N/A|N/A| |Alastair John Hall|Treasurer|N/A|N/A| |Rebecca Clark|N/A|N/A|N/A| |Victoria Clare Alvis|N/A|N/A|N/A| |Greg William Mitchell|N/A|N/A|N/A| |Richard Carey|N/A|N/A|N/A| **3** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 |||| |---|---|---| |**Summary of the purposes**
**of the charity as set out in**
**its governing document**|**Para 1.17**|The purpose of the charity is:
1) the promotion and funding of research
into the nature, causes, diagnosis,
prevention, treatment and cure of
motor neurone disease and the
publication of the results of such
research; and
2) the provision of support, assistance
and information to people affected
(directly or indirectly) by motor
neurone disease through clinical,
hospice or other forms of palliative
care.| |**Summary of the main**
**activities in relation to**
**those purposes for the**
**public benefit, in**
**particular, the activities,**
**projects or services**
**identified in the accounts.**|**Para 1.17 and**
**1.19**|The charity has undertaken arrange of
activities to raise funds and awareness
in line with its purpose.
In particular, fundraising activities have
included: taking part in sponsored
challenges in support of the charity
(marathons, triathlons, John O’ Groats
virtual cycle challenge, sale of bespoke
art work).
Awareness of MND has taken place by
using social media to create ‘Sam’s
Story’ sharing Sam’s personal
experience of being diagnosed and
living with MND as well as Sam
appearing on BBC and ITV news
broadcasts and radio programmes. Sam
also participated in a ‘hero’ video for
Nottingham Forest Football Club.| |**Statement confirming**
**whether the trustees have**
**had regard to the guidance**
**issued by the Charity**
**Commission on public**
**benefit**|**Para 1.18**|The trustees receive updates from the
Charity Commission regarding being a
trustee.| **4** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 |||| |---|---|---| |**Policy on grant making**|**Para 1.38**|The charity policy on grant making
permits the trustees to approve the
making of a grant to organisations that
have the same or similar objectives to
the charity.| |**Summary of the main**
**achievements of the**
**charity, identifying the**
**difference the charity’s**
**work has made to the**
**circumstances of its**
**beneficiaries and any wider**
**benefits to society as a**
**whole.**|**Para 1.20**|The charity has provided £10,000 of
funding to organisations that work
towards researching a cure for MND.
The donation part-funded the “MND:
Next Top Model” research project. In
addition to the donation, Sam
interviewed the Head of Research at the
Motor Neurone Disease Association to
share on social media to assist in raising
awareness.
A single donation of £5,000 was made to
the Nottinghamshire Hospice which
provides palliative care to those who live
with MND and their support network (as
well as other individuals who require
end-of-life support).| ## **Financial Review** |**Financial Review**||| |---|---|---| |||| |**Review of the charity’s**
**financial position at the**
**end of the period**|**Para 1.21**|At the end of the period the charity had
raised a total of £43,421. Of this total the
charity donated £15,000 pounds, spent
£200 on administrative fees and
purchased £1,548 in Merchandise.
This left a total £26,672 in Cash funds
and approximately assets worth £1500| |**Statement explaining the**
**policy for holding reserves**
**stating why they are held**|**Para 1.22**|The charity’s policy is to hold about
£10,000 in reserve. This is to fund
merchandise and events that we will
look to hold throughout the year. As this
is the first full year of the charity and
because of Covid 19 the Charity has
held more back then we plan to for
future years.| **5** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 |||| |---|---|---| |**Amount of reserves held**|**Para 1.22**|£26,672 in cash funds and £1500 worth
of merchandise assets.| |**Reasons for holding zero**
**reserves**|**Para 1.22**|N/A| |**Details of fund materially**
**in deficit**|**Para 1.24**|N/A| |**Explanation of any**
**uncertainties about the**
**charity continuing as a**
**going concern**|**Para 1.23**|N/A| |**The charity’s principal**
**sources of funds**
**(including any fundraising)**|**Para 1.47**|The charity’s principal sources of funds
are from private fundraising.| |**Investment policy and**
**objectives including any**
**social investment policy**
**adopted**|**Para 1.46**|The charity is not investing any of its
funds.| |**A description of the**
**principal risks facing the**
**charity**|**Para 1.46**|The key principal risk for the charity
remains the effect the pandemic has had
on the ability to coordinate in-person
events that provide an opportunity to
raise funds and awareness of the charity
and its objectives.| |**Type of governing**
**document**|**Para 1.25**|Constitution| |**How is the charity**
**constituted?**|**Para 1.25**|Charitable Incorporated Organisation
(CIO)| **6** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 |||| |---|---|---| |**Trustee selection methods**
**including details of any**
**constitutional provisions**
**e.g. election to post or**
**name of any person or**
**body entitled to appoint**
**one or more trustees**|**Para 1.25**|As set out in the constitution, apart from
the first charity trustees, every trustee
must be appointed by a resolution
passed at a properly convened meeting
of the charity trustees. In selecting
individuals for appointment as charity
trustees, the charity trustees must have
regard to the skills, knowledge and
experience needed for the effective
administration of the charity.| |**Relationship with any**
**related parties**|**Para 1.51**|The charity uses Aloha Creative Limited
to provide graphic design and printing
services. Rebecca Clark (trustee) is a
director of Aloha Creative Limited.| ## **Declarations** The trustees declare that they have approved the trustees’ report above. Signed on behalf of the charity’s trustees |||| |---|---|---| |Signature
Full name
Position
Date||| ||Emma Reid|Alastair John Hall| ||Secretary|Treasurer| ||
29 January 2022|30 January 2022| **7** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 ## **3. ACCOUNTS** **Stand Against MND No (if any) Receipts and payments accounts CC16a** Period start date Period end date **For the period** 23/03/2020 **To from** 31/03/2021 ## **Section A Receipts and** ## **payments** |**Section A Receipts and**
**payments**||||||| |---|---|---|---|---|---|---| |**A1 Receipts**|**Date**|**Unrestricted**
**funds**
**to the nearest**
**£**
**£332**
**£1,000**
**£1,000**
**£733**
**£600**
**£29**|**Restricted**
**funds**
**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**|**Endowment**
**funds**
**to the nearest**
**£**
**-**
**-**
**-**
**-**
**-**
**-**|**Total funds**
**to the nearest**
**£**
**£332**
**£1,000**
**£1,000**
**£733**
**£600**
**£29**|**Last year**
**to the nearest**
**£**| |Stars in their eyes event|23-Mar-
20|**£332**|**-**|**-**|**£332**|**-**| |Stars in their eyes event|23-Mar-
20|**£1,000**|**-**|**-**|**£1,000**|**-**| |Stars in their eyes event|23-Mar-
20|**£1,000**|**-**|**-**|**£1,000**|**-**| |Paul Caygill - JustGiving donation|02-Apr-
20|**£733**|**-**|**-**|**£733**|**-**| |Chris Slater - Dry Jan|03-Apr-
20|**£600**|**-**|**-**|**£600**|**-**| |Paul Caygill - JustGiving donation|01-May-
20|**£29**|**-**|**-**|**£29**|**-**| Stand Against MND is a charitable incorporated organisation Registration Number: 1187436 Registered Address:12 Leveret Way, East Leake, Loughborough, Leicestershire, LE12 6XX info@standagainstmnd.com **1** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 |Chris Slater - Dry Jan|18-May-
20|**£10**||**-**||**-**||**£10**||**-**| |---|---|---|---|---|---|---|---|---|---|---| |Rachel Pearce sober challenge donation|01-Jun-
20|**£300**||**-**||**-**||**£300**||**-**| |Lily and Sam Book money|02-Jun-
20|**£187**||**-**||**-**||**£187**||**-**| |Sam Perkins Justgiving account|16-Jun-
20|**£15,922**||**-**||**-**||**£15,922**||**-**| |Lily and Sam Book money|01-Jul-
20|**£283**||**-**||**-**||**£283**||**-**| |Lily and Sam Book money|13-Jul-
20|**£53**||**-**||**-**||**£53**||**-**| |Lily and Sam Book money|17-Jul-
20|**£10**||**-**||**-**||**£10**||**-**| |Lily and Sam Book money|31-Jul-
20|**£146**||**-**||**-**||**£146**||**-**| |Lily and Sam Book money|07-Sep-
20|**£200**||**-**||**-**||**£200**||**-**| |VFE Landsend to John O'groats|16-Sep-
20|**£1**||**-**||**-**||**£1**||**-**| |VFE Landsend to John O'groats|23-Sep-
20|**£5,608**||**-**||**-**||**£5,608**||**-**| |Rachel Pearce sober challenge donation|24-Sep-
20|**£244**||**-**||**-**||**£244**||**-**| |Virginmoney giving|30-Sep-
20|**£1,742**||**-**||**-**||**£1,742**||**-**| |Lily and Sam Book money|05-Oct-
20|**£84**||**-**||**-**||**£84**||**-**| |Richard Carey East Leake Tri|07-Oct-
20|**£550**||**-**||**-**||**£550**||**-**| |Virginmoney giving|07-Oct-
20|**£1,010**||**-**||**-**||**£1,010**||**-**| |Sam Perkins Justgiving account|12-Oct-
20|**£1,771**||**-**||**-**||**£1,771**||**-**| |Virginmoney giving|14-Oct-
20|**£574**||**-**||**-**||**£574**||**-**| |Phillippa Neath East Leak Tri|19-Oct-
20|**£2,000**||**-**||**-**||**£2,000**||**-**| **2** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 |VFE Landsend to John O'Groats|21-Oct-
20|**£29**||**-**||**-**||**£29**||**-**| |---|---|---|---|---|---|---|---|---|---|---| |Virginmoney giving|21-Oct-
20|**£284**||**-**||**-**||**£284**||**-**| |Horsforth Brewery - Money from Sam Beer|
27-Oct-
20|**£813**||**-**||**-**||**£813**||**-**| |Virginmoney giving|28-Oct-
20|**£117**||**-**||**-**||**£117**||**-**| |Lily and Sam Book money|03-Nov-
20|**£50**||**-**||**-**||**£50**||**-**| |Virginmoney giving|04-Nov-
20|**£1,768**||**-**||**-**||**£1,768**||**-**| |Virginmoney giving|11-Nov-
20|**£233**||**-**||**-**||**£233**||**-**| |Virginmoney giving|18-Nov-
20|**£1,390**||**-**||**-**||**£1,390**||**-**| |Lily and Sam Book money|02-Dec-
20|**£46**||**-**||**-**||**£46**||**-**| |Virginmoney giving|09-Dec-
20|**£231**||**-**||**-**||**£231**||**-**| |Virginmoney giving|16-Dec-
20|**£88**||**-**||**-**||**£88**||**-**| |Virginmoney giving|23-Dec-
20|**£49**||**-**||**-**||**£49**||**-**| |Virginmoney giving|31-Dec-
20|**£717**||**-**||**-**||**£717**||**-**| |Virginmoney giving|06-Jan-
21|**£103**||**-**||**-**||**£103**||**-**| |Virginmoney giving|13-Jan-
21|**£105**||**-**||**-**||**£105**||**-**| |Virginmoney giving|20-Jan-
21|**£55**||**-**||**-**||**£55**||**-**| |Lily and Sam Book money|27-Jan-
21|**£17**||**-**||**-**||**£17**||**-**| |Corporate donation (cheque)|02-Feb-
21|**£620**||**-**||**-**||**£620**||**-**| |Virginmoney giving|10-Feb-
21|**£756**||**-**||**-**||**£756**||**-**| **3** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 |Amazon smile donation|||11-Feb-
21|**£50**||**-**|||**-**|||**£50**||**-**|| |---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---| |Virginmoney giving|||17-Feb-
21|**£227**||**-**|||**-**|||**£227**||**-**|| |Virginmoney giving|||24-Feb-
21|**£105**||**-**|||**-**|||**£105**||**-**|| |Lyndsey Clarke donation|||26-Feb-
21|**£350**||**-**|||**-**|||**£350**||**-**|| |Virginmoney giving|||03-Mar-
21|**£198**||**-**|||**-**|||**£198**||**-**|| |Virginmoney giving|||10-Mar-
21|**£360**||**-**|||**-**|||**£360**||**-**|| |Lily and Sam Book money|||12-Mar-
21|**£30**||**-**|||**-**|||**£30**||**-**|| |Virginmoney giving|||17-Mar-
21|**£85**||**-**|||**-**|||**£85**||**-**|| |Virginmoney giving|||24-Mar-
21|**£15**||**-**|||**-**|||**£15**||**-**|| |Virginmoney giving|||31-Mar-
21|**£141**||**-**|||**-**|||**£141**||**-**|| |||||||**-**|||**-**|||||**-**|| |||||**-**||**-**|||**-**|||||**-**|| |**_Sub total_**_(Gross_|_income for AR)_|||**43,421**||**-**|||**-**|||**43,421**||**-**|| ||||||||||||||||| |**A2 Asset and investment**||**sales, (see**|||||||||||||| |**table).**|||||||||||||||| |||||**-**||**-**|||**-**|||**-**|||| |||||**-**||**-**|||**-**|||**-**||**-**|| |||**_Sub total_**||**-**||**-**|||**-**|||**-**||**-**|| ||||||||||||||||| ||**_Total receipts_**|||**43,421**|||**-**|||**-**||**43,421**|||**-**| **4** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 ## **A3 Payments** |Virgin Money registration fee||02-Jun-
20|**£180**||**-**||**-**||**180**||**-**| |---|---|---|---|---|---|---|---|---|---|---|---| |Nottinghamshire Hospice donation||22-Jun-
20|**£5,000**||**-**||**-**||**5,000**||**-**| |MND Association donation||02-Dec-
20|**£10,000**||**-**||**-**||**10,000**||**-**| |Post office costs||04-Feb-
21|**£10**||**-**||**-**||**10**||**-**| |Gsuite business account costs||19-Feb-
21|**£10**||**-**||**-**||**10**||**-**| ||||**-**||**-**||**-**||**-**||**-**| ||||**-**||**-**||**-**||**-**||**-**| ||**_Sub total_**||||||||||| ||||**15,200**||**-**||**-**||**15,200**||**-**| ||||||||||||| |**A4 Asset and investment purchases,**|||||||||||| |**(see table)**|||||||||||| |Aloha Creative Ltd for SAM Merchandise|||**£1,548**||**-**||**-**||**1,548**||| ||||**-**||**-**||**-**||**-**||| ||**_Sub total_**||||||||||| ||||**1,548**||**-**||**-**||**1,548**||**-**| ||||||||||||| ||**_Total payments_**||**16,748**||**-**||**-**||**16,748**||**-**| ||||||||||||| |**_Net of receipts/(payments)_**|||**26,672**||**-**||**-**||**26,672**||**-**| |**A5 Transfers between**|**funds**||||||||||| ||||**-**||**-**||**-**||**-**||**-**| |**A6 Cash funds last year end**|||**-**||**-**||**-**||**-**||**-**| **5** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 ## _**Cash funds this year end**_ **26,672 - - 26,672 -** ## **Section B Statement of assets and liabilities at the end of the period** |**Details**
Money raised not yet donated.
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
**Details**|**Unrestricte**
**d funds**
**to nearest £**
**26,672**
**-**
**-**
**26,672**
OK
**Unrestricte**
**d funds**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**|**Restricted**
**funds**
**to nearest £**
**-**
**-**
**-**
**-**
OK
**Restricted**
**funds**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**|**Endowmen**
**t funds**
**to nearest £**| |---|---|---|---| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||OK| ||||**Endowmen**
**t funds**
**to nearest £**| ||**-**|**-**|**-**| ||**-**|**-**|**-**| ||**-**|**-**|**-**| ||**-**|**-**|**-**| ||**-**|**-**|**-**| ||**-**|**-**|**-**| ||||| **Categories Details** Money raised not yet donated. **B1 Cash funds** **B2 Other monetary assets** **6** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 ## **B3 Investment assets** **B4 Assets retained for the charity’s own use** ## **B5 Liabilities** |**Details**|**Fund to which**
**asset belongs **|**Cost**
**(optional)**
**-**
**-**
**-**
**-**
**-**|**Current value**
**(optional)**| |---|---|---|---| |||**-**|**-**| |||**-**|**-**| |||**-**|**-**| |||**-**|**-**| |||**-**|**-**| |**Details**
Charity Merchandise
**Details**|**Fund to which**
**asset belongs **
Unrestricted
**Fund to which**
**liability relates**|**Cost**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Amount due**
**(optional)**
**-**
**-**
**-**|**Current value**
**(optional)**| |---|---|---|---| ||||**1,500**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**When due**
**(optional)**| |||**-**|| |||**-**|| |||**-**|| **7** DocuSign Envelope ID: AE530185-4A8B-4A1A-8AA4-3748FB038A33 Signed by two trustees on behalf of all the trustees |Signature|Print Name
Alastair Hall
Emma Reid|Date of
approval
30 January 2022
29 January 2022| |---|---|---| ||Alastair Hall|30 January 20| ||Emma Reid|29 January 20| **8**