2023-03-31-accounts - The Peter Doody Foundation

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Trustees’ Annual Report for the period

From 1.4.2022 Period start date To 31.3.2023 Period end date

Charity name: The Peter Doody Foundation

Charity registration number: 1186692

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	To preserve and protect the good health for the public beneft of young adults with the focus on those aged between the ages of seventeen and thirty with epilepsy as well as their carers/ families, through such support and assistance as the trustees deem appropriate. To achieve this by; 1. Raising awareness 2. Providing support 3. Reduce stigma
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	In summary of our main activities for the year in relation to those purposes for the public beneft we continued to meet with local government to discuss the various ways to improve provision of services and level of epilepsy care. Registered as stakeholders for NICE epilepsies in children, young people and adults. Continued in Raising awareness of SUDEP via our social media platforms and with local media. Launched our Stop Sudep Silence Campaign. Commenced interviewing bereaved parents, parents, PWE and professionals with regard to Sudep as part of an educational flm package to be launched 2024. Held our third Purple 21kcharity walk

		raising awareness and charitable donations. Continued in building and strengthening links and partnerships with other epilepsy charities namely Epilepsy Research UK, Hope Paediatric Epilepsy-London and Jon Shaw Foundation.
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	The Trustees are aware of the guidance by the charity commission with regard to the public beneft and have this at the forefront of any decision making relating at all times to the people we aim to serve.

Additional information (optional)

You may choose to include further statements where relevant about:

SORP reference Para 1.38 Policy on grant making Para 1.38 Policy on social investment including program related investment Para 1.38 Contribution made by volunteers Other

Achievements and Performance

SORP reference

Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	The main achievements in our third year was the commencement of flming for our series of educational flms to inform clinicians with regard to best practice. Launching our Stop Sudep Silence campaign aiming to create a movement to embed the message that although ‘considered’ rare, Sudden Unexpected Death in Epilepsy is a very real risk. That cliniciansmust inform patients and care givers of SUDEP at time of diagnosis or soon after as the NICE guideline dictates and in the prevention of further avoidable deaths. http://peterdoodyfoundation.org/stop- suped-silence

Additional information (optional) You may choose to include further statements where relevant about:

Achievements against objectives set	Para 1.41
Performance of fundraising activities against objectives set	Para 1.41
Investment performance against objectives	Para 1.41
Other

Financial Review

Financial Review
Review of the charity’s financial position at the end of theperiod	Para 1.21	Between the 1st April 2021 and the 31st of March 2022 the charity raised £4,486.76 and spent £5,572.08
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	Our policy at this time is that we will hold reserves to enable payment for essential insurance and any equipment/service costs.
Amount of reservesheld	Para 1.22	£1,000
Reasons for holding zero reserves	Para 1.22	N/A
Details of fund materially in deficit	Para 1.24	N/A
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	N/A

Additional information (optional)

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The charity’s principal sources of funds (including Para 1.47 any fundraising) Investment policy and objectives including any Para 1.46 social investment policy adopted A description of the principal Para 1.46 risks facing the charity Other

Structure, Governance and Management

Description of charity’s trusts:
Type of governing document (trust deed, royal charter)	Para 1.25	Constitution
How is the charity constituted? (e.g unincorporated association, CIO)	Para 1.25	CIO
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	Apart from the frst charity trustees, every trustee must be appointed [for a term of [three] years] by a resolution passed at a properly convened meeting of the charity trustees. In selecting individuals for appointment as charity trustees, the charity trustees must have regard to the skills, knowledge and experience needed for the efective administration of the CIO.

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Policies and procedures adopted for the induction and training of trustees	Para 1.51
The charity’s organisational structure and any wider network with which the charity works	Para 1.51
Relationship with any related parties	Para 1.51
Other

Reference and Administrative details

Charityname	The Peter Doody Foundation
Other name the charity uses	N/A
Registered charitynumber	1186692

Charity’s principal address 49 Well Grove, Brighouse, HD6 2LT

Names of the charity trustees who manage the charity

Trustee name	Office (if any)	Dates acted if not for whole year
Joanne Doody	Chair	Wholeyear
Andrew Doody	Treasurer/ Secretary	Whole year
Louise Moriarty		Wholeyear
Ellie Shepherd		Wholeyear
Liv Dennison		Wholeyear
Harry Doody		Wholeyear
Sophie DeLuca		Wholeyear

– Corporate trustees names of the directors at the date the report was approved

Director name

Name of trustees holding title to property belonging to the charity

Trustee name Dates acted if not for whole year

Funds held as custodian trustees on behalf of others

Description of the assets N/A held in this capacity

Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects

Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Type of Name Address adviser

Name of chief executive or names of senior staff members (Optional information)

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) J.E. Doody

Full name(s) Joanne Elizabeth Doody

Position (eg Secretary, Chair Chair, etc)

Date

7[th] September 2023