
## **Trustees’ Annual Report for the period** 

## **From 1.4.2022 Period start date   To   31.3.2023 Period end date** 

## **Charity name: The Peter Doody Foundation** 

## **Charity registration number: 1186692** 

## **Objectives and Activities** 

||SORP reference||
|---|---|---|
|Summary of the purposes of<br>the charity as set out in its<br>governing document|Para 1.17|_To preserve and protect the good_<br>_health for the public beneft of young_<br>_adults with the focus on those aged_<br>_between the ages of seventeen and_<br>_thirty with epilepsy as well as their_<br>_carers/ families, through such support_<br>_and assistance as the trustees deem_<br>_appropriate. To achieve this by;_<br>_1. Raising awareness_<br>_2. Providing support_<br>_3. Reduce stigma_|
|Summary of the main<br>activities in relation to those<br>purposes for the public<br>benefit, in particular, the<br>activities, projects or<br>services identified in the<br>accounts.|Para 1.17 and<br>1.19|_In summary of our main activities for_<br>_the year in relation to those purposes_<br>_for the public beneft we continued to_<br>_meet with local government to_<br>_discuss the various ways to improve_<br>_provision of services and level of_<br>_epilepsy care._<br>_Registered as stakeholders for NICE_<br>_epilepsies in children, young people_<br>_and adults._<br>_Continued in Raising awareness of_<br>_SUDEP via our social media platforms_<br>_and with local media._<br>_Launched our Stop Sudep Silence_<br>_Campaign._<br>_Commenced interviewing bereaved_<br>_parents, parents, PWE and_<br>_professionals with regard to Sudep as_<br>_part of an educational flm package to_<br>_be launched 2024._<br>_Held our third Purple 21kcharity walk_|





|||_raising awareness and charitable_<br>_donations._<br>_Continued in building and_<br>_strengthening links and partnerships_<br>_with other epilepsy charities namely_<br>_Epilepsy Research UK, Hope_<br>_Paediatric Epilepsy-London and Jon_<br>_Shaw Foundation._|
|---|---|---|
|Statement confirming<br>whether the trustees have<br>had regard to the guidance<br>issued by the Charity<br>Commission on public<br>benefit|Para 1.18|_The Trustees are aware of the_<br>_guidance by the charity commission_<br>_with regard to the public beneft and_<br>_have this at the forefront of any_<br>_decision making relating at all times_<br>_to the people we aim to serve._|



## **Additional information (optional)** 

## You may choose to include further statements where relevant about: 

SORP reference Para 1.38 Policy on grant making Para 1.38 Policy on social investment including program related investment Para 1.38 Contribution made by volunteers Other 

## **Achievements and Performance** 

SORP reference 



|Summary of the main<br>achievements of the charity,<br>identifying the difference the<br>charity’s work has made to<br>the circumstances of its<br>beneficiaries and any wider<br>benefits to society as a<br>whole.|Para 1.20|_The main achievements in our third_<br>_year was the commencement of_<br>_flming for our series of educational_<br>_flms to inform clinicians with regard_<br>_to best practice._<br>_Launching our Stop Sudep Silence_<br>_campaign aiming to create a_<br>_movement to embed the message_<br>_that although ‘considered’ rare,_<br>_Sudden Unexpected Death in Epilepsy_<br>_is a very real risk. That cliniciansmust_<br>_inform patients and care givers of_<br>_SUDEP at time of diagnosis or soon_<br>_after as the NICE guideline dictates_<br>_and in the prevention of further_<br>_avoidable deaths._<br>_http://peterdoodyfoundation.org/stop-_<br>_suped-silence_||
|---|---|---|---|



**Additional information (optional)** You may choose to include further statements where relevant about: 

|<br>Achievements against<br>objectives set|<br>Para 1.41||
|---|---|---|
|Performance of fundraising<br>activities against objectives<br>set|Para 1.41||
|Investment performance<br>against objectives|Para 1.41||
|Other|||





## **Financial Review** 

|**Financial Review**|||
|---|---|---|
|Review of the charity’s<br>financial position at the end<br>of theperiod|Para 1.21|_Between the 1st April 2021 and the_<br>_31st of March 2022 the charity raised_<br>_£4,486.76 and spent £5,572.08_|
|Statement explaining the<br>policy for holding reserves<br>stating why they are held|Para 1.22|_Our policy at this time is that we will_<br>_hold reserves to enable payment for_<br>_essential insurance and any_<br>_equipment/service costs._|
|Amount of reservesheld|Para 1.22|_£1,000_|
|Reasons for holding zero<br>reserves|Para 1.22|_N/A_|
|Details of fund materially in<br>deficit|Para 1.24|_N/A_|
|Explanation of any<br>uncertainties about the<br>charity continuing as a going<br>concern|Para 1.23|_N/A_|



## **Additional information (optional)** 

You may choose to include further statements where relevant about: 

The charity’s principal sources of funds (including Para 1.47 any fundraising) Investment policy and objectives including any Para 1.46 social investment policy adopted A description of the principal Para 1.46 risks facing the charity Other 



## **Structure, Governance and Management** 

|Description of charity’s<br>trusts:|||
|---|---|---|
|Type of governing document<br>(trust deed, royal charter)|Para 1.25|_Constitution_|
|How is the charity<br>constituted?<br>(e.g unincorporated<br>association, CIO)|Para 1.25|_CIO_|
|Trustee selection methods<br>including details of any<br>constitutional provisions e.g.<br>election to post or name of<br>any person or body entitled<br>to appoint one or more<br>trustees|Para 1.25|_Apart from the frst charity trustees,_<br>_every trustee must be appointed [for_<br>_a term of [three] years] by a_<br>_resolution passed at a properly_<br>_convened meeting of the charity_<br>_trustees._<br>_In selecting individuals for_<br>_appointment as charity trustees, the_<br>_charity trustees must have regard to_<br>_the skills, knowledge and experience_<br>_needed for the efective_<br>_administration of the CIO._|



## **Additional information (optional)** 

## You may choose to include further statements where relevant about: 

|<br>Policies and procedures<br>adopted for the induction<br>and training of trustees|<br>Para 1.51||
|---|---|---|
|The charity’s organisational<br>structure and any wider<br>network with which the<br>charity works|Para 1.51||
|Relationship with any related<br>parties|Para 1.51||
|Other|||



## **Reference and Administrative details** 

|Charityname|_The Peter Doody Foundation_|
|---|---|
|Other name the charity uses|_N/A_|
|Registered charitynumber|_1186692_|





Charity’s principal address _49 Well Grove, Brighouse, HD6 2LT_ 



## **Names of the charity trustees who manage the charity** 

|1<br>2<br>3<br>4<br>5<br>6<br>7<br>8<br>9<br>10<br>11<br>12<br>13<br>14<br>15<br>16<br>17<br>18<br>19<br>20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**<br>**year**|**Name of person (or body) entitled**<br>**to appoint trustee (if any)**|
|---|---|---|---|---|
||_Joanne Doody_|_Chair_|_Wholeyear_||
||_Andrew Doody_|_Treasurer/_<br>_Secretary_|_Whole year_||
||_Louise Moriarty_||_Wholeyear_||
||_Ellie Shepherd_||_Wholeyear_||
||_Liv Dennison_||_Wholeyear_||
||_Harry Doody_||_Wholeyear_||
||_Sophie DeLuca_||_Wholeyear_||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||



## – Corporate trustees names of the directors at the date the report was approved 

## **Director name** 

Name of trustees holding title to property belonging to the charity 

**Trustee name Dates acted if not for whole year** 



## **Funds held as custodian trustees on behalf of others** 

Description of the assets _N/A_ held in this capacity 

Name and objects of the _N/A_ charity on whose behalf the assets are held and how this falls within the custodian charity’s objects 

Details of arrangements for _N/A_ safe custody and segregation of such assets from the charity’s own assets 

## **Additional information (optional)** 

## **Names and addresses of advisers (Optional information)** 

**Type of Name Address adviser** 

**Name of chief executive or names of senior staff members (Optional information)** 

## **Exemptions from disclosure** 

Reason for non-disclosure of key personnel details 

## **Other optional information** 



## **Declarations** 

**The trustees declare that they have approved the trustees’ report above.** 

**Signed on behalf of the charity’s trustees** 

**Signature(s)** _J.E. Doody_ 

**Full name(s)** _Joanne Elizabeth Doody_ 

**Position (eg Secretary,** _Chair_ **Chair, etc)** 

**Date** 

_7[th] September 2023_ 

