2023-04-02-accounts - Hme - The New Generation

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Trustees’ Annual Report for the period

From 03.04.22 To 02.04.2023

Charity name: HME-The New Generation

Charity registration number: 1186351

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	The object of the CIO is to preserve and protect good health for the public benefit among persons suffering from Hereditary Multiple Exostoses (HME) their families and other carers, and to relieve needs arising from the condition, in particular but not exclusively by: a) providing support forums, information, practical advice and emotional support for sufferers of HME, their families and other carers. b) raising public awareness of HME through the provision of information designed to inform and educate the general public and the medical profession about the condition.
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	‘Those affected by HME’ includes sufferers and anyone with a connection to that person. Facebook closed support group offering emotional support, information and a platform where those affected by the rare condition, HME, can communicate with each other and offer mutual support. Quarterly Zoom meetings for members offering support and interaction. This offers a different platform for sufferers to chat with others and share experiences, offering mutual support and relieves feelings of isolation. In the reported year, this included focussed topic related meetings eg. ‘Sharing coping mechanisms and experiences of surgery’. Occasional social meetings on Zoom for support and interaction. These are based on

		building camaraderie and friendship for those in the HME community, eg. a ‘Quiz Night’ or a social event for young people and their families. Sale of badges to raise awareness. Occasional sales are made. Information sheets. For example, it is sometimes helpful for a parent to hand a teacher a booklet with more information about their child’s condition and how this affects their day. Equally an information sheet on HME is often helpful for an employer to understand any reasonable adjustments. The charity aims to organise an annual face-to-face meeting for its members. This offers guest speakers who either specialise in the condition or offer motivational support. This meeting is also open to members of the public and health professionals who want to learn more about HME. The charity has a website which provides information about the condition and signposts to the Facebook Group. A regular newsletter is produced as a further method of communicating with members and this is also made available to those outside of the charity.
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	We have planned activities to meet the charity’s Objects and in doing so have been mindful of the Charity Commission’s guidance on public benefit.

Additional information (optional)

You may choose to include further statements where relevant about:

	SORP reference
Policy on grant making	Para 1.38
Policy on social investment including program related investment	Para 1.38
Contribution made by	Para 1.38	The Trustees are all volunteers and are grateful to others who volunteer their time to aid with the work of supporting those

volunteers		affected by HME.
Other

Achievements and Performance

	SORP reference
Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	Due to uncertainty post-pandemic it was decided to offer a face-to-face social event to the members in the autumn of 2022 rather than a speaker conference. This offered the opportunity to meet others affected by HME in a safe and supportive space, while providing fun activities for children and adults alike. This promoted wellbeing and a sense of community with many members making their own connections with the result of mutual support. The Zoom support and topic specific meetings continued to be held in this period, reducing feelings of isolation to those who are unable to travel to face-to- face meetings. These activities are for all ages. As well as providing support, the nature of the face-to- face meetings raises awareness of HME amongst the broader public such as those staff connected with a venue and other peripherary staff such as providers of services eg. food, refreshments.

Additional information (optional)

You may choose to include further statements where relevant about:

Achievements against objectives set	Para 1.41

Performance of fundraising activities against objectives set	Para 1.41
Investment performance against objectives	Para 1.41
Other

Financial Review

Review of the charity’s financial position at the end of the period	Para 1.21	The charity is in a good financial position at the end of the period. We held a social gathering for members in September 2022 which was very successful. We have continued to hold zoom meetings in between face to face events. We are looking to hold a conference in 2023 which we will begin planning later on this year. Fundraising and donations have continued both online and through fundraising events increasing the amount of funds available to use for future events.
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	Reserves will be held to cover the costs of outgoings such as insurances, zoom membership and any other costs that will be beneficial to the charity in supporting members.
Amount of reserves held	Para 1.22	£350.00
Reasons for holding zero reserves	Para 1.22	N/A
Details of fund materially in deficit	Para 1.24	N/A
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	N/A

Additional information (optional) You may choose to include further statements where relevant about:

The charity’s principal sources of funds (including any fundraising)	Para 1.47
Investment policy and objectives including any social investment policy adopted	Para 1.46
A description of the principal risks facing the charity	Para 1.46
Other

Structure, Governance and Management

Description of charity’s trusts:
Type of governing document (trust deed, royal charter)	Para 1.25	Constitution dated 11 November 2019
How is the charity constituted? (e.g unincorporated association, CIO)	Para 1.25	Charitable Incorporated Organisation
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	Trustees are appointed or reappointed annually at a Trustees (Members) Meeting held in November.

Additional information (optional) You may choose to include further statements where relevant about:

Policies and procedures adopted for the induction and training of trustees	Para 1.51
The charity’s organisational structure and any wider network with which the charity works	Para 1.51
Relationship with any related parties	Para 1.51
Other		DBS check in progress for one Trustee, all others are DBS checked.

Reference and Administrative details

Charity name	HME–The New Generation
Other name the charity uses	n/a
Registered charity number	1186351
Charity’s principal address	1 North Place, Headington, Oxford OX3 9HX

Names of the charity trustees who manage the charity

Trustee name	Office (if any)	Dates acted if not for whole year
Helen Small	Chair
Lynda Tams	Secretary
Samantha Searle	Treasurer
Leigh Edwards
Kate McEvoy
Dawn Searle
Rob Searle
Adam Tams
Jess Wernham		3.4.22-11.2.23
Minna Korjonen		20.12.22-2.4.23
Hannah Whitelock		20.12.22-2.4.23

– Corporate trustees names of the directors at the date the report was approved Director name n/a

Name of trustees holding title to property belonging to the charity

Trustee name	Dates acted if not for whole year
n/a

Funds held as custodian trustees on behalf of others

Description of the assets held n/a in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects

Details of arrangements for safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Type of adviser	Name Address	Name Address
n/a

Name of chief executive or names of senior staff members (Optional information)

n/a

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Helen May Small

Position (eg Secretary, Chair Chair, etc)

Date 14.9.23

HME-The New Generation	HME-The New Generation	No 1186351
Receipts andpayments accounts			CC16a
For the period from	4/3/2022	To 4/2/2023

Section A Receipts and payments
A1 Receipts Fundraising 467 Donations 300 Social event income 435 - - - - - 1,202 - - Sub total - Total receipts 1,202 A3 Payments Insurances 128 Zoom subscription 144 FundraisingRegulator 50 Social event expenses 721 DBS checks 30 Justgivingdonation 25 - - - Sub total 1,097 - - Sub total - Total payments 1,097 Net of receipts/(payments) 105 A5 Transfers between funds - A6 Cash funds last year end - Cash funds this year end 105 Unrestricted funds to the nearest £ *Sub total*(Gross income for AR) A2 Asset and investment sales, (see table). A4 Asset and investment purchases, (see table)	to the nearest £ Restricted funds	to the nearest £ Endowment funds	Total funds to the nearest £	Last year to the nearest £
	- - - - - - - - -	- - - - - - - - -	467 300 435 - - - - - 1,202	1,346
				250
				-
				-
				-
				-
				-
				-
				1,596

	- - -	- - -	- - -
				-
				-

	-	-	1,202	1,596

	- - - - - - - - - -	- - - - - - - - - -	128 144 50 721 30 25 - - - 1,097	128
				144
				50
				-
				-
				-
				-
				-
				-
				322

	- - -	- - -	- - -

				-

	-	-	1,097	322

	- - - -	- - - -	105 - - 105	1,274
				-
				-
				1,274

Section B Statement of assets and liabilities at the end of the period

Categories B1 Cash funds B2 Other monetary assets B3 Investment assets B5 Liabilities B4 Assets retained for the charity’s own use Signed by one or two trustees on behalf of all the trustees	Details Bank Details Details Details Details Signature *Total cash funds* (agree balances with receipts and payments account(s)) Badges for sale (number remaining 30) at cost price (1)	to nearest £ to nearest £ 105 - - - - - 105 - OK OK to nearest £ to nearest £ 44 - - - - - - - - - - - Cost (optional) - - - - - Cost (optional) - - - - - - - - - - - - - - Print Name Unrestricted funds Restricted funds Unrestricted funds Restricted funds Fund to which asset belongs Fund to which asset belongs Fund to which liability relates Amount due (optional)	to nearest £ Endowment funds
			-
			-
			-
			-
			OK
			to nearest £ Endowment funds
			-
			-
			-
			-
			-
			-
			Current value (optional)
			-
			-
			-
			-
			-
			Current value (optional)
			-
			-
			-
			-
			-
			-
			-
			-
			-
			When due (optional)






			Date of approval

(1) Badges with logo on - bought in June 2019 and sold to raise funds for charity. Price

e shown is the cost price as this is current value.