## **Trustees’ Annual Report for the period** ## **From 03.04.22 To 02.04.2023** ## **Charity name: HME-The New Generation** ## **Charity registration number: 1186351** ## **Objectives and Activities** ||SORP
reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|The object of the CIO is to preserve and
protect good health for the public
benefit among persons suffering from
Hereditary Multiple Exostoses (HME)
their families and other carers, and to
relieve needs arising from the
condition, in particular but not exclusively
by:
a) providing support forums, information,
practical advice and emotional
support for sufferers of HME, their families
and other carers.
b) raising public awareness of HME
through the provision of information
designed to inform and educate the general
public and the medical profession
about the condition.| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|‘Those affected by HME’ includes sufferers
and anyone with a connection to that
person.
Facebook closed support group offering
emotional support, information and a
platform where those affected by the rare
condition, HME, can communicate with
each other and offer mutual support.
Quarterly Zoom meetings for members
offering support and interaction. This
offers a different platform for sufferers to
chat with others and share experiences,
offering mutual support and relieves
feelings of isolation. In the reported year,
this included focussed topic related
meetings eg. ‘Sharing coping mechanisms
and experiences of surgery’.
Occasional social meetings on Zoom for
support and interaction. These are based on| |||building camaraderie and friendship for
those in the HME community, eg. a ‘Quiz
Night’ or a social event for young people
and their families.
Sale of badges to raise awareness.
Occasional sales are made.
Information sheets. For example, it is
sometimes helpful for a parent to hand a
teacher a booklet with more information
about their child’s condition and how this
affects their day. Equally an information
sheet on HME is often helpful for an
employer to understand any reasonable
adjustments.
The charity aims to organise an annual
face-to-face meeting for its members. This
offers guest speakers who either specialise
in the condition or offer motivational
support. This meeting is also open to
members of the public and health
professionals who want to learn more about
HME.
The charity has a website which provides
information about the condition and
signposts to the Facebook Group.
A regular newsletter is produced as a
further method of communicating with
members and this is also made available to
those outside of the charity.| |---|---|---| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|We have planned activities to meet the
charity’s Objects and in doing so have been
mindful of the Charity Commission’s
guidance on public benefit.| ## **Additional information (optional)** You may choose to include further statements where relevant about: ||
SORP
reference|| |---|---|---| |Policy on grant making|Para 1.38|| |Policy on social investment
including program related
investment|Para 1.38|| |Contribution made by|Para 1.38|The Trustees are all volunteers and are
grateful to others who volunteer their time
to aid with the work of supporting those| |volunteers||affected by HME.| |---|---|---| |Other||| ## **Achievements and Performance** ||SORP
reference|| |---|---|---| |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|Due to uncertainty post-pandemic it was
decided to offer a face-to-face social event
to the members in the autumn of 2022
rather than a speaker conference. This
offered the opportunity to meet others
affected by HME in a safe and supportive
space, while providing fun activities for
children and adults alike. This promoted
wellbeing and a sense of community with
many members making their own
connections with the result of mutual
support.
The Zoom support and topic specific
meetings continued to be held in this
period, reducing feelings of isolation to
those who are unable to travel to face-to-
face meetings.
These activities are for all ages. As well as
providing support, the nature of the face-to-
face meetings raises awareness of HME
amongst the broader public such as those
staff connected with a venue and other
peripherary staff such as providers of
services eg. food, refreshments.| ## **Additional information (optional)** You may choose to include further statements where relevant about: |Achievements against
objectives set|Para 1.41| |---|---| |Performance of fundraising
activities against objectives
set|Para 1.41|| |---|---|---| |Investment performance
against objectives|Para 1.41|| |Other||| **Financial Review** |Review of the charity’s
financial position at the end
of the period|Para 1.21|The charity is in a good financial position at
the end of the period. We held a social
gathering for members in September 2022
which was very successful. We have
continued to hold zoom meetings in
between face to face events. We are looking
to hold a conference in 2023 which we will
begin planning later on this year.
Fundraising and donations have continued
both online and through fundraising events
increasing the amount of funds available to
use for future events.| |---|---|---| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|Reserves will be held to cover the costs of
outgoings such as insurances, zoom
membership and any other costs that will be
beneficial to the charity in supporting
members.| |Amount of reserves held|Para 1.22|£350.00| |Reasons for holding zero
reserves|Para 1.22|N/A| |Details of fund materially in
deficit|Para 1.24|N/A| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|N/A| ## **Additional information (optional)** You may choose to include further statements where relevant about: |
The charity’s principal
sources of funds (including
any fundraising)|
Para 1.47|| |---|---|---| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|| |A description of the
principal risks facing the
charity|Para 1.46|| |Other||| **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document
(trust deed, royal charter)|Para 1.25|Constitution dated 11 November 2019| |How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|Charitable Incorporated Organisation| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Trustees are appointed or reappointed
annually at a Trustees (Members) Meeting
held in November.| ## **Additional information (optional)** You may choose to include further statements where relevant about: |
Policies and procedures
adopted for the induction
and training of trustees|
Para 1.51|| |---|---|---| |The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|| |Relationship with any
related parties|Para 1.51|| |Other||DBS check in progress for one Trustee, all
others are DBS checked.| ## **Reference and Administrative details** |Charity name|HME–The New Generation| |---|---| |Other name the charity uses|n/a| |Registered charity number|1186351| |Charity’s principal address|1 North Place, Headington, Oxford OX3 9HX| ||| **Names of the charity trustees who manage the charity** |1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for**
**whole year**|**Name of person (or body)**
**entitled to appoint trustee**
**(ifany)**| |---|---|---|---|---| ||Helen Small|Chair||| ||Lynda Tams|Secretary||| ||Samantha Searle|Treasurer||| ||Leigh Edwards|||| ||Kate McEvoy|||| ||Dawn Searle|||| ||Rob Searle|||| ||Adam Tams|||| ||Jess Wernham||3.4.22-11.2.23|| ||Minna Korjonen||20.12.22-2.4.23|| ||Hannah Whitelock||20.12.22-2.4.23|| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| – Corporate trustees names of the directors at the date the report was approved **Director name n/a** Name of trustees holding title to property belonging to the charity |**Trustee name**|**Dates acted if not for**
**whole year**|| |---|---|---| |**n/a**||| |||| |||| |||| |||| |||| ## **Funds held as custodian trustees on behalf of others** Description of the assets held n/a in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** |**Type of**
**adviser**|**Name**
**Address**|**Name**
**Address**| |---|---|---| |**n/a**||| |||| |||| |||| **Name of chief executive or names of senior staff members (Optional information)** n/a ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details ## **Other optional information** **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s) Full name(s)** Helen May Small **Position (eg Secretary,** Chair **Chair, etc)** **Date** 14.9.23 |**HME-The New Generation**|**HME-The New Generation**|**No 1186351**|| |---|---|---|---| |**Receipts andpayments accounts**|||**CC16a**| |**For the period**
**from**|4/3/2022|**To**
4/2/2023|| |**Section A Receipts and payments**||||| |---|---|---|---|---| |**A1 Receipts**
Fundraising
**467**
Donations
**300**
Social event income
**435**
**-**
**-**
**-**
**-**
**-**
**1,202**
**-**
**-**
**_Sub total_ -**
**_Total receipts_ 1,202**
**A3 Payments**
Insurances
**128**
Zoom subscription
**144**
FundraisingRegulator
**50**
Social event expenses
**721**
DBS checks
**30**
Justgivingdonation
**25**
**-**
**-**
**-**
**_Sub total_ 1,097**
**-**
**-**
**_Sub total_ -**
**_Total payments_ 1,097**
**_Net of receipts/(payments)_ 105**
**A5 Transfers between funds**
**-**
**A6 Cash funds last year end**
**-**
**_Cash funds this year end_ 105**
**Unrestricted**
**funds**
**to the nearest £**
**_Sub total_**_(Gross income for AR)_
**A2 Asset and investment sales,**
**(see table).**
**A4 Asset and investment**
**purchases, (see table)**|**to the nearest £**
**Restricted**
**funds**|**to the nearest £**
**Endowment**
**funds**|**Total funds**
**to the nearest £**|**Last year**
**to the nearest £**| ||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**467**
**300**
**435**
**-**
**-**
**-**
**-**
**-**
**1,202**|**1,346**| |||||**250**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**1,596**| |||||| ||**-**
**-**
**-**|**-**
**-**
**-**|**-**
**-**
**-**|| |||||**-**| |||||**-**| |||||| ||**-**|**-**|**1,202**|**1,596**| |||||| ||**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**128**
**144**
**50**
**721**
**30**
**25**
**-**
**-**
**-**
**1,097**|**128**| |||||**144**| |||||**50**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**322**| |||||| ||**-**
**-**
**-**|**-**
**-**
**-**|**-**
**-**
**-**|| |||||| |||||**-**| |||||| ||**-**|**-**|**1,097**|**322**| |||||| ||**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**|**105**
**-**
**-**
**105**|**1,274**| |||||**-**| |||||**-**| |||||**1,274**| ## **Section B Statement of assets and liabilities at the end of the period** |**Categories**
**B1 Cash funds**
**B2 Other monetary assets**
**B3 Investment assets**
**B5 Liabilities**
**B4 Assets retained for the**
**charity’s own use**
Signed by one or two trustees on
behalf of all the trustees|**Details**
Bank
**Details**
**Details**
**Details**
**Details**
Signature
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
Badges for sale (number remaining 30) at
cost price (1)|**to nearest £**
**to nearest £**
**105**
**-**
**-**
**-**
**-**
**-**
**105**
**-**
OK
OK
**to nearest £**
**to nearest £**
**44**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
Print Name
**Unrestricted**
**funds**
**Restricted**
**funds**
**Unrestricted**
**funds**
**Restricted**
**funds**
**Fund to which**
**asset belongs**
**Fund to which**
**asset belongs**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**|**to nearest £**
**Endowment**
**funds**| |---|---|---|---| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||OK| ||||**to nearest £**
**Endowment**
**funds**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**When due**
**(optional)**| ||||| ||||| ||||| ||||| ||||| ||||| ||||Date of
approval| ||||| ||||| (1) Badges with logo on - bought in June 2019 and sold to raise funds for charity. Price e shown is the cost price as this is current value.