Timothy Syndrome Alliance (tsa)
Timothy Syndrome Alliance, Tsa
- Country
- England & Wales
- Charity number
- 1185523
- Status
- Registered
- Registered
- Sept. 27, 2019
- Legal form
- CIO
Address
- Address
- 8 Butt Street
Minchinhampton
Stroud
GL6 9JP
Contact
- Phone
- 07941881340
- [email protected]
- Website
timothysyndrome.org
Activities
Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment.
Objects: The Objects Of The CIO Are To Relieve The Needs Of Those Affected By Deleterious Cacna1c Gene Changes Resulting In Cacna1c-Related Disorders Including Timothy Syndrome And Long Qt8, Their Families And Carers Worldwide In Particular But Not Exclusively By:- (1) Promoting Greater Understanding Of The Causes, Symptoms And Treatment Of Cacna1c-Related Disorders Including Timothy Syndrome And Long Qt8, By The Promotion Of Research And Sharing And Disseminating Of The Results Of Such Research For The Benefit Of The General Public; (2) Raising Public Awareness Of The Symptoms, Needs And Related Medical Conditions Of Those Living With Cacna1c-Related Disorders Including Timothy Syndrome And Long Qt8.
Classification
- How
- Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, People With Disabilities
Areas of operation
- Region
- Throughout England
Finances
| Period end | Income | Expenditure |
|---|---|---|
| Nov. 30, 2025 | £205,304 | £128,996 |
| Nov. 30, 2024 | £93,687 | £19,756 |
| Nov. 30, 2023 | £21,405 | £12,305 |
| Nov. 30, 2022 | £10,005 | £4,706 |
| Nov. 30, 2021 | £6,084 | £3,226 |
Trustees
| Name | Appointed |
|---|---|
| Sophie Muir (Chair) | Sept. 27, 2019 |
| Achsah James | Nov. 6, 2024 |
| Dr Christine Ziegler | Sept. 10, 2025 |
| Galina Gardiner | Sept. 27, 2019 |
| Gemma Duncan | March 11, 2024 |
| Glenn Miller | Sept. 10, 2025 |
| Meg McLaughlin | Sept. 27, 2019 |
| Nicholas Muir | Sept. 27, 2019 |
| Susan Bresnahan | June 11, 2024 |