{"country": "England & Wales", "charity_number": "1185523", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1185523", "name": "TIMOTHY SYNDROME ALLIANCE (TSA)", "known_as": null, "other_names": [{"name": "TIMOTHY SYNDROME ALLIANCE", "name_type": "Working name"}, {"name": "TSA", "name_type": "Working name"}], "status": "Registered", "date_registered": "2019-09-27", "date_removed": null, "legal_form": "CIO", "area_of_benefit": null, "address": "8 Butt Street, Minchinhampton, Stroud", "postcode": "GL6 9JP", "phone": "07941881340", "email": "sophie@timothysyndrome.org", "website": "www.timothysyndrome.org", "lat": 51.705888, "lng": -2.185238, "activities": "Timothy Syndrome Alliance (TSA) supports individuals with CACNA1C-Related Disorders, including Timothy Syndrome and Long QT8, and their families/carers. From the UK, we provide guidance, information, and advocacy to families worldwide, raise awareness, and promote research and clinical development to improve understanding, care, and treatment.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF THOSE AFFECTED BY DELETERIOUS CACNA1C GENE CHANGES RESULTING IN CACNA1C-RELATED DISORDERS INCLUDING TIMOTHY SYNDROME AND LONG QT8, THEIR FAMILIES AND CARERS WORLDWIDE IN PARTICULAR BUT NOT EXCLUSIVELY BY:- (1) PROMOTING GREATER UNDERSTANDING OF THE CAUSES, SYMPTOMS AND TREATMENT OF CACNA1C-RELATED DISORDERS INCLUDING TIMOTHY SYNDROME AND LONG QT8, BY THE PROMOTION OF RESEARCH AND SHARING AND DISSEMINATING OF THE RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE GENERAL PUBLIC; (2) RAISING PUBLIC AWARENESS OF THE SYMPTOMS, NEEDS AND RELATED MEDICAL CONDITIONS OF THOSE LIVING WITH CACNA1C-RELATED DISORDERS INCLUDING TIMOTHY SYNDROME AND LONG QT8.", "classifications": [{"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England"}], "latest_income": 205304, "latest_expenditure": 128996, "fin_period_start": "2024-12-01", "fin_period_end": "2025-11-30", "financial_years": [{"start": "2024-12-01", "end": "2025-11-30", "income": 205304, "expenditure": 128996, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2023-12-01", "end": "2024-11-30", "income": 93687, "expenditure": 19756, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2022-12-01", "end": "2023-11-30", "income": 21405, "expenditure": 12305, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2021-12-01", "end": "2022-11-30", "income": 10005, "expenditure": 4706, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}, {"start": "2020-12-01", "end": "2021-11-30", "income": 6084, "expenditure": 3226, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "SOPHIE MUIR", "chair": true, "appointment": "2019-09-27"}, {"name": "Achsah James", "chair": false, "appointment": "2024-11-06"}, {"name": "Dr Christine Ziegler", "chair": false, "appointment": "2025-09-10"}, {"name": "Galina Gardiner", "chair": false, "appointment": "2019-09-27"}, {"name": "Gemma Duncan", "chair": false, "appointment": "2024-03-11"}, {"name": "Glenn Miller", "chair": false, "appointment": "2025-09-10"}, {"name": "Meg McLaughlin", "chair": false, "appointment": "2019-09-27"}, {"name": "Nicholas Muir", "chair": false, "appointment": "2019-09-27"}, {"name": "Susan Bresnahan", "chair": false, "appointment": "2024-06-11"}]}