OpenCharities

Arthur's Quest

Slc6a1connectuk

Country
England & Wales
Charity number
1185380
Status
Registered
Registered
Sept. 18, 2019
Legal form
CIO

Address

Address
4 Hopgarden Road
TONBRIDGE
Kent
TN10 4QS

Contact

Activities

Fundraising for research and development, and raising awareness of the rare neurodevelopmental condition SLC6A1. Facilitating collaborative partnerships across relevant professions, and ensuring the patient community are engaged and involved in R&D wherever possible. Education is provided to the patient community, breaking down scientific publications with ley summery. Member of SLC6A1 Europe.

Objects: The Objects Of The CIO Are To Relieve The Sickness Of Individuals With A Pathogenic Genetic Variant In The Slc6a1 Gene, In Particular, But Not Exclusively By: (1) Supporting Research Into The Condition; (2) Providing Information, Advice And Support To Such Individuals, Their Families And Carers; And (3) Raising Public Awareness Of The Condition.

Classification

How
Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, People With Disabilities

Areas of operation

Country
Ireland, Isle Of Man, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £26,906 £16,863
March 31, 2024 £6,849 £9,720
March 31, 2023 £7,327 £903
March 31, 2022 £2,556 £125
March 31, 2021 £439 £2

Trustees

Name Appointed
Lindsay Randall (Chair) Sept. 18, 2019
Alexandra Duncum Sept. 18, 2019
Helen Newton Jan. 16, 2026