# ARTHUR&#x27;S QUEST

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1185380
- **Other names:** SLC6A1CONNECTUK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Sept. 18, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1185380


## Contact

- **Address:** 4 Hopgarden Road, TONBRIDGE, Kent
- **Postcode:** TN10 4QS
- **Phone:** 07795 101258
- **Email:** contact@arthursquest.org
- **Website:** www.arthursquest.org



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE TO RELIEVE THE SICKNESS OF INDIVIDUALS WITH A PATHOGENIC GENETIC VARIANT IN THE SLC6A1 GENE, IN PARTICULAR, BUT NOT EXCLUSIVELY BY: (1) SUPPORTING RESEARCH INTO THE CONDITION; (2) PROVIDING INFORMATION, ADVICE AND SUPPORT TO SUCH INDIVIDUALS, THEIR FAMILIES AND CARERS; AND (3) RAISING PUBLIC AWARENESS OF THE CONDITION.

**Activities:** Fundraising for research and development, and raising awareness of the rare neurodevelopmental condition SLC6A1.  Facilitating collaborative partnerships across relevant professions, and ensuring the patient community are engaged and involved in R&amp;amp;D wherever possible. Education is provided to the patient community, breaking down scientific publications with ley summery. Member of SLC6A1 Europe.




## Classification

- **How:** Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Geography

- Ireland
- Isle Of Man
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Lindsay Randall** | Chair | Sept. 18, 2019 |
| Alexandra Duncum |  | Sept. 18, 2019 |
| Helen Newton |  | Jan. 16, 2026 |




