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Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Contents Page Our vlslon and mlsslon Introductlon Our bellefs Our values Meet the team Tlmellne of events Achlevements and performances for 2023 Our year In numbers Fundralslng hlghllghts Feedback from parents and professlonals Fundlng Flnanclal revlew 10-18 19 20-21 22-23 24 25 Structure, governance and management Reference and admlnlstratlve Informatlon 26 27 Statement of the trustees 28 Statement of flnanclal actlvltles 29 Balance sheet at 31 August 2023 Notes to the flnanclal statements 30 31-37 Independent examlner's report 38
Our vision A worLd where everyone with Down Syndrome Lives their best life Our mission To empower parents & caregivers; to educate professionals; to enlighten the public: to lobby policy makers
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Introduction The Board of Trustees present thelr Annual Report for the year ended 31 August 2023 under the Charltles Act 2011, together wlth the flnon¢lal statements for the year. The Board conflrms that the latter comply wlth the requlrements of the Charltles Act 2011, the trust deed and the Charltles SORP FRS 102 (2019). BeLiefs and aims for 2022 Down Syndrome UK works to improve the lives of people with Down syndrome. and their families. We primarily work in maternity care and the early years providing resources, training and support to parents and professionals to empower those with Down syndrome to thrive and flourish. We believe every parent should recelve the best possible care and support. Objects of the Charity Relief of those in need by reason of parents and families of children and young people with Down syndrome in the UK through the provision of a forum that provides accurate up to date information on the realities of living with Down syndrome and is a central hub of information and resources for the condition. We believe the arrival of every baby with Down syndrome should be celebrated. We believe every chlld with Down syndrome should be given every opportunity to flourish and thrive. To enact these bellefs, we have 4 core aims which underpin our work: 1. Raising awareness of the modern reality of living with Down syndrome in the UK today. The objects are exclusively for the public benefit to promote the effectiveness or efficiency of ch8rities nd to advance any other charitable purpose within the meaning of English Law. 2. Connecting parents of children with Down syndrome to experts, best practlce, and each other. 3. Ensuring all children with Down syndrome have the best start in life, and access to the support to enable them to live their lives to the full. The Trustees have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the Charity s purposes and aims, and when planning future activities. In particular, we consider how planned activities will contribute to the achievement of the objectives and aims. 4. Helping parents, the public, professionals. policy makers. and politicians to celebrate and support people with Down syndrome as valued and important members of society.
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 At DSUK we believe in Equality The discrimination around Down syndrome must be challenged and addressed, so that people with Down syndrome and their families, should be treated with the same respect and care as anybody else. Inclusion Every child with Down syndrome should have the opportunity to be fully included in mainstream settings - both In and outside of education. Research To improve the lives of people with Down syndrome.
Our values Real Collaborative We honestly and authentlcally reflect the experience of having a child or young person with Down Syndrome, because we have the lived experience. We create a nuturlng envlronment for those we work with to enable relatlonships to flourish and for all involved to contribute positively towards our misslon. Practical Challenging We provide meaningful support, training and information to empower families and professionals. We work hard to change & challenge outdated perceptionslattitudes. 'We are not afraid to address the elephant in the room., Impactful Everything we do is with the intention to positively impact our families.
Down Syndrome UK Trnstees. Afinual Report 2022-23 Meet the team Trustees Casimir Knight hu Richard Baker Caroline Warren Jude Simpson Staff Nicola Enoch CEO Tracy Osbourne- Foulkes Farah Cutler Holli She8h•n Rachel Hristov Op•IatlOD M¢Trnig•i Meo1• M•n•g•r Vlcky Prlce.John Jennifer McGeeney Frpelance", . Lucience Coope¥ Caroline Turner Sarah Ojar Amy-Loui5e Roche June Roger5 MBE P%iront Supportei Sue Au¢utt Coun5ellor Sandra Redman Eorly YÈars Trcliner Dr Becky Baxter Donna Murphy MaggiÈ Hart Primary School Trainpr Speech LETrnguage Patrons Leon Harrop Noah Matthews Matofsky Heidi & James Carter Christopher E¢¢leston
Down Synlknme UK TNsteeJ' Annual Rewt 2022.33 Timeline 01 January nls45chool' t tralnlng adv 01* 2019 December" 'New Paren p l& December real Expectatlon or pregnant tnum launched 2017 01 September PADS Wetjslte Launched (ktobor pport ag 18unc 02(5 Aprll 'Preschool t5, nch Augu9t ADS Dads. pport gr launche May 'PADS Carès upport grou launched Dpc•mb•r •ag ••" feedlng ort gro unched 02 July '16+ parents oun peoplÈi& wn plo Aprll 7he Dow ndrome en8¢t•d 2020 2022 Ju December L8unch antenat81 care p8thway wlt Si George hospltal S•pt•mb•r 'PADS Prlmary Parents. support group launched 2021 September PADS Party in th Park 021 January .5 1 Hlf5chpru 2021 02 October Exhlblted at Royal ollege o Midwive February condary 5th 89e support launched Iwn 20231 March Brttlsh Journal ol Midwifery , Sonlerèno r 02 October ched 8 nai algn. exhl Mor¢h Royal College 202 2023 May ,E4PS cares lor r1 t5. AugLb5t PADS Care parcels launched
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Achievements and performances for 2023 In our fourth year as a registered Charity, DSUK has grown significantly in income and activities, expanding our resources, support, outreach, and engagement. DSUK is immensely proud of the wide range of resources and services that we offer. Initially focused on expectant and new parents, in response to demand, we extended our support to families with children in primary schools. Experienced volunteers and experts moderate our extensive range of closed Facebook groups, providing peer support and helping to identify issues needing attention. Slnce inception, we've provided lived experiences to expectant and new parents via our website, distributing contemporary literature to maternity staff. We've enhanced our website and published #NobodyToldMe'. the truth about Down syndrome, sent to expectant and new parents. We have welcomed more than 300 babies through our Great Expectations group and supported over 1,500 new parents. We appointed Tracy Osborne-Foulkes as Operations Manager to support our CEO. Tracy had worked with us as a Regional Maternity Coordinator and demonstrated her excellent organisational skills. We further strengthened the team by appointing Jennifer McGeeney to provide admin support to our Training Manager. Amy Roche joined as our Parent Supporter, providing invaluable support to expectant and new parents. We were delighted to welcome Noah Matthews Matofsky, an inspiring actor, as a Patron.
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Achievements and performances for 2023 Our online Early Development Groups and Physiotherapy Support provide essential information and support. These initiatives, developed and led by experienced experts, empower families with knowledge and practical advice, promoting early development and the opportunity for our children to flourish and thrive. In August 2023, we launched PADS Care Parcels for children with extended hospital stays, containing carefully curated gifts, treats and practical items as recommended by our parents. DSUK values the importance of supporting mental health and wellbeing. Our weekly online yoga TomFit sessions promote holistic family wellbeing. Since 2020, we've provided independent professional counselling to individuals and groups, Including bereaved parents. In September, we were excited to host more family get-togethers at our fabulous PADS Parties in the Park, with sessions in Cheshire and Buckinghamshire. Once again, Patrons Heidi and James joined us and enjoyed meeting over 120 families! Our new merchandise was a hit, and provided wonderful photo opportunities. Our Grandparents group remains active, with new support offered for bereaved grandparenls, kindly funded by Freddie's Wishes. To better support dads, we launched a WhatsApp group and commissioned podcasts featuring their experiences. We were delighted to be finalists at the Nursing Times Awards for our highly impactful #Pants4School initiative, with over 4,500 parents and professionals accessing our free support. Our toilet training boot camps remain very popular, with many families from across the UK attending sessions. We continLte our pioneering work around educating and empowering parents and professionals about consti pation, condition that affects many of our preschool children. You li Flnalis*at the es Awardk
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Achievements and performances for 2023 We are committed to supporting our mothers who wish to breastfeed with peer support information and guidance. Our Breastfeeding Supporter, Sarah Ojar, has developed a breastfeeding training module for professionals and regularly delivers online sessions to expectant and new parents. In June, DSUK exhibited at UKIO'S Congress in Liverpool. where Nicola and patron Heidi were guest speakers. We also presented at the Virtual International Midwifery Conference extending our reach beyond the UKI On World Down Syndrome Day, our CEO Nicola Enoch published an article with the OECD, spoke at the Britlsh Journal of Midwifery's Annual Conference, attended a celebratory event at the Houses of Parliament with our friends from the National Down Syndrome Policy Group, and the Charity Film Awards at Leicester Square as a finalist. HOW WF SUPPORT MIDWIVES SUT RYDYM ' 14 CEFNOGI IOVJRAGEDD u0 8MII Whoiw•dp... 12
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Achievements and performances for 2023 SYNDROMEr Our advocacy and campaignlng work Included a photography exhlbition at the Houses of Parliament. The campaign - You Can't Put Me Down Syndrome - was produced in collaboration with VMLY&R and attracted signlficant medla attention and support from over 60 Parliamentarians. IIITRO JT- SYID 13
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Achievements and performances for 2023 Tollet Sklll Development Programme Training Manager Lucienne Cooper delivered training to over 2.200 medical professionals and students. Our powerful training module, based on our research 'Sharing the News - the Maternity Experience. of 1,410 women, highlights best practices, the importance and impact of language and attitudes, how to share the news that a baby haslmay have Down syndrome and having a contemporary understanding of Down syndrome, twinkl We expanded our training for education professionals, publishing resources for parents and educators. Our collaboration with Twinkl extends our reach to 14 million users. We delivered tralning sesslons on over 20 topics, including will writing, guardianship. sleep apnoea, dysphagia. EHCPS, early toileting skills, audiology, weaning. positive behaviour and early communication skills. i. We continue to invest time, money and resources in collaborating with maternity units across the UK. Our Regional Maternity Coordinators doubled our reach from 70 to 150 maternity units, ensuring a supply of PADS resources is available to expectant and new parents. We actively support and promote research, with ongoing projects with the University of Hertfordshire on tube feeding. the maternity experience with the University of Warwick and probiotics to alleviate constipation with UCL. We presented again at the Down Syndrome Research Forum and exhibited at the Royal College of Midwives Research Forum in Birmingham. 14
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Achievements and performances for 2023 We attended maternity festivals and events, including exhibiting at the Royal College of Midwives conference in Cardiff, where maternity professionals were delighted to learn about PADS'S services and resources. Wanting to extend our reach, we once again exhibited at the Primary Care Event at the NEC, where we engaged with GPS, health visitors, continence and school nurses. Since 2015, Nicola has been organising and hosting an annual networking event to which the 100+ local groups are invited. In October 2022, the network conference was once again well attended, with both external speakers and those from within the community speaking on a range of topics. We enjoyed another successful fundraising year, wlth fantastic support from our community with various initiatives, including the PADS Sunf lower Challenge aimed at nurseries and early years settings and an online draw for signed copies of George Webster's book This is me. Dragon's Den favourites, Stand Out Socks collaborated with us to create a PADS sock that stood out and sold out! We are grateful to the National Lottery for a grant from their Reaching Communities grant, to The Scorfen Trust and Dorothy Pamela Smith CIO for their generous support. 'IT v I CtrFNQtyI 'uWHAOIOD At DSUK, we have always valued and appreciated the fantastic work local regional groups undertake nationwide, and we work hard to dovetail and complement their work. Aware that many groups do not have the capacity or resources to undertake the breadth of seNices our families benefit from, we identify where knowledge. support and information are lacking and develop resources and ongoing support accordingly. 15
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Achievements and performances for 2023 DSUK has created an amazing community through our PADS parent facing groups, and we are always thrilled at how many families give of their time to support others. We appreciate the fantastic work of our volunteers, from social medla support to knitting hats and bonding squares for new babies. PADS Heart Buddies supported more than 60 familles whose child underwent heart surgery and we have more than 40 awaiting surgery special than ks to Rozie Haines, who, since March 2021, has kindly coordinated PADS Heart Buddies. We are immensely grateful for the community's phenomenal support, which enables DSUK to remaln a thrivin99 proactive and practical charity, working hard to ensure people with Down syndrome can live their best lives. 16
They made contoct wlth us stralght oway ond added us Into the New Parent group. It was the flrst tlme slnce Down Syndrome was flrst mentloned to us Immedlately after blrth that we dldn't feel pelrlfled. We recelved the lovellesl pack In the post wlth lot$ of resources to help us on thls Journey and they have been supportlng us as a famlly ever slnce. We have been w•icomed Into an onuno communlty thot Isjust 50 supportlve ond have also been lucky enough to meet a lot of other famlues In person ot the yearly famlly doys both Sn the North and South of the country. I honestly don't know where we would be wlthout theml The MacDonald FamlLy
Massive thanks to Nicola and everyone at PADS - I honestly don't know where I'd be without PEGS and POPS helping me to support Sam, this is a lovely safe place to ask all the questions (or search for them) and the endless support whenever required. The work you all do is amazing. Laura, mum to Sam ••
Dowfi Syndrome UK Trnses' Annual Report 2022-23 9,129 parents and professionals were supported by Down Syndromè UK in 2022-2023 Our year in numbers We supported: 97 887 E¥peclant women 1,699 New parents Preschool parents 62 Families through heart surgery babies aw8illng surgery Heart Buddies 11 11 Heart Buddles Volunteer's 4,626 Families and professionals accessing Pénls4School •830 648 Preschool Primary schoo15 Secondary schools & 16+ Number of professlonal members: '%dsuk iyndrorn• u Professionals in preschool settings 543 11 Professiona15 in primary schools Region81 support groups Numb•r of Profesonal$ tralnod: 2,227 567 •••••• Health care professionals and students accessed training through 69 events 11 Maternity professionals Superstar volunteers 19
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Fundraising highlights from the past 12 months Teddy's Trundle Sky Dlve CardSff Half Marathon Charli, a PADS parent, organised We had seven thrill-5eeking Teddy's Trundle. A walk from Peel supporters lake to the skies for to Douglas on 8 21km adventure sky dive and collectwely raised an ending at Douglas Prom. They Incredlble £17,361. raised an incredible £4,921. A team of S from UKLS took on the Cardiff Half Marathon. raising £1,762 in support of PADS. Appalachian Trail 1,000,000 Steps Ilsh Channel Swim Paul Hills. one of our grandparents. hiked the Appalachian trail. He had to cut his adventure short but returned a second time to see how much further he could get. His fundraiser raised £500. Gilly Wynne set a challenge of 1,000,000 steps in 3 months and raised £1,551. She said, "I wanted to support a charity that as been an absolute lifesaver for a friend of mine.- Nicole Murray is a wonderful Speech and Language Therapist who has worked with DSUK for 3 years. Nicole was part of a 4- person relay teaffl. swimming the English Channel and she raised an incredible £2,380 for us. 20
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Fundraising highlights from the past 12 months Tough Mudder 8ung•• Jump The operatlons team from FNe Guys took on Tough Mudder to support their training manager Ryan, wife Sarah and their son Con811 who h85 Down syndrome. Ryan Said, 'Our son Conall was blessed with an extra chromosome. 8nd he is such a special. inspirational boy. We will work tirelessly to raise pos11ive awareness and make the world see th81 children born with Down syndrome desetve equ81ityl Conall's smile lights up the room and he adores his big sister more than anyonel One of the captions for Down syndrome is'theluckyfew. and we genuinely believe that we are the luckiest parents in the world to have Orlaith 8nd Conall." They raKsed £2,184. Melody Barnes, another of our thrill.seeking PADS parents, took on a bungee jump and raised £2,8861 Melody s8id,-I would like to be able lo ralse money for PADS. not only to give back to th8nk them for the help that they have given me and my family. but to be able to allow them to continue helping families in the way that they have helped mine-. 21
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Feedback from parents and professionals && && PADS has been an absolute lifeline. Without it, I don't know how we would have coped. From feeling so scared and alone, we can now see an exciting positive future for our son, and know that PADS is there to hold our hands all the way. Saioh. muni to Charlio. Nobody gets it unless you're actually in the same situation.. so it's been amazing to be able to meet 8nd chat with other mums who have the same concerns and worries, and to be able to see and hear from those further down the line to see that everything's going to be ok. && && l enjoyed the new perspective given on Down syndrome and how little changes like language can have a big significance on families and how they view and feel about their babies. I feel more equipped to signpost parents to get information and support as well as supporting breastfeeding. Mldwlfery student at Unfverslty of Lelcester. Massive thanks to Nicola and everyone at PADS I honestly don't know where I'd be without PEGS and POPS helping me to support Sam, this is a lovely safe place to ask all the questions lor search for them} and the endless support whenever required. The work you all do is amazing. Laura, mum to Sam. && && This evening l opened a package from the amazing team at Positive about Down syndrome. It made me cryl This is exactly what parents need in the first few hours after diagnosis, not'we are sorry. and then nothing until you see your consultant. This information / education is so valuable. Huge thanks to PADS for your eye screening session. I went into our opthamology appointment ready and armed. The optometrist listened to my concerns and was very impressed with my knowledge. I feel so relieved and grateful to this support group for all of the knowledge sharing. Laura, mum to Lucy. 22
Down Synthome VK Tru•lee¢Annua Parents, views 90% 95% 89% of porents surveyed In 2023, advlsed DSUK Is thelr go to place for support of parents trust the Informatlon they recelve from DSUK of parents advlsed DSUK hos helped them to feel empowered to support thelr chlld 23
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Funding The maln risk to Down Syndrome UK would be a loss of funds due to our donors, ina bility to commit fu rther funding. Future Plans DSUK is a dynamic and proactive Charity led and managed by parents of children and young people with Down syndrome. Immersed in the community, we identify and respond to issues and challenges our families face by providlng the necessary information, resources. and support. We regularly connect with our families and undertake surveys to monitor our performance as well as to establish any needs we are not meeting. We also look to influence and impact national policy and practice by collaborating with relevant policymakers and providers. We continue to aim to provide more services and support to the education professionals who work with our children in pre and primary school settings. DSUK continues to actively listen and respond to people with Down syndrome, their families and the professionals who work with them to work towards a more inclusive society. During 202312024 we will continue to work hard to improve the maternity experience5 of our parents and to ensure every baby with Down syndrome is welcomed into the world with the care and support they deserve. We will increase our reach to universities and maternity units to deliver training to future and current practitioners in maternity care and are looking to extend this to other medical professionals. 24
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Financial review The majority of our income is generated by the generosity of parents, friends and families undertaking a range of challenges and activities to support our work. Our income for the year was £317.26512022'.£245.6851 and we spent £321,049 12022'.£253,0971 as set out in these accounts. We ended the year with cash at bank of £158,27212022.' £151,678). Reserves Policy Reserves are required to cover an unexpected loss of income and allow ongoing commitments to be met in these circumstances. Since the majorlty of our income is from gifts from private donors, a sudden loss of this income would likely result in a need to close the Charity. To mitigate this risk, we aim to have at least six months of staff costs plus three months of variable service costs, at any one time. Investment Policy As a young Charity, we have not yet built substantial investments and, in these early years, the aim is to protect our funds. We will consider a more formal policy as we grow. Risk Management The Trustees have conducted a review of the major risks to which the Charity is exposed. Where appropriote, systems or procedures have been established to mitigate the risks the Charity faces. 25
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Structure9 governance and management Governlng Document Down Syndrome UK is registered with the Charity Commission of England and Wales. Registration Number 1184564. It is governed by a Trust Deed, dated 23 July 2019. The Charity was registered from 24 July 2019. Approach to Governance The Trustees appointed under the Trust Deed are entitled to hold office for a period of 2-4 years initially, with option to extend. Further Trustees may be appointed by invitation and resolution of the current Trustees. The Trustees consider themselves as the key personnel of the Charity in charge of directing and controlling the Charity. Trustees are required to disclose all relevant interests to the board meetings and, in accordance with the TrLSSt's policy. withdraw from decisions where a conflict of interest arises. The Trustees meet at least quarterly, to review existing projects and discuss new ones. The Trustees provide governance to the Charity and assist the CEO and management to both develop the strategy and deliver it. The Trustees have a legal obligation to supervise and shepherd the Charity and have ultimate responsibility for the Charity and its activities. The Trustees aim to develop the Trustee board in order to increase its impact and diversity while supporting staff and the community. 26
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Reference and administrative information Trustees Admlnistrative Informatlon The followlng served as Trustees during the year:_ Address 5 Hill Close Leamington Spa CV32 7RQ C S 8 Knight (Chairl N Enoch (resigned April 20231 J F Simpson R F Baker (Treasurer) C L Warren Bankers CAF Bank Limited 25 Kings Hill Avenue West Malling Kent ME19 4JQ Trustee Recruitment and Training Independent Examlner Khizer Kayanl ACA 2 Coldharbour Lane Bushey London WD23 4NS The Trustees review and undertake recruitment and training as required. 27
Down Syndrome UK Trustees. Annual Rewt 2022.23 Statement of the Trustee's responsibilities for the financial statements The Trustees are responsible for preparing the Trustees, Report and the financial statements in accordance with applicable law and regulations. Charity law requires the trustees to prepare financial statements for each financial year in accordance with United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards) and applicable law. Under charity law the Trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the charity and of its net outgoi ng resources for that period. In preparlng these financial statements, the trustees are required to: select suitable accounting policies and then apply them consistently; observe the methods and principles in the Charities SORP: make judgments and estimates that are reasonable and prudent; state whether applicable accounting standards have been followed, subject to any material departures disclosed and expla ined in the financial statements: prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue to operate. The Trustees are responsible for keeping adequate accounting records that are suff icient to show and explain the charity's transactions and disclose with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2008 and the provisions of the trust deed. They are also responsible for safegu8rding the assets of the ch8rity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. Approved by the Board of Trustees on 21 June 2024 and signed on their behalf by Casimir Knight Chair 28
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Statement of financial activities Not•• Unf••trlct•d R••trt¢t•d Fund• Fund• Tot•1 2023 Tolal 2022 INCOME ANO ENOOWMENT8 FROM.. Donatsons Glft ald Grants Inl•r•st Charlt8bl8 #¢tMtkn$.' Support Group$ 198,519 17,044 28,100 275 198.519 17.044 40,280 275 176,363 3,942 12,180 T¢)t•l In¢om• EXPENDITUAE ON.. Costs olg8n8r8llng fund8 Charilable act¢wlies 24,051 24.051 8.244 Total rn•ourc•• •xp•nd•d NET IEXPENDITUREI 1111,784} lJ,7841 17,412) Tr•n$fer be•¢n lund$ NET MOVEMENT IN FUNDS 110,704) 13.7841 17.412) FUNDSA T I SEPTEMBER 202212021) FUNDS AT 31 AUGUST 2023 {20221 INCOMEAND ENDOWMENTS FROA*. Donalion8 Gift aid Charitoble ad1v¥S.. Suppyt GUp9 176.363 3,942 176,363 3,942 24 EXPENDITURE ON.. Costs of genefaling fvnds Charitable activities 8.244 662 NET(EXPENDITURE) 17.412) (55.696) Trnnsler b&hn fimds NETMOVEMENTIN FUNDS ri.412) (5&696) FUNDS Af i SEPTEM8ER 2021 33T315 FUNDSA T31 AUGUST2022 The notes on pages 31 to 37 form part ofthe financial statements 29
Dowfi Syndrome UK Trns*es' Annual Report 2022-23 Balance sheet at 31 August 2023 t68 2023 2022 CURRENT ASSETS Debt8 Cash at b8nk 7,502 9,953 165.774 161,631 CREDITOR8: Due thin ono ygar NET CVRRENT ASSET8 NET ASSErs REPRESENTED BY.. Unr6stricied fund8 Re8lricled funds 139,971 15Q.755 Approved by the Trustees on 21 June 2024 nd signed on their behalf by: C Knlght Chalr The notes on pages 31 to 37 form part ofthe financial statements 30
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Notes to the financial statements for the year ended 31 August 2023 ACCOUNTING POLICIES a) Basis of Preparation The financial statements have been prepared in accordance with the Cha rities SORP IFRS102) a pplicable to charities preparing their financial statements in accordance with the Financial Reporting Standards pplicable in the UK and Republic of Ireland and the Charities Act 2011 and UK Generally Accepted Practice as it applies from 1 January 2015. The financial statements have been prepared to give a 'true and fair, view 8nd have departed from the Charities (Accounts 8nd Reports) Regulations 2008 only to the extent required to provide a 'true and fair view,. This departure has involved following Accounting and Reporting by Charities preparing their financial statements in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS1021 issued 16 Ju ly 2014 rather than the Accounting and Reporting by Charities.. Statement of Recommended Practice effective from 1 April 2005 which has since been withdrawn. Down Syndrome UK meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accountin policy note. Going Concern In their assessment of going concern the Trustees have considered the significant cash balance and impact on the Charity of the current economic conditions. Having regard to the above, the directors believe it appropriate to adopt the going concern basis of accounting in preparing the f inancial statements. 31
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Notes to the financial statements (continued) for the year ended 31 August 2023 b) Critical accounting judgements and key sources of estimation uncertainty. In the applicatlon of the Charity's accounting policies, which are describecl in note 1, Trustees are required to make judgements. estimates and assumptions a bout the ca rrying value of assets and liabilities that are not readily appa rent from other sources. The estimation and underlying assumptions are based on historica l experience and other factors that are considered to be relevant. Actual results may differ from these estimates. The estimates and underlying assumptions are reviewed on an on-going basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised if the revision affects only that period, or in the period of revislon and future periods if the revision affects the cu rrent and future periods, In the view of the Trustees, no assumptions concerning the future or estimation uncertainty affectlng the assets a nd liabilities at the bala nce sheet date a re likely to result in a material adjustment to their carrying amounts In the next financial year. c) Flnanclal Instruments The cha rity only has financla l assets and financla I Ila bilities of a klnd that qualify as basic financla l instruments. Basic fina ncia l instruments are inltially recognised at transaction value and subsequently measured at their settlement value. 32
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Notes to the financial statements (continued) for the year ended 31 August 2023 ACCOUNTING POLICIES (continued) d) Income All incoming resources are included in the statement of financial activities when the charity is entitled to the income, the amount can be quantified with reasonable accuracy and receipt is probable. The following specific policies are applied to particular categories of income.. Voluntary income is received by way of grants, donations and gifts and is included in full in the Statement of Financial Activities when receivable. Gra nts, where entitlement is not conditional on the delivery of a specific performance by the charity, are recognised when the charity becomes unconditionally entitled to the grant. Investment income is included when receivable. el Expendlture Expenditure is recognised on an accrual basis as each liability Is incurred. Costs of generating funds comprise the costs associated with fundraising activities. Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities and services for its beneficiaries. It incltjdes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them. fj Grants and Donations Payable Grants are recognised in the accounts when a commitment has been made and there are no conditions to be met relating to the grant which remain in the control of the Charity. 33
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Notes to the financial statements (continued) for the year ended 31 August 2023 g) Fund Accounting Unrestricted funds held by the charity are those which can be used in accordance with the charitable objectives at the discretion of the Trustees. Restricted funds are where specific conditions are imposed by the donor which restricts the use of unspent funds. The income is taken directly to the relevant restricted funds. h) Taxation The Trust is exempt from income tax on its charitable activities. i) Debtors Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid after taking account of any trade discounts due. J) Credltors and provislons Creditors and provisions are recognised when the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measu red or estimated reliably. 34
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Notes to the financial statements (continued) for the year ended 31 August 2023 ACCOUNTING POLICIES (continued) Cash Cash is represented by cash in hand and deposits with financial institutions repayable without penalty on notice of not more than 24 hours. CHARITABLE ACTIVITIES Unr•trlct•d R••trlct•d Funds Fund 2023 ToLl 2022 Total Admlnl•trntlon •nd •upport co•ts: Salary co81s Systems dovobpmonl and Smplonwntalion Genaral opornllng cotsts and campal9nlng costs 148,636 148,636 95,324 28,313 28,995 8,627 28,995 1,627 41.802 Ch•rlt*bl• •ctlvltlM: Provision of services and resourcès including 8UPPOrt gfOUP8, counselliw, Infom8tion sharlry sesslons. e8rfy development groups and physlolherapy 105.560 5.1 110,740 79,354 Admlnlgtratlon and gupp)rt CO8ts'. Salary costs Systems d8voh)pmonl and Smplementalion Gonoral oper8ting ¢ts 95,324 28,313 95.324 2&313 41,862 41.862 Charitable activiti83: Provision of serviett and resources including Support gfOUP3. coun5ellirwJ. inlomation sharing Sessions. e8ty development groups and physkstherapy 79,3S4 79,354 35
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Notes to the financial statements (continued) for the year ended 31 August 2023 STAFF COSTS 2023 Tot•1 2022 Tol81 Wag88 And 8818rf•8 Number ol Staff durlng Or. Admlnl8lratlon No employe• •amed ov•r £80.000 In •llh•r y•ar. DEBTORS 2023 2022 Glft 8j reclM arKI propaymonts RESTRICTED FUNDS Mov•m•nt In Fund• IncomSng R••ourc•• R••ourc•• Exp•nd•d 31 Augu•t 2023 Seplemb•r 2022 Trnn•f•r• R••trlct•d Fundi Awards lor 1 Freddie's Wishe$ OcthY P8mel8 Srntth 4.940 240 4.500 240 36
Dowfi Syndrome UK Trnthes. Annual Report 2022-23 Notes to the financial statements (continued) for the year ended 31 August 2023 ANALYSIS OF NET ASSETS Curr•nt Curr•nt Llabllltl U•bllhl Iftsr on• year Ca#h at bank Totsl R••trlct•d Fund• Awards for all Freddie's Wish08 Dorothy Pamela smlth 4,500 4.500 7,000 7,OlXI UnroStrlct•d Fund• 151272 139971 TRUSTEE EXPENSES One Trustee received remuneration during the year of £31,833 12022.. £36,000) for services as the Charity's CEO. This Trustee resigned on 24 April 2023 and continues as CEO. The disclosure here is for the entire year. RELATED PARTY TRANSACTIONS FUNDS A close family member of a Trustee was paid £1,63212022: £2,242) for their services during the year. 37
Down Syn(kome UK Trustees. Annual Rewt 2022.23 Independent examiner's report to the Trustees of Down Syndrome UK I report on the financial statements of the Trust for the year ended 31 August 2023. which are set out on pages 29 to 37. This report is made solely to the charity's trustees, as a body, in accordance with section 154 of the Charities Act 2011. My independent examiner's work has been undertaken so that I might state to the charity's trustees those matters l am required to state to them in an independent examiner's report and for no other purpose. To the fullest extent permitted by law. I do not accept or assume responsibility to anyone other than the charity. the charity's members as a body and the charity s trustees as a body for my Independent examSner's work, for this report. or foi the opinions I have formed. Responsibilities and basis of report As the charity trustees of the Trust you are responsible for the preparation of the finan¢lal statements in accordance with the requirements of the Charities Act 2011 I'the Act'l. I report in respect of my examination of the Trust's accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 14515llbl of the Act. Independent examlner's statement I have completed my examination. I confirm that no materlal matters have come to my attention in connection with the examination giving me cause to believe that in any material respect.. 1. accounting records were not kept in respect of the Trust as required by section 130 of the Act., or 2. the financial statements do not accord with those records. or 3. the financial statements do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the financial statements give a 'true and fair view which is not a matter considered as part of an independent examination. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report In order to enable a proper understanding of the financial statements to be reached. Khizer Kayani ACA 2 Coldharbour Lane, Bushey* London, WD23 4NS Date.. 25 June 2024 38
Down Synthome UK Tvus*es' Annual R•port2022.23 ri
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