dsuk -
clown syndrome uk
02212023
ANNUAL
REPORT
Annual report and accounts for the
year ended 31 August 2023
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Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Contents
Page
Our vlslon and mlsslon
Introductlon
Our bellefs
Our values
Meet the team
Tlmellne of events
Achlevements and performances for 2023
Our year In numbers
Fundralslng hlghllghts
Feedback from parents and professlonals
Fundlng
Flnanclal revlew
10-18
19
20-21
22-23
24
25
Structure, governance and management
Reference and admlnlstratlve Informatlon
26
27
Statement of the trustees
28
Statement of flnanclal actlvltles
29
Balance sheet at 31 August 2023
Notes to the flnanclal statements
30
31-37
Independent examlner's report
38

Our vision
A worLd where everyone with
Down Syndrome Lives their best life
Our mission
To empower parents & caregivers; to
educate professionals; to enlighten
the public: to lobby policy makers

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Introduction
The Board of Trustees present thelr
Annual Report for the year ended 31
August 2023 under the Charltles Act
2011, together wlth the flnon¢lal
statements for the year. The Board
conflrms that the latter comply wlth
the requlrements of the Charltles Act
2011, the trust deed and the Charltles
SORP FRS 102 (2019).
BeLiefs and aims for 2022
Down Syndrome UK works to improve the
lives of people with Down syndrome. and
their families. We primarily work in
maternity care and the early years providing
resources, training and support to parents
and professionals to empower those with
Down syndrome to thrive and flourish.
We believe every parent should recelve the
best possible care and support.
Objects of the Charity
Relief of those in need by reason of
parents and families of children and
young people with Down syndrome in
the UK through the provision of a forum
that provides accurate up to date
information on the realities of living with
Down syndrome and is a central hub of
information and resources for the
condition.
We believe the arrival of every baby with
Down syndrome should be celebrated.
We believe every chlld with Down
syndrome should be given every
opportunity to flourish and thrive.
To enact these bellefs, we have 4 core
aims which underpin our work:
1. Raising awareness of the modern reality
of living with Down syndrome in the UK
today.
The objects are exclusively for the
public benefit to promote the
effectiveness or efficiency of ch8rities
nd to advance any other charitable
purpose within the meaning of English
Law.
2. Connecting parents of children with
Down syndrome to experts, best practlce,
and each other.
3. Ensuring all children with Down
syndrome have the best start in life, and
access to the support to enable them to
live their lives to the full.
The Trustees have referred to the
guidance contained in the Charity
Commission's general guidance on
public benefit when reviewing the
Charity s purposes and aims, and when
planning future activities. In particular,
we consider how planned activities will
contribute to the achievement of the
objectives and aims.
4. Helping parents, the public,
professionals. policy makers. and
politicians to celebrate and support
people with Down syndrome as valued
and important members of society.

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
At DSUK we believe in
Equality
The discrimination around Down
syndrome must be challenged and
addressed, so that people with Down
syndrome and their families, should
be treated with the same respect and
care as anybody else.
Inclusion
Every child with Down syndrome
should have the opportunity to be fully
included in mainstream settings - both
In and outside of education.
Research
To improve the lives of people with Down
syndrome.

Our values
Real
Collaborative
We honestly and authentlcally reflect
the experience of having a child or
young person with Down Syndrome,
because we have the lived experience.
We create a nuturlng envlronment
for those we work with to enable
relatlonships to flourish and for all
involved to contribute positively
towards our misslon.
Practical
Challenging
We provide meaningful support,
training and information to empower
families and professionals.
We work hard to change & challenge
outdated perceptionslattitudes.
'We are not afraid to address the
elephant in the room.,
Impactful
Everything we do is with the intention
to positively impact our families.

Down Syndrome UK Trnstees. Afinual Report 2022-23
Meet the team
Trustees
Casimir Knight
hu
Richard Baker
Caroline Warren
Jude Simpson
Staff
Nicola Enoch
CEO
Tracy Osbourne-
Foulkes
Farah Cutler
Holli She8h•n
Rachel Hristov
Op•IatlOD￿ M¢Trnig•i
Meo1• M•n•g•r
Vlcky Prlce.John
Jennifer McGeeney
Frpelance", .
Lucience Coope¥
Caroline Turner
Sarah Ojar
Amy-Loui5e Roche June Roger5 MBE
P%iront Supportei
Sue Au¢utt
Coun5ellor
Sandra Redman
Eorly YÈars Trcliner
Dr Becky Baxter
Donna Murphy
MaggiÈ Hart
Primary School
Trainpr
Speech LETrnguage
Patrons
Leon Harrop
Noah Matthews
Matofsky
Heidi & James
Carter
Christopher
E¢¢leston

Down Synlknme UK TNsteeJ' Annual Rewt 2022.33
Timeline
01
January
nls45chool' t
tralnlng adv
01*
2019
December"
'New Paren
p l&
December
real Expectatlon
or pregnant tnum
launched
2017
01
September
PADS Wetjslte
Launched
(ktobor
pport ag
18unc
02(5
Aprll
'Preschool
t5,
nch
Augu9t
ADS Dads.
pport gr
launche
May
'PADS Carès
upport grou
launched
Dpc•mb•r
•ag ••"
feedlng
ort gro
unched
02
July
'16+ parents
oun
peoplÈi&
wn
plo
Aprll
7he Dow
ndrome
en8¢t•d
2020
2022
Ju
December
L8unch antenat81
care p8thway wlt
Si George
hospltal
S•pt•mb•r
'PADS Prlmary
Parents. support
group launched
2021
September
PADS Party in th
Park
021
January
.5 1 Hlf5chpru
2021
02
October
Exhlblted at Royal
ollege o
Midwive
February
condary 5th
89e support
launched
Iwn
20231
March
Brttlsh Journal ol
Midwifery
, Sonlerèno r
02
October
ched 8 nai
algn. exhl
Mor¢h
Royal College
202
2023
May
,E4PS cares lor
r￿1￿
t5.
AugLb5t
PADS Care
parcels
launched

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Achievements and
performances for 2023
In our fourth year as a registered
Charity, DSUK has grown significantly
in income and activities, expanding our
resources, support, outreach, and
engagement.
DSUK is immensely proud of the wide
range of resources and services that we
offer. Initially focused on expectant and
new parents, in response to demand,
we extended our support to families
with children in primary schools.
Experienced volunteers and experts
moderate our extensive range of closed
Facebook groups, providing peer
support and helping to identify issues
needing attention.
Slnce inception, we've provided lived
experiences to expectant and new
parents via our website, distributing
contemporary literature to maternity
staff. We've enhanced our website and
published #NobodyToldMe'. the truth
about Down syndrome, sent to
expectant and new parents. We have
welcomed more than 300 babies
through our Great Expectations group
and supported over 1,500 new parents.
We appointed Tracy Osborne-Foulkes
as Operations Manager to support our
CEO. Tracy had worked with us as a
Regional Maternity Coordinator and
demonstrated her excellent
organisational skills. We further
strengthened the team by appointing
Jennifer McGeeney to provide admin
support to our Training Manager. Amy
Roche joined as our Parent Supporter,
providing invaluable support to
expectant and new parents. We were
delighted to welcome Noah Matthews
Matofsky, an inspiring actor, as a Patron.

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Achievements and
performances for 2023
Our online Early Development Groups
and Physiotherapy Support provide
essential information and support.
These initiatives, developed and led by
experienced experts, empower families
with knowledge and practical advice,
promoting early development and the
opportunity for our children to flourish
and thrive.
In August 2023, we launched PADS
Care Parcels for children with extended
hospital stays, containing carefully
curated gifts, treats and practical items
as recommended by our parents.
DSUK values the importance of
supporting mental health and wellbeing.
Our weekly online yoga TomFit sessions
promote holistic family wellbeing. Since
2020, we've provided independent
professional counselling to individuals
and groups, Including bereaved parents.
In September, we were excited to host
more family get-togethers at our fabulous
PADS Parties in the Park, with sessions in
Cheshire and Buckinghamshire. Once
again, Patrons Heidi and James joined us
and enjoyed meeting over 120 families!
Our new merchandise was a hit, and
provided wonderful photo opportunities.
Our Grandparents group remains active,
with new support offered for bereaved
grandparenls, kindly funded by
Freddie's Wishes. To better support
dads, we launched a WhatsApp group
and commissioned podcasts featuring
their experiences.
We were delighted to be finalists at the
Nursing Times Awards for our highly
impactful #Pants4School initiative, with
over 4,500 parents and professionals
accessing our free support. Our toilet
training boot camps remain very popular,
with many families from across the UK
attending sessions.
We continLte our pioneering work around
educating and empowering parents and
professionals about consti pation,
condition that affects many of our
preschool children.
You
li
Flnalis*at the
es Awardk

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Achievements and
performances for 2023
We are committed to supporting our
mothers who wish to breastfeed with
peer support information and guidance.
Our Breastfeeding Supporter, Sarah
Ojar, has developed a breastfeeding
training module for professionals and
regularly delivers online sessions to
expectant and new parents.
In June, DSUK exhibited at UKIO'S
Congress in Liverpool. where Nicola and
patron Heidi were guest speakers. We
also presented at the Virtual
International Midwifery Conference
extending our reach beyond the UKI
On World Down Syndrome Day, our
CEO Nicola Enoch published an article
with the OECD, spoke at the Britlsh
Journal of Midwifery's Annual
Conference, attended a celebratory
event at the Houses of Parliament with
our friends from the National Down
Syndrome Policy Group, and the Charity
Film Awards at Leicester Square as a
finalist.
HOW WF
SUPPORT
MIDWIVES
SUT RYDYM
' 14 CEFNOGI
IOVJRAGEDD
u￿0
8MII
Whoiw•dp...
12

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Achievements and
performances for 2023
SYNDROMEr
Our advocacy and campaignlng work
Included a photography exhlbition at the
Houses of Parliament. The campaign -
You Can't Put Me Down Syndrome -
was produced in collaboration with
VMLY&R and attracted signlficant medla
attention and support from over 60
Parliamentarians.
IIITRO
JT-
SYID
13

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Achievements and
performances for 2023
Tollet Sklll
Development
Programme
Training Manager Lucienne Cooper
delivered training to over 2.200
medical professionals and students.
Our powerful training module, based
on our research 'Sharing the News -
the Maternity Experience. of 1,410
women, highlights best practices, the
importance and impact of language
and attitudes, how to share the news
that a baby haslmay have Down
syndrome and having a contemporary
understanding of Down syndrome,
twinkl
We expanded our training for education
professionals, publishing resources for
parents and educators. Our
collaboration with Twinkl extends our
reach to 14 million users.
We delivered tralning sesslons on over
20 topics, including will writing,
guardianship. sleep apnoea, dysphagia.
EHCPS, early toileting skills, audiology,
weaning. positive behaviour and early
communication skills.
i.
We continue to invest time, money and
resources in collaborating with
maternity units across the UK. Our
Regional Maternity Coordinators
doubled our reach from 70 to 150
maternity units, ensuring a supply of
PADS resources is available to
expectant and new parents.
We actively support and promote
research, with ongoing projects with
the University of Hertfordshire on
tube feeding. the maternity
experience with the University of
Warwick and probiotics to alleviate
constipation with UCL. We presented
again at the Down Syndrome
Research Forum and exhibited at the
Royal College of Midwives Research
Forum in Birmingham.
14

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Achievements and
performances for 2023
We attended maternity festivals and
events, including exhibiting at the Royal
College of Midwives conference in
Cardiff, where maternity professionals
were delighted to learn about PADS'S
services and resources. Wanting to
extend our reach, we once again
exhibited at the Primary Care Event at
the NEC, where we engaged with GPS,
health visitors, continence and school
nurses.
Since 2015, Nicola has been organising
and hosting an annual networking event
to which the 100+ local groups are
invited. In October 2022, the network
conference was once again well
attended, with both external speakers
and those from within the community
speaking on a range of topics.
We enjoyed another successful
fundraising year, wlth fantastic support
from our community with various
initiatives, including the PADS Sunf lower
Challenge aimed at nurseries and early
years settings and an online draw for
signed copies of George Webster's
book This is me. Dragon's Den
favourites, Stand Out Socks
collaborated with us to create a PADS
sock that stood out and sold out! We are
grateful to the National Lottery for a
grant from their Reaching Communities
grant, to The Scorfen Trust and Dorothy
Pamela Smith CIO for their generous
support.
'IT ￿￿v￿
I CtrFNQtyI
'uWHAOIOD
At DSUK, we have always valued and
appreciated the fantastic work local
regional groups undertake nationwide,
and we work hard to dovetail and
complement their work. Aware that
many groups do not have the capacity
or resources to undertake the breadth
of seNices our families benefit from, we
identify where knowledge. support and
information are lacking and develop
resources and ongoing support
accordingly.
15

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Achievements and
performances for 2023
DSUK has created an amazing
community through our PADS parent
facing groups, and we are always
thrilled at how many families give of
their time to support others. We
appreciate the fantastic work of our
volunteers, from social medla support to
knitting hats and bonding squares for
new babies.
PADS Heart Buddies supported more
than 60 familles whose child underwent
heart surgery and we have more than
40 awaiting surgery special than ks to
Rozie Haines, who, since March 2021,
has kindly coordinated PADS Heart
Buddies.
We are immensely grateful for the community's
phenomenal support, which enables DSUK to remaln
a thrivin99 proactive and practical charity, working
hard to ensure people with Down syndrome can live
their best lives.
16

They made contoct wlth us stralght oway ond added us Into the New Parent
group. It was the flrst tlme slnce Down Syndrome was flrst mentloned to us
Immedlately after blrth that we dldn't feel pelrlfled. We recelved the lovellesl
pack In the post wlth lot$ of resources to help us on thls Journey and they have
been supportlng us as a famlly ever slnce.
We have been w•icomed Into an onuno communlty thot Isjust 50 supportlve
ond have also been lucky enough to meet a lot of other famlues In person ot
the yearly famlly doys both Sn the North and South of the country. I honestly
don't know where we would be wlthout theml
The MacDonald FamlLy

Massive thanks to Nicola and everyone at PADS - I
honestly don't know where I'd be without PEGS and
POPS helping me to support Sam, this is a lovely
safe place to ask all the questions (or search for
them) and the endless support whenever required.
The work you all do is amazing.
Laura, mum to Sam
••

Dowfi Syndrome UK Trns*es' Annual Report 2022-23
9,129
parents and professionals
were supported by Down
Syndromè UK in 2022-2023
Our year in numbers
We supported:
97
887
E¥peclant
women
1,699
New parents
Preschool
parents
62
Families through
heart surgery
babies aw8illng
surgery
Heart
Buddies
11
11
Heart Buddles
Volunteer's
4,626
Families and professionals accessing Pénls4School
•830
648
Preschool
Primary schoo15
Secondary
schools & 16+
Number of professlonal members:
'%dsuk
iyndrorn• u*
Professionals in
preschool settings
543
11
Professiona15 in
primary schools
Region81
support groups
Numb•r of Profes￿onal$ tralnod:
2,227
567
•••••• Health care
professionals and
students accessed
training through 69
events
11
Maternity
professionals
Superstar
volunteers
19

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Fundraising highlights
from the past 12 months
Teddy's Trundle
Sky Dlve
CardSff Half Marathon
Charli, a PADS parent, organised We had seven thrill-5eeking
Teddy's Trundle. A walk from Peel supporters lake to the skies for
to Douglas on 8 21km adventure
sky dive and collectwely raised an
ending at Douglas Prom. They
Incredlble £17,361.
raised an incredible £4,921.
A team of S from UKLS took on
the Cardiff Half Marathon. raising
£1,762 in support of PADS.
Appalachian Trail
1,000,000 Steps
Ilsh Channel Swim
Paul Hills. one of our grandparents.
hiked the Appalachian trail. He had
to cut his adventure short but
returned a second time to see how
much further he could get. His
fundraiser raised £500.
Gilly Wynne set a challenge of
1,000,000 steps in 3 months
and raised £1,551. She said, "I
wanted to support a charity that
as been an absolute lifesaver
for a friend of mine.-
Nicole Murray is a wonderful
Speech and Language Therapist
who has worked with DSUK for 3
years. Nicole was part of a 4-
person relay teaffl. swimming the
English Channel and she raised
an incredible £2,380 for us.
20

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Fundraising highlights
from the past 12 months
Tough Mudder
8ung•• Jump
The operatlons team from FNe Guys took on
Tough Mudder to support their training
manager Ryan, wife Sarah and their son
Con811 who h85 Down syndrome. Ryan Said,
'Our son Conall was blessed with an extra
chromosome. 8nd he is such a special.
inspirational boy. We will work tirelessly to
raise pos11ive awareness and make the world
see th81 children born with Down syndrome
desetve equ81ityl Conall's smile lights up the
room and he adores his big sister more than
anyonel One of the captions for Down
syndrome is'theluckyfew. and we genuinely
believe that we are the luckiest parents in the
world to have Orlaith 8nd Conall." They
raKsed £2,184.
Melody Barnes, another of our thrill.seeking
PADS parents, took on a bungee jump and
raised £2,8861 Melody s8id,-I would like to
be able lo ralse money for PADS. not only to
give back to th8nk them for the help that they
have given me and my family. but to be able
to allow them to continue helping families in
the way that they have helped mine-.
21

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Feedback from parents
and professionals
&&
&&
PADS has been an absolute lifeline.
Without it, I don't know how we would
have coped. From feeling so scared
and alone, we can now see an
exciting positive future for our son,
and know that PADS is there to hold
our hands all the way.
Saioh. muni to Charlio.
Nobody gets it unless you're actually in
the same situation.. so it's been amazing
to be able to meet 8nd chat with other
mums who have the same concerns and
worries, and to be able to see and hear
from those further down the line to see
that everything's going to be ok.
&&
&&
l enjoyed the new perspective given
on Down syndrome and how little
changes like language can have a big
significance on families and how they
view and feel about their babies. I feel
more equipped to signpost parents to
get information and support as well as
supporting breastfeeding.
Mldwlfery student at Unfverslty
of Lelcester.
Massive thanks to Nicola and everyone
at PADS I honestly don't know where
I'd be without PEGS and POPS helping
me to support Sam, this is a lovely safe
place to ask all the questions lor search
for them} and the endless support
whenever required. The work you all do
is amazing.
Laura, mum to Sam.
&&
&&
This evening l opened a package from
the amazing team at Positive about
Down syndrome. It made me cryl This
is exactly what parents need in the first
few hours after diagnosis, not'we are
sorry. and then nothing until you see
your consultant. This information /
education is so valuable.
Huge thanks to PADS for your eye
screening session. I went into our
opthamology appointment ready and
armed. The optometrist listened to my
concerns and was very impressed with
my knowledge. I feel so relieved and
grateful to this support group for all of the
knowledge sharing.
Laura, mum to Lucy.
22

Down Synthome VK Tru•lee¢Annua
Parents, views
90% 95% 89%
of porents surveyed In
2023, advlsed DSUK Is
thelr go to place for
support
of parents trust the
Informatlon they
recelve from DSUK
of parents advlsed DSUK
hos helped them to feel
empowered to support
thelr chlld
23

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Funding
The maln risk to Down Syndrome UK would be a loss of funds due to our donors,
ina bility to commit fu rther funding.
Future Plans
DSUK is a dynamic and proactive Charity
led and managed by parents of children
and young people with Down syndrome.
Immersed in the community, we identify
and respond to issues and challenges
our families face by providlng the
necessary information, resources. and
support. We regularly connect with our
families and undertake surveys to
monitor our performance as well as to
establish any needs we are not meeting.
We also look to influence and impact
national policy and practice by
collaborating with relevant policymakers
and providers.
We continue to aim to provide more
services and support to the education
professionals who work with our
children in pre and primary school
settings.
DSUK continues to actively listen and
respond to people with Down
syndrome, their families and the
professionals who work with them to
work towards a more inclusive society.
During 202312024 we will continue to
work hard to improve the maternity
experience5 of our parents and to ensure
every baby with Down syndrome is
welcomed into the world with the care
and support they deserve. We will
increase our reach to universities and
maternity units to deliver training to
future and current practitioners in
maternity care and are looking to extend
this to other medical professionals.
24

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Financial review
The majority of our income is generated by the generosity of parents, friends and
families undertaking a range of challenges and activities to support our work. Our
income for the year was £317.26512022'.£245.6851 and we spent £321,049
12022'.£253,0971 as set out in these accounts. We ended the year with cash at bank of
£158,27212022.' £151,678).
Reserves Policy
Reserves are required to cover an
unexpected loss of income and allow
ongoing commitments to be met in these
circumstances. Since the majorlty of our
income is from gifts from private donors,
a sudden loss of this income would likely
result in a need to close the Charity. To
mitigate this risk, we aim to have at least
six months of staff costs plus three months
of variable service costs, at any one time.
Investment Policy
As a young Charity, we have not yet built
substantial investments and, in these early
years, the aim is to protect our funds. We
will consider a more formal policy as we
grow.
Risk Management
The Trustees have conducted a review of
the major risks to which the Charity is
exposed. Where appropriote, systems or
procedures have been established to
mitigate the risks the Charity faces.
25

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Structure9 governance
and management
Governlng Document
Down Syndrome UK is registered with the Charity Commission of England and Wales.
Registration Number 1184564. It is governed by a Trust Deed, dated 23 July 2019. The
Charity was registered from 24 July 2019.
Approach to Governance
The Trustees appointed under the
Trust Deed are entitled to hold office
for a period of 2-4 years initially, with
option to extend. Further Trustees may
be appointed by invitation and
resolution of the current Trustees.
The Trustees consider themselves as
the key personnel of the Charity in
charge of directing and controlling the
Charity.
Trustees are required to disclose all
relevant interests to the board
meetings and, in accordance with the
TrLSSt's policy. withdraw from decisions
where a conflict of interest arises.
The Trustees meet at least quarterly,
to review existing projects and discuss
new ones.
The Trustees provide governance to
the Charity and assist the CEO and
management to both develop the
strategy and deliver it. The Trustees
have a legal obligation to supervise
and shepherd the Charity and have
ultimate responsibility for the Charity
and its activities. The Trustees aim to
develop the Trustee board in order to
increase its impact and diversity while
supporting staff and the community.
26

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Reference and administrative
information
Trustees
Admlnistrative Informatlon
The followlng served as Trustees
during the year:_
Address
5 Hill Close
Leamington Spa
CV32 7RQ
C S 8 Knight (Chairl
N Enoch (resigned April 20231
J F Simpson
R F Baker (Treasurer)
C L Warren
Bankers
CAF Bank Limited
25 Kings Hill Avenue
West Malling
Kent
ME19 4JQ
Trustee Recruitment
and Training
Independent
Examlner
Khizer Kayanl ACA
2 Coldharbour Lane
Bushey
London
WD23 4NS
The Trustees review and undertake
recruitment and training as required.
27

Down Syndrome UK Trustees. Annual Rewt 2022.23
Statement of the Trustee's
responsibilities for the financial
statements
The Trustees are responsible for preparing the Trustees, Report and the financial
statements in accordance with applicable law and regulations.
Charity law requires the trustees to prepare financial statements for each financial
year in accordance with United Kingdom Generally Accepted Accounting Practice
(United Kingdom Accounting Standards) and applicable law.
Under charity law the Trustees must not approve the financial statements unless
they are satisfied that they give a true and fair view of the state of affairs of the
charity and of its net outgoi ng resources for that period. In preparlng these financial
statements, the trustees are required to:
select suitable accounting policies and then apply them consistently;
observe the methods and principles in the Charities SORP:
make judgments and estimates that are reasonable and prudent;
state whether applicable accounting standards have been followed, subject to
any material departures disclosed and expla ined in the financial statements:
prepare the financial statements on the going concern basis unless it is
inappropriate to presume that the charity will continue to operate.
The Trustees are responsible for keeping adequate accounting records that are
suff icient to show and explain the charity's transactions and disclose with
reasonable accuracy at any time the financial position of the charity and enable
them to ensure that the financial statements comply with the Charities Act 2011, the
Charity (Accounts and Reports) Regulations 2008 and the provisions of the trust
deed. They are also responsible for safegu8rding the assets of the ch8rity and
hence for taking reasonable steps for the prevention and detection of fraud and
other irregularities.
Approved by the Board of Trustees on 21 June 2024 and signed on their behalf by
Casimir Knight
Chair
28

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Statement of financial activities
Not•• Unf••trlct•d R••trt¢t•d
Fund•
Fund•
Tot•1
2023
Tolal
2022
INCOME ANO ENOOWMENT8 FROM..
Donatsons
Glft ald
Grants
Inl•r•st
Charlt8bl8 #¢tMtkn$.' Support Group$
198,519
17,044
28,100
275
198.519
17.044
40,280
275
176,363
3,942
12,180
T¢)t•l In¢om•
EXPENDITUAE ON..
Costs olg8n8r8llng fund8
Charilable act¢wlies
24,051
24.051
8.244
Total rn•ourc•• •xp•nd•d
NET IEXPENDITUREI
1111,784}
lJ,7841
17,412)
Tr•n$fer be￿•¢n lund$
NET MOVEMENT IN FUNDS
110,704)
13.7841
17.412)
FUNDSA T I SEPTEMBER 202212021)
FUNDS AT 31 AUGUST 2023 {20221
INCOMEAND ENDOWMENTS FROA*.
Donalion8
Gift aid
Charitoble ad1v￿¥S.. Suppyt G￿Up9
176.363
3,942
176,363
3,942
24
EXPENDITURE ON..
Costs of genefaling fvnds
Charitable activities
8.244
662
NET(EXPENDITURE)
17.412)
(55.696)
Trnnsler b&h￿n fimds
NETMOVEMENTIN FUNDS
ri.412)
(5&696)
FUNDS Af i SEPTEM8ER 2021
33T315
FUNDSA T31 AUGUST2022
The notes on pages 31 to 37 form part ofthe financial statements
29

Dowfi Syndrome UK Trns*es' Annual Report 2022-23
Balance sheet at 31 August 2023
t68
2023
2022
CURRENT ASSETS
Debt￿8
Cash at b8nk
7,502
9,953
165.774
161,631
CREDITOR8: Due ￿thin ono ygar
NET CVRRENT ASSET8
NET ASSErs
REPRESENTED BY..
Unr6stricied fund8
Re8lricled funds
139,971
15Q.755
Approved by the Trustees on 21 June 2024
nd signed on their behalf by:
C Knlght
Chalr
The notes on pages 31 to 37 form part ofthe financial statements
30

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Notes to the financial statements
for the year ended 31 August 2023
ACCOUNTING POLICIES
a) Basis of Preparation
The financial statements have been prepared in accordance with the
Cha rities SORP IFRS102) a pplicable to charities preparing their financial
statements in accordance with the Financial Reporting Standards
pplicable in the UK and Republic of Ireland and the Charities Act 2011
and UK Generally Accepted Practice as it applies from 1 January 2015.
The financial statements have been prepared to give a 'true and fair,
view 8nd have departed from the Charities (Accounts 8nd Reports)
Regulations 2008 only to the extent required to provide a 'true and fair
view,. This departure has involved following Accounting and Reporting
by Charities preparing their financial statements in accordance with the
Financial Reporting Standard applicable in the UK and Republic of
Ireland IFRS1021 issued 16 Ju ly 2014 rather than the Accounting and
Reporting by Charities.. Statement of Recommended Practice effective
from 1 April 2005 which has since been withdrawn.
Down Syndrome UK meets the definition of a public benefit entity under
FRS 102. Assets and liabilities are initially recognised at historical cost or
transaction value unless otherwise stated in the relevant accountin
policy note.
Going Concern
In their assessment of going concern the Trustees have considered the
significant cash balance and impact on the Charity of the current
economic conditions.
Having regard to the above, the directors believe it appropriate to adopt
the going concern basis of accounting in preparing the f inancial
statements.
31

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Notes to the financial statements
(continued) for the year ended
31 August 2023
b) Critical accounting judgements and key sources of estimation uncertainty.
In the applicatlon of the Charity's accounting policies, which are describecl in
note 1, Trustees are required to make judgements. estimates and assumptions
a bout the ca rrying value of assets and liabilities that are not readily appa rent
from other sources. The estimation and underlying assumptions are based on
historica l experience and other factors that are considered to be relevant.
Actual results may differ from these estimates.
The estimates and underlying assumptions are reviewed on an on-going basis.
Revisions to accounting estimates are recognised in the period in which the
estimate is revised if the revision affects only that period, or in the period of
revislon and future periods if the revision affects the cu rrent and future periods,
In the view of the Trustees, no assumptions concerning the future or estimation
uncertainty affectlng the assets a nd liabilities at the bala nce sheet date a re
likely to result in a material adjustment to their carrying amounts In the next
financial year.
c) Flnanclal Instruments
The cha rity only has financla l assets and financla I Ila bilities of a klnd that qualify
as basic financla l instruments. Basic fina ncia l instruments are inltially
recognised at transaction value and subsequently measured at their settlement
value.
32

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Notes to the financial statements
(continued) for the year ended
31 August 2023
ACCOUNTING POLICIES (continued)
d) Income
All incoming resources are included in the statement of financial activities
when the charity is entitled to the income, the amount can be quantified with
reasonable accuracy and receipt is probable.
The following specific policies are applied to particular categories of income..
Voluntary income is received by way of grants, donations and gifts and is
included in full in the Statement of Financial Activities when receivable.
Gra nts, where entitlement is not conditional on the delivery of a specific
performance by the charity, are recognised when the charity becomes
unconditionally entitled to the grant.
Investment income is included when receivable.
el Expendlture
Expenditure is recognised on an accrual basis as each liability Is incurred.
Costs of generating funds comprise the costs associated with fundraising
activities.
Charitable expenditure comprises those costs incurred by the charity in the
delivery of its activities and services for its beneficiaries. It incltjdes both
costs that can be allocated directly to such activities and those costs of an
indirect nature necessary to support them.
fj Grants and Donations Payable
Grants are recognised in the accounts when a commitment has been made
and there are no conditions to be met relating to the grant which remain in
the control of the Charity.
33

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Notes to the financial statements
(continued) for the year ended
31 August 2023
g) Fund Accounting
Unrestricted funds held by the charity are those which can be used in
accordance with the charitable objectives at the discretion of the Trustees.
Restricted funds are where specific conditions are imposed by the donor
which restricts the use of unspent funds. The income is taken directly to the
relevant restricted funds.
h) Taxation
The Trust is exempt from income tax on its charitable activities.
i) Debtors
Trade and other debtors are recognised at the settlement amount due after
any trade discount offered. Prepayments are valued at the amount prepaid
after taking account of any trade discounts due.
J) Credltors and provislons
Creditors and provisions are recognised when the charity has a present
obligation resulting from a past event that will probably result in the transfer
of funds to a third party and the amount due to settle the obligation can be
measu red or estimated reliably.
34

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Notes to the financial statements
(continued) for the year ended
31 August 2023
ACCOUNTING POLICIES (continued)
Cash
Cash is represented by cash in hand and deposits with financial institutions
repayable without penalty on notice of not more than 24 hours.
CHARITABLE ACTIVITIES
Unr•*trlct•d R••trlct•d
Funds
Fund
2023
ToL*l
2022
Total
Admlnl•trntlon •nd •upport co•ts:
Salary co81s
Systems dovobpmonl and
Smplonwntalion
Genaral opornllng cotsts
and campal9nlng costs
148,636
148,636
95,324
28,313
28,995
8,627
28,995
1,627
41.802
Ch•rlt*bl• •ctlvltlM:
Provision of services and resourcès
including 8UPPOrt gfOUP8, counselliw,
Infom8tion sharlry sesslons. e8rfy
development groups and physlolherapy
105.560
5.1
110,740
79,354
Admlnlgtratlon and gupp)rt CO8ts'.
Salary costs
Systems d8voh)pmonl and
Smplementalion
Gonoral oper8ting ¢￿ts
95,324
28,313
95.324
2&313
41,862
41.862
Charitable activiti83:
Provision of serviett and resources
including Support gfOUP3. coun5ellirwJ.
inlomation sharing Sessions. e8ty
development groups and physkstherapy
79,3S4
79,354
35

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Notes to the financial statements
(continued) for the year ended
31 August 2023
STAFF COSTS
2023
Tot•1
2022
Tol81
Wag88 And 8818rf•8
Number ol Staff durlng ￿Or.
Admlnl8lratlon
No employe• •amed ov•r £80.000 In •llh•r y•ar.
DEBTORS
2023
2022
Glft 8￿j rec￿lM arKI propaymonts
RESTRICTED FUNDS
Mov•m•nt In Fund•
IncomSng
R••ourc••
R••ourc••
Exp•nd•d
31 Augu•t
2023
Seplemb•r
2022
Trnn•f•r•
R••trlct•d Fundi
Awards lor ￿1
Freddie's Wishe$
Oc￿thY P8mel8 Srntth
4.940
240
4.500
240
36

Dowfi Syndrome UK Trnthes. Annual Report 2022-23
Notes to the financial statements
(continued) for the year ended
31 August 2023
ANALYSIS OF NET ASSETS
Curr•nt
Curr•nt
Llabllltl
U•bllhl
Iftsr on•
year
Ca#h at
bank
Totsl
R••trlct•d Fund•
Awards for all
Freddie's Wish08
Dorothy Pamela
smlth
4,500
4.500
7,000
7,OlXI
UnroStrlct•d Fund•
151272
139971
TRUSTEE EXPENSES
One Trustee received remuneration during the year of £31,833
12022.. £36,000) for services as the Charity's CEO. This Trustee resigned
on 24 April 2023 and continues as CEO. The disclosure here is for the
entire year.
RELATED PARTY TRANSACTIONS FUNDS
A close family member of a Trustee was paid £1,63212022: £2,242) for their
services during the year.
37

Down Syn(kome UK Trustees. Annual Rewt 2022.23
Independent examiner's report to
the Trustees of Down Syndrome UK
I report on the financial statements of the Trust for the year ended 31 August 2023. which
are set out on pages 29 to 37.
This report is made solely to the charity's trustees, as a body, in accordance with section
154 of the Charities Act 2011. My independent examiner's work has been undertaken so
that I might state to the charity's trustees those matters l am required to state to them in an
independent examiner's report and for no other purpose. To the fullest extent permitted by
law. I do not accept or assume responsibility to anyone other than the charity. the charity's
members as a body and the charity s trustees as a body for my Independent examSner's
work, for this report. or foi the opinions I have formed.
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the finan¢lal
statements in accordance with the requirements of the Charities Act 2011 I'the Act'l.
I report in respect of my examination of the Trust's accounts carried out under section 145
of the 2011 Act and in carrying out my examination I have followed all the applicable
Directions given by the Charity Commission under section 14515llbl of the Act.
Independent examlner's statement
I have completed my examination. I confirm that no materlal matters have come to my
attention in connection with the examination giving me cause to believe that in any material
respect..
1. accounting records were not kept in respect of the Trust as required by section
130 of the Act., or
2. the financial statements do not accord with those records. or
3. the financial statements do not comply with the applicable requirements
concerning the form and content of accounts set out in the Charities (Accounts
and Reports) Regulations 2008 other than any requirement that the financial
statements give a 'true and fair view which is not a matter considered as part of
an independent examination.
I have no concerns and have come across no other matters in connection with the
examination to which attention should be drawn in this report In order to enable a proper
understanding of the financial statements to be reached.
Khizer Kayani ACA
2 Coldharbour Lane, Bushey* London, WD23 4NS
Date.. 25 June 2024
38

Down Synthome UK Tvus*es' Annual R•port2022.23
ri

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,Ii_,I
41
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T.. 0330 1112121
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