Trustees’ Annual Report for the period
From Period start date 01/02/2023 To Period end date 31/01/2024
Charity name: Cavernoma Society
Charity registration number: 1184406
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | To provide information and support to those affected by cavernoma, and raise awareness of the condition. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
To raise awareness of cavernoma and support those affected through information and support groups and services. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | The trustees have run the charity as proposed in the governing document and have therefore met all of the key objectives set out by the charity. |
Additional information (optional)
You may choose to include further statements where relevant about:
| SORP reference | ||
| Policy on grant making | Para 1.38 | N/A |
| Policy on social investment including program related investment |
Para 1.38 | N/A |
| Contribution made by | Para | 1.38 | We are grateful to all of our volunteers | ||
| volunteers | who have worked hard to help us to run | ||||
| the charity and continue supporting | |||||
| members through our vital services. As | |||||
| a small charity with no paid employees | |||||
| we rely on volunteers and our trustees | |||||
| to run our charity. In particular thank you | |||||
| to Hannah Westbury, Karen Smallman, | |||||
| Paul, James and Lizzie Murray, Lisa | |||||
| Goldapple, Jessica Jones, Chloe | |||||
| Robson, Cena Jovanovska, Wayne and | |||||
| Michelle Wright, and all of our trustees. | |||||
| Other | We’d like to extend our thanks and gratitude to the following organisations and people for their generous donations. • Thank you to Beth Dixon and The King James Academy for their fundraising. • Thank you to Hannah Westbury and the Cummins Family for raising funds in the Bradford Dragon Boat Race. •Thank you to Paul Smallman, Suzan Smallman, Karen Smallman, Gary Miller, Nigel Lawry, and Tracy Lawry for the Cornwall Trek and raising funds. •Thank you to JC Decaux for donating billboards for Raspberry Day Thank you to Michelle Bartholomew for your donation. • Thank you to Wayne Wright, coffee artist for donating Christmas card designs. |
|
|---|---|---|
Achievements and Performance
SORP reference
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | The Cavernoma Society had another successful year supporting its members and providing services that really made a difference. We attended several PIP tribunals with members and WON all of them, meaning that our members have the right support in place. We also spoke with Manira Wilson, Lib Dem MP about working with DWP so that they understand cavernoma better. Ms Wilson did take this to DWP but sadly they have refused to consider this as there are many ‘rare’ conditions. We are incredibly proud of our free counselling service.This year we took on two new trainee therapists and said goodbye to three. We also started working with a new external supervisor, who supervises all of our trainees. We ran two Heal Your Brain Retreats in Scotland and In Lincolnshire, helping more than 50 people. In January we once again ran our January Wellness month, which included online yoga, meditation, and hypnotherapy. Throughout the year we also ran free online Reiki courses, as well as yoga and Pilates. We once again celebrated our annual awareness day – Raspberry Day in September and were supported by JC Decaux, who donated more than 1,000 billboard marketing across the UK. We also wrote over 20 GP referral letters and helped members to get a second opinion, genetic testing, and neuro rehab services. |
|---|---|---|
We helped to design the Cavernoma on My Mind Garden at the 2023 RHS Chelsea Flower show, which won a Silver Award. We fundraised for this and came up with the story behind it - trying to raise awareness for our members.
We also took part in several fundraising events, including the London Landmarks half marathon, and The Bradford Dragon Boat race.
Additional information (optional)
You may choose to include further statements where relevant about:
| Achievements against objectives set |
Para 1.41 | We met our objectives, as we provided information, support, events, and raised awareness. |
| Performance of fundraising activities against objectives set |
Para 1.41 | The funds raised were similar to last year. We have been affected by COVID as well as Facebook donate changing over to Paypal, so we’ve struggled to set up the new Facebook donate and therefore are losing many donations as a result. |
| Investment performance against objectives |
Para 1.41 | N/A |
| Other | N/A |
Financial Review
| Review of the charity’s financial position at the end of the period |
Para 1.21 | The Charity is performing consistently and sustainably. We are incredibly grateful to our members for fundraising and keeping the charity going, as well as our volunteers and trustees who dedicate their time to the charity to make sure that it is delivering its objectives. |
|---|---|---|
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | Because we are only a small charity, we try to only hold back £500 in reserves to cover our website costs and annual insurance. |
| Amount of reserves held | Para 1.22 | £500 |
| Reasons for holding zero reserves |
Para 1.22 | |
| Details of fund materially in deficit |
Para 1.24 | |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | We have no uncertainties about the charity continuing to operate as we are in a stable financial position. |
Additional information (optional)
You may choose to include further statements where relevant about:
| The charity’s principal sources of funds (including any fundraising) |
Para 1.47 | At the moment, our principal source of funds is monies raised by our members. |
| Investment policy and objectives including any social investment policy adopted |
Para 1.46 | N/A |
| A description of the principal risks facing the charity |
Para 1.46 | We need to continue to encourage our members to keep fundraising. |
| Other | ||
Structure, Governance and Management
| Description of charity’s trusts: |
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|---|---|---|
| Type of governing document(trust deed, royal charter) |
Para 1.25 | |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | CIO |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Our Trustees are reviewed annually and we have to vote in a new trustee |
| Additional information (optional) Youmay choose toincludefurtherstatementswhererelevant about: |
||
| Policies and procedures adopted for the induction and training of trustees |
Para 1.51 | Each trustee is sent the governing document and information from the Charity Commission. |
| The charity’s organisational structure and any wider network with which the charity works |
Para 1.51 | We are run by trustees and have no employees. |
| Relationship with any related parties |
Para 1.51 | N/A |
| Other |
Reference and Administrative details
| Charity name | Cavernoma Society |
|---|---|
| Other name the charity uses |
| Registered charity number | 1184406 |
|---|---|
| Charity’s principal address | 5 Riverdale Gardens, Twickenham, TW1 2BX |
Corporate trustees – names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
Trustee name Dates acted if not for whole year
Funds held as custodian trustees on behalf of others
Description of the assets held in this capacity
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s
objects
Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
Additional information (optional)
Names and addresses of advisers (Optional information) Name Address Type of adviser
Name of chief executive or names of senior staff members (Optional information)
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s)
Marie Robinson Trustee
Full name(s) Position (eg Secretary, Chair, etc) Date: 29/11/2025
The Cavernoma Society
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1184406
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Receipts and payments accounts
CC16a
For the period 01/02/2023 31/01/2024 To from Unrestricted Endowment Restricted funds Total funds Last year funds funds to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £
Section A Receipts and payments
A1 Receipts
| A1 Receipts | ||||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Member fundraising | - | 16,741- | - | 14,950- | - | -- | - | 31,691- | - | 15,932- | ||||||||||
| Retreat deposits | - | 500- | - | -- | - | 500- | - | 420- | ||||||||||||
| Merchandise Sales | - | 1,006- | - | -- | - | -- | - | 1,006- | - | 560- | ||||||||||
| Savings | - | 5,715- | - | -- | - | -- | - | 5,715- | - | 5,715- | ||||||||||
| - | -- | - | -- | - | -- | - | -- | - | -- | |||||||||||
| - | -- | - | -- | - | -- | - | -- | - | -- | |||||||||||
| - | -- | - | -- | - | -- | - | -- | - | -- | |||||||||||
| - | -- | - | -- | - | -- | - | -- | - | -- | |||||||||||
| - | 23,462- | - | 15,450- | - | -- | - | 38,912- | - | 22,627- | |||||||||||
| Sub total(Gross income for AR) |
| Sub total(Gro | ss income for AR) | ||||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| A2 Asset and investment sales, | |||||||||||||||||||||
| (see table). | |||||||||||||||||||||
| - | -- | - | -- | - | -- | - | -- | ||||||||||||||
| - | -- | - | -- | - | -- | - | -- | - | -- | ||||||||||||
| Sub total | - | -- | - | -- | - | -- | - | -- | - | -- | |||||||||||
| **Total receipts ** | - | 23,462- | - | 15,450- | - | -- | - | 38,912- | - | 22,627- |
| **Total receipts ** | - | 23,462- | - | 15,450- | - | -- | - | 38,912- | - | 22,627- | |||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| A3 Payments | |||||||||||||||||||||
| Running costs | - | 2,146- | - | -- | - | -- | - | 2,146- | - | 2,096- | |||||||||||
| Therapy | - | 2,920- | - | -- | - | -- | - | 2,920- | - | 1,705- | |||||||||||
| Postage | - | 328- | - | -- | - | -- | - | 328- | - | 100- | |||||||||||
| Services | - | -- | - | -- | - | -- | - | 4,334- |
CCXX R1 accounts (SS)
11/29/2025
1
| Retreats | - | 17,687- | - | -- | - | -- | - | 17,687- | - | 3,137- | |||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Chelsea Flower Show | - | 15,827- | - | -- | - | 15,827- | - | 5,536- | |||||||||||||
| misc | - | 2,862- | - | -- | - | -- | - | 2,862- | - | 126- | |||||||||||
| Merchandise | - | 438- | - | -- | - | -- | - | 438- | - | 488- | |||||||||||
| - | -- | - | -- | - | -- | - | -- | - | -- | ||||||||||||
| **Sub total ** | - | 26,381- | - | 15,827- | - | -- | - | 42,208- | - | 17,522- | |||||||||||
| A4 Asset and investment | ||||||||||||||||||||
| purchases, (see table) | ||||||||||||||||||||
| - | -- | - | -- | - | -- | - | -- | |||||||||||||
| - | -- | - | -- | - | -- | - | -- | |||||||||||||
| **Sub total ** | - | -- | - | -- | - | -- | - | -- | ||||||||||||
| **Total payments ** | - | 26,381- | - | 15,827- | - | -- | - | 42,208- | - | 17,522- | ||||||||||
| **Net of receipts/(payments) ** | - | 2,919- | - | 377- | - | -- | - | 3,296- | - | 5,105- | ||||||||||
| A5 Transfers between funds | - | -- | - | -- | - | -- | - | -- | - | -- | ||||||||||
| A6 Cash funds last year end | - | -- | - | -- | - | -- | - | -- | - | -- | ||||||||||
| **Cash funds this year end ** | - | 2,919- | - | 377- | - | -- | - | 3,296- | - | 5,105- | ||||||||||
Section B Statement of assets and liabilities at the end of the period
| Unrestricted | Restricted funds | Restricted funds | Endowment | ||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Categories | Details | funds | funds | ||||||||||||
| to nearest £ | to nearest £ | to nearest £ | |||||||||||||
| B1 | Cash funds | - | -- | - | -- | - | -- | ||||||||
| - | -- | - | -- | - | -- | ||||||||||
| - | -- | - | -- | - | -- | ||||||||||
| Total cash funds | - | 8,401- | - | -- | |||||||||||
| (agree balances with receipts and payments account (s)) |
Agreement Error | Agreement Error | OK | ||||||||||||
| Unrestricted | Restricted funds | Endowment | |||||||||||||
| funds | funds |
CCXX R2 accounts (SS)
11/29/2025
2
| B2 Other monetary assets B3 Investment assets B4 Assets retained for the charity’s own use |
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CCXX R3 accounts (SS)
11/29/2025
3
| B5 Liabilities Signed by one or two trustees on behalf of all the trustees |
Details Signature |
Fund to which liability relates Amount due (optional) - -- - -- - -- - -- - -- Print Name Simona Stankovska Dr Marie Robinson |
When due (optional) |
|---|---|---|---|
| Date of approval | |||
| Simona Stankovska | 29/11/2025 | ||
| Dr Marie Robinson | 29/11/2025 |
CCXX R4 accounts (SS)
11/29/2025
4
Independent examiner's report on the accounts
Section A Independent Examiner’s Report Report to the trustees/ The Cavernoma Society members of On accounts for the year 31/01/2024 Charity no 1184406 ended (if any) Set out on pages
(remember to include the page numbers of additional sheets) I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended DD / MM / YYYY . Responsibilities and As the charity trustees of the Trust, you are responsible for the preparation basis of report of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”). I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. Independent I have completed my examination. I confirm that no material matters have examiner's statement come to my attention (other than that disclosed below *) in connection with the examination which gives me cause to believe that in, any material respect: ● accounting records were not kept in accordance with section 130 of the Act or ● the accounts do not accord with the accounting records I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached. * Please delete the words in the brackets if they do not apply.
Date: 29/11/2025
Signed: Name: Ann O’Driscoll
1
October 2018
IER
Relevant professional qualification(s) or body (if any):
Address: 15 South Vale Northallerton DL6 1DQ
Section B Disclosure
Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
2
October 2018
IER
Give here brief details of any items that the examiner wishes to disclose .
3
October 2018
IER