## **Trustees’ Annual Report for the period**
**From Period start date** 01/02/2023 **To Period end date** 31/01/2024
**Charity name:** Cavernoma Society
**Charity registration number:** 1184406
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes
of the charity as set out in
its governing document|Para 1.17|To provide information and support to
those affected by cavernoma, and
raise awareness of the condition.|
|Summary of the main
activities in relation to
those purposes for the
public benefit, in
particular, the activities,
projects or
services identified in
the accounts.|Para 1.17 and
1.19|To raise awareness of cavernoma and
support those affected through
information and support groups and
services.|
|Statement confirming
whether the trustees
have had regard to the
guidance issued by the
Charity
Commission on public
benefit|Para 1.18|The trustees have run the charity as
proposed in the governing document and
have therefore met all of the key
objectives set out by the charity.|
## **Additional information (optional)**
You may choose to include further statements where relevant about:
||||
|---|---|---|
||SORP reference||
|Policy on grant making|Para 1.38|**N/A**|
|Policy on social
investment including
program related
investment|Para 1.38|**N/A**|
||||
|||||||
|---|---|---|---|---|---|
||Contribution made by|Para|1.38|We are grateful to all of our volunteers||
||volunteers|||who have worked hard to help us to run||
|||||the charity and continue supporting||
|||||members through our vital services. As||
|||||a small charity with no paid employees||
|||||we rely on volunteers and our trustees||
|||||to run our charity. In particular thank you||
|||||to Hannah Westbury, Karen Smallman,||
|||||Paul, James and Lizzie Murray, Lisa||
|||||Goldapple, Jessica Jones, Chloe||
|||||Robson, Cena Jovanovska, Wayne and||
|||||Michelle Wright, and all of our trustees.||
|||||||
|||||||
|||||||
|||||||
|Other||We’d like to extend our
thanks and gratitude to
the following
organisations and people
for their generous
donations.
• Thank you to Beth
Dixon and The
King James
Academy for their
fundraising.
• Thank you to
Hannah Westbury
and the Cummins
Family for raising
funds in the
Bradford Dragon
Boat Race.
•Thank you to Paul
Smallman, Suzan
Smallman, Karen
Smallman, Gary
Miller, Nigel
Lawry, and Tracy
Lawry for the
Cornwall Trek and
raising funds.
•Thank you to JC
Decaux for
donating
billboards for
Raspberry Day
Thank you to
Michelle
Bartholomew for
your donation.
• Thank you to Wayne Wright, coffee
artist for donating Christmas card
designs.|
|---|---|---|
## **Achievements and Performance**
SORP reference
|Summary of the main
achievements of the
charity, identifying the
difference the charity’s
work has made to the
circumstances of its
beneficiaries and any
wider benefits to society
as a whole.|Para 1.20|The Cavernoma Society had another
successful year supporting its
members and providing services that
really made a difference.
We attended several PIP tribunals with
members and WON all of them,
meaning that our members have the
right support in place.
We also spoke with Manira Wilson, Lib
Dem MP about working with DWP so
that they understand cavernoma
better. Ms Wilson did take this to DWP
but sadly they have refused to
consider this as there are many ‘rare’
conditions.
We are incredibly proud of our free
counselling service.This year we took on
two new trainee therapists and said
goodbye to three. We also started
working with a new external supervisor,
who supervises all of our trainees.
We ran two Heal Your Brain Retreats in
Scotland and In Lincolnshire, helping
more than 50 people.
In January we once again ran our
January Wellness month, which
included online yoga, meditation, and
hypnotherapy.
Throughout the year we also ran free
online Reiki courses, as well as yoga
and Pilates.
We once again celebrated our annual
awareness day – Raspberry Day in
September and were supported by JC
Decaux, who donated more than 1,000
billboard marketing across the UK.
We also wrote over 20 GP referral
letters and helped members to get a
second opinion, genetic testing, and
neuro rehab services.|
|---|---|---|
We helped to design the Cavernoma on My Mind Garden at the 2023 RHS Chelsea Flower show, which won a Silver Award. We fundraised for this and came up with the story behind it - trying to raise awareness for our members.
We also took part in several fundraising events, including the London Landmarks half marathon, and The Bradford Dragon Boat race.
## **Additional information (optional)**
You may choose to include further statements where relevant about:
||||
|---|---|---|
|Achievements against
objectives set|Para 1.41|We met our objectives, as we
provided information, support,
events, and raised awareness.|
||||
|Performance
of
fundraising
activities
against objectives set|Para 1.41|The funds raised were similar to last
year. We have been affected by
COVID as well as Facebook donate
changing over to Paypal, so we’ve
struggled to set up the new Facebook
donate and therefore are losing many
donations as a result.|
|Investment
performance against
objectives|Para 1.41|**N/A**|
|Other||**N/A**|
**Financial Review**
|Review of the charity’s
financial position at the
end of the period|Para 1.21|The Charity is performing consistently
and sustainably. We are incredibly
grateful to our members for fundraising
and keeping the charity going, as well
as our volunteers and trustees who
dedicate their time to the charity to
make sure that it is delivering its
objectives.|
|---|---|---|
|Statement explaining
the policy for holding
reserves stating why
they are held|Para 1.22|Because we are only a small charity, we
try to only hold back £500 in reserves to
cover
our website costs and annual
insurance.|
|Amount of reserves held|Para 1.22|£500|
|Reasons for holding
zero reserves|Para 1.22||
|Details of fund materially
in deficit|Para 1.24||
|Explanation of any
uncertainties about the
charity continuing as a
going concern|Para 1.23|We have no uncertainties about the
charity continuing to operate as we are
in a stable financial position.|
## **Additional information (optional)**
You may choose to include further statements where relevant about:
||||
|---|---|---|
|The charity’s principal
sources of funds
(including any
fundraising)|Para 1.47|At the moment, our principal source of
funds is monies raised by our
members.|
|Investment policy and
objectives
including
any social investment
policy adopted|Para 1.46|N/A|
|A description of the
principal risks facing the
charity|Para 1.46|We need to continue to encourage
our members to keep fundraising.|
|Other|||
||||
**Structure, Governance and Management**
|Description of charity’s
trusts:|||
|---|---|---|
|Type of governing
document(trust deed,
royal charter)|Para 1.25||
|How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|CIO|
|Trustee selection
methods including
details of any
constitutional provisions
e.g. election to post or
name of any person or
body entitled to appoint
one or more trustees|Para 1.25|Our Trustees are reviewed annually
and we have to vote in a new trustee|
|**Additional information (optional)**
Youmay choose toincludefurtherstatementswhererelevant about:|||
|Policies and
procedures adopted
for the induction and
training of trustees|Para 1.51|Each trustee is sent the governing
document and information from the
Charity Commission.|
|The charity’s
organisational structure
and any wider network
with which the
charity works|Para 1.51|We are run by trustees and have
no employees.|
|Relationship with any
related parties|Para 1.51|**N/A**|
|Other|||
## **Reference and Administrative details**
|Charity name|Cavernoma Society|
|---|---|
|Other name the charity
uses||
|Registered charity number|1184406|
|---|---|
|Charity’s principal address|5 Riverdale Gardens,
Twickenham,
TW1 2BX|
|||
## Corporate trustees – names of the directors at the date the report was approved
## **Director name**
## Name of trustees holding title to property belonging to the charity
**Trustee name Dates acted if not for whole year**
## **Funds held as custodian trustees on behalf of others**
Description of the assets held in this capacity
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s
objects
Details of arrangements for safe custody and segregation of such assets from the charity’s own assets
## **Additional information (optional)**
**Names and addresses of advisers (Optional information) Name Address Type of adviser**
## **Name of chief executive or names of senior staff members (Optional information)**
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
## **Other optional information**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
## **Signature(s)**
Marie Robinson Trustee
**Full name(s) Position (eg Secretary, Chair, etc) Date: 29/11/2025**
**The Cavernoma Society**
**----- Start of picture text -----**
1184406
**----- End of picture text -----**
## **Receipts and payments accounts**
**CC16a**
**For the period** 01/02/2023 **31/01/2024 To from Unrestricted Endowment Restricted funds Total funds Last year funds funds to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £**
## **Section A Receipts and payments**
## **A1 Receipts**
|**A1 Receipts**|||||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
|Member fundraising||**-**|**16,741-**|||**-**|**14,950-**|||**-**|**--**|||**-**|**31,691-**|||**-**|**15,932-**||
|Retreat deposits||||||**-**|**500-**|||**-**|**--**|||**-**|**500-**|||**-**|**420-**||
|Merchandise Sales||**-**|**1,006-**|||**-**|**--**|||**-**|**--**|||**-**|**1,006-**|||**-**|**560-**||
|Savings||**-**|**5,715-**|||**-**|**--**|||**-**|**--**|||**-**|**5,715-**|||**-**|**5,715-**||
|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||
|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||
|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||
|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||
|||**-**|**23,462-**|||**-**|**15,450-**|||**-**|**--**|||**-**|**38,912-**|||**-**|**22,627-**||
|**_Sub total_**_(Gross income for AR)_|||||||||||||||||||||
|**_Sub total_**_(Gro_|_ss income for AR)_|||||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
|||||||||||||||||||||||
|**A2 Asset and investment sales,**||||||||||||||||||||||
|**(see table).**||||||||||||||||||||||
||||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||||||
||||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||
||**_Sub total_**||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||
|||||||||||||||||||||||
||**_Total receipts_ **||**-**|**23,462-**|||**-**|**15,450-**|||**-**|**--**|||**-**|**38,912-**|||**-**|**22,627-**||
||**_Total receipts_ **||**-**|**23,462-**|||**-**|**15,450-**|||**-**|**--**|||**-**|**38,912-**|||**-**|**22,627-**||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
|**A3 Payments**||||||||||||||||||||||
|Running costs|||**-**|**2,146-**|||**-**|**--**|||**-**|**--**|||**-**|**2,146-**|||**-**|**2,096-**||
|Therapy|||**-**|**2,920-**|||**-**|**--**|||**-**|**--**|||**-**|**2,920-**|||**-**|**1,705-**||
|Postage|||**-**|**328-**|||**-**|**--**|||**-**|**--**|||**-**|**328-**|||**-**|**100-**||
|Services|||||||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**4,334-**||
CCXX R1 accounts (SS)
11/29/2025
1
|Retreats|||**-**|**17,687-**|||**-**|**--**|||**-**|**--**|||**-**|**17,687-**|||**-**|**3,137-**||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
|Chelsea Flower Show|||||||**-**|**15,827-**|||**-**|**--**|||**-**|**15,827-**|||**-**|**5,536-**||
|misc|||**-**|**2,862-**|||**-**|**--**|||**-**|**--**|||**-**|**2,862-**|||**-**|**126-**||
|Merchandise|||**-**|**438-**|||**-**|**--**|||**-**|**--**|||**-**|**438-**|||**-**|**488-**||
||||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||
||**_Sub total_ **||**-**|**26,381-**|||**-**|**15,827-**|||**-**|**--**|||**-**|**42,208-**|||**-**|**17,522-**||
|||||||||||||||||||||||
||||||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
|**A4 Asset and investment**|||||||||||||||||||||
|**purchases, (see table)**|||||||||||||||||||||
|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||||||
|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||||||
|**_Sub total_ **||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||||||
||||||||||||||||||||||
|**_Total payments_ **||**-**|**26,381-**|||**-**|**15,827-**|||**-**|**--**|||**-**|**42,208-**|||**-**|**17,522-**||
||||||||||||||||||||||
|**_Net of receipts/(payments)_ **||**-**|**2,919-**|||**-**|**377-**|||**-**|**--**|||**-**|**3,296-**|||**-**|**5,105-**||
|**A5 Transfers between funds**||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||
|**A6 Cash funds last year end**||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**|||**-**|**--**||
|**_Cash funds this year end_ **||**-**|**2,919-**|||**-**|**377-**|||**-**|**--**|||**-**|**3,296-**|||**-**|**5,105-**||
||||||||||||||||||||||
## **Section B Statement of assets and liabilities at the end of the period**
|||||||**Unrestricted**|||**Restricted funds**|**Restricted funds**||||**Endowment**||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
||**Categories**|**Details**||||**funds**||||||||**funds**||
|||||||**to nearest £**||||**to nearest £**||||**to nearest £**||
|**B1**|**Cash funds**||||**-**|**--**|||**-**|**--**|||**-**|**--**||
||||||**-**|**--**|||**-**|**--**|||**-**|**--**||
||||||**-**|**--**|||**-**|**--**|||**-**|**--**||
|||**_Total cash funds_**|||**-**|**8,401-**|||||||**-**|**--**||
|||(agree balances with receipts and payments account
(s))|||Agreement Error||||Agreement Error||||OK|||
|||||||**Unrestricted**|||**Restricted funds**|||||**Endowment**||
|||||||**funds**||||||||**funds**||
CCXX R2 accounts (SS)
11/29/2025
2
|**B2 Other monetary assets**
**B3 Investment assets**
**B4 Assets retained for the**
**charity’s own use**|**Details**|**to nearest £**|**to nearest £**|**to nearest £**|
|---|---|---|---|---|
||||**-**
**--**|**-**
**--**|
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**--**|**-**
**--**|**-**
**--**|
|||||**Current value**
**(optional)**|
|||||**-**
**--**|
|||||**-**
**--**|
|||||**-**
**--**|
|||||**-**
**--**|
|||||**-**
**--**|
|||||**Current value**
**(optional)**|
||||**-**
**--**|**-**
**--**|
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||||||
CCXX R3 accounts (SS)
11/29/2025
3
|**B5 Liabilities**
Signed by one or two trustees on behalf of
all the trustees|**Details**
Signature|**Fund to which**
**liability relates**
**Amount due**
**(optional)**
**-**
**--**
**-**
**--**
**-**
**--**
**-**
**--**
**-**
**--**
Print Name
Simona Stankovska
Dr Marie Robinson|**When due**
**(optional)**|
|---|---|---|---|
|||||
|||||
|||||
|||||
|||||
||||Date of approval|
|||Simona Stankovska|29/11/2025|
|||Dr Marie Robinson|29/11/2025|
CCXX R4 accounts (SS)
11/29/2025
4
## **Independent examiner's report on the accounts**
**Section A Independent Examiner’s Report Report to the trustees/** The Cavernoma Society **members of On accounts for the year** 31/01/2024 **Charity no** 1184406 **ended (if any) Set out on pages**
(remember to include the page numbers of additional sheets) I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended **DD / MM / YYYY** . **Responsibilities and** As the charity trustees of the Trust, you are responsible for the preparation **basis of report** of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”). I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. **Independent** I have completed my examination. I confirm that no material matters have **examiner's statement** come to my attention (other than that disclosed below *) in connection with the examination which gives me cause to believe that in, any material respect: ● accounting records were not kept in accordance with section 130 of the Act or ● the accounts do not accord with the accounting records I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached. * _Please delete the words in the brackets if they do not apply._
**Date:** 29/11/2025
**Signed: Name:** Ann O’Driscoll
1
**October 2018**
**IER**
**Relevant professional qualification(s) or body (if any):**
**Address:** 15 South Vale Northallerton DL6 1DQ
## **Section B Disclosure**
Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
2
**October 2018**
**IER**
**Give here brief details of any items that the examiner wishes to disclose** .
3
**October 2018**
**IER**