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2023-01-31-accounts

Trustees’ Annual Report for the period

From Period start date 01/02/2022 To Period end date 31/01/2023

Charity name: Cavernoma Society

Charity registration number: 1184406

Objectives and Activities

SORP reference
Summary of the purposes of
the charity as set out in its
governing document		 Para 1.17 To provide information and support to
those affected by cavernoma, and raise
awareness of the condition.
Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.		 Para 1.17 and
1.19		 To raise awareness of cavernoma and
support those affected through information
and support groups and services.
Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit		 Para 1.18 The trustees have run the charity as
proposed in the governing document and
have therefore met all of the key objectives
set out by the charity.

Additional information (optional) You may choose to include further statements where relevant about:

SORP reference
Policy on grant making Para 1.38 N/A
Policy on social investment
including program related
investment		 Para 1.38 N/A
Contribution made by
volunteers		 Para 1.38 We are grateful to all of our volunteers who
have worked hard to help us to run the
charity and continue supporting members
through our vital services. As a small
charity with no paid employees we rely on
volunteers and our trustees to run our
charity. In particular thank you to Hannah
Westbury,KarenSmallman,Paul
Smallman, Emily Sudlow, Emma Christides,
and Chloe Robson.
Other We’d like to extend our
thanks and gratitude to
the following
organisations and people
for their generous
donations.
•
Thank you to
Acorn Trust and
Natasha Whiting
for donating funds
when closing the
charity.
•
Thank you to
Jessica Rose for
your generous
donation.
•
Thank you to Beth
Dixon and The
King James
Academy for their
fundraising.
•
Thank you to
Hannah Westbury
and the Cummins
Family for raising
funds in the
Bradford Dragon
Boat Race.
•
Thank you to Paul
Smallman, Suzan
Smallman, Karen
Smallman, Gary
Miller, Nigel
Lawry, and Tracy
Lawry for the
Cornwall Trek and
raising funds.
•
Thank you to JC
Decaux for
donating
billboards for
Raspberry Day
•
Thank you to Boor
Park Primary for
fundraising
• Thank you to Jon
Fox for your
donation
• Thank you to
Michelle
Bartholomew for
your donation.
• Thank you to the
late, beloved Ben
Lassman for
raising funds to
provide Build a
Bear teddies and
Pyjama fairy PJs to
our child
members.
• Thank you as
always to Carolyn
Nichols and Anji
Goddard for our
Christmas card
designs

Achievements and Performance

SORP reference

Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.		 Para 1.20 The Cavernoma Society had another
successful year supporting its members
and providing services that really made a
difference.
We are incredibly proud of our free
counselling service which has grown. We
took on new trainee therapists and grew
the team to 6. This means that we see at
least 18-20 members per week for therapy
sessions.
We ran another Heal Your brain retreat in
Wales, supporting more than 25 members.
In January we once again ran our January
Wellness month, which included online
yoga, meditation, and hypnotherapy.
Throughout the year we also ran free
online Reiki courses, as well as yoga and
Pilates.
We once again celebrated our annual
awareness day – Raspberry Day in
September and were supported by JC
Decaux, who donated billboard marketing
across the UK.
We held a BBQ to celebrate our 4th
birthday as well as Raspberry Day in
September.
With thanks to the late Ben Lassman we
delivered more than 30 Build a Bear
teddies and Pyjama Fairy Pjs to our child
members.
We worked with Same You Charity,
founded by Emilia Clarke `to raise
awareness of Cavernoma.
We continued to help members to claim
ESA, UC, and PIP, and attend tribunals
with members.
We also wrote over 30 GP referral letters
and helped members to get a second
opinion, genetic testing, and neuro rehab
services.

Additional information (optional) You may choose to include further statements where relevant about:

Achievements against
objectives set		 Para 1.41 We met our objectives, as we provided
information, support, events, and raised
awareness.
Performance of fundraising
activities against objectives
set		 Para 1.41 The funds raised were similar to last year.
We have been affected by COVID as well
as Facebook donate changing over to
Paypal, so we’ve struggled to set up the
new Facebook donate and therefore are
losing many donations as a result.
Investment performance
against objectives		 Para 1.41 N/A
Other N/A

Financial Review

Financial Review
Review of the charity’s
financial position at the end
of the period		 Para 1.21 The Charity is performing consistently and
sustainably. We are incredibly grateful to
our members for fundraising and keeping
the charity going, as well as our volunteers
and trustees who dedicate their time to the
charity to make sure that it is delivering its
objectives.
Statement explaining the
policy for holding reserves
stating why they are held		 Para 1.22 Because we are only a small charity, we try
to only hold back £500 in reserves to cover
our website costs and annual insurance.
Amount of reserves held Para 1.22 £500
Reasons for holding zero
reserves		 Para 1.22
Details of fund materially in
deficit		 Para 1.24
Explanation of any
uncertainties about the
charity continuing as a going
concern		 Para 1.23 We have no uncertainties about the charity
continuing to operate as we are in a stable
financial position.
Additional information (optional)
You may choose to include further statements		 where relevant about:
The charity’s principal
sources of funds (including
any fundraising)		 Para 1.47 At the moment, our principal source of
funds is monies raised by our members.
Investment policy and
objectives including any
social investment policy
adopted		 Para 1.46 N/A
A description of the principal
risks facing the charity		 Para 1.46 We need to continue to encourage our
members to keep fundraising.
Other

Structure, Governance and Management

Description of charity’s
trusts:
Type of governing document
(trust deed, royal charter)		 Para 1.25
How is the charity
constituted?
(e.g unincorporated
association, CIO)		 Para 1.25 CIO
Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees		 Para 1.25 Our Trustees are revied annually and we
have to vote in a new trustee

Additional information (optional) You may choose to include further statements where relevant about:

Policies and procedures
adopted for the induction
and training of trustees		 Para 1.51 Each trustee is sent the governing
document and information from the Charity
Commission.
The charity’s organisational
structure and any wider
network with which the
charity works		 Para 1.51 We are run by trustees and have no
employees.
Relationship with any
related parties		 Para 1.51 N/A
Other

Reference and Administrative details

Charity name Cavernoma Society
Other name the charity uses
Registered charity number 1184406
Charity’s principal address 4 Arlington Court,
Arlington Road
Twickenham
TW1 2BX

Names of the charity trustees who manage the charity

1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20		 Trustee name Office (if any) Office (if any) Dates acted if not for whole
year		 Dates acted if not for whole
year		 Name of person (or body) entitled
to appoint trustee (if any)		 Name of person (or body) entitled
to appoint trustee (if any)
Simona
Stankovska
Carolyn Nichols
Caroline Leonard 01/02/2022-05/05/2022
Victoria Butler 01/07/2022
Marie Robinson 01/06/2022
AmyTaylor 01/07/2022
Marie Robinson 01/06/2022
AmyTaylor 01/07/2022

– Corporate trustees names of the directors at the date the report was approved

Director name

Name of trustees holding title to property belonging to the charity

Trustee name Dates acted if not for whole year

Funds held as custodian trustees on behalf of others

Description of the assets held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Names and addresses of advisers (Optional information) Names and addresses of advisers (Optional information) Names and addresses of advisers (Optional information)
Type of
adviser
Name
Address
Name of chief executive or names of senior staff members (Optional information)

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Victoria Butler Full name(s) Simona Stankovska Position (eg Secretary, Secretary Trustee Chair, etc) Date 16/11/2024

Charity Name No (if any) The Cavernoma Society 1184406 Receipts and payments accounts ts and payments accounts ayments accounts ments accounts CC16a

Receipts and payments accounts

For the period Period start date Period end date To from 2/1/2022 1/31/2023

Section A Receipts and payments

A1 Receipts Unrestricted
funds
to the nearest
£
15,932
420
560
5,715
-
-
22,627
-
-
-
22,627
2,096
1,705
100
4,334
3,137
5,536
126
488
-
17,522
3,303
-
3,303
20,825
1,802
-
6,966
8,768		 Restricted
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
824
824		 Endowment
funds
to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-		 Total funds
to the nearest £
15,932
420
560
5,715
-
-
-
-
22,627
-
-
-
22,627
2,096
1,705
100
4,334
3,137
5,536
126
488
-
17,522
3,303
-
3,303
20,825
1,802		 Total funds
to the nearest £
15,932
420
560
5,715
-
-
-
-
22,627
-
-
-
22,627
2,096
1,705
100
4,334
3,137
5,536
126
488
-
17,522
3,303
-
3,303
20,825
1,802		 Last year
to the nearest £
Member fundraising 15,932 11,474
Retreat deposits 420 150
Merchandise Sales 560 1,889
Savings 5,715 5,000
-
- -
- -
Sub total(Gross income for
AR)		 22,627 18,513
A2 Asset and investment sales,
(see table).
-
- -
Sub total - -
Total receipts
A3 Payments
18,513
Runningcosts 2,096 1,812
Therapy 1,705 8,120
Postage 100 965
Services 4,334 4,176
Retreats 3,137 6,279
Chelsea Flower Show 5,536 -
misc 126 -
Merchandise 488 3,303
- -
**Sub total ** 17,522 24,655
A4 Asset and investment
purchases, (see table)
merchandise 3,303
-
**Sub total ** 3,303 -
Total payments
Net of receipts/(payments)
A5 Transfers between funds
A6 Cash funds last year end
Cash funds this year end
24,655
1,802 - - 1,802 - 6,142
- - - - -
6,966 824 - 7,790 -
8,768 824 - 9,592 - 6,142

CCXX R1 accounts (SS)

1

Section B Statement of assets and liabilities at the end of the period

Categories
Signed by one or two trustees on
behalf of all the trustees
B1 Cash funds
B2 Other monetary assets
B4 Assets retained for the
charity’s own use
B5 Liabilities
B3 Investment assets		 Signature
Details
Details
Total cash funds
(agree balances with receipts and payments
account(s))
Details
Details
Details		 Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
8,768
824
OK
OK
Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
-
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
-
-
-
-
Fund to which
liability relates
Amount due
(optional)
-
-
-
-
-
Print Name
MrsVictoria butler
Miss Simona Stankovska		 Endowment
funds
to nearest £
-
-
-
-
OK
Endowment
funds
to nearest £
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
-
-
-
-
When due
(optional)
Date of
approval
MrsVictoria butler 11/16/2024
Miss Simona Stankovska 11/16/2024

CCXX R2 accounts (SS)

2