## **Trustees’ Annual Report for the period** **From Period start date** 01/02/2022 **To Period end date** 31/01/2023 **Charity name:** Cavernoma Society **Charity registration number:** 1184406 ## **Objectives and Activities** ||SORP reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|To provide information and support to
those affected by cavernoma, and raise
awareness of the condition.| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|To raise awareness of cavernoma and
support those affected through information
and support groups and services.| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|The trustees have run the charity as
proposed in the governing document and
have therefore met all of the key objectives
set out by the charity.| **Additional information (optional)** You may choose to include further statements where relevant about: ||SORP reference|| |---|---|---| |Policy on grant making|Para 1.38|**N/A**| |Policy on social investment
including program related
investment|Para 1.38|**N/A**| |Contribution made by
volunteers|Para 1.38|We are grateful to all of our volunteers who
have worked hard to help us to run the
charity and continue supporting members
through our vital services. As a small
charity with no paid employees we rely on
volunteers and our trustees to run our
charity. In particular thank you to Hannah
Westbury,KarenSmallman,Paul| |||Smallman, Emily Sudlow, Emma Christides,
and Chloe Robson.| |---|---|---| |Other||We’d like to extend our
thanks and gratitude to
the following
organisations and people
for their generous
donations.
•
Thank you to
Acorn Trust and
Natasha Whiting
for donating funds
when closing the
charity.
•
Thank you to
Jessica Rose for
your generous
donation.
•
Thank you to Beth
Dixon and The
King James
Academy for their
fundraising.
•
Thank you to
Hannah Westbury
and the Cummins
Family for raising
funds in the
Bradford Dragon
Boat Race.
•
Thank you to Paul
Smallman, Suzan
Smallman, Karen
Smallman, Gary
Miller, Nigel
Lawry, and Tracy
Lawry for the
Cornwall Trek and
raising funds.
•
Thank you to JC
Decaux for
donating
billboards for
Raspberry Day
•
Thank you to Boor
Park Primary for
fundraising| |•|Thank you to Jon| |---|---| ||Fox for your| ||donation| |•|Thank you to| ||Michelle| ||Bartholomew for| ||your donation.| |•|Thank you to the| ||late, beloved Ben| ||Lassman for| ||raising funds to| ||provide Build a| ||Bear teddies and| ||Pyjama fairy PJs to| ||our child| ||members.| |•|Thank you as| ||always to Carolyn| ||Nichols and Anji| ||Goddard for our| ||Christmas card| ||designs| ## **Achievements and Performance** SORP reference |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|The Cavernoma Society had another
successful year supporting its members
and providing services that really made a
difference.
We are incredibly proud of our free
counselling service which has grown. We
took on new trainee therapists and grew
the team to 6. This means that we see at
least 18-20 members per week for therapy
sessions.
We ran another Heal Your brain retreat in
Wales, supporting more than 25 members.
In January we once again ran our January
Wellness month, which included online
yoga, meditation, and hypnotherapy.
Throughout the year we also ran free
online Reiki courses, as well as yoga and
Pilates.
We once again celebrated our annual
awareness day – Raspberry Day in
September and were supported by JC
Decaux, who donated billboard marketing
across the UK.
We held a BBQ to celebrate our 4th
birthday as well as Raspberry Day in
September.
With thanks to the late Ben Lassman we
delivered more than 30 Build a Bear
teddies and Pyjama Fairy Pjs to our child
members.
We worked with Same You Charity,
founded by Emilia Clarke `to raise
awareness of Cavernoma.
We continued to help members to claim
ESA, UC, and PIP, and attend tribunals
with members.
We also wrote over 30 GP referral letters
and helped members to get a second
opinion, genetic testing, and neuro rehab
services.| |---|---|---| **Additional information (optional)** You may choose to include further statements where relevant about: |Achievements against
objectives set|Para 1.41|We met our objectives, as we provided
information, support, events, and raised
awareness.| |---|---|---| |||| |Performance of fundraising
activities against objectives
set|Para 1.41|The funds raised were similar to last year.
We have been affected by COVID as well
as Facebook donate changing over to
Paypal, so we’ve struggled to set up the
new Facebook donate and therefore are
losing many donations as a result.| |---|---|---| |Investment performance
against objectives|Para 1.41|**N/A**| |Other||**N/A**| ## **Financial Review** |**Financial Review**||| |---|---|---| |Review of the charity’s
financial position at the end
of the period|Para 1.21|The Charity is performing consistently and
sustainably. We are incredibly grateful to
our members for fundraising and keeping
the charity going, as well as our volunteers
and trustees who dedicate their time to the
charity to make sure that it is delivering its
objectives.| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|Because we are only a small charity, we try
to only hold back £500 in reserves to cover
our website costs and annual insurance.| |Amount of reserves held|Para 1.22|£500| |Reasons for holding zero
reserves|Para 1.22|| |Details of fund materially in
deficit|Para 1.24|| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|We have no uncertainties about the charity
continuing to operate as we are in a stable
financial position.| |**Additional information (optional)**
You may choose to include further statements||where relevant about:| |The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|At the moment, our principal source of
funds is monies raised by our members.| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|N/A| |A description of the principal
risks facing the charity|Para 1.46|We need to continue to encourage our
members to keep fundraising.| |Other||| ## **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document
(trust deed, royal charter)|Para 1.25|| |How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|CIO| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Our Trustees are revied annually and we
have to vote in a new trustee| **Additional information (optional)** You may choose to include further statements where relevant about: |Policies and procedures
adopted for the induction
and training of trustees|Para 1.51|Each trustee is sent the governing
document and information from the Charity
Commission.| |---|---|---| |The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|We are run by trustees and have no
employees.| |Relationship with any
related parties|Para 1.51|**N/A**| |Other||| ## **Reference and Administrative details** |Charity name|Cavernoma Society| |---|---| |Other name the charity uses|| |Registered charity number|1184406| |Charity’s principal address|4 Arlington Court,
Arlington Road
Twickenham
TW1 2BX| ||| ## **Names of the charity trustees who manage the charity** |1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Dates acted if not for whole**
**year**|**Name of person (or body) entitled**
**to appoint trustee (if any)**|**Name of person (or body) entitled**
**to appoint trustee (if any)**| |---|---|---|---|---|---|---|---| ||Simona
Stankovska||||||| ||Carolyn Nichols||||||| ||Caroline Leonard||||01/02/2022-05/05/2022||| ||Victoria Butler|||01/07/2022|||| ||Marie Robinson|||01/06/2022|||| ||AmyTaylor|||01/07/2022|||| ||Marie Robinson|||01/06/2022|||| ||AmyTaylor|||01/07/2022|||| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||| – Corporate trustees names of the directors at the date the report was approved **Director name** Name of trustees holding title to property belonging to the charity **Trustee name Dates acted if not for whole year** ## **Funds held as custodian trustees on behalf of others** Description of the assets held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** |**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**|**Names and addresses of advisers (Optional information)**| |---|---|---| |**Type of**
**adviser**
**Name**
**Address**||| |||| |||| |||| |||| |**Name of chief executive or names of senior staff members (Optional information)**||| ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details ## **Other optional information** ## **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s)** Victoria Butler **Full name(s)** Simona Stankovska **Position (eg Secretary,** Secretary Trustee **Chair, etc) Date** 16/11/2024 **Charity Name No (if any) The Cavernoma Society 1184406 Receipts and payments accounts ts and payments accounts ayments accounts ments accounts CC16a** ## **Receipts and payments accounts** **For the period** Period start date Period end date **To from** 2/1/2022 1/31/2023 ## **Section A Receipts and payments** |**A1 Receipts**|**Unrestricted**
**funds**
**to the nearest**
**£**
**15,932**
**420**
**560**
**5,715**
**-**
**-**
**22,627**
**-**
**-**
**-**
**22,627**
**2,096**
**1,705**
**100**
**4,334**
**3,137**
**5,536**
**126**
**488**
**-**
**17,522**
**3,303**
**-**
**3,303**
**20,825**
**1,802**
**-**
**6,966**
**8,768**|**Restricted**
**funds**
**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**824**
**824**|**Endowment**
**funds**
**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**Total funds**
**to the nearest £**
**15,932**
**420**
**560**
**5,715**
**-**
**-**
**-**
**-**
**22,627**
**-**
**-**
**-**
**22,627**
**2,096**
**1,705**
**100**
**4,334**
**3,137**
**5,536**
**126**
**488**
**-**
**17,522**
**3,303**
**-**
**3,303**
**20,825**
**1,802**|**Total funds**
**to the nearest £**
**15,932**
**420**
**560**
**5,715**
**-**
**-**
**-**
**-**
**22,627**
**-**
**-**
**-**
**22,627**
**2,096**
**1,705**
**100**
**4,334**
**3,137**
**5,536**
**126**
**488**
**-**
**17,522**
**3,303**
**-**
**3,303**
**20,825**
**1,802**|**Last year**
**to the nearest £**| |---|---|---|---|---|---|---| |Member fundraising|**15,932**|||||**11,474**| |Retreat deposits|**420**|||||**150**| |Merchandise Sales|**560**|||||**1,889**| |Savings|**5,715**|||||**5,000**| |||||||| |||||||**-**| ||**-**|||||**-**| ||**-**|||||**-**| |**_Sub total_**_(Gross income for_
_AR)_|**22,627**|||||**18,513**| |||||||| |**A2 Asset and investment sales,**
**(see table).**||||||| ||**-**|||||| ||**-**|||||**-**| |**_Sub total_**|**-**|||||**-**| |**_Total receipts_**
**A3 Payments**||||||| |||||||**18,513**| |||||||| |Runningcosts|**2,096**|||||**1,812**| |Therapy|**1,705**|||||**8,120**| |Postage|**100**|||||**965**| |Services|**4,334**|||||**4,176**| |Retreats|**3,137**|||||**6,279**| |Chelsea Flower Show|**5,536**|||||**-**| |misc|**126**|||||**-**| |Merchandise|**488**|||||**3,303**| ||**-**|||||**-**| |**_Sub total_ **|**17,522**|||||**24,655**| |||||||| |**A4 Asset and investment**
**purchases, (see table)**||||||| |**merchandise**|**3,303**|||||| ||**-**|||||| |**_Sub total_ **|**3,303**|||||**-**| |**_Total payments_**
**_Net of receipts/(payments)_**
**A5 Transfers between funds**
**A6 Cash funds last year end**
**_Cash funds this year end_**||||||| |||||||**24,655**| |||||||| ||**1,802**|**-**|**-**|**1,802**||**- 6,142**| ||**-**|**-**|**-**|**-**||**-**| ||**6,966**|**824**|**-**|**7,790**||**-**| ||**8,768**|**824**|**-**|**9,592**||**- 6,142**| CCXX R1 accounts (SS) 1 ## **Section B Statement of assets and liabilities at the end of the period** |**Categories**
Signed by one or two trustees on
behalf of all the trustees
**B1 Cash funds**
**B2 Other monetary assets**
**B4 Assets retained for the**
**charity’s own use**
**B5 Liabilities**
**B3 Investment assets**|Signature
**Details**
**Details**
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
**Details**
**Details**
**Details**|**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**8,768**
**824**
OK
OK
**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**
**-**
**-**
**-**
**-**
**-**
Print Name
MrsVictoria butler
Miss Simona Stankovska|**Endowment**
**funds**
**to nearest £**| |---|---|---|---| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||OK| ||||**Endowment**
**funds**
**to nearest £**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**Current value**
**(optional)**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**-**| ||||**When due**
**(optional)**| ||||| ||||| ||||| ||||| ||||| ||||| ||||Date of
approval| |||MrsVictoria butler|**11/16/2024**| |||Miss Simona Stankovska|**11/16/2024**| CCXX R2 accounts (SS) 2