Atacsia a Fi / Ataxia and me ICIO 1184030) Annual Report 2023- 2024 A small charfty based in West Wales. established by a few patients. of this rdre disease. coming tO8ether and sharin the patients experience, of living with this "Life 1imrtl health condition. Focusing on Ataxia and associated rdre diseases and movement disorders, Allowing us to cater for a wider patient community, who might feel isolated, with a heah condition that is 8enernlly un-heard of. Atsxia-W most serious condition yw've never heanl or. Atsxla Is a Greek word meanln8.lack of Onle We alm to brlng son order, to the lack of order. Although, most physical activity was very small. due to the (legacy of the Covid191 pandemic. Many events have been provided via on-line platforms. Although. as we are more of an onllne charity. we were able to utili5e. the advanta8e of a virtual presence. allowing us to keep Interactlng wlth the community. During thls year the theme for most events, was VIRTUAL (either via Zoom or Microsoft teams). Events lon-llnel 128 Meeting5 IF2FI 18 Ivirtuall 4 Contribute to speakin& at virtual events 2 Supply text for media artlcles 2 Displaylstand at 2 events We hosted 2 volunteers durlng the year (adding to our social media presence), I volunteer relocated to Spaln, but continued to contribute to our social media. by tronslating posts into Spanish and Catalan lan8ua8es. Interactions with local merchandise suppliers {forteam Ataxia) 6 Our trustee and his wife. continue to make amazlng Ilnks with other patlent advocates, and other organisations, contributing to. and, conveying the patients perspectNe. Including many creatwe wrsting and videos. poems, podcasts and speakin8 as patient advocètes to many organisations. Indeed, Louise, is quite an Ambassador. having had a book published. . Ruffling Featherf. from which she ad$ excepts. from, at many Spoken Word, events. This continues to raise awareness of Ataxia, Neurology, and a posktive outlook. A highlight of the year was to be invited to the opening of the Genomic Centre in Cardiff Which was officiated by the Health minister, and made the TV news. as a HUGE advancement in the GeneticlRare disease arena.
Public liability Insurance Markel London Bank Barclays 20-25-19 Financials Income Expenditure Amount Description Description Amount In Fundralslng Local Giving page Local Giving page Local Giving page Local Giving page Local Giving page Local Giving page Local Giving page Local Giving page Out Media materials 48.64 Just Print 150 200 165.4 168.99 17.92 Get Stitched 33.93 Get Stitched 43.74 Get Stitched 9.61 RareRevolutlon Icharlty membershlp) 65 9.61 Local 8lvlng luse of,fundralslng platfomil 19.42 180 Website11231 117.54 TSO Host (web. Hosting) Cheque to AT 23 balènce 15.03 postsge to Volunteer 15.39 129.46 301.81 12.15 GAYL GAYL Insurance IIXJ.8 amazon amazon 15.96 Total 284.25 >>>> MINUS 1591.15 End 1306.9
Atscsia a fi / Atsxla and me {CIO 11840301 Annual Report 2023-2024 SSgned full name Position rtIA IL.1.2S Signed full name Position date DAW CEeTA£Y i6. 1. 25