Atacsia a Fi / Ataxia and me ICIO 1184030)
Annual Report 2023- 2024
A small charfty based in West Wales. established by a few patients. of this rdre disease. coming tO8ether and sharin
the patients experience, of living with this "Life 1imrtl￿ health condition.
Focusing on Ataxia and associated rdre diseases and movement disorders, Allowing us to cater for a wider patient
community, who might feel isolated, with a hea￿h condition that is 8enernlly un-heard of.
Atsxia-W* most serious condition yw've never heanl or.
Atsxla Is a Greek word meanln8.lack of Onle
We alm to brlng son* order, to the lack of order.
Although, most physical activity was very small. due to the (legacy of the Covid191 pandemic. Many events have
been provided via on-line platforms.
Although. as we are more of an onllne charity. we were able to utili5e. the advanta8e of a virtual presence. allowing
us to keep Interactlng wlth the community.
During thls year the theme for most events, was VIRTUAL (either via Zoom or Microsoft teams).
Events lon-llnel 128
Meeting5 IF2FI 18 Ivirtuall 4
Contribute to speakin& at virtual events 2
Supply text for media artlcles 2
Displaylstand at 2 events
We hosted 2 volunteers durlng the year (adding to our social media presence), I volunteer relocated to Spaln, but
continued to contribute to our social media. by tronslating posts into Spanish and Catalan lan8ua8es.
Interactions with local merchandise suppliers {forteam Ataxia) 6
Our trustee and his wife. continue to make amazlng Ilnks with other patlent advocates, and other organisations,
contributing to. and, conveying the patients perspectNe. Including many creatwe wrsting and videos. poems,
podcasts and speakin8 as patient advocètes to many organisations.
Indeed, Louise, is quite an Ambassador. having had a book published. . Ruffling Featherf. from which she ￿ad$
excepts. from, at many Spoken Word, events. This continues to raise awareness of Ataxia, Neurology, and a posktive
outlook.
A highlight of the year was to be invited to the opening of the Genomic Centre in Cardiff
Which was officiated by the Health minister, and made the TV news. as a HUGE advancement in the GeneticlRare
disease arena.

Public liability Insurance
Markel London
Bank
Barclays 20-25-19
Financials
Income
Expenditure
Amount Description
Description
Amount
In
Fundralslng
Local Giving page
Local Giving page
Local Giving page
Local Giving page
Local Giving page
Local Giving page
Local Giving page
Local Giving page
Out
Media materials
48.64 Just Print
150
200
165.4
168.99
17.92 Get Stitched
33.93 Get Stitched
43.74 Get Stitched
9.61 RareRevolutlon Icharlty membershlp)
65
9.61 Local 8lvlng luse of,fundralslng platfomil
19.42
180
Website11231
117.54
TSO Host (web. Hosting)
Cheque to AT 23 balènce
15.03 postsge to Volunteer
15.39
129.46
301.81
12.15
GAYL
GAYL
Insurance
IIXJ.8
amazon
amazon
15.96
Total
284.25 >>>> MINUS
1591.15
End
1306.9

Atscsia a fi / Atsxla and me {CIO 11840301
Annual Report 2023-2024
SSgned
full name
Position
rtIA
IL.1.2S
Signed
full name
Position
date
DAW
CEeTA£Y i6. 1. 25