2023-03-31-accounts - Amyloidosis UK

This text was generated using OCR and may contain errors. Check the original PDF to see the document submitted to the regulator.

Objectiv	es and A	ctiv	itie	s
				SORP
				reference
Summary the charity	ofthe purposes as set out in its		of	Para 1.17	The purposes ofthe charity (CIO) are the relief of sickness and the preservation and protection ofgood
governing	document				health among people in the United Kingdom living with
					the medical condition ATTR Amyloidosis.
Summary activities	ofthe main in relation to	those		Para 1.17and 1.19	In planning our activities for the year, we kept in mind the Charities objectives and the Charity Commission's
purposes for the public benefit the activities,					guidance on public benefit. Our objective is: a) providing information, support and advice to people
projects or services identified in the accounts.					living with the Condition, their families, and carers. b) advocating to ensure that every person has timely
					and effective diagnosis, treatment, and care ofthe
					Condition.
					c) working closely with all stakeholders to facilitate the
					availability ofeffective treatments for the Condition.
					d) funding and supporting research to advance
					scientific understanding ofthe Condition and its effective
					treatment and to publish the useful results thereof for the
					public benefit.
Statement confirming whether the trustees		have		Para 1.18	The main activities associated with our objectives were formed based on the guidance issued by the Charity
had regard to the guidance					Commission on public benefit.
issued by the Charity
Commission on public
benefit

Achieve	men	ts	and Per	formance
				soRp
				reference
					With the continued relaxation of Covid
					restrictions this year we were able to explore
					more face-to-face activities. Below is a
Summary ofthe main achievements ofthe charity,				Para 1.20	breakdown of all the main achievements:
identifying	the	difference the			~ We have continued our outreach
charity's	work	has	made to		work with the Afro-Caribbean
the circumstances of its beneficiaries and any wider benefits to society.					community. ~ Continued to support patients UK and beyond with information,	in the one to
					one support etc.
					~ Attended conferences to raise
					awareness ofAmyloidosis and UKATPA
					among key professional groups (BSHF
					etc).
					~ Helped improve patient access to
					treatments by representing the patient' s
					voice during the NICE assessment
					process. Two new drugs approved
					during this period.
					~ Appointed a new chair oftrustees at
					the end ofthe financial year.
					~ Created a Scientific Advisory Group
					to guide our work in the future.
					~ Initiated projects to improve our
					visibility and reach so we can help	more
					patients.
					~ Initiated support for carers of
					patients with Amyloidosis.

			N/A
Performance	offundraising
activities against objectives		Para 1.41
set.
			N/A
Investment	performance	Para 1.41
against objectives

Financial Review
Review ofthe charity's			Para 1,21	Cash at bank		at 31/3/2023	was 239,216.69.
financial position at the	end			in unrestricted		funds.
ofthe eriod
Statement explaining the			Para 1.22	N/A
policy for holding reserves
statin wh the are held
Number of reserves held			Para 1.22	N/A
Reasons for holding zero			Para 1.22	N/A
reserves
Details offund materially		in	Para 1.24	N/A
deficit
Explanation of any			Para 1.23	N/A
uncertainties about the
charity continuing as a going
concern
Additional information	(optional)
You ma choose to include		further statements		where relevant		about
				Our main source offunds this year has
				been grants and donations.
The charity's principal sources offunds (including			Para 1.47
any fundraising)
				As a small	charity we do not have this.
Investment policy and objectives including any			Para 1.46
social investment policy
adopted.
				In the first	part of the year,		it was the
				restrictions	that COVID-19		had presented.
A description ofthe principal			Para 1.46
risks facing the charity.

tructure, Governan	and Man	agement
Description of charity's
trusts:
Type of governing document ' I i.i"'i;!.-~c-'l. '» al «hariei i	Para 1.25	(Foundation	model constitution)
How is the charity	Para 1.25
constituted?		Charitable	Incorporated	Organisation			(CIO)
Trustee selection methods	Para 1.25	This forms	part ofthe governing			document.
including details of any		New trustees are selected			by current
constitutional provisions		trustees.
e.g., election to post or
name of any person or body
entitled to appoint one or
more trustees

	Trustee name	Office (ifany)
	Carlos Heras-	Chairman
	Palou
	Vincent Nicholas	Treasurer
	David Gregory	Secretary
4	Ruth Bramwell	Trustee
5	Paul Pozzo	Trustee
6	Ben Laryea	Trustee
7
8
9
10
11
12
13
14
15
16
17
18
19
20

										~ ~	~	~	~
~	e	~		~		~	~	~
									Unrestricted		Restricted				Endowment
	Categories				Details				funds to nearest f		to	funds nearest t'			funds to nearest f
B1Cash funds
							Total	cash funds
					(agree	balances	with receipts and payments account(s))				)rr
									Unrestncted		Restricted				Endowment
									funds			funds			funds
					Details				to nearest K		to	nearest		K	to nearest	F.
B2Other	monetary assets
					Details				Fund asset	to which belon s	Cost (optional)				Current value o tional
B3Investment		assets
					Details				Fund asset	to which belon s	Cost (optional)				Current value o tional
B4Assets retained for			the
charity's	own	use
									Fund	to which	Amount		due		When due
					Details				liabili	relates		o tional			o tional
B5Liabilities
Signed by one or two trustees behalf of all the trustees			on			Signature				Print	Name				Date of a roval