## ## |Objectiv|es and A|ctiv|itie|s|| |---|---|---|---|---|---| |||||SORP|| |||||reference|| |Summary
the charity|ofthe purposes
as set out in its||of|Para
1.17|The purposes
ofthe charity (CIO) are the relief of
sickness and the preservation
and protection
ofgood| |governing|document||||health among people
in the United
Kingdom
living with| ||||||the medical
condition
ATTR Amyloidosis.| |Summary
activities|ofthe main
in relation to|those||Para
1.17and
1.19|In planning
our activities for the year, we kept in mind
the Charities objectives and the Charity Commission's| |purposes
for the public
benefit the activities,|||||guidance
on public benefit. Our objective is:
a) providing
information,
support
and advice to people| |projects or services
identified
in the accounts.|||||living with the Condition,
their families,
and carers.
b) advocating
to ensure that every person has timely| ||||||and effective diagnosis,
treatment,
and care ofthe| ||||||Condition.| ||||||c) working
closely with
all stakeholders
to facilitate the| ||||||availability
ofeffective treatments
for the Condition.| ||||||d) funding
and supporting
research to advance| ||||||scientific understanding
ofthe Condition
and its effective| ||||||treatment
and to publish
the useful results thereof for the| ||||||public benefit.| |Statement
confirming
whether
the trustees||have||Para
1.18|The main activities associated
with our objectives were
formed based on the guidance
issued
by the Charity| |had regard to the guidance|||||Commission
on public benefit.| |issued
by the Charity|||||| |Commission
on public|||||| |benefit|||||| ## |Achieve|men|ts|and Per|formance||| |---|---|---|---|---|---|---| |||||soRp||| |||||reference||| ||||||With the continued
relaxation
of Covid|| ||||||restrictions
this year we were able to explore|| ||||||more face-to-face activities. Below is a|| |Summary
ofthe main
achievements
ofthe charity,||||Para 1.20|breakdown
of all the main achievements:|| |identifying|the|difference the|||~
We have continued
our outreach|| |charity's|work|has|made to||work with the Afro-Caribbean|| |the circumstances
of its
beneficiaries
and any wider
benefits to society.|||||community.
~
Continued
to support
patients
UK and beyond
with information,|in the
one to| ||||||one support etc.|| ||||||~
Attended
conferences
to raise|| ||||||awareness
ofAmyloidosis
and UKATPA|| ||||||among
key professional
groups (BSHF|| ||||||etc).|| ||||||~
Helped
improve
patient access to|| ||||||treatments
by representing
the patient' s|| ||||||voice during the NICE assessment|| ||||||process. Two new drugs approved|| ||||||during
this period.|| ||||||~
Appointed
a new chair oftrustees at|| ||||||the end ofthe financial year.|| ||||||~
Created a Scientific Advisory
Group|| ||||||to guide our work
in the future.|| ||||||~
Initiated
projects to improve
our|| ||||||visibility
and reach so we can help|more| ||||||patients.|| ||||||~
Initiated
support for carers of|| ||||||patients
with Amyloidosis.|| ||||N/A| |---|---|---|---| |Performance|offundraising||| |activities against objectives||Para 1.41|| |set.|||| ||||N/A| |Investment|performance|Para 1.41|| |against objectives|||| ## |Financial
Review|||||||| |---|---|---|---|---|---|---|---| |Review ofthe charity's|||Para 1,21|Cash at bank||at 31/3/2023|was 239,216.69.| |financial
position at the|end|||in unrestricted||funds.|| |ofthe
eriod|||||||| |Statement
explaining
the|||Para 1.22|N/A|||| |policy for holding
reserves|||||||| |statin
wh
the
are held|||||||| |Number
of reserves
held|||Para 1.22|N/A|||| |Reasons for holding zero|||Para 1.22|N/A|||| |reserves|||||||| |Details offund materially||in|Para 1.24|N/A|||| |deficit|||||||| |Explanation
of any|||Para 1.23|N/A|||| |uncertainties
about the|||||||| |charity continuing
as a going|||||||| |concern|||||||| |Additional
information|(optional)||||||| |You ma
choose to include||further statements||where relevant||about|| |||||Our main source offunds this year has|||| |||||been grants and donations.|||| |The charity's
principal
sources offunds
(including|||Para 1.47||||| |any fundraising)|||||||| |||||As a small|charity we do not have this.||| |Investment
policy and
objectives
including
any|||Para 1.46||||| |social investment
policy|||||||| |adopted.|||||||| |||||In the first|part of the year,||it was the| |||||restrictions|that COVID-19||had presented.| |A description
ofthe principal|||Para 1.46||||| |risks facing the charity.|||||||| ## |tructure,
Governan|ce|and Man|agement|||||| |---|---|---|---|---|---|---|---|---| |Description
of charity's||||||||| |trusts:||||||||| |Type of governing
document
'
I i.i"'i;!.-~c-'l.
'» al «hariei
i||Para 1.25|(Foundation|model constitution)||||| |How is the charity||Para 1.25||||||| |constituted?|||Charitable|Incorporated|Organisation|||(CIO)| |Trustee selection methods||Para 1.25|This forms|part ofthe governing|||document.|| |including
details of any|||New trustees are selected|||by current||| |constitutional
provisions|||trustees.|||||| |e.g., election to post or||||||||| |name of any person or body||||||||| |entitled to appoint one or||||||||| |more trustees||||||||| ## |ou ma|cho|o|se to include fu|rther statement|s
where relevant
abo|ut|ut|| |---|---|---|---|---|---|---|---|---| ||||||Forms part ofthe|Foundation'||model| ||||||constitution.|||| |Policies|and|procedures||||||| |adopted|for|the induction||Para 1.51||||| |and training||oftrustees.||||||| ||||||We have six trustees||and an|administrator:| ||||||Chairman|||| |The charity's
structure
and|||organisational
any wider|Para 1.51|Treasurer
Secretary|||| |network|with|which the|||Trustee|||| |charity works.|||||Trustee|||| ||||||Trustee|||| ||||||We do not belon|to|a wider|network.| ||||||N/A|||| |Relationship||with any||Para 1.51||||| |related|parties|||||||| |Other||||||||| ## ## |Charit
name||UK ATTR Am|UK ATTR Am|loidosis Patients'|Association|UKATPA| |---|---|---|---|---|---|---| |Other name the charit
uses||N/A||||| |Re istered charit|number|1183624||||| |Charity's
principal|address|Hackamore|House, Grove Lane,||Redlynch,|Salisbury SP5| |||2NR.||||| ## ||Trustee name|Office (ifany)|Dates acted ifnot for full
ear|Name
to a|of person (or body) entitled
oint trustee
if an|of person (or body) entitled
oint trustee
if an| |---|---|---|---|---|---|---| ||Carlos Heras-|Chairman||||| ||Palou|||||| ||Vincent Nicholas|Treasurer||||| ||David Gregory|Secretary||||| |4|Ruth Bramwell|Trustee||||| |5|Paul Pozzo|Trustee||||| |6|Ben Laryea|Trustee||||| |7||||||| |8||||||| |9||||||| |10||||||| |11||||||| |12||||||| |13||||||| |14||||||| |15||||||| |16||||||| |17||||||| |18||||||| |19||||||| |20||||||| ## |Name and objects ofthe||N/A| |---|---|---| |charity on whose behalf|the|| |assets are held and how||| |these falls within the||| |custodian
charity's
objects.||| |Details of arrangements|for|N/A| |safe custody and||| |segregation
ofsuch assets||| |from the charity's
own||| |assets||| ## ## ## |||||||||||~
~|~|~|~|||| |---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---| |~|e|~||~||~|~|~||||||||| ||||||||||Unrestricted||Restricted||||Endowment|| ||Categories||||Details||||funds
to nearest f||to|funds
nearest t'|||funds
to nearest f|| |B1Cash funds||||||||||||||||| ||||||||Total|cash funds||||||||| ||||||(agree|balances|with receipts and payments
account(s))||||)rr|||||| ||||||||||Unrestncted||Restricted||||Endowment|| ||||||||||funds|||funds|||funds|| ||||||Details||||to nearest
K||to|nearest||K|to nearest|F.| |B2Other|monetary assets|||||||||||||||| ||||||Details||||Fund
asset|to which
belon s|Cost (optional)||||Current value
o tional|| |B3Investment||assets||||||||||||||| ||||||Details||||Fund
asset|to which
belon s|Cost (optional)||||Current value
o tional|| |B4Assets retained for|||the|||||||||||||| |charity's|own|use||||||||||||||| ||||||||||Fund|to which|Amount||due||When due|| ||||||Details||||liabili|relates||o tional|||o tional|| |B5Liabilities||||||||||||||||| |Signed by one or two trustees
behalf of all the trustees|||on|||Signature||||Print|Name||||Date of
a
roval||