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2024-03-31-accounts

REGISTERED CHARITY NUMBER: 1183086

Report of the Trustees and

Unaudited Financial Statements for the Period Ended 31 March 2024

for

Harry’s Hydrocephalus Awareness Trust

A Charitable Incorporated Organisation (CIO)

Holy Brook Associates Ltd

Harry’s Hydrocephalus Awareness Trust (A CIO)

Contents of the Financial Statements

for the Period Ended 31 March 2024

Page
Report of the Directors and Trustees 3 to 6
Report of the Chair 7 to 9
Report of the Founder 10 to 11
Independent Examiner's Report 12 to 13
Statement of Financial Activities 14
Balance Sheet 15
Notes to the Financial Statements 16 to 30

Page 2

Harry’s Hydrocephalus Awareness Trust

Report of the Directors and Trustees

for the Period Ended 31 March 2024

The Trustees present their report with the financial statements of the charity for the period ended 31 March 2024. The Trustees have adopted the provisions of the Statement of Recommended Practice (SORP) “Accounting and Reporting by Charities” (FRS 102) in preparing the annual report and financial statements of the charity.

REFERENCE AND ADMINISTRATIVE DETAILS

Registered Charity number 1183086 Principal address

4 Wildwood Gardens, Yateley, GU46 6EB

Trustees

Harri Mead (Chair) Naghza Khokhar Non Hill Louise Fleming Lucy Mu Matthew Coates Michael Thwaites Ashwin Kumaria Victoria Glover

Independent Examiner

Rachel Eden Holy Brook Associates Curious Lounge, 1st Floor, Pinnacle Building, Tudor Road, Reading, England, RG1 1NH

Bankers

Barclays Bank plc Oxford City 2 Leicestershire LE87 2BB

Page 3

Harry’s Hydrocephalus Awareness Trust

Report of the Directors and Trustees

for the Period Ended 31 March 2024 (Continued)

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing document

Harry’s Hydrocephalus Awareness Trust, a charitable incorporated organisation (CIO), registered as a charity on 29 April 2019 and uses the working name of Harry’s HAT.

The Charity is controlled by its governing document and the CIO Constitution.

The Board appoints Trustees. The Trustees who served the charity during the period were as follows:

Ashwin Kumaria Appointed 07 November 2023
Louise Fleming Appointed 06 March 2023
Naghza Khokhar Appointed 13 February 2022
Non Hill Appointed 05 September 2021
Michelle Harley Appointed 07 February 2021 Resigned 3rdJuly 2023
Harri Mead Appointed 08 March 2020
Teri Kearsey Appointed 19 May 2019
 Resigned 4thAugust 2023
Faith Kitchen Appointed 19 May 2019
 Resigned 21stNovember 2024
Lucy Mu Appointed 11 November 2018
Matthew Coates Appointed 11 November 2018
Michael Thwaites Appointed 11 November 2018

Recruitment and appointment of new Directors and Trustees

The Constitution provides for a minimum of 3 Trustees with no stated maximum. Where there is a requirement for new Trustees these are identified and appointed by the existing Trustees for a term of 3 years by the passing of a resolution at a properly convened meeting of the Trustees. In selecting the new Trustees, the Board must have regard for the skills, knowledge and experience needed from the individual in order to provide effective administration of the charity.

Any new Trustee will be provided, on or before their first appointment, with a copy of the previous period's annual report and accounts and a copy of the Charity constitution.

Page 4

Harry’s Hydrocephalus Awareness Trust

Report of the Directors and Trustees

for the Period Ended 31 March 2024 (Continued)

Risk management

The Trustees have a duty to identify and review the risks to which the charity is exposed and to ensure appropriate controls are in place to provide reasonable assurance against fraud and error.

OBJECTIVES AND ACTIVITIES

The principal objective of the charity to relieve sickness and to assist in the treatment and care of persons suffering from hydrocephalus and/or arachnoid cyst across the UK by:

a) financing health professionals across the UK with an interest in paediatric arachnoid cysts and/or hydrocephalus to enable them to further their knowledge and understanding ensuring the highest professional standards

b) promoting independent research into the prevention and treatment of hydrocephalus and/or arachnoid cysts provided that all useful results are disseminated to the public

c) providing information and support to people and their families/carers with hydrocephalus and/or arachnoid cysts.

Public benefit statement

The Trustees confirm that they have complied with the requirements of the Charities Act 2011 to have due regard to the Charities Commission Guidance on public benefit.

Page 5

Harry’s Hydrocephalus Awareness Trust

Report of the Directors and Trustees

for the Period Ended 31 March 2024 (Continued)

ACHIEVEMENT AND PERFORMANCE

The activities carried out by the charity in the year in order to meet its objectives include:

a) working with communities to raise awareness of paediatric hydrocephalus

b) the provision of grants so that people working with children affected by hydrocephalus can improve their understanding of the condition

c) connecting of families affected by paediatric hydrocephalus

d) funding of research to improve life-chances of children with the condition

e) Supporting nurses and front-line medical staff to access bursary grants to further their knowledge and understanding of hydrocephalus

FINANCIAL REVIEW

Financial Review

The charity holds unrestricted reserves of £88,041.

SIGNED ON BEHALF OF THE BOARD:

Naghza Khokhar

Date: 2025-01-16

Page 6

Harry’s Hydrocephalus Awareness Trust

Chair’s Statement

for the Period Ended 31 March 2024

I’m delighted to submit this statement, at the end of yet another exciting period of growth for the Charity. First and foremost, I would like to extend my thanks to our Founder, staff, Trustees, volunteers, and supporters for their dedication during this period. Our operational staff have been placed under immense pressure this year, as demand for our services has grown exponentially. Both our CEO, Caroline Coates, and our Families Together Manager, Vicki Hannay, have adapted to this influx in demand with an extraordinary level of resilience. They are both outstanding individuals who go above and beyond to support hydro-warriors and their families.

Equally, our Trustee team has had to adapt as demands on the Charity have increased during the period. Every one of our Trustees gives their time on a voluntary basis and, despite increases in workload, all of them have continued to undertake their roles with dedication, skill, and agility.

In relation to the Trustee team, I’m delighted that, in November 2023, we welcomed Ashwin Kumaria to the Board as our first Clinical Trustee. Ashwin is a neurosurgeon at University College London Hospitals and, in addition to his far-reaching clinical experience, has also undertaken multiple voluntary roles to support his local community. Ashwin is also a Senior Editorial Fellow of the British Journal of Neurosurgery. We are thrilled to have Ashwin on the Board and his clinical expertise, coupled with his empathetic and analytical approach, have already proved invaluable.

I would also like to take this opportunity to congratulate our Vice-Chair, Non Hill, on her nomination for a BBC ‘Make A Difference’ award this year. Non is an outstanding Vice-Chair and, in addition to maintaining our internal charitable policies, is also extensively involved undertaking qualitative research work with our service users. Her nomination was incredibly well-deserved and further demonstrates how lucky we are to have her within the team.

The Charity has undertaken a vast amount of work this year. However, I would like to take this opportunity to highlight some projects of which we are particularly proud. In March, several Harry’s HAT representatives attended the annual British Paediatric Neurosurgical Group Meeting in Leeds. Over the course of the two-day conference, Caroline delivered a speech to the UK’s most prominent neurosurgeons and clinical nurse specialists which focussed on our Get-A-Head campaign work. Caroline, Sarah Papageorgiou (project lead for our Shunt Pathway Programme), and Victoria Wall (PR volunteer and hydro-mum) also attended the second meeting of our Shunt Pathway Programme. The meeting was well attended by clinicians and focussed on the way in which children presenting with suspected shunt failure are currently triaged upon arrival at a healthcare setting. The mixture of clinical, charitable, and lived experience voices led to an incredibly successful meeting. Although, at the time of writing, this piece of work is still in progress, we are strongly

Page 7

Harry’s Hydrocephalus Awareness Trust

Chair’s Statement

for the Period Ended 31 March 2024 (Continued)

optimistic that the Programme will result in a more streamlined, effective, and inclusive treatment pathway for children in suspected shunt failure.

In July, we launched Global Get-A-Head Day to encourage individuals from across the globe to highlight the importance of infant head circumference measurement. We were delighted to receive support from the Hydrocephalus Association in the United States, as well as from a range of charities, clinicians, medical technology companies, and families from the UK and other countries.

Due to the days success, we will continue to run Global Get-A-Head Day every July to continue to raise awareness of infant head circumference measurement.

Overall, our Get-A-Head campaign has received a significant amount of media attention this year, in great part thanks to our fantastic PR volunteer Victoria Wall. Victoria has been instrumental in obtaining media coverage for the campaign in both local and national news outlets and the Charity is incredibly fortunate to benefit from her expertise and lived experience.

This year, the Charity also became a member of National Voices. National Voices is England’s leading coalition of health and social care charities which, through its network of over 200 charities, advocates for person-centred and inclusive care. We are thrilled to be able to lend the Charity’s voice to this organisation, which enables us to advocate for our service users’ needs at a national level.

As well as the operational advances noted above, this year has also brought several key changes to our governance approach. Thanks to an extraordinary amount of work by Non Hill, we have reshaped the Charity’s internal policies. This has included a lengthy process of auditing our existing policies, noting where updates were required, and identifying gaps in policy provision. Consequently, we have refreshed our safeguarding, finance and GPDR policies to reflect the Charity’s present size and reach. We have also put a social media policy and volunteering code of conduct in place. Additionally, all Trustees are now required to sign a declaration which confirms that they have reviewed key policies and undertaken several mandatory online training modules via the TES online learning platform.

As Chair, I have also introduced Trustee one to ones this year. I now hold a one to one meeting with at least one Trustee per month, via Teams. These meetings are arranged according to a rolling schedule, so that every Trustee has a one to one at least biannually. The agenda for the meetings is informal and sessions are intended to provide Trustees with an opportunity to discuss any concerns, challenges, and new ideas. As all of our Trustees are volunteers, it also grants us with the space to discuss how each Trustee is feeling regarding their charity work/life balance, outside of a formal Board meeting setting. To date, these meetings have been a success and have enabled me to capture and address minor concerns

Page 8

Harry’s Hydrocephalus Awareness Trust

Chair’s Statement

for the Period Ended 31 March 2024 (Continued)

before they were given the chance to escalate. Additionally, some of the ideas posed within the sessions have led to further improvements in governance practices. For example, one Trustee suggested that the Charity would benefit from regular dedicated oversight in relation to risk mitigation and finances. In response, we have put bimonthly Finance & Risk Committee meetings in place, which are attended by a select group of Trustees (assigned based on skillset), and which allow us to deep dive on relevant issues outside of Board sessions.

Caroline and I now also have monthly one to ones, either via Teams or in person. Although we speak multiple times during the course of any given week, our formal monthly sessions provide us with a chance to discuss a wide range of issues in a more structured manner. It is an immense privilege to work alongside Caroline and these meetings have strengthened the way in which we support each other as a CEO/Chair partnership. Caroline is the heart of the Charity and it continues to be a genuine honour to work alongside her.

Finally, the work we have undertaken this year is only made possible by the generosity of funders and donors. I would like to express my gratitude, on behalf of the Charity and our service users, to Davies & Partners, The National Lottery, BBC Children in Need, BBraun, Marketors’ Charity and the St. James’ Place Charitable Foundation.

To continue the theme of my previous Chair’s report, the rate of demand for our services continues to grow and I expect this will only heighten as time continues. I look forward to another year of work alongside our fantastic team, all of whom put the needs of hydrowarriors and their families at the heart of everything they do.

2025-01-16

Harri Mead Chair of Trustees

Page 9

Harry’s Hydrocephalus Awareness Trust

Founder’s Statement

for the Period Ended 31 March 2024

It is always a pleasure to write my Founder’s report as it gives me a chance to reflect on our achievements this year.

As always, we exist to make a difference to lives of children and families affected by paediatric hydrocephalus and as a user-led charity it is the families who are and will always remain at the heart of our charity.

I know that I say it every year, but I am truly honoured to lead this charity. We have the most extraordinary team of dedicated people who give their time and heart to the charity with the aim of making a tangible difference to the lives of children who and their families who battle the condition daily. Speaking not as the founder but as Harry’s Mum this work is about families in whatever shape they come and recognising that hydrocephalus is what connects us, but that hydrocephalus doesn’t define us.

Key achievements and highlights this year also include:

Page 10

Harry’s Hydrocephalus Awareness Trust

Founder’s Statement

for the Period Ended 31 March 2024 (Continued)

I would like to take the opportunity to personally thank Harri Mead who diligently Chairs the charity. Harri’s leadership and commitment to excellent Governance and stewardship

ensures that we are reflective of the people we serve and that we address barriers to participation by offering flexibility and adaptability. Harri is talented young trustee who has absolutely thrived in this role she is an inspiration to young women in leadership.

Finally, I would like to give a special thanks to Lucy Mu who as well as being a Trustee also chairs our Gap Funding programme. We are acutely aware that we can never do and never give enough however the Gap Funding grants came about after families reported being unable secure vital pieces of equipment or services to help their child with hydrocephalus. Therefore, we open two rounds a year where families can apply for vital one-off grants to support them. Lucy carefully and conscientiously chairs the panel who often have to make very challenging decisions with limited funds, and she does this with integrity and efficiency, and feedback from families highlights the impact that this makes.

Thank you to everyone who gives their time and/or donates their money to support our work. We really couldn’t do this without you, and we are forever grateful for your continued encouragement and support.

Caroline Coates 2025-01-16

CEO and Co-Founder

Page 11

Independent Examiner's Report to the Directors and Trustees

of Harry’s Hydrocephalus Awareness Trust for the period ending March 2024

I report on the accounts of the charity for the period ended 31 March 2024 which are set out on pages 12 to 24.

Respective responsibilities of directors and examiner

The charity’s directors are responsible for the preparation of the accounts. The charity’s directors consider that an audit is not required for this Period under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed. It is my responsibility to:

Basis of independent examiner's report

My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as Trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a “true and fair view” and the report is limited to those matters set out in the statement below.

Other matters

Your attention is drawn to the fact that the charity has prepared the accounts (financial statements) in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) issued on 16 July 2014 in preference to the Accounting and Reporting Charities: Statement of Recommended Practice issued on 1 April 2005 which is referred to in the extant regulations but has since been withdrawn.

We understand that this has been done in order for the accounts to provide a true and fair view in accordance with the Generally Accepted Accounting Practice effective for reporting periods beginning on or after 1 January 2015.

Page 12

Independent Examiner's Report to the Directors and Trustees

of Harry’s Hydrocephalus Awareness Trust

for the period ending March 2024 (Continued)

Independent examiner's statement

In connection with my examination, no matter has come to my attention:

1 which gives me reasonable cause to believe that, in any material respect, the requirements:

have not been met; or

Rachel Eden

Holy Brook Associates

Curious Lounge, 1st Floor,

Pinnacle Building,

Tudor Road, Reading,

England,

RG1 1NH

Date: 2025-01-16

Page 13

Harry’s Hydrocephalus Awareness Trust

Statement of Financial Activities

for the Period Ended 31 March 2024

Notes
INCOMING RESOURCES
Incoming resources from
generated funds
Donations and legacies
Charitable activities
2
Total incoming resources
RESOURCES EXPENDED
Costs of raising funds
3
Charitable activities
4
Legal and administrative
costs
5
Total resources expended
NET INCOME
RECONCILIATION OF
FUNDS
Transfer between funds
Capital spend
Total funds brought
forward
TOTAL FUNDS CARRIED
FORWARD		 Unrestricted
funds
£
54,257
1,241
55,498
4,082
25,228
4,080
33,389
22,109
393
-
-
65,539
88,041		 Restricted
funds
£
144,219
144,219
4,058
94,199
9,883
108,039

36,180
(393)
-
-
84,209
119,996		 2024
Total
funds
£
198,477
1,241
199,717
8,039
119,427
13,962
141,429
58,288
-
-
-
149,748
208,036		 2023
Total
funds
£
188,161
1,875
190,035


16,431
74,363
10,225
101,019

89,017


-
-
-
60,731
149,748

Page 14

Harry’s Hydrocephalus Awareness Trust

Balance Sheet

At 31 March 2024

Notes
FIXED ASSETS
Tangible assets
8
CURRENT ASSETS
Debtors
9
Cash in bank and in
hand
CREDITORS
Amounts falling
due within one
Period
10
NET CURRENT
ASSETS
TOTAL ASSETS LESS
CURRENT
LIABILITIES
NET ASSETS
11
FUNDS
12
Restricted funds
Unrestricted funds
TOTAL FUNDS		 Unrestricted
funds
£
596
568
90,186
90,754
3,309
87,445
88,041
88,041
88,041
88,041		 Restricted
funds
£
924
-
119,072
119,072
-
119,072
119,996
119,996
119,996
119,996		 2024
Total
funds
£
1,520
568
209,258
209,826
3,309
206,516
208,036
208,036
119,996
88,041
208,036		 2023
Total
funds
£
2,023
568
148,822
149,390
1,665
147,725
149,748
149,748
84,388
65,360
149,748

The financial statements were approved by the Board of Trustees on

and were signed on its behalf by:

Naghza Khokhar, Trustee

Date:

2025-01-16

Page 15

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024

1. ACCOUNTING POLICIES

The financial statements of the Charitable Incorporated Organisation, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention, with the exception of investments which are included at market value, as modified by the revaluation of certain assets (where applicable).

(ii). Going Concern.

At the time of approving the accounts, the Trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus, the Trustees continue to adopt the going concern basis of accounting in preparation of the accounts.

(iii). Income.

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.

Donations are recognised when received and will only be deferred if the donor has specified the donation must only be spent in future accounting periods or if certain conditions must be met before the charity has unconditional entitlement.

Income from grants is recognised at fair value when the charity has entitlement after any performance conditions have been met, it is probable that the income will be received and the amount can be measured reliably. If entitlement is not met, then these amounts are deferred.

Page 16

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

1. ACCOUNTING POLICIES (continued)

(iv). Expenditure.

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to the category. Where costs cannot be directly attributed to particular headings, they have been allocated to activities on a basis consistent with the use of resources.

Costs of generating voluntary income are those incurred in seeking voluntary income.

Governance costs are those incurred in meeting the charity's constitutional and statutory requirements. They include the Independent Examination fees and other costs linked to the strategic management of the charity.

All other expenditure has been allocated to the headings in the SOFA on the basis of the time spent by the executive officer.

(v). Fund Accounting.

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the Trustees.

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

(vi). Unrestricted Funds

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the Trustees.

Page 17

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

1. ACCOUNTING POLICIES (continued)

(vii). Taxation.

The charity is exempt from Corporation tax on its charitable activities. It has no trading income and therefore no liability to tax on this aspect of its activities.

(vii). Tangible Fixed Assets.

Tangible Fixed Assets (excluding Investments) are stated at cost less accumulated depreciation. Depreciation is provided at rates calculated to write off the cost of each asset over its expected useful life.

The rates used are as follows:

Impairment reviews are carried out as and when evidence comes to light that the recoverable amount of a functional fixed asset falls below its net book value due to obsolescence, damage or any other relevant factor.

(viii). Cash and Cash Equivalents.

Cash and cash equivalents include cash in hand and deposits held on call with the charity’s bankers.

(ix). Financial Instruments

The charity has elected to apply the provisions of Section 11 'Basic Financial Instruments' and Section 12 'Other Financial Instruments Issues' of FRS 102 to all of its financial instruments – where applicable.

Financial instruments are recognised in the charity’s balance sheet when the charity becomes party to the contractual provisions of the instrument.

Page 18

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

1. ACCOUNTING POLICIES (continued)

Basic financial assets.

Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.

Basic financial liabilities.

Basic financial liabilities, including creditors are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future receipts discounted at a market rate of interest. Financial liabilities classified as payable in one year are not amortised. Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.

Derecognition of financial liabilities

Financial liabilities are derecognised when the charity's contractual obligations expire or are discharged or cancelled.

Page 19

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

1. ACCOUNTING POLICIES (continued)

(x). Investments

Investment assets held with the intention of retaining them long-term for the continuing benefit of the charity in the form of income and capital appreciation are classified as fixed assets except where the intention is to realise the asset without reinvestment of the sale proceeds. In such cases investments are classified as current assets.

Investment assets are shown in the balance sheet at quoted market price. Changes in value in the year, whether or not realised, are reported as gains and losses on investment assets in the Statement of Financial Activities.

(xi). Critical Accounting estimates and Judgments.

In the application of the charity's accounting policies, the Trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates. No judgements made by the Trustees have had a significant effect on the amounts recognised in the financial statements.

The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods. There are no key assumptions or sources of estimation uncertainty that have a significant risk of causing a material adjustment to the carrying amounts of assets and liabilities within the next financial year.

2. DONATION AND LEGACIES

Donations
Grants		 2024
£
51,293
147,183

198,476		 2023
£
51,856
136,305
188,161

Page 20

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

3.
COST OF RAISING FUNDS
Fund Raising Costs
Promotion and public relations costs
4.
CHARITABLE ACTIVITES
Notes
Book Costs
Conferences and Seminars
Depreciation
Staffing costs
Overheads
Grants
Hydrocephalus Education
Merchandise
Postage, Freight & Courier
Printing & Stationery
Staff Training
Trustee Expenses
Venue Expenses
 2024
£
4,241
3,799
8,039
2024
£
2,600
3,237
849
63,176
13,234
16,800
858
5,259
1,437
7,544
800
1,877
1,754
119,427		 2024
£
4,241
3,799		 2023
£
8,010
8,421
8,039 16,431
2023
£
4,018
572
26,653
9,665
13,242
-
1,264
1,111
3,492
904
1,959
6,483
69,363

Page 21

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

5. LEGAL AND ADMINISTRATIVE COSTS

Legal and professional fees
Independent examiner’s fee
Insurance		 2024
£
12,142
1,248
573
13,962		 2023
£
8,750
984
491
10,225

6. GRANTS PAYABLE

The total grants paid to institutions and individuals during the year was as follows:

Support and training of medical personnel
Gap Funding for families
Grants – other		 2024
£
8,557
6,502
1,740
16,799		 2023
£
3,346
6,118
3,778
13,242

7. TRUSTEES' REMUNERATION AND BENEFITS

There were no Trustees' remuneration or other benefits for the period ended 31 March 2024 (2023 – none). Two Trustees were reimbursed for expenses incurred on behalf of the charity, with the amounts totalling £1,877 (2023 – four Trustees £2,781.14).

Page 22

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

8.
TANGIBLE FIXED ASSETS
Furniture and
equipment
£
Computer
Equipment
£
COST
At 31 March
2023
Additions
450
346
3,482
-
At 31 March
2024
796
3,482
DEPRECIATION
At 31 March
2023
Charge for year
66
134
1,844
715
At 31 March
2024
200
2,559
NET BOOK
VALUE
At 31 March
2024
596
924
9.
DEBTORS: AMOUNTS FALLING DUE WITHIN ONE PERIOD
2024
£
Prepayments and other
debtors
568
568
10.
CREDITORS: AMOUNTS FALLING DUE WITHIN ONE PERIOD
2024
£
Accruals and deferred income
PAYE Payable
Pension costs
1,000
1,740
370
3,309		 Total
2024
£

3,932
796
4,279


1,909
849
2,759


1,520		 Totals
2023
£
1,337
2,145
3,482
1,337
507
1,909
2,023
2023
£
568
568
2023
£
1,339
-
326
1,665

Page 23

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

11. ANALYSIS OF NET ASSETS BETWEEN FUNDS

Fixed Assets
Current Assets
Current liabilities		 Unrestricted
Funds
£

791
90,559
(3,309)
88,041		 Restricted
Funds
£
729
119,269
-
119,996		 2024
Total
Funds
£
1,520
209,826
(3,309)
208,036		 2023
Total
Funds
£
2,023
149,390
(1,665)
149,748

Page 24

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements - continued

for the Period Ended 31 March 2024 (Continued)

12. MOVEMENT IN FUNDS

Restricted funds
Arnold Clarke
Action Funder
B.Braun Medical
BA Better World Community Fund
BBC Children in Need
CL Medilaw
Globals Make Some Noise
Groundwork
Magic Little Grant
National Lottery: CEO
National Lottery: App
National Lottery: AFA
Surrey County Council
Marketors’ Charity
Community for Foundation Surrey
Unrestricted funds
General fund
TOTAL FUNDS		 Net
Movements
in funds
£
-
2,000
3,000
(8,643)
10,777
1,799
(10,491)
639
(162)
11,586
-
3,887
-
8,781
10,000
36,180
22,109
22,109
58,288		 Transfers
between
funds
£
(555)
-
-
-
-
-
-
-
162
-
-
-
-
-
(393)
393
393
-		 At
31.3.2024
£
-
2,000
3,000
2,286
10,777
1,799
2,114
1,373
-
54,162
-
7,375
1,303
8,781
12,019
119,996

88,041
88,041
208,036		 At
31.3.2023
£
555
-
-
10,929
-
-
12,605
734
-
42,756
10,000
3,487
1,303
-
2,019
84,388
65,360
65,360
149,748

Note:

Due to rounding the subtotals may appear to be out by £1.

Page 25

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

12. MOVEMENT IN FUNDS (continued)

Net movement in funds, included in the above, are as follows:

For the year ending March 2024

Restricted funds
Arnold Clarke
Action Funder
B.Braun Medical
BA Better World Community Fund
BBC Children in Need
CL Medilaw
Globals Make Some Noise
Groundwork
Magic Little Grant
National Lottery: CEO
National Lottery: App
National Lottery: AFA
Surrey County Council
Marketors’ Charity
Community for Foundation Surrey
Unrestricted funds
General fund
TOTAL FUNDS		 Incoming
Resources
£
-
2,000
3,000
500
15,000
2,500
28,350
875
-
58,605
-
10,000
-
10,000
10,000
144,219
55,498
55,498
199,717		 Resources
Expended
£
Movement in
Funds
£
-
-
-
9,143
4223
801
38,841
236
162
47,018
-
2,000
3,000
(8,643)
10,777
1,799
(10,491)
639
(162)
11,586
-
6,113
-
1,220
-
-
3,887
-
8,781
10,000
108,039
36,180
33,389
22,109
33,380
22,109
141,429
58,288

Page 26

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

12. MOVEMENT IN FUNDS (continued)

For the year ending March 2023

Restricted funds
Matthew Good Foundation
Garfield Weston Foundation
National Lottery: CEO
National Lottery: App
National Lottery: AFA
National Lottery: Book
Surrey County Council
Community Foundation for Surrey
Isla Foundation
Integra
BA Better World Community Fund
Globals Make Some Noise
Arnold Clark
Groundwork
Unrestricted funds
General fund
TOTAL FUNDS		 Incoming
Resources
£

1,000
-
59,250

-
9,600
-
-
-
-
9,500
24,480
28,350
1,000
1,000
134,180
55,856
190,036		 Resources
Expended
£
Movement
in Funds
£
1,128
5,000
17,674
(128)
(5,000)
41,576
-
6,132
-
450
1,467
-
9,319
13,551
15,745
445
266
-
3,468
-
(450)
(1,467)
-
181
10,929
12,605
555
734
71,177
63,003
31,449
24,407
102,626
87,410

.

Page 27

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

12. MOVEMENT IN FUNDS (continued)

Purpose of Unrestricted Funds

General Fund

The general fund is used for the day to day running of the charity.

Purpose of restricted funds

Action Funder

Family meet-up in Bournemouth and the surrounding areas for families affected by paediatric hydrocephalus.

B. Braun Medical

Printing the books: ‘Hydrocephalus: What I wish I’d known’ and ‘Hydrocephalus: Starting school’

BA: Better World Community Fund

Supporting the Get-A-Head campaign to raise awareness of the important of infant head circumference measurement within the community and amongst front-line health care professionals.

BBC Children in Need

Sibling support programme for one day a week, office administration and support.

CL Medilaw

Bravery bears and a contribution towards the ‘Hydrocephalus: What I wish I had known’ book.

Crowdfunder (restr. only)

Water project to help educated and support children with hydrocephalus to understand the importance of drinking water to help manage their condition.

Globals Make Some Noise

Rent.

Groundwork

Funding family meet up groups to reduce the social isolation suffered by families affected by paediatric hydrocephalus.

Page 28

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

12. MOVEMENT IN FUNDS (continued)

National Lottery Community Fund: CEO

This is a restricted fund which represents money provided for the recruitment of a CEO.

National Lottery: Awards for All

This is a restricted fund which represents money provided to promote awareness and education of hydrocephalus.

National Lottery Connecting Communities: Book

This is a restricted fund which represents money provided to produce a book to promote awareness and education of hydrocephalus.

Surrey County Council

This is a restricted fund which represents money provided for a community outreach project to raise awareness of hydrocephalus.

Marketors’ Charity

Funding to help make the charity’s mission and purpose clearer to families who reach out for support.

Community Foundation for Surrey

Supporting families affected by paediatric hydrocephalus in Surrey to connect and benefit from peer support. The project also outreaches to Surrey-based schools to provide information and awareness of the condition.

Page 29

Harry’s Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2024 (Continued)

13. RELATED PARTY TRANSACTIONS

There were disclosable related party transactions as one staff member is a close family member of a trustee as follows:

Name of trustee or connected party Legal authority (eg
order, governing
document)		 Amounts paid or benefit value Amounts paid or benefit value
This year
£		 Last year
£
Caroline Coates – a close family member is a
Trustee		 Governing
document		 34,763 -
Total 34,763 -

There were no transactions with related parties for the period ended 31 March 2023.

14. ULTIMATE CONTROLLING PARTY

The Board of Trustees are considered to be the ultimate controlling party.

15. STAFF OF THE CHARITY

Staff costs were as follows

2024
2023
Wages and
salaries 60,665 24,131
Social security
costs 704 2,199
Pension costs 1,807
322
Total 63,176 26,653

No member of staff was paid more than £60,000 in the year. The charity considers its key management personnel to comprise the Trustees of the charity.

The average number of staff during the year was 2 (2023 – 1).

Page 30