**REGISTERED CHARITY NUMBER: 1183086**
**Report of the Trustees and**
**Unaudited Financial Statements for the Period Ended 31 March 2024**
**for**
**Harry’s Hydrocephalus Awareness Trust**
**A Charitable Incorporated Organisation (CIO)**
Holy Brook Associates Ltd
## **Harry’s Hydrocephalus Awareness Trust (A CIO)**
## **Contents of the Financial Statements**
## **for the Period Ended 31 March 2024**
||**Page**|
|---|---|
|Report of the Directors and Trustees|3 to 6|
|Report of the Chair|7 to 9|
|Report of the Founder|10 to 11|
|Independent Examiner's Report|12 to 13|
|Statement of Financial Activities|14|
|Balance Sheet|15|
|Notes to the Financial Statements|16 to 30|
Page 2
## **Harry’s Hydrocephalus Awareness Trust**
## **Report of the Directors and Trustees**
## **for the Period Ended 31 March 2024**
The Trustees present their report with the financial statements of the charity for the period ended 31 March 2024. The Trustees have adopted the provisions of the Statement of Recommended Practice (SORP) “Accounting and Reporting by Charities” (FRS 102) in preparing the annual report and financial statements of the charity.
## **REFERENCE AND ADMINISTRATIVE DETAILS**
## **Registered Charity number 1183086 Principal address**
4 Wildwood Gardens, Yateley, GU46 6EB
## **Trustees**
Harri Mead (Chair) Naghza Khokhar Non Hill Louise Fleming Lucy Mu Matthew Coates Michael Thwaites Ashwin Kumaria Victoria Glover
## **Independent Examiner**
Rachel Eden Holy Brook Associates Curious Lounge, 1st Floor, Pinnacle Building, Tudor Road, Reading, England, RG1 1NH
## **Bankers**
Barclays Bank plc Oxford City 2 Leicestershire LE87 2BB
Page 3
## **Harry’s Hydrocephalus Awareness Trust**
## **Report of the Directors and Trustees**
## **for the Period Ended 31 March 2024 (Continued)**
## **STRUCTURE, GOVERNANCE AND MANAGEMENT**
## **Governing document**
Harry’s Hydrocephalus Awareness Trust, a charitable incorporated organisation (CIO), registered as a charity on 29 April 2019 and uses the working name of Harry’s HAT.
The Charity is controlled by its governing document and the CIO Constitution.
The Board appoints Trustees. The Trustees who served the charity during the period were as follows:
|Ashwin Kumaria|Appointed 07 November 2023||
|---|---|---|
|Louise Fleming|Appointed 06 March 2023||
|Naghza Khokhar|Appointed 13 February 2022||
|Non Hill|Appointed 05 September 2021||
|Michelle Harley|Appointed 07 February 2021|Resigned 3rdJuly 2023|
|Harri Mead|Appointed 08 March 2020||
|Teri Kearsey|Appointed 19 May 2019
|Resigned 4thAugust 2023|
|Faith Kitchen|Appointed 19 May 2019
|Resigned 21stNovember 2024|
|Lucy Mu|Appointed 11 November 2018||
|Matthew Coates|Appointed 11 November 2018||
|Michael Thwaites|Appointed 11 November 2018||
## **Recruitment and appointment of new Directors and Trustees**
The Constitution provides for a minimum of 3 Trustees with no stated maximum. Where there is a requirement for new Trustees these are identified and appointed by the existing Trustees for a term of 3 years by the passing of a resolution at a properly convened meeting of the Trustees. In selecting the new Trustees, the Board must have regard for the skills, knowledge and experience needed from the individual in order to provide effective administration of the charity.
Any new Trustee will be provided, on or before their first appointment, with a copy of the previous period's annual report and accounts and a copy of the Charity constitution.
Page 4
## **Harry’s Hydrocephalus Awareness Trust**
## **Report of the Directors and Trustees**
## **for the Period Ended 31 March 2024 (Continued)**
## **Risk management**
The Trustees have a duty to identify and review the risks to which the charity is exposed and to ensure appropriate controls are in place to provide reasonable assurance against fraud and error.
## **OBJECTIVES AND ACTIVITIES**
The principal objective of the charity to relieve sickness and to assist in the treatment and care of persons suffering from hydrocephalus and/or arachnoid cyst across the UK by:
a) financing health professionals across the UK with an interest in paediatric arachnoid cysts and/or hydrocephalus to enable them to further their knowledge and understanding ensuring the highest professional standards
b) promoting independent research into the prevention and treatment of hydrocephalus and/or arachnoid cysts provided that all useful results are disseminated to the public
c) providing information and support to people and their families/carers with hydrocephalus and/or arachnoid cysts.
## **Public benefit statement**
The Trustees confirm that they have complied with the requirements of the Charities Act 2011 to have due regard to the Charities Commission Guidance on public benefit.
Page 5
## **Harry’s Hydrocephalus Awareness Trust**
## **Report of the Directors and Trustees**
## **for the Period Ended 31 March 2024 (Continued)**
## **ACHIEVEMENT AND PERFORMANCE**
The activities carried out by the charity in the year in order to meet its objectives include:
a) working with communities to raise awareness of paediatric hydrocephalus
b) the provision of grants so that people working with children affected by hydrocephalus can improve their understanding of the condition
c) connecting of families affected by paediatric hydrocephalus
d) funding of research to improve life-chances of children with the condition
e) Supporting nurses and front-line medical staff to access bursary grants to further their knowledge and understanding of hydrocephalus
## **FINANCIAL REVIEW**
## **Financial Review**
The charity holds unrestricted reserves of £88,041.
## **SIGNED ON BEHALF OF THE BOARD:**
Naghza Khokhar
Date: 2025-01-16
Page 6
## **Harry’s Hydrocephalus Awareness Trust**
## **Chair’s Statement**
## **for the Period Ended 31 March 2024**
I’m delighted to submit this statement, at the end of yet another exciting period of growth for the Charity. First and foremost, I would like to extend my thanks to our Founder, staff, Trustees, volunteers, and supporters for their dedication during this period. Our operational staff have been placed under immense pressure this year, as demand for our services has grown exponentially. Both our CEO, Caroline Coates, and our Families Together Manager, Vicki Hannay, have adapted to this influx in demand with an extraordinary level of resilience. They are both outstanding individuals who go above and beyond to support hydro-warriors and their families.
Equally, our Trustee team has had to adapt as demands on the Charity have increased during the period. Every one of our Trustees gives their time on a voluntary basis and, despite increases in workload, all of them have continued to undertake their roles with dedication, skill, and agility.
In relation to the Trustee team, I’m delighted that, in November 2023, we welcomed Ashwin Kumaria to the Board as our first Clinical Trustee. Ashwin is a neurosurgeon at University College London Hospitals and, in addition to his far-reaching clinical experience, has also undertaken multiple voluntary roles to support his local community. Ashwin is also a Senior Editorial Fellow of the British Journal of Neurosurgery. We are thrilled to have Ashwin on the Board and his clinical expertise, coupled with his empathetic and analytical approach, have already proved invaluable.
I would also like to take this opportunity to congratulate our Vice-Chair, Non Hill, on her nomination for a BBC ‘Make A Difference’ award this year. Non is an outstanding Vice-Chair and, in addition to maintaining our internal charitable policies, is also extensively involved undertaking qualitative research work with our service users. Her nomination was incredibly well-deserved and further demonstrates how lucky we are to have her within the team.
The Charity has undertaken a vast amount of work this year. However, I would like to take this opportunity to highlight some projects of which we are particularly proud. In March, several Harry’s HAT representatives attended the annual British Paediatric Neurosurgical Group Meeting in Leeds. Over the course of the two-day conference, Caroline delivered a speech to the UK’s most prominent neurosurgeons and clinical nurse specialists which focussed on our Get-A-Head campaign work. Caroline, Sarah Papageorgiou (project lead for our Shunt Pathway Programme), and Victoria Wall (PR volunteer and hydro-mum) also attended the second meeting of our Shunt Pathway Programme. The meeting was well attended by clinicians and focussed on the way in which children presenting with suspected shunt failure are currently triaged upon arrival at a healthcare setting. The mixture of clinical, charitable, and lived experience voices led to an incredibly successful meeting. Although, at the time of writing, this piece of work is still in progress, we are strongly
Page 7
## **Harry’s Hydrocephalus Awareness Trust**
## **Chair’s Statement**
## **for the Period Ended 31 March 2024 (Continued)**
optimistic that the Programme will result in a more streamlined, effective, and inclusive treatment pathway for children in suspected shunt failure.
In July, we launched Global Get-A-Head Day to encourage individuals from across the globe to highlight the importance of infant head circumference measurement. We were delighted to receive support from the Hydrocephalus Association in the United States, as well as from a range of charities, clinicians, medical technology companies, and families from the UK and other countries.
Due to the days success, we will continue to run Global Get-A-Head Day every July to continue to raise awareness of infant head circumference measurement.
Overall, our Get-A-Head campaign has received a significant amount of media attention this year, in great part thanks to our fantastic PR volunteer Victoria Wall. Victoria has been instrumental in obtaining media coverage for the campaign in both local and national news outlets and the Charity is incredibly fortunate to benefit from her expertise and lived experience.
This year, the Charity also became a member of National Voices. National Voices is England’s leading coalition of health and social care charities which, through its network of over 200 charities, advocates for person-centred and inclusive care. We are thrilled to be able to lend the Charity’s voice to this organisation, which enables us to advocate for our service users’ needs at a national level.
As well as the operational advances noted above, this year has also brought several key changes to our governance approach. Thanks to an extraordinary amount of work by Non Hill, we have reshaped the Charity’s internal policies. This has included a lengthy process of auditing our existing policies, noting where updates were required, and identifying gaps in policy provision. Consequently, we have refreshed our safeguarding, finance and GPDR policies to reflect the Charity’s present size and reach. We have also put a social media policy and volunteering code of conduct in place. Additionally, all Trustees are now required to sign a declaration which confirms that they have reviewed key policies and undertaken several mandatory online training modules via the TES online learning platform.
As Chair, I have also introduced Trustee one to ones this year. I now hold a one to one meeting with at least one Trustee per month, via Teams. These meetings are arranged according to a rolling schedule, so that every Trustee has a one to one at least biannually. The agenda for the meetings is informal and sessions are intended to provide Trustees with an opportunity to discuss any concerns, challenges, and new ideas. As all of our Trustees are volunteers, it also grants us with the space to discuss how each Trustee is feeling regarding their charity work/life balance, outside of a formal Board meeting setting. To date, these meetings have been a success and have enabled me to capture and address minor concerns
Page 8
## **Harry’s Hydrocephalus Awareness Trust**
## **Chair’s Statement**
## **for the Period Ended 31 March 2024 (Continued)**
before they were given the chance to escalate. Additionally, some of the ideas posed within the sessions have led to further improvements in governance practices. For example, one Trustee suggested that the Charity would benefit from regular dedicated oversight in relation to risk mitigation and finances. In response, we have put bimonthly Finance & Risk Committee meetings in place, which are attended by a select group of Trustees (assigned based on skillset), and which allow us to deep dive on relevant issues outside of Board sessions.
Caroline and I now also have monthly one to ones, either via Teams or in person. Although we speak multiple times during the course of any given week, our formal monthly sessions provide us with a chance to discuss a wide range of issues in a more structured manner. It is an immense privilege to work alongside Caroline and these meetings have strengthened the way in which we support each other as a CEO/Chair partnership. Caroline is the heart of the Charity and it continues to be a genuine honour to work alongside her.
Finally, the work we have undertaken this year is only made possible by the generosity of funders and donors. I would like to express my gratitude, on behalf of the Charity and our service users, to Davies & Partners, The National Lottery, BBC Children in Need, BBraun, Marketors’ Charity and the St. James’ Place Charitable Foundation.
To continue the theme of my previous Chair’s report, the rate of demand for our services continues to grow and I expect this will only heighten as time continues. I look forward to another year of work alongside our fantastic team, all of whom put the needs of hydrowarriors and their families at the heart of everything they do.
2025-01-16
Harri Mead Chair of Trustees
Page 9
## **Harry’s Hydrocephalus Awareness Trust**
## **Founder’s Statement**
## **for the Period Ended 31 March 2024**
It is always a pleasure to write my Founder’s report as it gives me a chance to reflect on our achievements this year.
As always, we exist to make a difference to lives of children and families affected by paediatric hydrocephalus and as a user-led charity it is the families who are and will always remain at the heart of our charity.
I know that I say it every year, but I am truly honoured to lead this charity. We have the most extraordinary team of dedicated people who give their time and heart to the charity with the aim of making a tangible difference to the lives of children who and their families who battle the condition daily. Speaking not as the founder but as Harry’s Mum this work is about families in whatever shape they come and recognising that hydrocephalus is what connects us, but that hydrocephalus doesn’t define us.
- In October we hosted the first Shunt Pathway meeting where families and charities affected by paediatric hydrocephalus joined us in Birmingham to share personal views and experiences of navigating A&E with a child in suspected shunt failure.
- In November our Deputy Chair Non Hill was nominated for a BBC Make A Difference award in recognition of her voluntary work and impact for children with hydrocephalus and their families.
- Families Together Manager, Vicki’s family events were wonderfully received with meetings in Bournemouth and Surrey as well as a host of virtual events which provide direct support for families.
- In March we attended the Royal College of Child Health and Paediatrics to talk about our Get-A-Head campaign and present our poster highlighting the impact of paediatric hydrocephalus to the assembled audience.
Key achievements and highlights this year also include:
- Supporting 578 families affected by paediatric hydrocephalus.
- Creating seven new resources of families navigating paediatric hydrocephalus
- Lunching the first ‘Global Get-A-Head’ day which raises awareness of the importance of head circumference measurement across the globe with the aim of focusing on what is happening in the here in the UK
- ITV and BBC coverage about our work including the Get-A-Head campaign.
- Launching the UK Paediatric Hydrocephalus Research Network following the success of our shunt pathway programme
- Distributing over 10,000 tape paper tape measures thanks to our ongoing partnership with the Yateley and District Lions
- Securing funding from BBC Children in Need to increase our capacity and develop our Sibling Support programme of support.
Page 10
## **Harry’s Hydrocephalus Awareness Trust**
## **Founder’s Statement**
## **for the Period Ended 31 March 2024 (Continued)**
- Sending 1000 copies of our Hydrocephalus: What I wish I’d known book to those who will benefit directly from this- we have now reprinted the book!
- Speaking at the British Paediatric Neurosurgery Group (BPNG) about our work and hosting our second Shunt Pathway programme meeting during this event.
I would like to take the opportunity to personally thank Harri Mead who diligently Chairs the charity. Harri’s leadership and commitment to excellent Governance and stewardship
ensures that we are reflective of the people we serve and that we address barriers to participation by offering flexibility and adaptability. Harri is talented young trustee who has absolutely thrived in this role she is an inspiration to young women in leadership.
Finally, I would like to give a special thanks to Lucy Mu who as well as being a Trustee also chairs our Gap Funding programme. We are acutely aware that we can never do and never give enough however the Gap Funding grants came about after families reported being unable secure vital pieces of equipment or services to help their child with hydrocephalus. Therefore, we open two rounds a year where families can apply for vital one-off grants to support them. Lucy carefully and conscientiously chairs the panel who often have to make very challenging decisions with limited funds, and she does this with integrity and efficiency, and feedback from families highlights the impact that this makes.
Thank you to everyone who gives their time and/or donates their money to support our work. We really couldn’t do this without you, and we are forever grateful for your continued encouragement and support.
Caroline Coates 2025-01-16
CEO and Co-Founder
Page 11
## **Independent Examiner's Report to the Directors and Trustees**
**of Harry’s Hydrocephalus Awareness Trust for the period ending March 2024**
I report on the accounts of the charity for the period ended 31 March 2024 which are set out on pages 12 to 24.
## **Respective responsibilities of directors and examiner**
The charity’s directors are responsible for the preparation of the accounts. The charity’s directors consider that an audit is not required for this Period under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed. It is my responsibility to:
- examine the accounts under section 145 of the 2011 Act;
- follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and
- state whether particular matters have come to my attention.
## **Basis of independent examiner's report**
My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as Trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a “true and fair view” and the report is limited to those matters set out in the statement below.
## **Other matters**
Your attention is drawn to the fact that the charity has prepared the accounts (financial statements) in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) issued on 16 July 2014 in preference to the Accounting and Reporting Charities: Statement of Recommended Practice issued on 1 April 2005 which is referred to in the extant regulations but has since been withdrawn.
We understand that this has been done in order for the accounts to provide a true and fair view in accordance with the Generally Accepted Accounting Practice effective for reporting periods beginning on or after 1 January 2015.
Page 12
## **Independent Examiner's Report to the Directors and Trustees**
**of Harry’s Hydrocephalus Awareness Trust**
## **for the period ending March 2024 (Continued)**
## **Independent examiner's statement**
In connection with my examination, no matter has come to my attention:
1 which gives me reasonable cause to believe that, in any material respect, the requirements:
- to keep accounting records in accordance with section 130 of the 2011 Act; and
- to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act
have not been met; or
- 2 to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.
Rachel Eden
Holy Brook Associates
Curious Lounge, 1st Floor,
Pinnacle Building,
Tudor Road, Reading,
England,
RG1 1NH
Date: 2025-01-16
Page 13
## **Harry’s Hydrocephalus Awareness Trust**
## **Statement of Financial Activities**
## **for the Period Ended 31 March 2024**
|Notes
**INCOMING RESOURCES**
**Incoming resources from**
**generated funds**
Donations and legacies
Charitable activities
2
**Total incoming resources**
**RESOURCES EXPENDED**
Costs of raising funds
3
Charitable activities
4
Legal and administrative
costs
5
Total resources expended
**NET INCOME**
**RECONCILIATION OF**
**FUNDS**
**Transfer between funds**
**Capital spend**
**Total funds brought**
**forward**
**TOTAL FUNDS CARRIED**
**FORWARD**|Unrestricted
funds
**£**
54,257
1,241
**55,498**
4,082
25,228
4,080
**33,389**
**22,109**
**393**
**-**
**-**
**65,539**
**88,041**|Restricted
funds
**£**
144,219
**144,219**
4,058
94,199
9,883
**108,039**
**36,180**
**(393)**
**-**
**-**
**84,209**
**119,996**|2024
Total
funds
**£**
**198,477**
**1,241**
**199,717**
**8,039**
**119,427**
**13,962**
**141,429**
**58,288**
**-**
**-**
**-**
**149,748**
**208,036**|2023
Total
funds
**£**
**188,161**
**1,875**|
|---|---|---|---|---|
|||||**190,035**|
|||||
**16,431**
**74,363**
**10,225**|
|||||**101,019**|
|||||
**89,017**
**-**
**-**
**-**
**60,731**|
|||||**149,748**|
Page 14
## **Harry’s Hydrocephalus Awareness Trust**
## **Balance Sheet**
## **At 31 March 2024**
|Notes
**FIXED ASSETS**
Tangible assets
**8**
**CURRENT ASSETS**
Debtors
**9**
Cash in bank and in
hand
**CREDITORS**
Amounts falling
due within one
Period
**10**
**NET CURRENT**
**ASSETS**
**TOTAL ASSETS LESS**
**CURRENT**
**LIABILITIES**
**NET ASSETS**
**11**
**FUNDS**
**12**
Restricted funds
Unrestricted funds
**TOTAL FUNDS**|Unrestricted
funds
**£**
596
568
90,186
**90,754**
3,309
**87,445**
**88,041**
**88,041**
**88,041**
**88,041**|Restricted
funds
**£**
924
-
119,072
**119,072**
**-**
**119,072**
**119,996**
**119,996**
**119,996**
**119,996**|2024
Total
funds
**£**
**1,520**
**568**
**209,258**
**209,826**
**3,309**
**206,516**
**208,036**
**208,036**
**119,996**
**88,041**
**208,036**|2023
Total
funds
**£**
2,023|
|---|---|---|---|---|
|||||568
148,822|
|||||149,390
1,665|
|||||147,725
149,748|
|||||149,748|
|||||84,388
65,360|
|||||**149,748**|
The financial statements were approved by the Board of Trustees on
and were signed on its behalf by:
Naghza Khokhar, Trustee
Date:
2025-01-16
Page 15
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024**
## **1. ACCOUNTING POLICIES**
The financial statements of the Charitable Incorporated Organisation, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention, with the exception of investments which are included at market value, as modified by the revaluation of certain assets (where applicable).
## **(ii). Going Concern.**
At the time of approving the accounts, the Trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus, the Trustees continue to adopt the going concern basis of accounting in preparation of the accounts.
## **(iii). Income.**
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
Donations are recognised when received and will only be deferred if the donor has specified the donation must only be spent in future accounting periods or if certain conditions must be met before the charity has unconditional entitlement.
Income from grants is recognised at fair value when the charity has entitlement after any performance conditions have been met, it is probable that the income will be received and the amount can be measured reliably. If entitlement is not met, then these amounts are deferred.
Page 16
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **1. ACCOUNTING POLICIES (continued)**
## **(iv). Expenditure.**
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to the category. Where costs cannot be directly attributed to particular headings, they have been allocated to activities on a basis consistent with the use of resources.
Costs of generating voluntary income are those incurred in seeking voluntary income.
Governance costs are those incurred in meeting the charity's constitutional and statutory requirements. They include the Independent Examination fees and other costs linked to the strategic management of the charity.
All other expenditure has been allocated to the headings in the SOFA on the basis of the time spent by the executive officer.
## **(v). Fund Accounting.**
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the Trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
## **(vi). Unrestricted Funds**
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the Trustees.
Page 17
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **1. ACCOUNTING POLICIES (continued)**
## **(vii). Taxation.**
The charity is exempt from Corporation tax on its charitable activities. It has no trading income and therefore no liability to tax on this aspect of its activities.
## **(vii). Tangible Fixed Assets.**
Tangible Fixed Assets (excluding Investments) are stated at cost less accumulated depreciation. Depreciation is provided at rates calculated to write off the cost of each asset over its expected useful life.
The rates used are as follows:
- Computer and IT Equipment - 33.3% straight line.
- Fixtures and Fittings – 25.0% straight line
Impairment reviews are carried out as and when evidence comes to light that the recoverable amount of a functional fixed asset falls below its net book value due to obsolescence, damage or any other relevant factor.
## **(viii). Cash and Cash Equivalents.**
Cash and cash equivalents include cash in hand and deposits held on call with the charity’s bankers.
## **(ix). Financial Instruments**
The charity has elected to apply the provisions of Section 11 'Basic Financial Instruments' and Section 12 'Other Financial Instruments Issues' of FRS 102 to all of its financial instruments – where applicable.
Financial instruments are recognised in the charity’s balance sheet when the charity becomes party to the contractual provisions of the instrument.
Page 18
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **1. ACCOUNTING POLICIES (continued)**
## _**Basic financial assets.**_
Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.
## _**Basic financial liabilities.**_
Basic financial liabilities, including creditors are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future receipts discounted at a market rate of interest. Financial liabilities classified as payable in one year are not amortised. Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.
Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.
## _**Derecognition of financial liabilities**_
Financial liabilities are derecognised when the charity's contractual obligations expire or are discharged or cancelled.
Page 19
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **1. ACCOUNTING POLICIES (continued)**
## **(x). Investments**
Investment assets held with the intention of retaining them long-term for the continuing benefit of the charity in the form of income and capital appreciation are classified as fixed assets except where the intention is to realise the asset without reinvestment of the sale proceeds. In such cases investments are classified as current assets.
Investment assets are shown in the balance sheet at quoted market price. Changes in value in the year, whether or not realised, are reported as gains and losses on investment assets in the Statement of Financial Activities.
## **(xi). Critical Accounting estimates and Judgments.**
In the application of the charity's accounting policies, the Trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates. No judgements made by the Trustees have had a significant effect on the amounts recognised in the financial statements.
The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods. There are no key assumptions or sources of estimation uncertainty that have a significant risk of causing a material adjustment to the carrying amounts of assets and liabilities within the next financial year.
## **2. DONATION AND LEGACIES**
|Donations
Grants|**2024**
**£**
51,293
147,183
198,476|2023
£
51,856
136,305|
|---|---|---|
|||188,161|
Page 20
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
|**3.**
**COST OF RAISING FUNDS**
Fund Raising Costs
Promotion and public relations costs
**4.**
**CHARITABLE ACTIVITES**
Notes
Book Costs
Conferences and Seminars
Depreciation
Staffing costs
Overheads
Grants
Hydrocephalus Education
Merchandise
Postage, Freight & Courier
Printing & Stationery
Staff Training
Trustee Expenses
Venue Expenses
|**2024**
**£**
4,241
3,799
8,039
**2024**
**£**
2,600
3,237
849
63,176
13,234
16,800
858
5,259
1,437
7,544
800
1,877
1,754
119,427|**2024**
**£**
4,241
3,799||2023
£
8,010
8,421|
|---|---|---|---|---|
|||8,039||16,431|
|||||2023
£
4,018
572
26,653
9,665
13,242
-
1,264
1,111
3,492
904
1,959
6,483|
|||||69,363|
Page 21
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **5. LEGAL AND ADMINISTRATIVE COSTS**
|Legal and professional fees
Independent examiner’s fee
Insurance|**2024**
**£**
12,142
1,248
573
**13,962**|**2023**
**£**
8,750
984
491|
|---|---|---|
|||10,225|
## **6. GRANTS PAYABLE**
The total grants paid to institutions and individuals during the year was as follows:
|Support and training of medical personnel
Gap Funding for families
Grants – other|**2024**
**£**
**8,557**
**6,502**
**1,740**
**16,799**|**2023**
**£**
3,346
6,118
3,778|
|---|---|---|
|||**13,242**|
## **7. TRUSTEES' REMUNERATION AND BENEFITS**
There were no Trustees' remuneration or other benefits for the period ended 31 March 2024 (2023 – none). Two Trustees were reimbursed for expenses incurred on behalf of the charity, with the amounts totalling £1,877 (2023 – four Trustees £2,781.14).
Page 22
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
|**8.**
**TANGIBLE FIXED ASSETS**
**Furniture and**
**equipment**
**£**
**Computer**
**Equipment**
**£**
**COST**
At 31 March
2023
Additions
450
346
3,482
-
At 31 March
2024
796
3,482
**DEPRECIATION**
At 31 March
2023
Charge for year
66
134
1,844
715
At 31 March
2024
200
2,559
**NET BOOK**
**VALUE**
At 31 March
2024
596
924
**9**.
**DEBTORS: AMOUNTS FALLING DUE WITHIN ONE PERIOD**
2024
£
Prepayments and other
debtors
568
568
**10.**
**CREDITORS: AMOUNTS FALLING DUE WITHIN ONE PERIOD**
2024
£
Accruals and deferred income
PAYE Payable
Pension costs
1,000
1,740
370
3,309||**Total**
**2024**
**£**
3,932
796
4,279
1,909
849
2,759
1,520|**Totals**
**2023**
**£**
1,337
2,145|
|---|---|---|---|
||||3,482|
||||1,337
507|
||||1,909|
||||2,023|
||||2023
£
568|
||||568|
||||2023
£
1,339
-
326|
||||1,665|
Page 23
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **11. ANALYSIS OF NET ASSETS BETWEEN FUNDS**
|Fixed Assets
Current Assets
Current liabilities|Unrestricted
Funds
£
791
90,559
(3,309)
88,041|Restricted
Funds
£
729
119,269
-
119,996|**2024**
**Total**
**Funds**
**£**
**1,520**
**209,826**
**(3,309) **
**208,036**|2023
Total
Funds
£
**2,023**
**149,390**
**(1,665)**|
|---|---|---|---|---|
|||||**149,748**|
Page 24
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements - continued**
## **for the Period Ended 31 March 2024 (Continued)**
## **12. MOVEMENT IN FUNDS**
|**Restricted funds**
Arnold Clarke
Action Funder
B.Braun Medical
BA Better World Community Fund
BBC Children in Need
CL Medilaw
Globals Make Some Noise
Groundwork
Magic Little Grant
National Lottery: CEO
National Lottery: App
National Lottery: AFA
Surrey County Council
Marketors’ Charity
Community for Foundation Surrey
**Unrestricted funds**
General fund
**TOTAL FUNDS**|Net
Movements
in funds
£
-
2,000
3,000
(8,643)
10,777
1,799
(10,491)
639
(162)
11,586
-
3,887
-
8,781
10,000
**36,180**
22,109
**22,109**
**58,288**|Transfers
between
funds
£
(555)
-
-
-
-
-
-
-
162
-
-
-
-
-
**(393)**
393
**393**
**-**|At
31.3.2024
£
-
2,000
3,000
2,286
10,777
1,799
2,114
1,373
-
54,162
-
7,375
1,303
8,781
12,019
**119,996**
88,041
**88,041**
**208,036**|At
31.3.2023
£
555
-
-
10,929
-
-
12,605
734
-
42,756
10,000
3,487
1,303
-
2,019|
|---|---|---|---|---|
|||||**84,388**
65,360|
|||||**65,360**
**149,748**|
## **Note:**
Due to rounding the subtotals may appear to be out by £1.
Page 25
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **12. MOVEMENT IN FUNDS (continued)**
Net movement in funds, included in the above, are as follows:
For the year ending March 2024
|**Restricted funds**
Arnold Clarke
Action Funder
B.Braun Medical
BA Better World Community Fund
BBC Children in Need
CL Medilaw
Globals Make Some Noise
Groundwork
Magic Little Grant
National Lottery: CEO
National Lottery: App
National Lottery: AFA
Surrey County Council
Marketors’ Charity
Community for Foundation Surrey
**Unrestricted funds**
General fund
**TOTAL FUNDS**|Incoming
Resources
£
-
2,000
3,000
500
15,000
2,500
28,350
875
-
58,605
-
10,000
-
10,000
10,000
**144,219**
55,498
**55,498**
**199,717**|Resources
Expended
£
Movement in
Funds
£
-
-
-
9,143
4223
801
38,841
236
162
47,018
-
2,000
3,000
(8,643)
10,777
1,799
(10,491)
639
(162)
11,586
-
6,113
-
1,220
-
-
3,887
-
8,781
10,000|
|---|---|---|
|||**108,039**
**36,180**
33,389
22,109|
|||**33,380**
**22,109**
**141,429**
**58,288**|
Page 26
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **12. MOVEMENT IN FUNDS (continued)**
For the year ending March 2023
|**Restricted funds**
Matthew Good Foundation
Garfield Weston Foundation
National Lottery: CEO
National Lottery: App
National Lottery: AFA
National Lottery: Book
Surrey County Council
Community Foundation for Surrey
Isla Foundation
Integra
BA Better World Community Fund
Globals Make Some Noise
Arnold Clark
Groundwork
**Unrestricted funds**
General fund
**TOTAL FUNDS**|Incoming
Resources
£
1,000
-
59,250
-
9,600
-
-
-
-
9,500
24,480
28,350
1,000
1,000
**134,180**
55,856
**190,036**|Resources
Expended
£
Movement
in Funds
£
1,128
5,000
17,674
(128)
(5,000)
41,576
-
6,132
-
450
1,467
-
9,319
13,551
15,745
445
266
-
3,468
-
(450)
(1,467)
-
181
10,929
12,605
555
734|
|---|---|---|
|||**71,177**
**63,003**
31,449
24,407|
|||**102,626**
**87,410**|
.
Page 27
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **12. MOVEMENT IN FUNDS (continued)**
## **Purpose of Unrestricted Funds**
## **General Fund**
The general fund is used for the day to day running of the charity.
## **Purpose of restricted funds**
## **Action Funder**
Family meet-up in Bournemouth and the surrounding areas for families affected by paediatric hydrocephalus.
## **B. Braun Medical**
Printing the books: ‘Hydrocephalus: What I wish I’d known’ and ‘Hydrocephalus: Starting school’
## **BA: Better World Community Fund**
Supporting the Get-A-Head campaign to raise awareness of the important of infant head circumference measurement within the community and amongst front-line health care professionals.
## **BBC Children in Need**
Sibling support programme for one day a week, office administration and support.
## **CL Medilaw**
Bravery bears and a contribution towards the ‘Hydrocephalus: What I wish I had known’ book.
## **Crowdfunder (restr. only)**
Water project to help educated and support children with hydrocephalus to understand the importance of drinking water to help manage their condition.
## **Globals Make Some Noise**
Rent.
## **Groundwork**
Funding family meet up groups to reduce the social isolation suffered by families affected by paediatric hydrocephalus.
Page 28
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **12. MOVEMENT IN FUNDS (continued)**
## **National Lottery Community Fund: CEO**
This is a restricted fund which represents money provided for the recruitment of a CEO.
## **National Lottery: Awards for All**
This is a restricted fund which represents money provided to promote awareness and education of hydrocephalus.
## **National Lottery Connecting Communities: Book**
This is a restricted fund which represents money provided to produce a book to promote awareness and education of hydrocephalus.
## **Surrey County Council**
This is a restricted fund which represents money provided for a community outreach project to raise awareness of hydrocephalus.
## **Marketors’ Charity**
Funding to help make the charity’s mission and purpose clearer to families who reach out for support.
## **Community Foundation for Surrey**
Supporting families affected by paediatric hydrocephalus in Surrey to connect and benefit from peer support. The project also outreaches to Surrey-based schools to provide information and awareness of the condition.
Page 29
## **Harry’s Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2024 (Continued)**
## **13. RELATED PARTY TRANSACTIONS**
There were disclosable related party transactions as one staff member is a close family member of a trustee as follows:
|**Name of trustee or connected party**|**Legal authority (eg**
**order, governing**
**document)**|**Amounts paid or benefit value**|**Amounts paid or benefit value**|
|---|---|---|---|
|||**This year**
**£**|**Last year**
**£**|
|Caroline Coates – a close family member is a
Trustee|Governing
document|34,763|-|
|**Total**||34,763|**-**|
There were no transactions with related parties for the period ended 31 March 2023.
## **14. ULTIMATE CONTROLLING PARTY**
The Board of Trustees are considered to be the ultimate controlling party.
## **15. STAFF OF THE CHARITY**
Staff costs were as follows
||**2024**|
**2023**|
|---|---|---|
|Wages and|||
|salaries|60,665|24,131|
|Social security|||
|costs|704|2,199|
|Pension costs|1,807|
322|
|**Total**|**63,176**|**26,653**|
No member of staff was paid more than £60,000 in the year. The charity considers its key management personnel to comprise the Trustees of the charity.
The average number of staff during the year was 2 (2023 – 1).
Page 30