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2021-03-31-accounts

REGISTERED CHARITY NUMBER: 1183086

Report of the Trustees and

Unaudited Financial Statements for the Period Ended 31 March 2021

for

Harry’s Hydrocephalus Awareness Trust A Charitable Incorporated Organisation (CIO)

Holy Brook Associates Ltd

Doc ID: 3ad3b2d061ea74bb9f4e7e0eb16f9a015872dba4

Harrys Hydrocephalus Awareness Trust (A CIO) Contents of the Financial Statements for the Period Ended 31 March 2021

Page
Report of the Directors and Trustees 1 to 6
Founders and Chair’s statements 7 to 9
Independent Examiner's Report 10 to 11
Statement of Financial Activities 12
Balance Sheet 13
Notes to the Financial Statements 14 to 19

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Harrys Hydrocephalus Awareness Trust

Report of the Directors and Trustees

for the Period Ended 31 March 2021

The Trustees present their report with the financial statements of the charity for the period ended 31 March 2021. The Trustees have adopted the provisions of the Statement of Recommended Practice (SORP) “Accounting and Reporting by Charities” (FRS 102) in preparing the annual report and financial statements of the charity.

REFERENCE AND ADMINISTRATIVE DETAILS

Registered Charity number: 1183086

Principal address

At the start of the year the principal address of the charity was: 96 Albert Road Bagshot Surrey GU19 5QJ

This changed to: 4 Wildwood Gardens YATELEY Hampshire GU46 6EB

Trustees

L Mu M Coates J Fyfe T Kearsey- Chairperson H Mead F Kitchen (previous surname Parish) M Thwaites M Harley

Independent Examiner

Samun Omer Holy Brook Associates, Curious Lounge, 1st Floor, Pinnacle Building, Tudor Road, Reading, England, RG1 1NH

Bankers

Barclays Bank plc Oxford City 2 Leicestershire, LE87 2BB

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Harrys Hydrocephalus Awareness Trust Report of the Directors and Trustees

for the Period Ended 31 March 2021

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing document

Harrys Hydrocephalus Awareness Trust, a charitable incorporated organisation (CIO), registered as a charity on 29 April 2019 and uses the working name of Harry’s Hat.

The Charity is controlled by its governing document and the CIO Constitution.

The Board appoints Trustees. The Trustees who served the charity during the period were as follows:

M Coates - appointed 29 April 2019

J Fyfe - appointed 29 April 2019

T Kearsey - appointed 19 May 2019

H Mead - appointed 8 March 2020

L Mu - appointed 29 April 2019

F Kitchen (previously Parish) - appointed 19 May 2019

M Thwaites - appointed 29 April 2019

M Harley- appointed 07 February 2021

Recruitment and appointment of new Directors and Trustees

The Constitution provides for a minimum of 3 Trustees with no stated maximum. Where there is a requirement for new Trustees these are identified and appointed by the existing Trustees for a term of 3 years by the passing of a resolution at a properly convened meeting of the Trustees. In selecting the new Trustees the board must have regard for the skills, knowledge and experience needed from the individual in order to provide effective administration of the charity.

Any new Trustee will be provided, on or before their first appointment, with a copy of the previous period's annual report and accounts and a copy of the Charity constitution.

Risk management

The Trustees have a duty to identify and review the risks to which the charity is exposed and to ensure appropriate controls are in place to provide reasonable assurance against fraud and error.

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Harrys Hydrocephalus Awareness Trust

Report of the Directors and Trustees

for the Period Ended 31 March 2021

OBJECTIVES AND ACTIVITIES

Objectives and aims

The objectives and aims of the charity were updated during the year.

At the start of the year the following applied:

The principal objective of the charities to relieve sickness and to assist in the treatment and care of persons suffering from hydrocephalus and/ or arachnoid cyst across the UK by:

a) financing health professionals across the UK with an interest in paediatric arachnoid cysts and/or Hydrocephalus to enable them to further their knowledge and understanding ensuring the highest professional standards

b) promoting independent research into the prevention and treatment of hydrocephalus and/or arachnoid cyst provided that all useful results are disseminated to the public

c) managing an online support group forum for people and their families/carers with Hydrocephalus and/or arachnoid cyst.

During the year the objectives and aim of the charity was updated to:

1) We work with communities to raise awareness of paediatric hydrocephalus

2) We prove grants so that people working with children affected by hydrocephalus can improve their understanding of the condition

3) We connect families affected by hydrocephalus

Public benefit statement

The Trustees confirm that they have complied with the requirements of the Charities Act 2011 to have due regard to the Charities Commission Guidance on public benefit.

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Harrys Hydrocephalus Awareness Trust

Report of the Directors and Trustees

for the Period Ended 31 March 2021

ACHIEVEMENT AND PERFORMANCE

The activities carried out by the charity in the year in order to meet its objectives include:

a) working with communities to raise awareness of Paediatric Hydrocephalus

b) the provision of grants so that people working with children affected by Hydrocephalus can improve their understanding of the condition

c) connecting of families affected by Hydrocephalus

d) funding of research to improve life-chances of children with the conditions

e) Supporting nurses and front-line medical staff to access bursary grants to further their knowledge and understanding of Hydrocephalus

FINANCIAL REVIEW

Financial Review

The charity holds unrestricted reserves of £11,960. The trustees are confident that this is sufficient to meet the charity’s obligations as they fall due.

ON BEHALF OF THE BOARD:

11 / 28 / 2021

M Coates

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Harrys Hydrocephalus Awareness Trust

Chair’s Statement

for the Period Ended 31 March 2021

2020/21 - A challenging year to be proud of!

I’m delighted to be presenting the first Annual Report and Accounts since I took on the role of Chair of Trustees for Harry’s HAT in October 2020.

I would like to thank my predecessor, Lucy Mu, who chaired the charity since its inception in 2018. Lucy’s leadership helped bring the organisation to life and we are delighted that she remains on the Board of Trustees.

As we reflect on 2020/21, a year that brought challenges none of us could have ever imagined, I want to recognise our extremely hard working and dedicated volunteers. Harry’s HAT is operated entirely by volunteers, who dedicate their time to making a lasting difference to children and families affected by hydrocephalus. I am so proud and grateful for every single one of them.

The charity continues to benefit from its highly skilled and passionate Board of Trustees. During the year we were delighted to welcome Michelle Harley as a new Trustee. Michelle is a General Practitioner and has been a doctor for over 13 years. The charity will benefit hugely by drawing on her experience as a clinician. We also appointed a new Secretary, Valerie Steele, who brings a wealth of administrative and event management skills alongside her enthusiasm and passion for the cause.

During this last year, the world saw unprecedented times as the Covid-19 pandemic unfolded. The lives of those the charity works alongside, and supports, were seriously impacted by both Covid and the resulting lockdowns. The charity sector across the UK saw an increase in demand for services, against a significant decrease in income. Despite the substantial challenges, we couldn’t be prouder of all that Harry’s HAT achieved as it continued to operate throughout the year and support more people than ever.

The team continued to work tirelessly to raise the profile of the charity, engage partners and raise funds so that the charity could support children and their families as well as NHS staff. The majority of our fundraising activities were cancelled or postponed due to the pandemic, including the charity’s planned Parliamentary Reception. Like most charities, we suffered a significant reduction in planned fundraising over the year. Despite this, we continued with our work to improve outcomes for children with hydrocephalus. Our work was made possible by the generous funding we received from funders, donors and fundraisers including the Surrey Community Foundation, Awards for All, Aviva Community Fund, TK Maxx, St James’s Place Foundation, Co-op Community Fund, Isla Foundation, The National Lottery, Harry’s cycling fundraiser and Kian’s 3D printed visors fundraiser.

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In August 2020, we launched our new website which has made it even easier for those we help to get support. We opened our online shop to raise funds by selling our charity hats and face masks. Our social media presence continued to grow thanks to the tireless work of our Founder, Caroline. We saw an increase in PR for the charity, including articles in Women & Home and the New Scientist as well as interviews for several podcasts. Our research volunteer, Non, carried out the first Harry’s HAT study with support from students at the Royal Holloway University. The study looked at antenatal care and the impact of third trimester screening on the outcome for babies born with hydrocephalus.

We are incredibly proud of the partnership we have established with the US Hydrocephalus Association, which has enabled us to work on the development of an app designed to help families access vital information easily in a medical emergency. We have also strengthened our partnerships with various charities in the UK. This includes working with Shine to develop a joint communication for display in neurosurgical units, which specifically targets families affected by hydrocephalus. We continue to seek opportunities to work with other organisations doing fantastic work in the sector and were proud to have teamed up with Beauty Banks to produce vital parent and hospital staff welfare packs during the pandemic.

As we look ahead to the coming year, we launch our book ‘hydrocephalus: what I wish I’d known”; a support tool for parents and carers in the first months following a diagnosis. We will also launch the UK version of the Hydrocephalus Association’s Hydro-assist app, and hold the charity’s postponed Parliamentary Reception.

I’d like to thank everyone at team Harry’s HAT for a year to be proud of. Together, we will improve the lives of children affected by hydrocephalus.

Teri Kearsey

Chair of Trustees

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Harrys Hydrocephalus Awareness Trust

Founder’s Statement

for the Period Ended 31 March 2021

I am delighted to present this year’s annual report. Within the last financial year, our income has increased substantially. This growth is due to the tireless work and dedication of our volunteers and Trustees. Everyone who is involved with the charity goes above and beyond, without exception, and I am incredibility grateful to the team for all that they do.

Over the past year, I believe we have become more focused in our goals and more realistic about the meaningful change that we can make. We have subsequently amended our charity’s constitution slightly, in order to acknowledge the peer-to-peer support with families which has been come so critical.

I am pleased to report that we have now developed and presented our three year business case which highlights the positive impact that we aim to have on children and their families affected by hydrocephalus, and sets out clear steps to achieving it. The charity’s business case also takes the ongoing global pandemic into account, as well as the challenging economic and social circumstances in which the UK now finds itself. I am confident that the dedication, enthusiasm and professionalism of the team will ensure that we will meet each objective in the plan on time and within our planned budget.

I believe our impact is significant, especially given our size and capacity. In the last year, some of my proudest moments have been from the feedback from the families we have helped; feedback such as “I literally cried when I heard about your work, the story is so similar to mine” or “without having you guys to turn to I don’t think I would have made it through”. Quotes like these provide real motivation for our work, which is hard and for which nobody in the team is financially compensated. I am pleased to see that we are making a difference to children and their families affected by hydrocephalus.

I would like to echo Teri’s closing remarks by thanking everyone in the team; our work would not be possible without these dedicated, caring, and professional individuals.

Caroline Coates Founder

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Independent Examiner's Report to the Directors and Trustees of

Harrys Hydrocephalus Awareness Trust

I report on the accounts of the charity for the period ended 31 March 2021 which are set out on pages

Respective responsibilities of directors and examiner

The charity’s directors are responsible for the preparation of the accounts. The charity’s directors consider that an audit is not required for this Period under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed. It is my responsibility to:

Basis of independent examiner's report

My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a “true and fair view” and the report is limited to those matters set out in the statement below.

Other matters

Your attention is drawn to the fact that the charity has prepared the accounts (financial statements) in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) issued on 16 July 2014 in preference to the Accounting and Reporting Charities: Statement of Recommended Practice issued on 1 April 2005 which is referred to in the extant regulations but has since been withdrawn.

We understand that this has been done in order for the accounts to provide a true and fair view in accordance with the Generally Accepted Accounting Practice effective for reporting periods beginning on or after 1 January 2015.

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Independent Examiner's Report to the Directors and Trustees of

Harrys Hydrocephalus Awareness Trust

Independent examiner's statement

In connection with my examination, no matter has come to my attention:

which gives me reasonable cause to believe that, in any material respect, the requirements:

have not been met; or

to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.

Samun Omer

Holy Brook Associates

Curious Lounge, 1st Floor,

Pinnacle Building,

Tudor Road, Reading,

England,

RG1 1NH

Date: 11 / 26 / 2021

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Harrys Hydrocephalus Awareness Trust

Statement of Financial Activities

for the Period Ended 31 March 2021

Note
s
INCOMING RESOURCES
Incoming resources
from generated funds
Donations and legacies
2
Total incoming
resources
RESOURCES EXPENDED
Costs of raising funds
3
Charitable activities
4
Legal and
administrative costs
5
Total resources
expended
NET INCOME
RECONCILIATION OF
FUNDS
Total funds brought
forward
TOTAL FUNDS CARRIED
FORWARD		 Unrestrict
ed funds
£
14,023
14,023
3,261
6,379
1,248
10,887
3,136
8,824
11,960		 Restrict
ed
funds
£
21,500
21,500
400
3,210
-
3,610
17,890
10,683
28,573		 2021
Total
funds
£
35,523
35,523
3,661
9,589
1,248
14,497
21,026
19,507
40,533		 2020
Total
Funds
£
29,234
29,234
2,942
4,795
1,990
9,727
19,507
-
19,507

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Harrys Hydrocephalus Awareness Trust

Balance Sheet

At 31 March 2021
Unrestrict
ed funds
Restrict
ed
funds
Note
£
£
FIXED ASSETS
Tangible assets
8
446
CURRENT ASSETS
Debtors
9
-
-
Cash in bank and in
hand
12,896
28,127
14,755
28,127
CREDITORS
Amounts falling due
within one Period
10
(936)
-
NET CURRENT ASSETS
11,960
28,127
TOTAL ASSETS LESS
CURRENT LIABILITIES
11,960
28,573
NET ASSETS
11
11,960
28,573
FUNDS
12
Restricted funds
Unrestricted funds
TOTAL FUNDS		 2021
Total
funds
£
446
-
41,023
41,533
(936)
40,087
40,533
40,533
28,573
11,960
40,533		 2020
Total
Funds
£
892
892
68
19,687
19,755
(1,140)
18,615
19,507
19,507
8,824
10,683
19,507

The financial statements were approved by the Board of Trustees on 17[th] November and were signed on its behalf by:

11 / 28 / 2021

M Coates -Trustee

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Harrys Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2021

1. ACCOUNTING POLICIES

Fund accounting

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

2. DONATION AND LEGACIES

Donations
Grant
OST OF RAISING FUNDS
Fund Raising Costs
Promotion and public relations
costs		 2021
£
14,023
21,500
35,523
2021
£
2,477
1,184
3,661		 2020
£
16,324
13,000
29,234
2020
£
2,157
785
2,942

3. COST OF RAISING FUNDS

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Harrys Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2021 (continued)

4. CHARITABLE ACTIVITES

Notes
2021
£
Computer Expenses
3,616
Printing, postage and stationery
Training costs
678
Sundry costs
224
Grants
6
4,184
Depreciation and computer
equipment
Trustee expenses
446
441
9,589
5.
LEGAL AND ADMINISTRATIVE COSTS
2021
£
Legal and professional fees
-
Independent examiner’s
fee
936
Insurance
312
1,248
6.
GRANTS PAYABLE
The total grants paid to institutions during the year was as follows:
2021
£
Support and training of medical
personnel
4,184
4,184		 2020
£
1,049
322
340
100
2,539
445
4,795
2020
£
664
1,140
186
1,990
2020
£
2,539
2,539

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Harrys Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2021 (continued)

7. TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the period ended 31 March 2021 (2020 – none). Four trustees were reimbursed for expenses incurred on behalf of the charity amounts totalling £441.00 (2020 – none)

8. TANGIBLE FIXED ASSETS

COST
At 31 March 2020
Additions
At 31 March 2021
DEPRECIATION
At 31 March 2020
Charge for the Period
At 31 March 2021
NET BOOK VALUE
At 31 March 2021		 Computer
Equipment
£
1,337
-
1,337
445
446
891
446		 Total
2021
£
1,337
-
1,337
445
446
891
446		 Totals
2020
£
-
1,337
1,337
-
445
445
892

9. DEBTORS: AMOUNTS FALLING DUE WITHIN ONE PERIOD

Prepayments and other
debtors		 2021
£
-
-		 2020
£
68
68

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Harrys Hydrocephalus Awareness Trust

Notes to the Financial Statements

for the Period Ended 31 March 2021 (continued)

10. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE PERIOD

2021
£
Accruals and deferred income
936
936
11.
ANALYSIS OF NET ASSETS BETWEEN FUNDS
Unrestricted
Funds
£
Restricted
Funds
£
2021
Total
Funds
£
Fixed Assets
-
446
446
Current Assets
12,896
28,127
41,023
Current liabilities
(936)
-
(936)
11,960
28,573
40,533
12.
MOVEMENT IN FUNDS
Net
Movements
in funds
£
Transfers
between
funds
£
At
31.3.2021
£
Restricted funds
National Lottery
Awards for All
10,570
-
18,940
Surrey County
Council
Community
Foundation Surrey
Isla Foundation
-
7,000
320
-
-
-
2,313
7000
320
17,890
-
19,573
Unrestricted funds
General fund
3,136
-
11,960
TOTAL FUNDS
21,026
-
40,533		 2020
£
1,140
1,140
2020
Total
Funds
£
892
19,687
(1,140)
19,507
At
31.3.2020
£
8,370
2,313
-
-		 2020
Total
Funds
£
892
19,687
(1,140)
19,507
10,683
8,824
19,507

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Harrys Hydrocephalus Awareness Trust

Notes to the Financial Statements - continued

for the Period Ended 31 March 2021

12. MOVEMENT IN FUNDS (continued)

Net movement in funds, included in the above, are as follows:

For the year ending March 2021

Restricted funds
National Lottery
Awards
Surrey County Council
Community
Foundation Surrey
Isla Foundation
Unrestricted funds
General fund
TOTAL FUNDS		 Incoming
Resources
£
12,500
-
7,000
2,000
21,500
14,023
35,523		 Resources
Expanded
£
1,930
1,680
3,610
10,887
14,497		 Movement
in Funds
£
10,570
-
7,000
320
17,890
3,136
21,026

Purpose of Unrestricted Funds

General Fund

The general fund is used for the day to day running of the charity.

National Lottery Awards for All

This is a restricted fund which represents money provided to promote awareness and education of Hydrocephalus.

Surrey County Council

This is a restricted fund which represents money provided for a community outreach project to raise awareness of Hydrocephalus.

Isla Fund

This is a restricted fund which represents money provided for the development of a specialist app.

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Community Foundation Surrey

This is a restricted fund which represents money provided for awareness raising and management of the charity.

13. RELATED PARTY TRANSACTIONS

There were no transactions with related parties for the period ended 31 March 2021.

14. ULTIMATE CONTROLLING PARTY

The Board of Trustees are considered to be the ultimate controlling party.

15. CONTRIBUTION OF VOLUNTEERS

The charity benefits substantially from the unpaid contribution of volunteers including, trustees providing time in additional to their roles of trustees. This totalled 1,560 hours of time, which - if valued at the NVCO rate for funding bids of £13.70 an hour - would have a value £21,372.

Because the value of volunteers cannot be measured accurately this is not included in the financial statements above, in accordance with Charity SORP.

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Audit trail

TITLE Accounts updated with final information FILE NAME HAT Accounts Marc...ovember 2021.docx DOCUMENT ID 3ad3b2d061ea74bb9f4e7e0eb16f9a015872dba4 AUDIT TRAIL DATE FORMAT MM / DD / YYYY STATUS Completed

11 / 26 / 2021 Sent for signature to Matthew Coates 10:51:22 UTC (matthew@harrys-hat.org) and Samun Omer (samun.omer@holybrook.com) from racheleden@gmail.com IP: 80.3.208.136 11 / 26 / 2021 Viewed by Samun Omer (samun.omer@holybrook.com) 10:52:21 UTC IP: 2.31.84.229 11 / 26 / 2021 Signed by Samun Omer (samun.omer@holybrook.com) 10:52:56 UTC IP: 2.31.84.229 11 / 28 / 2021 Viewed by Matthew Coates (matthew@harrys-hat.org) 14:47:35 UTC IP: 95.148.202.34 11 / 28 / 2021 Signed by Matthew Coates (matthew@harrys-hat.org) 14:49:03 UTC IP: 95.148.202.34 11 / 28 / 2021 The document has been completed. 14:49:03 UTC