**REGISTERED CHARITY NUMBER: 1183086**
**Report of the Trustees and**
**Unaudited Financial Statements for the Period Ended 31 March 2021**
**for**
**Harry’s Hydrocephalus Awareness Trust A Charitable Incorporated Organisation (CIO)**
Holy Brook Associates Ltd
Doc ID: 3ad3b2d061ea74bb9f4e7e0eb16f9a015872dba4
## **Harrys Hydrocephalus Awareness Trust (A CIO) Contents of the Financial Statements for the Period Ended 31 March 2021**
||**Page**|
|---|---|
|Report of the Directors and Trustees|1 to 6|
|Founders and Chair’s statements|7 to 9|
|Independent Examiner's Report|10 to 11|
|Statement of Financial Activities|12|
|Balance Sheet|13|
|Notes to the Financial Statements|14 to 19|
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## **Harrys Hydrocephalus Awareness Trust**
## **Report of the Directors and Trustees**
## **for the Period Ended 31 March 2021**
The Trustees present their report with the financial statements of the charity for the period ended 31 March 2021. The Trustees have adopted the provisions of the Statement of Recommended Practice (SORP) “Accounting and Reporting by Charities” (FRS 102) in preparing the annual report and financial statements of the charity.
## **REFERENCE AND ADMINISTRATIVE DETAILS**
## **Registered Charity number: 1183086**
## **Principal address**
At the start of the year the principal address of the charity was: 96 Albert Road Bagshot Surrey GU19 5QJ
This changed to: 4 Wildwood Gardens YATELEY Hampshire GU46 6EB
## **Trustees**
L Mu M Coates J Fyfe T Kearsey- Chairperson H Mead F Kitchen (previous surname Parish) M Thwaites M Harley
## **Independent Examiner**
Samun Omer Holy Brook Associates, Curious Lounge, 1st Floor, Pinnacle Building, Tudor Road, Reading, England, RG1 1NH
## **Bankers**
Barclays Bank plc Oxford City 2 Leicestershire, LE87 2BB
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**Harrys Hydrocephalus Awareness Trust Report of the Directors and Trustees**
**for the Period Ended 31 March 2021**
## **STRUCTURE, GOVERNANCE AND MANAGEMENT**
## **Governing document**
Harrys Hydrocephalus Awareness Trust, a charitable incorporated organisation (CIO), registered as a charity on 29 April 2019 and uses the working name of Harry’s Hat.
The Charity is controlled by its governing document and the CIO Constitution.
The Board appoints Trustees. The Trustees who served the charity during the period were as follows:
M Coates - appointed 29 April 2019
J Fyfe - appointed 29 April 2019
T Kearsey - appointed 19 May 2019
H Mead - appointed 8 March 2020
L Mu - appointed 29 April 2019
F Kitchen (previously Parish) - appointed 19 May 2019
M Thwaites - appointed 29 April 2019
M Harley- appointed 07 February 2021
## **Recruitment and appointment of new Directors and Trustees**
The Constitution provides for a minimum of 3 Trustees with no stated maximum. Where there is a requirement for new Trustees these are identified and appointed by the existing Trustees for a term of 3 years by the passing of a resolution at a properly convened meeting of the Trustees. In selecting the new Trustees the board must have regard for the skills, knowledge and experience needed from the individual in order to provide effective administration of the charity.
Any new Trustee will be provided, on or before their first appointment, with a copy of the previous period's annual report and accounts and a copy of the Charity constitution.
## **Risk management**
The Trustees have a duty to identify and review the risks to which the charity is exposed and to ensure appropriate controls are in place to provide reasonable assurance against fraud and error.
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## **Harrys Hydrocephalus Awareness Trust**
## **Report of the Directors and Trustees**
## **for the Period Ended 31 March 2021**
## **OBJECTIVES AND ACTIVITIES**
## **Objectives and aims**
The objectives and aims of the charity were updated during the year.
At the start of the year the following applied:
The principal objective of the charities to relieve sickness and to assist in the treatment and care of persons suffering from hydrocephalus and/ or arachnoid cyst across the UK by:
a) financing health professionals across the UK with an interest in paediatric arachnoid cysts and/or Hydrocephalus to enable them to further their knowledge and understanding ensuring the highest professional standards
b) promoting independent research into the prevention and treatment of hydrocephalus and/or arachnoid cyst provided that all useful results are disseminated to the public
c) managing an online support group forum for people and their families/carers with Hydrocephalus and/or arachnoid cyst.
## **During the year the objectives and aim of the charity was updated to:**
1) We work with communities to raise awareness of paediatric hydrocephalus
2) We prove grants so that people working with children affected by hydrocephalus can improve their understanding of the condition
3) We connect families affected by hydrocephalus
- 4) We fund research to improve life-chances of children with the condition.
## **Public benefit statement**
The Trustees confirm that they have complied with the requirements of the Charities Act 2011 to have due regard to the Charities Commission Guidance on public benefit.
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## **Harrys Hydrocephalus Awareness Trust**
## **Report of the Directors and Trustees**
## **for the Period Ended 31 March 2021**
## **ACHIEVEMENT AND PERFORMANCE**
The activities carried out by the charity in the year in order to meet its objectives include:
a) working with communities to raise awareness of Paediatric Hydrocephalus
b) the provision of grants so that people working with children affected by Hydrocephalus can improve their understanding of the condition
c) connecting of families affected by Hydrocephalus
d) funding of research to improve life-chances of children with the conditions
e) Supporting nurses and front-line medical staff to access bursary grants to further their knowledge and understanding of Hydrocephalus
## **FINANCIAL REVIEW**
## **Financial Review**
The charity holds unrestricted reserves of £11,960. The trustees are confident that this is sufficient to meet the charity’s obligations as they fall due.
## **ON BEHALF OF THE BOARD:**
11 / 28 / 2021
M Coates
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## **Harrys Hydrocephalus Awareness Trust**
## **Chair’s Statement**
## **for the Period Ended 31 March 2021**
## **2020/21 - A challenging year to be proud of!**
I’m delighted to be presenting the first Annual Report and Accounts since I took on the role of Chair of Trustees for Harry’s HAT in October 2020.
I would like to thank my predecessor, Lucy Mu, who chaired the charity since its inception in 2018. Lucy’s leadership helped bring the organisation to life and we are delighted that she remains on the Board of Trustees.
As we reflect on 2020/21, a year that brought challenges none of us could have ever imagined, I want to recognise our extremely hard working and dedicated volunteers. Harry’s HAT is operated entirely by volunteers, who dedicate their time to making a lasting difference to children and families affected by hydrocephalus. I am so proud and grateful for every single one of them.
The charity continues to benefit from its highly skilled and passionate Board of Trustees. During the year we were delighted to welcome Michelle Harley as a new Trustee. Michelle is a General Practitioner and has been a doctor for over 13 years. The charity will benefit hugely by drawing on her experience as a clinician. We also appointed a new Secretary, Valerie Steele, who brings a wealth of administrative and event management skills alongside her enthusiasm and passion for the cause.
During this last year, the world saw unprecedented times as the Covid-19 pandemic unfolded. The lives of those the charity works alongside, and supports, were seriously impacted by both Covid and the resulting lockdowns. The charity sector across the UK saw an increase in demand for services, against a significant decrease in income. Despite the substantial challenges, we couldn’t be prouder of all that Harry’s HAT achieved as it continued to operate throughout the year and support more people than ever.
The team continued to work tirelessly to raise the profile of the charity, engage partners and raise funds so that the charity could support children and their families as well as NHS staff. The majority of our fundraising activities were cancelled or postponed due to the pandemic, including the charity’s planned Parliamentary Reception. Like most charities, we suffered a significant reduction in planned fundraising over the year. Despite this, we continued with our work to improve outcomes for children with hydrocephalus. Our work was made possible by the generous funding we received from funders, donors and fundraisers including the Surrey Community Foundation, Awards for All, Aviva Community Fund, TK Maxx, St James’s Place Foundation, Co-op Community Fund, Isla Foundation, The National Lottery, Harry’s cycling fundraiser and Kian’s 3D printed visors fundraiser.
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In August 2020, we launched our new website which has made it even easier for those we help to get support. We opened our online shop to raise funds by selling our charity hats and face masks. Our social media presence continued to grow thanks to the tireless work of our Founder, Caroline. We saw an increase in PR for the charity, including articles in Women & Home and the New Scientist as well as interviews for several podcasts. Our research volunteer, Non, carried out the first Harry’s HAT study with support from students at the Royal Holloway University. The study looked at antenatal care and the impact of third trimester screening on the outcome for babies born with hydrocephalus.
We are incredibly proud of the partnership we have established with the US Hydrocephalus Association, which has enabled us to work on the development of an app designed to help families access vital information easily in a medical emergency. We have also strengthened our partnerships with various charities in the UK. This includes working with Shine to develop a joint communication for display in neurosurgical units, which specifically targets families affected by hydrocephalus. We continue to seek opportunities to work with other organisations doing fantastic work in the sector and were proud to have teamed up with Beauty Banks to produce vital parent and hospital staff welfare packs during the pandemic.
As we look ahead to the coming year, we launch our book ‘hydrocephalus: what I wish I’d known”; a support tool for parents and carers in the first months following a diagnosis. We will also launch the UK version of the Hydrocephalus Association’s Hydro-assist app, and hold the charity’s postponed Parliamentary Reception.
I’d like to thank everyone at team Harry’s HAT for a year to be proud of. Together, we will improve the lives of children affected by hydrocephalus.
## **Teri Kearsey**
**Chair of Trustees**
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## **Harrys Hydrocephalus Awareness Trust**
## **Founder’s Statement**
## **for the Period Ended 31 March 2021**
I am delighted to present this year’s annual report. Within the last financial year, our income has increased substantially. This growth is due to the tireless work and dedication of our volunteers and Trustees. Everyone who is involved with the charity goes above and beyond, without exception, and I am incredibility grateful to the team for all that they do.
Over the past year, I believe we have become more focused in our goals and more realistic about the meaningful change that we can make. We have subsequently amended our charity’s constitution slightly, in order to acknowledge the peer-to-peer support with families which has been come so critical.
I am pleased to report that we have now developed and presented our three year business case which highlights the positive impact that we aim to have on children and their families affected by hydrocephalus, and sets out clear steps to achieving it. The charity’s business case also takes the ongoing global pandemic into account, as well as the challenging economic and social circumstances in which the UK now finds itself. I am confident that the dedication, enthusiasm and professionalism of the team will ensure that we will meet each objective in the plan on time and within our planned budget.
I believe our impact is significant, especially given our size and capacity. In the last year, some of my proudest moments have been from the feedback from the families we have helped; feedback such as “I literally cried when I heard about your work, the story is so similar to mine” or “without having you guys to turn to I don’t think I would have made it through”. Quotes like these provide real motivation for our work, which is hard and for which nobody in the team is financially compensated. I am pleased to see that we are making a difference to children and their families affected by hydrocephalus.
I would like to echo Teri’s closing remarks by thanking everyone in the team; our work would not be possible without these dedicated, caring, and professional individuals.
**Caroline Coates Founder**
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## **Independent Examiner's Report to the Directors and Trustees of**
## **Harrys Hydrocephalus Awareness Trust**
I report on the accounts of the charity for the period ended 31 March 2021 which are set out on pages
## **Respective responsibilities of directors and examiner**
The charity’s directors are responsible for the preparation of the accounts. The charity’s directors consider that an audit is not required for this Period under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed. It is my responsibility to:
- examine the accounts under section 145 of the 2011 Act;
- follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and
- state whether particular matters have come to my attention.
## **Basis of independent examiner's report**
My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a “true and fair view” and the report is limited to those matters set out in the statement below.
## **Other matters**
Your attention is drawn to the fact that the charity has prepared the accounts (financial statements) in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) issued on 16 July 2014 in preference to the Accounting and Reporting Charities: Statement of Recommended Practice issued on 1 April 2005 which is referred to in the extant regulations but has since been withdrawn.
We understand that this has been done in order for the accounts to provide a true and fair view in accordance with the Generally Accepted Accounting Practice effective for reporting periods beginning on or after 1 January 2015.
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## **Independent Examiner's Report to the Directors and Trustees of**
## **Harrys Hydrocephalus Awareness Trust**
## **Independent examiner's statement**
In connection with my examination, no matter has come to my attention:
which gives me reasonable cause to believe that, in any material respect, the requirements:
- to keep accounting records in accordance with section 130 of the 2011 Act; and
- to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act
have not been met; or
to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.
Samun Omer
Holy Brook Associates
Curious Lounge, 1st Floor,
Pinnacle Building,
Tudor Road, Reading,
England,
RG1 1NH
Date: 11 / 26 / 2021
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## **Harrys Hydrocephalus Awareness Trust**
## **Statement of Financial Activities**
## **for the Period Ended 31 March 2021**
|Note
s
**INCOMING RESOURCES**
**Incoming resources**
**from generated funds**
Donations and legacies
2
**Total incoming**
**resources**
**RESOURCES EXPENDED**
Costs of raising funds
3
Charitable activities
4
Legal and
administrative costs
5
Total resources
expended
**NET INCOME**
**RECONCILIATION OF**
**FUNDS**
**Total funds brought**
**forward**
**TOTAL FUNDS CARRIED**
**FORWARD**|Unrestrict
ed funds
**£**
14,023
14,023
3,261
6,379
1,248
10,887
**3,136**
**8,824**
**11,960**|Restrict
ed
funds
**£**
21,500
21,500
400
3,210
-
3,610
**17,890**
**10,683**
**28,573**|2021
Total
funds
**£**
**35,523**
**35,523**
**3,661**
**9,589**
**1,248**
**14,497**
**21,026**
**19,507**
**40,533**|2020
Total
Funds
**£**
29,234|
|---|---|---|---|---|
|||||29,234|
|||||2,942
4,795
1,990|
|||||9,727|
|||||19,507
**-**|
|||||19,507|
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## **Harrys Hydrocephalus Awareness Trust**
## **Balance Sheet**
|**At 31 March 2021**
Unrestrict
ed funds
Restrict
ed
funds
Note
**£**
**£**
**FIXED ASSETS**
Tangible assets
**8**
**446**
**CURRENT ASSETS**
Debtors
**9**
**-**
**-**
Cash in bank and in
hand
**12,896**
**28,127**
**14,755**
**28,127**
**CREDITORS**
Amounts falling due
within one Period
**10**
**(936)**
**-**
**NET CURRENT ASSETS**
**11,960**
**28,127**
**TOTAL ASSETS LESS**
**CURRENT LIABILITIES**
**11,960**
**28,573**
**NET ASSETS**
**11**
**11,960**
**28,573**
**FUNDS**
**12**
Restricted funds
Unrestricted funds
**TOTAL FUNDS**|2021
Total
funds
**£**
**446**
**-**
**41,023**
**41,533**
**(936)**
**40,087**
**40,533**
**40,533**
**28,573**
**11,960**
**40,533**|2020
Total
Funds
**£**
892|
|---|---|---|
|||892
68
19,687|
|||19,755
(1,140)|
|||18,615
19,507|
|||19,507|
|||8,824
10,683|
|||**19,507**|
The financial statements were approved by the Board of Trustees on 17[th] November and were signed on its behalf by:
11 / 28 / 2021
M Coates -Trustee
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## **Harrys Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2021**
## **1. ACCOUNTING POLICIES**
## **Fund accounting**
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
## **2. DONATION AND LEGACIES**
|Donations
Grant
**OST OF RAISING FUNDS**
Fund Raising Costs
Promotion and public relations
costs||2021
£
14,023
21,500
35,523
2021
£
2,477
1,184
3,661|2020
£
16,324
13,000|
|---|---|---|---|
||||29,234|
||||2020
£
2,157
785
2,942|
## **3. COST OF RAISING FUNDS**
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## **Harrys Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2021 (continued)**
## **4. CHARITABLE ACTIVITES**
|Notes
2021
£
Computer Expenses
3,616
Printing, postage and stationery
Training costs
678
Sundry costs
224
Grants
6
4,184
Depreciation and computer
equipment
Trustee expenses
446
441
9,589
**5.**
**LEGAL AND ADMINISTRATIVE COSTS**
**2021**
**£**
Legal and professional fees
-
Independent examiner’s
fee
936
Insurance
312
1,248
**6.**
**GRANTS PAYABLE**
The total grants paid to institutions during the year was as follows:
**2021**
**£**
Support and training of medical
personnel
**4,184**
**4,184**|2020
£
1,049
322
340
100
2,539
445
4,795
**2020**
**£**
664
1,140
186|
|---|---|
||1,990|
||**2020**
**£**
**2,539**|
||**2,539**|
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## **Harrys Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2021 (continued)**
## **7. TRUSTEES' REMUNERATION AND BENEFITS**
There were no trustees' remuneration or other benefits for the period ended 31 March 2021 (2020 – none). Four trustees were reimbursed for expenses incurred on behalf of the charity amounts totalling £441.00 (2020 – none)
## **8. TANGIBLE FIXED ASSETS**
|**COST**
At 31 March 2020
Additions
At 31 March 2021
**DEPRECIATION**
At 31 March 2020
Charge for the Period
At 31 March 2021
**NET BOOK VALUE**
At 31 March 2021|**Computer**
**Equipment**
**£**
1,337
-
1,337
445
446
891
446|**Total**
**2021**
**£**
1,337
-
1,337
445
446
891
446|**Totals**
**2020**
**£**
-
1,337|
|---|---|---|---|
||||1,337|
||||-
445|
||||445|
||||892|
## **9. DEBTORS: AMOUNTS FALLING DUE WITHIN ONE PERIOD**
|Prepayments and other
debtors|2021
£
-
-|2020
£
68|
|---|---|---|
|||68|
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## **Harrys Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements**
## **for the Period Ended 31 March 2021 (continued)**
## **10. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE PERIOD**
|2021
£
Accruals and deferred income
936
936
**11.**
**ANALYSIS OF NET ASSETS BETWEEN FUNDS**
Unrestricted
Funds
£
Restricted
Funds
£
2021
Total
Funds
£
Fixed Assets
-
446
446
Current Assets
12,896
28,127
41,023
Current liabilities
(936)
-
(936)
11,960
28,573
40,533
**12.**
**MOVEMENT IN FUNDS**
Net
Movements
in funds
£
Transfers
between
funds
£
At
31.3.2021
£
**Restricted funds**
National Lottery
Awards for All
10,570
**-**
**18,940**
Surrey County
Council
Community
Foundation Surrey
Isla Foundation
-
7,000
320
**-**
**-**
**-**
**2,313**
**7000**
**320**
**17,890**
**-**
**19,573**
**Unrestricted funds**
General fund
**3,136**
**-**
**11,960**
**TOTAL FUNDS**
**21,026**
**-**
**40,533**|||2020
£
1,140|
|---|---|---|---|
||||1,140|
|||2020
Total
Funds
£
892
19,687
(1,140)
19,507
At
31.3.2020
£
8,370
2,313
-
-|2020
Total
Funds
£
892
19,687
(1,140)|
||||19,507|
|||10,683
8,824||
|||19,507||
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## **Harrys Hydrocephalus Awareness Trust**
## **Notes to the Financial Statements - continued**
## **for the Period Ended 31 March 2021**
## **12. MOVEMENT IN FUNDS (continued)**
Net movement in funds, included in the above, are as follows:
For the year ending March 2021
|**Restricted funds**
National Lottery
Awards
Surrey County Council
Community
Foundation Surrey
Isla Foundation
**Unrestricted funds**
General fund
**TOTAL FUNDS**|Incoming
Resources
£
12,500
-
7,000
2,000
**21,500**
14,023
**35,523**|Resources
Expanded
£
1,930
1,680
**3,610**
10,887
**14,497**|Movement
in Funds
£
10,570
-
7,000
320|
|---|---|---|---|
||||**17,890**
**3,136**|
||||**21,026**|
## **Purpose of Unrestricted Funds**
## **General Fund**
The general fund is used for the day to day running of the charity.
## **National Lottery Awards for All**
This is a restricted fund which represents money provided to promote awareness and education of Hydrocephalus.
## **Surrey County Council**
This is a restricted fund which represents money provided for a community outreach project to raise awareness of Hydrocephalus.
## **Isla Fund**
This is a restricted fund which represents money provided for the development of a specialist app.
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## **Community Foundation Surrey**
This is a restricted fund which represents money provided for awareness raising and management of the charity.
## **13. RELATED PARTY TRANSACTIONS**
There were no transactions with related parties for the period ended 31 March 2021.
## **14. ULTIMATE CONTROLLING PARTY**
The Board of Trustees are considered to be the ultimate controlling party.
## **15. CONTRIBUTION OF VOLUNTEERS**
The charity benefits substantially from the unpaid contribution of volunteers including, trustees providing time in additional to their roles of trustees. This totalled 1,560 hours of time, which - if valued at the NVCO rate for funding bids of £13.70 an hour - would have a value £21,372.
Because the value of volunteers cannot be measured accurately this is not included in the financial statements above, in accordance with Charity SORP.
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Audit trail
TITLE Accounts updated with final information FILE NAME HAT Accounts Marc...ovember 2021.docx DOCUMENT ID 3ad3b2d061ea74bb9f4e7e0eb16f9a015872dba4 AUDIT TRAIL DATE FORMAT MM / DD / YYYY STATUS Completed
**11 / 26 / 2021** Sent for signature to Matthew Coates 10:51:22 UTC (matthew@harrys-hat.org) and Samun Omer (samun.omer@holybrook.com) from racheleden@gmail.com IP: 80.3.208.136 **11 / 26 / 2021** Viewed by Samun Omer (samun.omer@holybrook.com) 10:52:21 UTC IP: 2.31.84.229 **11 / 26 / 2021** Signed by Samun Omer (samun.omer@holybrook.com) 10:52:56 UTC IP: 2.31.84.229 **11 / 28 / 2021** Viewed by Matthew Coates (matthew@harrys-hat.org) 14:47:35 UTC IP: 95.148.202.34 **11 / 28 / 2021** Signed by Matthew Coates (matthew@harrys-hat.org) 14:49:03 UTC IP: 95.148.202.34 **11 / 28 / 2021** The document has been completed. 14:49:03 UTC