Batten Fighters Forever
Trustee Report and Financial Statements Year Ended 31[st] March 2022
Charity Number: 1182753
Reference and administrative information
Trustees
Andrew Hover, Chair of Trustees Lisa Hover, Treasurer Sarah Sillince Sarah Horton Chris Horton David Worn
Registered Office
4 Ashley Cottages, Verwood Road, Ringwood, BH242 DD
Charity Number
1182753
Bank
Barclays Bank, 6-8 High Street, Ringwood, BH24 2BZ
Report of the trustees for the year ending 31[st] March 2022
The trustees present their annual report and financial statements of the charity for the year ended 31[st] March 2022. The financial statements have been prepared in accordance with the charity’s constitution and the Charities Act 2011.
Structure, governance and management
Batten Fighters Forever is a registered charity, number 1182753, and was constituted as a charitable incorporated organisation on 2[nd] April 2019. The charity was established by the current trustees and no trustees have been added or removed.
At the quarterly trustees’ meetings, the trustees agree the broad strategy and areas of activity for the charity, including consideration of grant making, fundraising, awareness raising, reserves and risk management policies as well as monitoring the performance of the charity. The day to day management of charity activities, including but not limited to the administration of grants and handling of grant applications prior to review by the trustees, is delegated to the Chair of Trustees and the Treasurer.
All trustees give of their time freely and no trustee remuneration was paid in the year. There were no trustee expenses paid in the year. Trustees are required to disclose all relevant interests, register them and in accordance with the charity’s policy withdraw from decisions where a conflict of interest arises.
Risk Management
The trustees have considered the major risks to which the charity is exposed, have reviewed those risks and established systems and procedures to manage those risks.
The trustees have established a data protection policy and implemented practices to reduce exposing sensitive information of anyone supporting or being supported by the charity in line with requirements of the General Data Protection Regulations.
Our main operational risk that was anticipated for the period covered by this report was the remaining impacts of the COVID 19 pandemic on fundraising and awareness raising opportunities. Similar to the previous year, the Trustees factored this into the income forecast for the 2021-22 year. Grant applications will only be approved by the trustees where funds allow and without impacting the reserves policy.
Objectives and activities for the public benefit
The objects of the charity are to assist in the treatment and care of people with Batten Disease by:
-
Providing information about Batten Disease and where practical help and support can be found.
-
Raising public awareness about Batten Disease and how research into the disease and support for people with the disease, their families and carers will improve the conditions of life for people with Batten Disease.
-
Making grants to
-
a. Pay for personal care, equipment and home adaptations for people with Batten Disease
-
b. Assist in the provision of practical help, advice, support and respite care for people with Batten Disease, their families and carers
-
c. Fund research into Batten Disease and the treatment of the disease, provided the useful results of such research are published.
The charity carries out these objectives by:
-
Providing and continually developing the Batten Fighters Forever website and printed materials as resources to explain about Batten Disease and provide links to practical advice and agencies able to assist people with Batten Disease, their families and carers. Additionally, the website contains blogs, details of the charity, fundraising events and activities.
-
Utilising Facebook, Instagram and Twitter as an integrated social media programme to publish news, updates, information, campaigns, appeals and lobbying.
-
Grant making to assist families and others supporting children with Batten Disease or to support research into treatments for Batten Disease. The grant making is the primary focus of all fundraising activities.
By focussing on these areas, and with regard to the Charities Commission’s public benefit guidance, the trustees’ achieve the strategic priorities of the charity.
Grant making policy
The charity has established a grant making policy to achieve its object for the public benefit to provide funds:
-
To provide support to children with Batten Disease and their families
-
To provide support to other charities and organisations that support children with Batten Disease and their families
-
To fund research into the disease and the development of medicines for the treatment of Batten Disease
The grant making policy is reviewed annually to ensure that it reflects the charity’s objects and thereby advances public benefit.
The beneficiaries of our grant making programme this year have been supported in a variety of ways including travel equipment, mobility aids, iPads, seizure monitoring, physio equipment and home adaptations.
We continue to coordinate with the Batten Disease Family Association (BDFA) both in regard to a number of family grant applications via their family support officers and also to ensure clear delineation between our grant making programme and any small grant provision by the BDFA.
The number of enquiries regarding the grant programme, submitted applications and the total value of grants awarded this year was similar to the prior year. The actual income surpassed the forecast significantly which meant no restriction to the Trustees supporting eligible grant applications. We will continue to publicise the grant making programme as broadly as possible and encouraging applications from families who require support.
Achievements and Performance
For the year ending March 31[st] 2022 the following provides a summary of achievements and performance of the charity:
-
Funds raised totalling £15,754 exceeded the charity’s fundraising target for the year of operating by 85%. This is a great achievement. The income target was set at a level slightly higher than the prior year but still lower than original business plans due to the anticipated continued impact of the COVID 19 pandemic on fundraising. Voluntary donations continue to be the largest source of funds.
-
A number of families have received direct support via the charity’s grant programme. This has supported children this year suffering from CLN2, CLN3 and CLN6 variants of Batten Disease across a broad age range. The grants have supported monitoring technology, physiotherapy equipment, travel aids, mobility aids and home adaptations.
-
We continue the focus on raising awareness of Batten Disease and the support needs of people with the disease and their families.
-
a. Although the following of BFF via social media continues to grow it appears that this is becoming a more crowded space and is having less of an impact. Key metrics that we monitor demonstrate this:
-
i. The number of BFF Facebook page visits increased by 11.4% on the prior year
-
ii. New Facebook page likes has reduced by 10.2% on the prior year
-
iii. Facebook page reach has reduced by 48.4% on the prior year
-
iv. Instagram profile visits have increased 208% on the prior year
-
v. Instagram reach has increased 225% on the prior year
-
Financial review
The charity’s work is almost entirely reliant on income from fundraising events and voluntary donations. We significantly exceeded our year 3 income target and had a total income of £15,754 due to some exceptional fundraising and donation generosity. We paid grants totalling £6,987. After expenses, we have a surplus greater than that planned by the trustees.
Reserves policy
The trustees aim to maintain an unrestricted reserve of £1,000 for the purpose of cash flow to manage expenditures for the running of the charity. Reserves at the end of this year are much higher as a result of the surplus carried forward from the prior year, higher than target income and lower than target grant provision.
Plans for the future
The Trustees have set a target of £10,000 for grant awards and £5,000 for fundraising for year 4 (2022-23) to recognise a reduction in fundraising activity. This would leave a surplus of £12,000 to support grant awards and activities of the charity in future years.
Trustees’ responsibilities in relation to the financial statements
The trustees are responsible for preparing the Trustees’ Report and the financial statements in accordance with applicable law. Section 133 of the Charities Act 2011 allows charitable incorporated organisations in England and Wales with income of less than £250,000 per year to prepare receipts and payments accounts for each financial year.
The trustees are responsible for keeping accounting records which disclose with reasonable accuracy the financial position of the charity and enable them to ascertain that the financial statements comply with the Charities Act 2011. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity’s website.
Approved by the trustees on 15[th] June 2022 and signed on their behalf by:
A.Hover Chair of Trustees
Batten Fighters Forever
Statement of Financial Activities
For the year ending 31[st] March 2022
Receipts and Payments
| Receipts Voluntary donations Fundraising events Total Receipts Payments Grants Paid Costs of generating voluntary donations Fundraising costs Governance costs Insurance Printing, postage, stationary and computer supplies Total Payments Net of Receipts/ (Payments) Transfers between funds Cash funds last year end Cash funds this year end |
Unrestricted funds Restricted funds Endowment funds Total funds 2022 Total funds 2021 To the nearest £ To the nearest £ To the nearest £ To the nearest £ To the nearest £ 11,653 - - 11,653 6,558 4,101 - - 4,101 797 |
|---|---|
| 15,754 - - 15,754 7,355 |
|
| 6,987 - - 6,987 7,197 110 - - 110 71 242 - - 242 413 - - - - - 148 - - 148 160 606 - - 606 96 |
|
| 8,094 - - 8,094 7,937 |
|
| 7,660 - - 7,660 (582) |
|
| - - - - - 10,087 - - 10,087 10,669 |
|
| 17,747 - - 17,747 10,087 |
Assets and liabilities at the end of the period
| Categories Cash Funds |
Details Unrestricted funds Restricted funds Endowment funds To the nearest £ To the nearest £ To the nearest £ Barclays bank account 17,747 - - |
|---|---|
| Total cash funds 17,747 - - |
Approved by the trustees on 15[th] June 2022 and signed on their behalf by:
A.Hover
Chair of Trustees