OpenCharities

Batten Fighters Forever

Bff

Country
England & Wales
Charity number
1182753
Status
Registered
Registered
April 2, 2019
Legal form
CIO

Address

Address
4 ASHLEY COTTAGES
VERWOOD ROAD
ASHLEY
RINGWOOD
BH24 2DD

Activities

Batten Fighters Forever is a charity supporting people with Batten Disease by raising awareness of the disease, providing information and where practical help/ support can be found and providing grants to support families with the disease, organisations supporting such families and research into treatments.

Objects: The Objects Of The CIO Are :For The Public Benefit, The Relief Of Sickness And To Assist In The Treatment And Care Of People With Batten Disease, In Particular But Not Exclusively By:(1) Providing Information About Batten Disease And Where Practical Help And Support Can Be Found;(2) Raising Public Awareness About Batten Disease And How Research Into The Disease And Support For People With The Disease, Their Families And Carers Will Improve The Conditions Of Life For People With Batten Disease.(3) Making Grants To (A) Pay For Personal Care, Equipment And Home Adaptations For People With Batten Disease;(b) Assist In The Provision Of Practical Help, Advice, Support And Respite Care For People With Batten Disease, Their Families And Carers;(c) Fund Research Into Batten Disease And The Treatment Of The Disease, Provided The Useful Results Of Such Research Are Published.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information
What
Disability

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £14,547 £10,815
March 31, 2024 £5,037 £4,466
March 31, 2023 £4,295 £6,279
March 31, 2022 £15,754 £8,094
March 31, 2021 £7,355 £7,937

Trustees

Name Appointed
Andrew George Hover (Chair) April 2, 2019
David Worn April 2, 2019
Lisa Kathleen Hover April 2, 2019
Sarah Beverley Helen Horton April 2, 2019
Sarah Louise Sillince April 2, 2019