OpenCharities

Treatsma

Country
England & Wales
Charity number
1182610
Status
Registered
Registered
March 25, 2019
Legal form
CIO

Address

Address
TreatSMA
85 Great Portland St
First Floor
London
W1W 7LT

Contact

Activities

We do everything possible to ensure that all people with SMA have access to effective treatments, health care and social support. We raise awareness of the disease, offer support to those affected and their near and dear ones, promote and support scientific research into causes and treatments, and provide necessary equipment and living aids.

Objects: The Objects Of The CIO Are To Promote And Protect The Health And Wellbeing Of Persons With Spinalmuscular Atrophy, Their Families And Carers, In Particular By:(a) Advancing Knowledge In All Aspects Of Spinal Muscular Atrophy;(b) Improving Access To Appropriate Healthcare, Including Diagnostics, Treatments,and Assistive Technologies; And(c) Promoting Social Inclusion Of People With Spinal Muscular Atrophy, Their Familiesand Carers

Classification

How
Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
Who
Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups

Areas of operation

Country
Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
April 5, 2025 £2,563 £951
April 5, 2024 £871 £12,905
April 5, 2023 £18,359 £188
April 5, 2022 £17,648 £2,292
April 5, 2021 £10,851 £1,924

Trustees

Name Appointed
Andrew Thornton Jan. 6, 2020
Dr GENNADIY ILYASHENKO Aug. 8, 2018
Lucy Frost Aug. 8, 2018