# TREATSMA

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1182610
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** March 25, 2019
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1182610


## Contact

- **Address:** TreatSMA, 85 Great Portland St, First Floor, London
- **Postcode:** W1W 7LT
- **Phone:** 0300 800 0202
- **Email:** treatsma@treatsma.uk
- **Website:** https://www.treatsma.uk



## Activities

**Objects:** THE OBJECTS OF THE CIO ARE TO PROMOTE AND PROTECT THE HEALTH AND WELLBEING OF PERSONS WITH SPINALMUSCULAR ATROPHY, THEIR FAMILIES AND CARERS, IN PARTICULAR BY:(A) ADVANCING KNOWLEDGE IN ALL ASPECTS OF SPINAL MUSCULAR ATROPHY;(B) IMPROVING ACCESS TO APPROPRIATE HEALTHCARE, INCLUDING DIAGNOSTICS, TREATMENTS,AND ASSISTIVE TECHNOLOGIES; AND(C) PROMOTING SOCIAL INCLUSION OF PEOPLE WITH SPINAL MUSCULAR ATROPHY, THEIR FAMILIESAND CARERS

**Activities:** We do everything possible to ensure that all people with SMA have access to effective treatments, health care and social support. We raise awareness of the disease, offer support to those affected and their near and dear ones, promote and support scientific research into causes and treatments, and provide necessary equipment and living aids.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Andrew Thornton |  | Jan. 6, 2020 |
| Dr GENNADIY ILYASHENKO |  | Aug. 8, 2018 |
| LUCY FROST |  | Aug. 8, 2018 |




