Charlty Nome: Hered1 Spasti¢ Paraple9la Sypwt Group Re9lstered Charlty No: 1181539 18 Lodmcor Avenue, Weymouth. DT3 SAF Heredm sPF¥ry SuwtGrw Trustees: Mlke Cain, Dave Harts, Adam Lawreno, EsLelle Marshall, John Mo59n, Mlte5h Patel, Pdyiie. Midwel PiJytIe, knn Vasquez Ruli Trustees, Repo Year Endlng 30th Aprll 2025 IA The ¢harfty Is govtrnell and admlnlstÈrad by a commlttee cl9 vdurteer tr[e¢s. The trustees consider that all actlons taken the year were In acconIar wrth the consb"tutlon. The trustees meet several times y••r or corr•spoThJ by •m•ll to discuss thé aetiwties of th@ grryjp m¥JkLA t4rl#long on actlvltles Jrrfl expenditur•. Flv• m•etirAJs durlng th• yr w•r• all h•kJ ty Zoom. Durlng tre year three rth people arxl one frrnier trustee v{4Unteer to becomes trustees. The trustees agreed they should be apptyrted, ar they we stsndln9 fty elects.on at the AGM. Shanake Amaraslnghe rytcod down 4) tre05urer and John Mason was re-oppobnted treasurer. h•vlrg off¢red hls suYlcc¥. Thr drrlvdl vf tru>lY¥> lid> dlluwt%b Llie Iroire¥ (rf Seo-etary and Treasurer rde3, wlth much of the year spent In tran5itlon for a smty)th ha11?er (rf wsUJllltle5. Forn1 hJThlo¥er af rdes wlll ocoJr at the 2025 AGM. subject to member voting. Th• orrAip'¢ rn1n stxt•m•nt 1$.. wlth H•v•dltsry Sp••lle P•v•pl•pl• {HSP), thdr f•mlll•# and e•v•rn arn •t th• h••rt of •wrythlng w• do. Our Inlornutityj and SLt helps in¥Jmve th• of IM• tho¢• hy H.fP. Otsr lrtendly support communlty hes wlt¥ sharln¢ Ide•s and redudno feeliffjs d lsolatlon. We support rns•4rth Into HSP. Includlnq devilng treatments and Imwovlnq Lwderstandlw. The mlvvlon tatoment artlcul•tes how the GrP fulfik Its thr•ble obJeLts whlth Jre ¢oncerned wlth promotlng aTrJ protecting phyJv ol Jrrtl mental health, and advanclng edu¢4tion. The GrP Pre5 a frlendly SLPWtfve communlty wlth varl¢yJs ways for memljers to keep up.tO-d4te mMunIte wlth each cther: An Annual General MeetlThJ repwts the athltles d the grrxip. Presentatlons after the AGM from HSP ¥ed•llsts and relevart Indfvkluals help pwple eW¢ye topl(s rdevjnt to HSP. Reglonal meetlnqs are regularly hdd arou1 the counlry and on-llne almlnq to encour•Je conver5arion arK1 rn)U feellThJ5 of ISatrOn A Nelysieuer Is puDiisn& 2-3 rimes a year A website and seaal media channds provide recortlln9s cl +xllne events, levant InformJtj arnl allow discusslons on apprffj+Mate tepics The group Is InVve wlth le¥Oftt umlxella wjanlsatlors to he wmte HSP The Group pdeS varlws Ways to 9JPPtrt members and to promote rewrth knto HSP.. Supffilve commLmlty 9rèrts are avallable to member5 to help wlth the purthase of moblllty alds other 8Julpment Grnnts are avallable to SUPWt acuvltles Drojects re5eJrthlrvJ aspects of HSP IA The group ha worked on Its publlc benellts th the pwposes ¢1 rcdudng Isdjtlon and keeplng people Informed •nd Invofved: The 2024 AGM was held vfjrtually. vla the Zo>n platfc¢m. Pre5entatlorts fdlorfng the AGM were held vlrbJally ovtt summer of 2024. RKordlngs of the AGM and present•Uons ve poul to yTtsbe thannel that members or Uie publlc (an vle* Lhem él I¥ Ilme. ArtJurKI 20 twEeUng5 were hekj dutlwwJ year, Zuryn and ta ro face M•mb•rnhlp Mlte5h P Dave Ilard5 )0 Ma¥on
Trustees. Report, Year Endlng 3 APMI 2025 l edon of the new51etter was produ(wJ {June 24}, ¥h thanks to lan Bennett for h15 excellent k on this slnc• 2008. Flp LA• bKam• (ltOr kn 2025. wlth her ediyon publish•d aft•r thè end th¢& financi31 yejr. omijp io fiJndlThJ a book about HSP bÈhg vnlit@n h¥ Flp wtth ort frcffj Fsto11• Marghall. The bc¢Jk should be avallaue durtno the summer cé 2025, and we wlll urlate m8Jnbers C prcYJre5S. Sodal medla qrovps fty those wlth HSP and thefjr carers were $uFwtal. Money Is rnlsed from subsulpt1 Jrrfl fuThl-ralslThJ acUvlts undutskw by mernbers and frIpJKls. Ten {10) members Successfully appl1 for membergrants. gWeral wlth the alm d purchoslng moblllty alds. In total £6,421 was approved forthem. Che membersucceSUlY 4Jplkd for fiJndlThJ to%Yards a hollday wlth Calvert Trust. The oeneral e1 aNI pattem of membership Is slmllar to prevlous years. Whll# many Deople are members for the longer tem. thve are always new members nINj and (ther members leavlng. We contlnue to trnck rea$S lor lea9 to ensure we're respondlng to member needs as much as posslble wbthln our Researth The group has provJed some furxllrvj for a projert r by Ew(ISP Into treatment optkffjs for SFry. Thé fyoup has cofflpleted Its r1j for earth at Exeter Unive[ty. The pwltyjsly agreal research project t Sheffleld has not proJressèJ as pbann•Y, a1 are dlscussln9 the next steps. There have been no oth ppllcatlons for wrch fundlng. Income: É61.045.37 (last vw E 31.138.23) Expendlture: £23,490.16 (last year £ 38,973.031 There was a surplus of É 37,555.24 fty the year (last year a defidt rf É 7,784.80). Durlng the y&ir the Group recelNd an Intthm donatlon from the estste of hy Ralnw, who dKryJ lfi 2020. At the end of the financlal year {3014120251 the GrP has net assets IA £155,105.87 hek1 entyrejy ) tts bank acrounls. These assets re he In reserve to mett member benefrts, research furlTra, running c$ nd contin9enoes In fuwre years. Mcnies rals&1 ft>r re5earth We ass49 to a restrtcted •¢C¢nt whlth w45 uJ as rt payment for research grants In the year whkh tctsll•J £10,759.90. The Trustees conslder thgt the Grouplg Ionandolly TheTrustets conJder a rVrV¢ rf4r¢Jund £15,000 should be he to meet convngendes and there art Élgnitkant funds b•yond thls figure. The acctyJnts have b pr•p•red In cc¢xdano 4th the awrity CommlssWrs guide11 and ¥¥lth ward to 9uldelln•s on puUl¢ ten•fit. Adam L•wr•rK• th¥lr Date: 15 June 2025 Reg*ertd C]wrlty 140. 11815)) Page2of 2
HSP Support Group Charty No ComL'3ll" No 1181539 Annual accounts for the 0110612024 dato 3W12025 Section A Statement of financial activities (including summary income and expenditure account) fund• Totslfvnd• lrtom• (Not• J) FOI F02 F04 FOS 15,210. 16 324.76 55.395 61,045 31 594.82 Exp•ndluv• IN•t•• 11 234 1,198 23.321 1.198 23.490 3,134 33.102 169 N•t In¢onll•xp•ndknl brfow• lax f th• rnportlng p•rfod 613 32.074 5,481 37,555 N•t 1nc¢JThll•Apd1tU1•} •ft•rtsx b•fw• Imi••tnxnt galnillloM••l $1S 32,Q74 5.481 37,555 1,507 ¥1¥ N•t Incom1•xp)dI1•j Exhonllmry Item• 817 81 32.074 5,481 37,5 1,507 (*h•r v•eognl••d galn•lVo•M•l: 117.551 155 1c6 149.625 117551
Sectioii B Balance slieet Flx•d assets ITJ C•th•t b•kand 15fj,708 117,$50 If7,SSQ •h• Fund ofth• ¢hrfty 1$5.Ir 1S5.1 5.411 S.4•1 IIw*•don fwr¥• 14•,IX
1.1 o(aecounllng Th• acctr hA¥• b• •w4i¢•t41 knth• •Thl R¢ IFftS 102) w•d M 16W 2014 k•knd (FRS IQZI ' th• Ch*ld# kt 1011. FRS 102.. 1.2 Qdnq ¢onwn tog•thff ¥Alh th•b•th rm th•lnMts•• •w•dth• •¢¢ounts gnd th• r••w 1.3 ChAng• rfa¢¢oynllng poley ngt• { l. No" CC17a IEtt41 OinV2D2S
11 RECQNUUAIION v*fH PftEWOUS GENERALLY ACCEPIEDACC(Wrn
12 14COME Y•¢ Y••. Yn. Y *•ty C¢17FR$1fQQL
Yrt. Y•v IJ EXPENDMIRE AND UABIUTES Y••. YM. 2.4 A88ET8 Y• Y* CC171AS Itasc
Y• Y4•" c¢t7Hisiro¢ciip
In¢>Jne 47, 71Q T•W 7,181 Totsl Told IMl•ldl•rn T1 cGt7lEKdJ
No••4 Thl•Jw T41 T&tsl CC171 (E
OoMt•d f•ctiitlM and ••r4t•• •cMunllnq pomcyforlh •Trd ¥4yl•n ol dovMt•d good condlllonA Ind oth•r •lh•r d•nrt•d o••d• hd Ot rnc•ordMd In th• •q CC171 IE%¢d) io 0%2¢Q5
Muw• ¢)h rthln fvrth.. Incurr•d M•kinB dth•)o rrvd •q•kJn9 94 wr•d wkjnp 911 $4rtho ¢h•ryihty• • lrndln9 corry>•nyur4wr•k¥¥ dir•LI Thwbl4nd Stwt W CDsts kncumd kn 4OLYt• futur• In¢orM CNtololrtinknJ In¥Mtrr•nt •4 1287 4Jo R•w4r¢h gr•rl¥ 21 11• 144 T1 Tni*iM• • 436 ¢th•r•xp•ndltrJ TOTPLExpe14DmJRE 9J70 ,370 CC17•
T1 l•rt To ¢C17 IEx4> 13
01£3,420 iDclkl•b £1.eooth4ch kn th• Iofff•par• • t•Jok olh•r•xpwknMB olblrffj lth HSP •wyt thJn• 2025 •ThJ h rn¢fyJra ExirnorflD•rykn 2 Exlrnorfln•ry•m J Exlv•orttn•ry •m4 CC17*lExtdl 13 01n2QQa
Section C Notos to the accounis r•G•l¥•d M 4g•nl l• •n ag•rt It•1lUtotWII• lh• Iorn• th th• St•t•ffl olRft•nd•lA¢tlvlU•# orih• &l•ne• Sl od •nd p•rty ly •rN• ThJ• y••f Th1• y••r L*•¢ Th1• T4ts1 Balanm IMld at •rt•d •nd Th1• yr L••t y••r Totsl CC17I (Exe 14 0111W2tr25
Plot• 10 Thkny• L•*tJwr Y•x4d%knryl• rdl Ce17alGx 15
Nuts 13 Th1• y••r. Ov4ntsto 1121.40 WIA• 1471• ÈW¢0I18P G17•fyr4J
i&JNm J LY2. TOTAL Iwiif•pAO CC171 (£tr4> 17 olmyxos
Sectioii C Notes to tl)e accouiils Not• l• 11 An•fyth of det Th1¥ yMr Lat y••r Tr•d• dttrtorn T La•1 y••r Trad• d•btov• and accN•d hKom• Othw d•bt)rn T*X•l GC17• D11l2QlJ25
Sectioi) C Notes lo the iiccounts Note 20 Cr•dltors and accn 1 AMI> alcredxo Amowts flllnq due after mme thin on¢ year lthln Thls >wr Th1• yur A¢crnal•for gThnl• PlbI• B•nk lo•n• and overthfts Tr•d• ¢vedlt)fA orp•rfornwnc•4el•t•d grants Awud• and d•lerr•d TalOn and lod #cuffty Othv credltor• Totsl 20.2 D•f•rr•d Incun• Th1• y•v L••1 Thl•y L••t y•ar Bl•ne• •tth• rfth• nprtho Amounts •dd•d In cun•nt pthlod OalAnc• at th• •nd olth• rnpDrtkn9 p•rfod CC17• (E¥¢•l) 19 01112RW25
Sectioii C Notes to tle accouiits Nol• 21 Provlslon• for Ilabllftles and Ch Thts lf L4•1 y Am¢>urrt• •dd•d In pwl kniounts charued aga1n thè prowlxlon In th& Unu•ed am¢xwrt• rvrtr•¢d dwlng the perfod 112 Pl••M . • Iwlrf descrtwlw rf •ny on m• balanc• •h••t and th• •xp•thd •mwrt •d mlng of ru1n9 Plnents. . In Indlc•tl¢Jn of the unc•rtalnlle• am¢)unt ortlmlng <rftho•• oudlow•: and . th• imowtt ol •ny •xp•ct•d r•lrtiur•wn adng the amount of my •••¢t ha• be•n 21.3 For anyftmdlng Conm l• n( ognljed i• • lIlIty or pvo¥l•lon. wovldtr ol c¢)rnmllm•nl mid•, th• tlm•fr•me eondhl•n• ind d•tsh rfhwth• ¢omnth•nt ¥AII funded l4th for capltal expondliure ••parntety Id•ntlned d¢8lgna¢•d lo • lund pl•• dl•cl¢M th¢ n•turn of wnount• drAlgnthd and th• Ilklytknlng olth•l CC17& (Ex 01nw2025
LA¥t •r nlfteanc• rflkn•n¢W Sn•trwn•rn l•q. thbtorn, cY•dll¢rn. Inv•¥tm•ntg rf¢l 1•lh• PD¥nh>n orwornMnc•. for •x4mph. th• i•mi% Ind condltlons ol lo•ns wth• us• alli•dglr4 to mana1• 212 Wth• ch•rtiy hu wa¥ld•d IIMn¢l•l amount otlh• Ilnan£lal aiJ•ts pl*dyd a• ••¢unty Ina th• t•ffli• •na ¢C17• IEYGqll 01M2r
ThLq Jwr Wh• k l• m•• ¢¢174 2rls
Seclioii C Note5 to Ilie accotjiils Mrt• 24 C••h al bank Ind In h•nd Th1• >w Shortt•rni depo•l •h •1 bank and hffid £158.7(&00 117,59) T(Kii CC171 IExc•D 23 0111212025
CC17alExtdl MY2025
Not• 26 L••t Pmvld• •n •Slkn•i• olth• Iln•n¢W •ff• th• •v•nt or • stsl•mwrt th•1 such An ••tkn•t• tannot b• m•d• GG17• IEAr 01112121525
111-
Iiilliiiii 111111111 jli I
Sectioii C Note5 to tho accounts Not• 27 arltyfvnd41¢0rt) 27.3 Trwwftts batw••n ftmds Thls Amount for • corN•r¥lon 5trfded fvnds endrthTr•rt •nd r•slrlLl•d ft¢nd¥ ekn¥e•n endowmènt •nd r•strld•d fvnds Amoum 8•h¥••n unrestrhJ•d •nd r¢std4ed fvnds r•sknct•d pJnas Unthet•d hjnd 27A D••lonal•4 fvnd• Pl•nn•d u •s¢ncteo Funu olth• O•1 nAtlon knount Rese•1 Mfjp uni•*no¢o [G•no To fwKI gw geTrJi•l). Pl•nMd u RèsiA¢t•d Fund Amwni R•sMth thlo H8P 15.113 Q•ner•l Fwd ar1$10 members for mot•y •th: nM161t•r. •dkiNOn CC171 IExcdl M2r2025
Seciion C Notes to the accounts Icontl Not• 29 Addhlonal Olsclosurn Th• followlng •r• 9nNIcnI m•tt¢r• whlch •r• nol ¢ov•r•d In oth•r notu Ind n••d to b• Indud•d to pvId• • prop•r uThd•rstndlng of th• •¢¢1. Ifth•v• l• Insufflcl•nt vot¥n h•v•. pl•au add •paral• th••L CC17• 01112h2025
Note21 2&1 Tvu•l•• Y•yh •nd b•nrf Thb• y•*r TrUE TOTAL CC171
L•J4 IU TrvÈt•••' •xp•fvs• TT 201 D85 Ch•E*• f•rTN•l TOTAL CC17• IEX
h•S pdd byth•ch*y JTr•nA•thnlsl wlth rntst•d p•rfl•s •'ln th• Th1 >wr 114thn•hlp CC17• (Wi 01llys
(HARITY COMMISSION FOR ENGLAND AND WALES I Independent examinerfs report on the accounts 8fjGllon A Independent Examin¢r's Report Report to the trustws | HEREDtrARY SPASTIC PARAPLEGIA SUPPORT GROUP 30 Awil 2025 On accounts for thè year •nded Ch•rlty no 1181539 lil any) Set out on pag I report lo the trustees on my examination of the ac>)unts of the above thanty {Ihe Trust") for Ihe year ended 3(k101125 Responsibllltles and basis of report As Ihe chanty's tnjstees. you are responble for the preparation of the accounls in accordance the requirements of the Charities Acl 2011 llhe Al1. I rewrt In resped of rby exan•t of the Tw8t'$ accounts Carri out under 8ecaion 145 of the 2011 Act and in Carrying out my examination. I have follcmed all the apble Directions gNen by the Charity Commi8si¢Jn under 8edion 145(51{b) of the Act. Independent I have Ix)mpleted my examInaln. I c•nfimi that no materKg1 matters he oxamln?e• 8tatem•nt comè lo my attentn in o)nnection with the exaMallOn whlch gives Me Cause to believe that in. any material resped: the accounting records were not kept in xcnrdance Wbth 8aCtion 130 ol the Charrties Acl.. Of the accounts dKJ acrnrd wrth the xctyjrting fecords., or the accounts not compty wilh the applicabk requirements ¢onceming the lomi and conlenl of aecounts set out in the Charities IAc£ounls and Rewrt$l ReguL71ions 2008 other than any requirement that the accounts gNe a Iwe and fair, which is not a matter nsidered as part of an irmlependent examination. I have no coremS and have com across no other matters Mi connection with the examination lo whith attention Should be drawn in this report in order lo enable 8 proper understanding of the aco)unts lo be reached. ' Pl88se delete Ihe the bracks rflhey() not appty. 20 June 2025 Slgned: N•m•: Christopher Ha Relevant prol•••loMI qualifi¢atlon(81 or body (If any): Addr•8•: S6 Fl¢rbort Ro•J, Rali?1, Gllllngham. Keni MEB 9DA IER Oct 2018