Charlty Nome: Hered1* Spasti¢ Paraple9la Sypwt Group Re9lstered Charlty No: 1181539 18 Lodmcor Avenue, Weymouth. DT3 SAF Heredm sP￿F¥ry SuwtGrw Trustees: Mlke Cain, Dave Harts, Adam Lawreno, EsLelle Marshall, John Mo59n, Mlte5h Patel, Pdyiie. Midwel PiJytIe, knn Vasquez Ruli Trustees, Repo￿ Year Endlng 30th Aprll 2025 IA The ¢harfty Is govtrnell and admlnlstÈrad by a commlttee cl9 vdurteer tr[￿e¢s. The trustees consider that all actlons taken the year were In acconIar￿ wrth the consb"tutlon. The trustees meet several times y••r or corr•spoThJ by •m•ll to discuss thé aetiwties of th@ grryjp m¥JkLA t4*rl#long on actlvltles Jrrfl expenditur•. Flv• m•etirAJs durlng th• y￿r w•r• all h•kJ ty Zoom. Durlng tre year three rth people arxl one frrnier trustee v{4Unteer￿ to becomes trustees. The trustees agreed they should be apptyrted, ar￿ they we stsndln9 fty elects.on at the AGM. Shanake Amaraslnghe rytcod down 4) tre05urer and John Mason was re-oppobnted treasurer. h•vlrg ￿ off¢red hls suYlcc¥. Thr drrlvdl vf tru>lY¥> lid> dlluwt%b Llie Iroi￿re¥ (rf Seo-etary and Treasurer rde3, wlth much of the year spent In tran5itlon for a smty)th ha￿11?￿er (rf wsUJllltle5. Forn￿1 hJThlo¥er af rdes wlll ocoJr at the 2025 AGM. subject to member voting. Th• orrAip'¢ rn1￿￿n stxt•m•nt 1$.. wlth H•v•dltsry Sp••lle P•v•pl•pl• {HSP), thdr f•mlll•# and e•v•rn arn •t th• h••rt of •wrythlng w• do. Our Inlornutityj and S￿￿L￿t helps in¥Jmve th• of IM• tho¢• hy H.fP. Otsr lrtendly support communlty he*s wlt*¥ sharln¢ Ide•s and redudno feeliffjs d lsolatlon. We support rns•4rth Into HSP. Includlnq dev*ilng treatments and Imwovlnq Lwderstandlw. The mlvvlon tatoment artlcul•tes how the Gr￿P fulfik Its th￿r￿•ble obJeLts whlth Jre ¢oncerned wlth promotlng aTrJ protecting phyJv ol Jrrtl mental health, and advanclng edu¢4tion. The Gr￿P Pr￿￿e5 a frlendly SLPWtfve communlty wlth varl¢yJs ways for memljers to keep up.tO-d4te mMunI￿te wlth each cther: An Annual General MeetlThJ repwts the athltles d the grrxip. Presentatlons after the AGM from HSP ¥ed•llsts and relevart Indfvkluals help pwple eW¢ye topl(s rdevjnt to HSP. Reglonal meetlnqs are regularly hdd arou￿1 the counlry and on-llne almlnq to encour•Je conver5arion arK1 rn)U￿ feellThJ5 of IS￿atrOn A Nelysieuer Is puDiisn& 2-3 rimes a year A website and seaal media channds provide recortlln9s cl +xllne events, ￿levant InformJtj￿ arnl allow discusslons on apprffj+Mate tepics The group Is InV￿ve￿ wlth ￿le¥Oftt umlxella wjanlsatlors to he￿ wmte HSP The Group p￿deS varlws Ways to 9JPPtrt members and to promote rewrth knto HSP.. Supffilve commLmlty 9rèrts are avallable to member5 to help wlth the purthase of moblllty alds other 8Julpment Grnnts are avallable to SUPWt acuvltles Drojects re5eJrthlrvJ aspects of HSP IA The group ha* worked on Its publlc benellts ￿th the pwposes ¢1 rcdudng Isdjtlon and keeplng people Informed •nd Invofved: The 2024 AGM was held vfjrtually. vla the Zo>n platfc¢m. Pre5entatlorts fdlorfng the AGM were held vlrbJally ovtt summer of 2024. RKordlngs of the AGM and present•Uons *ve po*ul to y￿Ttsbe thannel ￿ that members or Uie publlc (an vle* Lhem él I￿¥ Ilme. ArtJurKI 20 twEeUng5 were hekj dutlwwJ year, Zuryn and ta￿ ro face M•mb•rnhlp Mlte5h P Dave Ilard5 )0￿ Ma¥on Trustees. Report, Year Endlng 3￿ APMI 2025 l ed￿on of the new51etter was produ(wJ {June 24}, ¥￿h thanks to lan Bennett for h15 excellent ￿￿k on this slnc• 2008. Flp LA• bKam• (￿ltOr kn 2025. wlth her ediyon publish•d aft•r thè end th¢& financi31 yejr. omijp io fiJndlThJ a book about HSP bÈhg vnlit@n h¥ Flp wtth or*￿t frcffj Fsto11• Marghall. The bc¢Jk should be avallaue durtno the summer cé 2025, and we wlll urlate m8Jnbers C￿ prcYJre5S. Sodal medla qrovps fty those wlth HSP and thefjr carers were $uFwtal. Money Is rnlsed from subsulpt1￿ Jrrfl fuThl-ralslThJ acUvlt*s undutskw by mernbers and frIpJKls. Ten {10) members Successfully appl1￿ for membergrants. gWeral￿ wlth the alm d purchoslng moblllty alds. In total £6,421 was approved forthem. Che membersucceS￿UlY 4Jplkd for fiJndlThJ to%Yards a hollday wlth Calvert Trust. The oeneral ￿e1 aNI pattem of membership Is slmllar to prevlous years. Whll# many Deople are members for the longer tem. thve are always new members ￿nINj and (ther members leavlng. We contlnue to trnck rea$￿S lor lea￿￿9 to ensure we're respondlng to member needs as much as posslble wbthln our Researth The group has prov*Jed some furxllrvj for a projert r￿ by Ew(*ISP Into treatment optkffjs for SFry. Thé fyoup has cofflpleted Its ￿r￿1￿j for ￿earth at Exeter Unive￿[ty. The pwltyjsly agreal research project t Sheffleld has not proJressèJ as pbann•Y, a￿1 ￿ are dlscussln9 the next steps. There have been no oth ppllcatlons for wrch fundlng. Income: É61.045.37 (last vw E 31.138.23) Expendlture: £23,490.16 (last year £ 38,973.031 There was a surplus of É 37,555.24 fty the year (last year a defidt rf É 7,784.80). Durlng the y&ir the Group recelN*d an Intthm donatlon from the estste of hy Ralnw, who dKryJ lfi 2020. At the end of the financlal year {3014120251 the Gr￿P has net assets IA £155,105.87 hek1 entyrejy *) tts bank acrounls. These assets ￿re he￿ In reserve to mett member benefrts, research fur￿lTra, running c￿$ nd contin9enoes In fuwre years. Mcnies rals&1 ft>r re5earth We￿ ass49￿ to a restrtcted •¢C¢￿nt whlth w45 u*J as ￿rt payment for research grants In the year whkh tctsll•J £10,759.90. The Trustees conslder thgt the Grouplg Ionandolly TheTrustets conJder a rV￿rV¢ rf4r¢Jund £15,000 should be he￿ to meet convngendes and there art Élgnitkant funds b•yond thls figure. The acctyJnts have b￿￿ pr•p•red In *cc¢xdano *4th the awrity CommlssW*rs guide11￿ and ¥¥lth ward to 9uldelln•s on puUl¢ ten•fit. Adam L•wr•rK• th¥lr Date: 15 June 2025 Reg*ertd C]wrlty 140. 11815)) Page2of 2 HSP Support Group Charty No ComL'3ll" No 1181539 Annual accounts for the 0110612024 dato 3W12025 Section A Statement of financial activities (including summary income and expenditure account) fund• Totslfvnd• lrtom• (Not• J) FOI F02 F04 FOS 15,210. 16 324.76 55.395 61,045 31 594.82 Exp•ndluv• IN•t•• 11 234 1,198 23.321 1.198 23.490 3,134 33.102 169 N•t In¢on*ll•xp•ndknl brfow• lax f th• rnportlng p•rfod 613 32.074 5,481 37,555 N•t 1nc¢JThll•Ap￿d1tU1•} •ft•rtsx b•fw• Imi••tnxnt galnillloM••l $1S 32,Q74 5.481 37,555 1,507 ¥1¥ N•t Incom￿1•xp*)dI1￿•j Exhonllmry Item• 817 81 32.074 5,481 37,5 1,507 (*h•r v•eognl••d galn•lVo•M•l: 117.551 155 1c6 149.625 117551 Sectioii B Balance slieet Flx•d assets ITJ C•th•t b•kand 15fj,708 117,$50 If7,SSQ •h• Fund* ofth• ¢h*rfty 1$5.Ir 1S5.1 5.411 S.4•1 IIw*•don fwr¥• 14•,IX 1.1 o(aecounllng Th• acc￿tr hA¥• b• •w4i¢•t41 knth• •Thl R￿￿¢ IFftS 102) w•d M 16W 2014 k•knd (FRS IQZI ' th• Ch*ld# kt 1011. FRS 102.. 1.2 Qdnq ¢onwn tog•thff ¥Alh th•b•th rm th•lnMts•• •w•dth• •¢¢ounts gnd th• r••w 1.3 ChAng• rfa¢¢oynllng poley ngt• { l. No" CC17a IEtt41 OinV2D2S 11 RECQNUUAIION v*fH PftEWOUS GENERALLY ACCEPIEDACC(Wrn 12 14COME Y•¢ Y••. Yn. Y* **•ty C¢17FR$1fQQL Yrt. Y•v IJ EXPENDMIRE AND UABIUTES Y••. YM. 2.4 A88ET8 Y• Y* CC171AS Itasc Y• Y4•" c¢t7Hisiro¢ciip In¢>Jne 47, 71Q T•W 7,181 Totsl Told IMl•ldl•rn T*1 cGt7*lEKdJ No••4 Thl•Jw T￿41 T&tsl CC171 (E￿ OoMt•d f•ctiitlM and ••r4t•• •cMunllnq pomcyforlh •Trd ¥4y*l•n ol dovMt•d good condlllonA Ind oth•r •lh•r d•nrt•d o••d• *hd Ot rnc•ordMd In th• •q CC171 IE%¢d) io 0￿%2¢Q5 Muw• ¢)h rthln fvrth.. Incurr•d M•kinB dth•)o rrvd •q•kJn9 ￿94￿ wr•d wkjnp 911 $4rtho ¢h•ryihty• • lrndln9 corry>•nyur4wr•k¥¥ dir•LI Thwbl4nd Stwt W CDsts kncumd kn 4OLYt• ￿ futur• In¢orM CNtololrt*inknJ In¥Mtrr•nt •*4 1287 4Jo R•w4r¢h gr•rl¥ 21 11• 144 T￿1 Tni*iM• • 436 ¢th•r•xp•ndltrJ TOTPLExpe14DmJRE 9J70 ,370 CC17• T*1 l•rt To ¢C17* IEx4> 13 01£3,420 iDclkl•b £1.eooth*4ch kn th• Iofff•par• • t•Jok olh•r•xpwknMB olblrffj *lth HSP •wyt thJn• 2025 •ThJ h rn¢fyJra ExirnorflD•rykn 2 Exlrnorfln•ry*•m J Exlv•orttn•ry *•m4 CC17*lExtdl 13 01n2QQa Section C Notos to the accounis r•G•l¥•d M 4g•nl l• •n ag•rt It•1￿￿lUt￿otWII• lh• I￿orn• th th• St•t•ffl￿ olRft•nd•lA¢tlvlU•# orih• &l•ne• Sl od •nd p•rty ly •rN• ThJ• y••f Th1• y••r L*•¢ Th1• T4ts1 Balanm IMld at •rt•d •nd Th1• y￿r L••t y••r Totsl CC17I (Exe 14 0111W2tr25 Plot• 10 Thkny• L•*tJwr Y•x4d%knryl• rdl Ce17alGx 15 Nuts 13 Th1• y••r. Ov4ntsto 1121.40 WIA• 1471• ÈW¢0I18P G17•fyr4J i&JNm J LY2. TOTAL Iwiif•pAO CC171 (£tr4> 17 olmyxos Sectioii C Notes to tl)e accouiils Not• l• 1*1 An•fyth of det Th1¥ yMr La*t y••r Tr•d• dttrtorn T* La•1 y••r Trad• d•btov• and accN•d hKom• Othw d•bt*)rn T*X•l GC17• D11l2QlJ25 Sectioi) C Notes lo the iiccounts Note 20 Cr•dltors and accn 1 AMI>*￿ alcredxo Amowts f*lllnq due after mme thin on¢ year lthln Thls >wr Th1• yur A¢crnal•for gThnl• Pl￿bI• B•nk lo•n• and overthfts Tr•d• ¢vedlt*)fA orp•rfornwnc•4el•t•d grants Awud• and d•lerr•d Tal￿On and lod￿ #cuffty Othv credltor• Totsl 20.2 D•f•rr•d Incun• Th1• y•v L••1 Thl•y L••t y•ar B*l•ne• •tth• rfth• nprtho Amounts •dd•d In cun•nt pthlod OalAnc• at th• •nd olth• rnpDrtkn9 p•rfod CC17• (E¥¢•l) 19 01112RW25 Sectioii C Notes to t￿le accouiits Nol• 21 Provlslon• for Ilabllftles and Ch￿ Thts ￿lf L4•1 y Am¢>urrt• •dd•d In pwl kniounts charued aga1n￿ thè prowlxlon In th& Unu•ed am¢xwrt• rvrtr•¢d dwlng the perfod 112 Pl••M . • Iwlrf descrtwlw rf •ny on m• balanc• •h••t and th• •xp•thd •mwrt •d mlng of ru￿1n9 Pl￿nents. . In Indlc•tl¢Jn of the unc•rtalnlle• am¢)unt ortlmlng n orwornMnc•. for •x4mph. th• i•mi% Ind condltlons ol lo•ns wth• us• alli•dglr4 to mana1• 212 Wth• ch•rtiy hu wa¥ld•d IIMn¢l•l amount otlh• Ilnan£lal aiJ•ts pl*dyd a• ••¢unty Ina th• t•ffli• •na ¢C17• IEYGqll 01M2r ThLq Jwr Wh*• k l• m•*• ¢¢174 2r￿ls Seclioii C Note5 to Ilie accotjiils Mrt• 24 C••h al bank Ind In h•nd Th1• >w Shortt•rni depo•l •h •1 bank and hffid £158.7(&00 117,59) T(Kii CC171 IExc•D 23 0111212025 CC17alExtdl MY2025 Not• 26 L••t Pmvld• •n •Slkn•i• olth• Iln•n¢W •ff• th• •v•nt or • stsl•mwrt th•1 such An ••tkn•t• tannot b• m•d• GG17• IEAr 01112121525 111- Iiilliiiii 111111111 jli I Sectioii C Note5 to tho accounts Not• 27 arltyfvnd41¢0rt) 27.3 Trwwftts batw••n ftmds Thls Amount for *• corN•r¥lon 5trfded fvnds endrthTr•rt •nd r•slrlLl•d ft¢nd¥ ekn¥e•n endowmènt •nd r•strld•d fvnds Amoum 8•h¥••n unrestrhJ•d •nd r¢std4ed fvnds r•sknct•d pJnas Unth￿￿et•d hjnd 27A D••lonal•4 fvnd• Pl•nn•d u •s¢ncteo Funu olth• O•*1 nAtlon knount Rese•1￿ Mfjp uni•*no¢o [G•no￿ To fwKI gw geTrJi•l). Pl•nMd u RèsiA¢t•d Fund Amwni R•sMth thlo H8P 15.113 Q•ner•l Fwd ar￿1$10 members for mot•y •th: nM161t•r. •d￿￿￿kiN￿On CC171 IExcdl M2r2025 Seciion C Notes to the accounts Icontl Not• 29 Addhlonal Olsclosurn Th• followlng •r• ￿9nNIc￿nI m•tt¢r• whlch •r• nol ¢ov•r•d In oth•r notu Ind n••d to b• Indud•d to p￿vId• • prop•r uThd•rst*ndlng of th• •¢¢￿￿1. Ifth•v• l• Insufflcl•nt vot¥n h•v•. pl•au add *•paral• th••L CC17• 01112h2025 Note21 2&1 Tvu•l•• Y•y￿h*￿* •nd b•nrf Thb• y•*r TrUE TOTAL CC171 L•J4 IU TrvÈt•••' •xp•fvs• TT 201 D85 Ch•E*• f•rTN•l TOTAL CC17• IEX h•S pdd byth•ch**y JTr•nA•thnlsl wlth rntst•d p•rfl•s •'ln th• Th1* >wr 114thn•hlp CC17• (Wi 01lly￿s (HARITY COMMISSION FOR ENGLAND AND WALES I Independent examinerfs report on the accounts 8fjGllon A Independent Examin¢r's Report Report to the trustws | HEREDtrARY SPASTIC PARAPLEGIA SUPPORT GROUP 30 Awil 2025 On accounts for thè year •nded Ch•rlty no 1181539 lil any) Set out on pag I report lo the trustees on my examination of the ac*>)unts of the above thanty {Ihe Trust") for Ihe year ended 3(k101125 Responsibllltles and basis of report As Ihe chanty's tnjstees. you are respon*ble for the preparation of the accounls in accordance the requirements of the Charities Acl 2011 llhe Al￿1. I rewrt In resped of rby exa￿￿n•t￿ of the Tw8t'$ accounts Carri￿ out under 8ecaion 145 of the 2011 Act and in Carrying out my examination. I have follcmed all the ap￿￿ble Directions gNen by the Charity Commi8si¢Jn under 8edion 145(51{b) of the Act. Independent I have Ix)mpleted my examInal￿n. I c•nfimi that no materKg1 matters h￿e oxamln?e• 8tatem•nt comè lo my attent￿n in o)nnection with the exaM￿allOn whlch gives Me Cause to believe that in. any material resped: the accounting records were not kept in xcnrdance Wbth 8aCtion 130 ol the Charrties Acl.. Of the accounts dKJ acrnrd wrth the xctyjrting fecords., or the accounts not compty wilh the applicabk requirements ¢onceming the lomi and conlenl of aecounts set out in the Charities IAc£ounls and Rewrt$l ReguL71ions 2008 other than any requirement that the accounts gNe a Iwe and fair, which is not a matter nsidered as part of an irmlependent examination. I have no cor￿emS and have com across no other matters Mi connection with the examination lo whith attention Should be drawn in this report in order lo enable 8 proper understanding of the aco)unts lo be reached. ' Pl88se delete Ihe the brack*s rflhey(*) not appty. 20 June 2025 Slgned: N•m•: Christopher Ha Relevant prol•••loMI qualifi¢atlon(81 or body (If any): Addr•8•: S6 Fl¢rbort Ro•J, Rali?1￿￿￿, Gllllngham. Keni MEB 9DA IER Oct 2018