OpenCharities

Alk Positive Lung Cancer (UK)

Country
England & Wales
Charity number
1181171
Status
Registered
Registered
Dec. 14, 2018
Legal form
CIO

Address

Address
1 Ethley Drive
Raglan
Usk
Monmouthshire
NP15 2FD

Activities

We provide a support network in the UK for patients with ALK-positive lung cancer and their families. We provide advice and information so that patients can be empowered to have meaningful conversations with their healthcare professionals. We advocate on their behalf at a national level so that patients receive a high level of care wherever they live in the UK

Objects: To Relieve Sickness And To Preserve And Protect Good Health Of UK Anaplastic Lymphoma Kinase (Alk) Positive Lung Cancer Patients By:-A. Providing An Information Resource, In Particular Access To Information About Latest Developments And Clinical Trials;b. Identifying And Locating UK Alk Patients And Offering Support And Guidance On The Location Of UK Alk Specialists And Services;c. Liaising With And Influencing Decision Makers, E.g. Nice, NHS, Dvla;d. Raising Awareness Of Alk Lung Cancer, Particularly Amongst The Medical Profession So As To Promote The Best Treatment For Patients;e. Liaising With Relevant Organisations, In Particular Roy Castle Lung Cancer Foundation And The Pharmaceutical Industry;f. Raising Funds For The Above Purposes.

Classification

How
Provides Advocacy/advice/information
What
The Advancement Of Health Or Saving Of Lives
Who
Other Defined Groups

Areas of operation

Region
Throughout England And Wales

Finances

Period end Income Expenditure
Dec. 31, 2024 £220,195 £152,874
Dec. 31, 2023 £182,857 £201,511
Dec. 31, 2022 £130,582 £114,553
Dec. 31, 2021 £164,415 £107,572
Dec. 31, 2020 £56,113 £23,560

Trustees

Name Appointed
Debra Louise Montague (Chair) March 10, 2023
Andrew Thomson McKay Dec. 1, 2023
Geoffrey Paul Otterman Oct. 11, 2024
Graham Herbert Lavender Dec. 1, 2023
Traceydawn White Feb. 4, 2026