# ALK POSITIVE LUNG CANCER (UK)

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1181171
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Dec. 14, 2018
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1181171


## Contact

- **Address:** 1 Ethley Drive, Raglan, Usk, Monmouthshire
- **Postcode:** NP15 2FD
- **Phone:** 07975 623515
- **Email:** hello@alkpositive.org.uk
- **Website:** www.alkpositive.org.uk



## Activities

**Objects:** TO RELIEVE SICKNESS AND TO PRESERVE AND PROTECT GOOD HEALTH OF UK ANAPLASTIC LYMPHOMA KINASE (ALK) POSITIVE LUNG CANCER PATIENTS BY:-A. PROVIDING AN INFORMATION RESOURCE, IN PARTICULAR ACCESS TO INFORMATION ABOUT LATEST DEVELOPMENTS AND CLINICAL TRIALS;B. IDENTIFYING AND LOCATING UK ALK PATIENTS AND OFFERING SUPPORT AND GUIDANCE ON THE LOCATION OF UK ALK SPECIALISTS AND SERVICES;C. LIAISING WITH AND INFLUENCING DECISION MAKERS, E.G. NICE, NHS, DVLA;D. RAISING AWARENESS OF ALK LUNG CANCER, PARTICULARLY AMONGST THE MEDICAL PROFESSION SO AS TO PROMOTE THE BEST TREATMENT FOR PATIENTS;E. LIAISING WITH RELEVANT ORGANISATIONS, IN PARTICULAR ROY CASTLE LUNG CANCER FOUNDATION AND THE PHARMACEUTICAL INDUSTRY;F. RAISING FUNDS FOR THE ABOVE PURPOSES.

**Activities:** We provide a support network in the UK for patients with ALK-positive lung cancer and their families.  We provide advice and information so that patients can be empowered to have meaningful conversations with their healthcare professionals.  We  advocate on their behalf at a national level so that patients receive a high level of care wherever they live in the UK




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Debra Louise Montague** | Chair | March 10, 2023 |
| Andrew Thomson McKay |  | Dec. 1, 2023 |
| Geoffrey Paul Otterman |  | Oct. 11, 2024 |
| Graham Herbert Lavender |  | Dec. 1, 2023 |
| Traceydawn White |  | Feb. 4, 2026 |




