Soft b Bones United Kingdom Tru8t008 of Soft 8one8 UK Foundallon Reglstorèd Charlty No: 1181117 Statgment of Accounts for thg year 1•t Aprll 2023 _ 31•1 March 2024 Prepared by A Ockenden Trustee Soft Bonès UK Foundatlon
Trustees of Soft Bones UK Foundation Year ended 3161 March 2024 Contents Charlty Particulars Trustees Report Trea8uror8 Report Racelpt and Paymonl Account year ended 311t March 2024
Trustees of Soft Bon•8 UK Foundation Ygar ended 31" March 2024 CHARITY PARTICULARS Charlty registratlon no: 1181117 Tru8to05 Meryl Chambers Lee Corstorphin Susan Homan Sandra Ockendon Rina Skinner Chair & Co•ordinator FinancelFundrai8ing Treasurer Technical Support Communication8 Corrospondenco addr088 Ichalr) 37 Kolvln Grove Portche8t•r Faroham Hampshlro P016 8LQ Prlnclpal Bankors Lloyd• Bank Andovor BX11LT
Trustees of Soft Bones UK Foundatlon Year ended 31sI March 2024 Trustees Annual Rg ort Constitutlon Soft Bones UK Foundation is constituted by a conveyance document datod 161h September 2018 and is registered with the Charity Commission undèr Charity Number 1181117. anlsatlon The charity is administered by an elected board of Trustees who normally rneet a minimum of three times a year. The names of seNing Irust86s and the other charity particulars are listed abov8. New or co-opted members are appointed, inducted and given detsils of their responsibilities by the Trust88s and very little continuous training Is requirod. Alm8 and Ob ectives The charity aims ar8 to promote greater understanding of the causes, symptoms and treatment of Hypophosphatasia (HPPI., lo raise public awareness of the symptoms, needs and related medical conditions of those living with HPP and lo assist people, their relaliv8s and carers to get in contact with each other and to exchange infomation and experiences. Achlevemonts ril 2023- March 2024 Meryl Chamb8rs, Chair, attended the OIFE Topical Meeting 2023.. Balancing Life wilh Ol.. Pain and its impact in Stockholm in June 2023. This included discussions on pain in 01 and other rare bone conditions, commonalities and differences and how we can work together. Meryl Chambers presented al the conference to inform the audience of Hypophosphatasia, the symptoms and HPP testirnonials. M8ry1 Chambers also took part in a panel debate on pain across rar8 bon8 disease groups as a representative from th8 HPP community. C Ilaboratlon We continue lo work closely with Metsbolic Support UK and alongslde Softbones USA. Thanks to our Su 0rt8rs We would like lo thank everyone who fundraised for Soflbones UK. In particular, charity quiz night run by Simon Cornwell and the Broad Oak Social Club. Donations and Grants £1,236
Alexandra Ockenden Trustee of Soft 8on6s Foundation UK Dated Trusloes of Soft Bones UK Foundatlon Yoar ended 31BI March 2024 Trèa8urgr'3 Re ort In order to fulfil our duties under the Charities Act 1993, 1 have compiled financial spreadsheets for the charity recording all expenditure and income. including petty cash payments, for this financial year ended 3181 March 2024. All these payment5 have been ch8cked against recèipls in the bank account and recorded as income or expenditur8 to give a true and fair view under the Chanties Act 1993. Susan Homan Treasur8r LOLLk Dated
Trustees of Soft Bones UK Foundation Year Ondlng 31" March 2024 Receipts and Payments Account 2023 Unrestrlcted to nearest 2024 Receipts Donations Fundraislnglevont8 Grant 1.235 Total Rocelpts 1,235 Payment8 2023 2024 Sundrie8 Googlo Sult• Website OIFE Conforonce, Stockholm Memborshlp Raffle Donatlon (Quiz) 41 122 712 158 14 43 Total Payments 1,073 Cash and bank balance at year 3,257 end Asset purchases Recoipts ExndItUre 1,235 111 1,073