Trustees' Annual Report for the period
From Period start date T Period end date 1[st] April 2024 o 31[st] March 2025
Section A Reference and administration details
Charity name
THE DYRK1A UK COMMUNITY
Other names charity is known by
Registered charity number (if any) 1179083
Charity's principal address 68 Mostyn Road, Hazel Grove, Stockport Postcode SK7 5HT
Names of the charity trustees who manage the charity
Dates acted if not for whole Name of person (or body) entitled Trustee name Office (if any) year to appoint trustee (if any)
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1 Janet Banks
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2 Gemma Brady
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3 Lynn Hearn
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4 Tably Wright
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5 Aaron Johnson
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19 20
Names of the trustees for the charity, if any, (for example, any custodian trustees) Name Dates acted if not for whole year
1 March 2012
TAR
Names and addresses of advisers (Optional information)
Type of adviser Name Address
Name of chief executive or names of senior staff members (Optional information)
Section B Structure, governance and management
Description of the charity’s trusts
Constitution
Type of governing document (eg. trust deed, constitution) How the charity is constituted
- (eg. trust deed, constitution)
CIO How the charity is constituted (eg. trust, association, company) Selected and appointed by the existing Trustees having regard Trustee selection methods to the skills, knowledge and experience needed for the effective (eg. appointed by, elected by) administration of the charity.
- (eg. trust, association, company)
Additional governance issues (Optional information)
You may choose to include additional information, where relevant, about:
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policies and procedures adopted for the induction and training of trustees;
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the charity’s organisational structure and any wider network with which the charity works;
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relationship with any related parties;
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trustees’ consideration of major risks and the system and procedures to manage them.
Section C Objectives and activities
To preserve and protect the physical and mental health of people affected by DYRK1A (a genetic
disorder) through the provision of information, advice, and support. Summary of the objects of the charity set out in its governing document
2
March 2012
TAR
Supporting the provision for the UK families of DYRK1A affected individuals of the opportunity to communicate with each other at an annual meet up where there are presentations from Professional representatives, such as Geneticists, Therapists and Clinical Researchers along with scope to exchange experiences with other affected families.
Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)
Additional details of objectives and activities (Optional information)
Volunteers help supervise the DYRK1A individuals and their young siblings during the formal conference period.
You may choose to include further statements, where relevant, about:
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policy on grantmaking;
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policy programme related investment;
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contribution made by volunteers.
3 March 2012
TAR
Section D Achievements and performance
Summary of the main achievements of the charity during the year
Supported the provision of a DYRK1A family meet up conference over the weekend of Friday 26[th] July 2024 to Sunday 28[th] July 2024 at Barnstondale Centre, the Wirral for just under seventy family members. An Occupational Therapist, Geneticist, Makaton instructor, and Community Engagement lead for Transition to adulthood presented during the main conference period.
4
March 2012
TAR
Section E Financial review
The charity does not have a reserves policy.
Brief statement of the The reserves held ensure the charity can commit to meeting the future charity’s policy on reserves needs without reliance on raising sufficient funds within an immediate time period.
Details of any funds materially in deficit Further financial review details (Optional information)
You may choose to include additional information, where relevant about:
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the charity’s principal sources of funds (including any fundraising);
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how expenditure has supported the key objectives of the charity;
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investment policy and objectives including any ethical investment policy adopted.
Section F Other optional information
Section G Declaration
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) JBanks Lynn Hearn Full name(s) Janet Banks Position (eg Secretary, Chair, etc) Secretary Trustee
5 March 2012
TAR
Date 2510112026 2610112026 TAR Maich 2012
Charity Name THE DYRK1A UK COMMUNITY
No (if any) 1179083
Recei ts and a ments accounts p p y
CC16a
For the period Period start date Period end date To from 1/4/2024 31/3/2025
Section A Receipts and payments
| to the nearest £ A1 Receipts FamilyContributions to Meet Up 7,932 Fundraising 6,779 - - - - - - 14,711 - - Sub total - Total receipts 14,711 Unrestricted funds Sub total(Gross income for AR) A2 Asset and investment sales, (see table). |
to the nearest £ - - - - - - - - - - - - - Restricted funds |
to the nearest £ - - - - - - - - - - - - - Endowment funds |
Total funds to the nearest £ 7,932 6,779 - - - - - - 14,711 - - - 14,711 |
Last year to the nearest £ |
|---|---|---|---|---|
| - | ||||
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| - | ||||
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| - | ||||
| - | ||||
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| - | - | 14,711 | - |
| A3 Payments Insurance 125 Meet UpCosts 9,200 merchandise 1,233 - - |
A3 Payments Insurance 125 Meet UpCosts 9,200 merchandise 1,233 - - |
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- - - - - |
125 9,200 1,233 - - |
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|---|---|---|---|---|---|
Insurance |
125 | - | - | 125 | - |
| Meet UpCosts | 9,200 | - | - | 9,200 | - |
| merchandise | 1,233 | - | - | 1,233 | - |
| - | - | - | - | - | |
| - | - | - | - | - |
01/29/2026
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|---|---|---|---|---|---|---|---|---|---|
| - | - | - | - | - | |||||
| - | - | - | - | - | |||||
| - | - | - | - | - | |||||
| Sub total | 10,558 | - | - | 10,558 | - |
| A4 Asset and investment | ||||||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| purchases, (see table) | ||||||||||||||||||||||
| - | - | - | - | |||||||||||||||||||
| - | - | - | - | |||||||||||||||||||
| **Sub total ** | - | - | - | - | - | |||||||||||||||||
| **Total payments ** | 10,558 | - | - | 10,558 | - | |||||||||||||||||
| **Net of receipts/(payments) ** | 4,153 | - | - | 4,153 | - | |||||||||||||||||
| A5 Transfers between funds | - | - | - | - | - | |||||||||||||||||
| A6 Cash funds last year end | - | - | - | - | - | |||||||||||||||||
| **Cash funds this year end ** | 4,153 | - | - | 4,153 | - |
Section B Statement of assets and liabilities at the end of the period
| Categories B1 Cash funds |
Details Details Total cash funds (agree balances with receipts and payments account(s)) |
to nearest £ 10,534 - - 10,534 Agreement Error to nearest £ Unrestricted funds Unrestricted funds |
to nearest £ - - - - OK to nearest £ Restricted funds Restricted funds |
to nearest £ Endowment funds |
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| - | ||||
| - | ||||
| - | ||||
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| OK | ||||
| to nearest £ Endowment funds |
01/29/2026
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B2 Other monetary assets
| - | - | - | ||
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| - | - | - | ||
| - | - | - | ||
| - | - | - | ||
| - | - | - | ||
| - | - | - |
B3 Investment assets
| Details | Fund to which asset belongs |
Cost (optional) - - - - - |
Current value (optional) |
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| - | - | ||
| - | - | ||
| - | - | ||
| - | - | ||
| - | - |
| B4 Assets retained for the charity’s own use |
Details Details |
Fund to which asset belongs Fund to which liability relates |
Cost (optional) - - - - - - - - - Amount due (optional) |
Current value (optional) |
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| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| - | ||||
| When due (optional) |
01/29/2026
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B5 Liabilities
Signed by one or two trustees on behalf of all the trustees
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| Signature Jbanks LHearn |
Print Name JANET BANKS LYNN HEARN |
Date of approval |
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| JANET BANKS | 25/1/2026 | |
| LYNN HEARN | 26/1/2026 |
01/29/2026
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