## **Trustees' Annual Report for the period** **From** Period start date **T** Period end date 1[st] April 2024 **o** 31[st] March 2025 ## Section A Reference and administration details **Charity name** THE DYRK1A UK COMMUNITY **Other names charity is known by** **Registered charity number (if any)** 1179083 **Charity's principal address** 68 Mostyn Road, Hazel Grove, Stockport **Postcode** SK7 5HT ## **Names of the charity trustees who manage the charity** **Dates acted if not for whole Name of person (or body) entitled Trustee name Office (if any) year to appoint trustee (if any)** - 1 Janet Banks - 2 Gemma Brady - 3 Lynn Hearn - 4 Tably Wright - 5 Aaron Johnson - 6 - 7 - 8 - 9 - 10 - 11 - 12 - 13 - 14 - 15 - 16 - 17 - 18 - 19 20 **Names of the trustees for the charity, if any, (for example, any custodian trustees) Name Dates acted if not for whole year** 1 March **2012** **TAR** ## **Names and addresses of advisers (Optional information)** **Type of adviser Name Address** ## **Name of chief executive or names of senior staff members (Optional information)** ## **Section B Structure, governance and management** ## **Description of the charity’s trusts** Constitution Type of governing document (eg. trust deed, constitution) How the charity is constituted - (eg. trust deed, constitution) CIO How the charity is constituted (eg. trust, association, company) Selected and appointed by the existing Trustees having regard Trustee selection methods to the skills, knowledge and experience needed for the effective (eg. appointed by, elected by) administration of the charity. - (eg. trust, association, company) ## **Additional governance issues (Optional information)** You **may choose** to include additional information, where relevant, about: - policies and procedures adopted for the induction and training of trustees; - the charity’s organisational structure and any wider network with which the charity works; - relationship with any related parties; - trustees’ consideration of major risks and the system and procedures to manage them. ## **Section C Objectives and activities** To preserve and protect the physical and mental health of people affected by DYRK1A (a genetic disorder) through the provision of information, advice, and support. **Summary of the objects of the charity set out in its governing document** 2 March **2012** **TAR** Supporting the provision for the UK families of DYRK1A affected individuals of the opportunity to communicate with each other at an annual meet up where there are presentations from Professional representatives, such as Geneticists, Therapists and Clinical Researchers along with scope to exchange experiences with other affected families. **Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)** ## **Additional details of objectives and activities (Optional information)** Volunteers help supervise the DYRK1A individuals and their young siblings during the formal conference period. You **may choose** to include further statements, where relevant, about: - policy on grantmaking; - policy programme related investment; - contribution made by volunteers. 3 March **2012** **TAR** ## Section D Achievements and performance **Summary of the main achievements of the charity during the year** Supported the provision of a DYRK1A family meet up conference over the weekend of Friday 26[th] July 2024 to Sunday 28[th] July 2024 at Barnstondale Centre, the Wirral for just under seventy family members. An Occupational Therapist, Geneticist, Makaton instructor, and Community Engagement lead for Transition to adulthood presented during the main conference period. 4 March **2012** **TAR** ## **Section E Financial review** The charity does not have a reserves policy. **Brief statement of the** The reserves held ensure the charity can commit to meeting the future **charity’s policy on reserves** needs without reliance on raising sufficient funds within an immediate time period. ## **Details of any funds materially in deficit Further financial review details (Optional information)** You **may choose** to include additional information, where relevant about: - the charity’s principal sources of funds (including any fundraising); - how expenditure has supported the key objectives of the charity; - investment policy and objectives including any ethical investment policy adopted. ## **Section F Other optional information** ## **Section G Declaration** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s)** JBanks Lynn Hearn **Full name(s)** Janet Banks **Position (eg Secretary, Chair, etc)** Secretary Trustee 5 March **2012** **TAR** Date 2510112026 2610112026 TAR Maich 2012 **Charity Name THE DYRK1A UK COMMUNITY** **No (if any) 1179083** ## **Recei ts and a ments accounts p p y** ## **CC16a** **For the period** Period start date Period end date **To from** 1/4/2024 31/3/2025 ## **Section A Receipts and payments** |**to the nearest £**
**A1 Receipts**
FamilyContributions to Meet Up
**7,932**
Fundraising
**6,779**
**-**
**-**
**-**
**-**
**-**
**-**
**14,711**
**-**
**-**
**_Sub total_ -**
**_Total receipts_ 14,711**
**Unrestricted**
**funds**
**_Sub total_**_(Gross income for AR)_
**A2 Asset and investment sales,**
**(see table).**|**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Restricted**
**funds**|**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Endowment**
**funds**|**Total funds**
**to the nearest £**
**7,932**
**6,779**
**-**
**-**
**-**
**-**
**-**
**-**
**14,711**
**-**
**-**
**-**
**14,711**|**Last year**
**to the nearest £**| |---|---|---|---|---| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||| |||||| |||||**-**| |||||**-**| |||||| ||**-**|**-**|**14,711**|**-**| |**A3 Payments**
Insurance
**125**
Meet UpCosts
**9,200**
merchandise
**1,233**
**-**
**-**|**A3 Payments**
Insurance
**125**
Meet UpCosts
**9,200**
merchandise
**1,233**
**-**
**-**|**-**
**-**
**-**
**-**
**-**|**-**
**-**
**-**
**-**
**-**|**125**
**9,200**
**1,233**
**-**
**-**|| |---|---|---|---|---|---| |
Insurance|**125**|**-**|**-**|**125**|**-**| |Meet UpCosts|**9,200**|**-**|**-**|**9,200**|**-**| |merchandise|**1,233**|**-**|**-**|**1,233**|**-**| ||**-**|**-**|**-**|**-**|**-**| ||**-**|**-**|**-**|**-**|**-**| 01/29/2026 1 ||**-**||**-**||**-**||**-**||**-**| |---|---|---|---|---|---|---|---|---|---| ||**-**||**-**||**-**||**-**||**-**| ||**-**||**-**||**-**||**-**||**-**| ||**-**||**-**||**-**||**-**||**-**| |**_Sub total_**|**10,558**||**-**||**-**||**10,558**||**-**| |**A4 Asset and investment**||||||||||||||||||||||| |---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---| |**purchases, (see table)**||||||||||||||||||||||| |||**-**|||||**-**|||||**-**||||**-**||||||| |||**-**|||||**-**|||||**-**||||**-**||||||| |**_Sub total_ **||**-**|||||**-**|||||**-**||||**-**|||||**-**|| |||||||||||||||||||||||| |**_Total payments_ **||**10,558**|||||**-**|||||**-**||||**10,558**|||||**-**|| |||||||||||||||||||||||| |**_Net of receipts/(payments)_ **||**4,153**||||**-**|||||**-**|||||**4,153**||||**-**||| |**A5 Transfers between funds**||**-**||||**-**|||||**-**|||||**-**||||**-**||| |**A6 Cash funds last year end**||**-**||||**-**|||||**-**|||||**-**||||**-**||| |**_Cash funds this year end_ **||**4,153**||||**-**|||||**-**|||||**4,153**||||**-**||| ## **Section B Statement of assets and liabilities at the end of the period** |**Categories**
**B1 Cash funds**|**Details**
**Details**
**_Total cash funds_**
(agree balances with receipts and payments
account(s))|**to nearest £**
**10,534**
**-**
**-**
**10,534**
Agreement Error
**to nearest £**
**Unrestricted**
**funds**
**Unrestricted**
**funds**|**to nearest £**
**-**
**-**
**-**
**-**
OK
**to nearest £**
**Restricted**
**funds**
**Restricted**
**funds**|**to nearest £**
**Endowment**
**funds**| |---|---|---|---|---| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||OK| |||||**to nearest £**
**Endowment**
**funds**| 01/29/2026 2 ## **B2 Other monetary assets** |**-**||**-**||**-**| |---|---|---|---|---| |**-**||**-**||**-**| |**-**||**-**||**-**| |**-**||**-**||**-**| |**-**||**-**||**-**| |**-**||**-**||**-**| **B3 Investment assets** |**Details**|**Fund to which**
**asset belongs**|**Cost (optional)**
**-**
**-**
**-**
**-**
**-**|**Current value**
**(optional)**| |---|---|---|---| |||**-**|**-**| |||**-**|**-**| |||**-**|**-**| |||**-**|**-**| |||**-**|**-**| |**B4 Assets retained for the**
**charity’s own use**|**Details**
**Details**|**Fund to which**
**asset belongs**
**Fund to which**
**liability relates**|**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Amount due**
**(optional)**|**Current value**
**(optional)**| |---|---|---|---|---| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**-**| |||||**When due**
**(optional)**| 01/29/2026 3 ## **B5 Liabilities** Signed by one or two trustees on behalf of all the trustees **-** |Signature
Jbanks
LHearn|Print Name
JANET BANKS
LYNN HEARN|Date of
approval| |---|---|---| ||JANET BANKS|25/1/2026| ||LYNN HEARN|26/1/2026| 01/29/2026 4