| bjective | s and | activit | ies | |||
|---|---|---|---|---|---|---|
| SCRP reference | ||||||
| Summary | ofthe purposes | of | the | Para 1.17 | 1.To relieve sickness snd to preserve and |
|
| charity as | set out | in its | protect health by providing support to chronic |
|||
| governing | document | lymphocytic leuksemia (CLL) patients and their carers. (CLL includes similar related conditions |
||||
| such as SLL). | ||||||
| 2. To advance public education in CLL related |
||||||
| matters primarily in the UK through publications |
||||||
| and the internet | ||||||
| 3.To promote and support scientific research |
||||||
| into the treatment and care of all CLL patients. |
||||||
| Summary in relation |
ofthe main activities to those purposes for |
Para 1 17and 1.19 |
1.The provision of up to date snd accessible information about CLL, the range oftreatments |
|||
| the pubfic | benefit, | in parlicular, | currently available and the latest research into |
|||
| the actMties, projects or | the care snd treatment of CLL, through the |
|||||
| services identtfied | in the | Chartty's website, webinars, member |
||||
| accounts. | conferences, publications and a telephone |
|||||
| helpline, | ||||||
| 2.The development ofopportunities to share |
||||||
| understanding and personal experience by |
||||||
| bringing CLL patients together, snd by creating |
||||||
| mutual support groups and networks. |
||||||
| 3.Acting as a voice for CLL patients, | ||||||
| representing their interests with the |
||||||
| pharmaceutical industry, ctinicians, NHS, cancer |
||||||
| care policy snd drug regulatory authorities, |
||||||
| funding snd commissioning groups and |
||||||
| Government. | ||||||
| 4.The promotion of an awareness ofCLLSA, |
||||||
| together with its role amongst health care |
||||||
| providers and decision makers, providers of non- |
||||||
| healthcare products and services, other blood |
||||||
| cancer patient groups snd the wider public. |
| Statement confirming |
whether | Para 1.18 | In undertaking these activities, the Trustees |
|
|---|---|---|---|---|
| the trustees have had regard to |
confirm that they have had regard to the | |||
| the guidance issued |
by the | guidance issued by the Charity Commission |
on | |
| Charity Commission | on public | the matter ofpublic benefit. | ||
| benefit |
| ou may c | hoose to | include furth | er statements whe |
er statements whe |
|---|---|---|---|---|
| SORP reference | ||||
| Policy on | grant making | Para | 1.38 | |
| Policy on | social investment | Para | 1 38 | |
| induding | program | related | ||
| investment | ||||
| Contribution made |
by | Para | 1.38 | |
| volunteers | ||||
| Other |
| Investment | performance | against | Para | 1.41 |
|---|---|---|---|---|
| objectives | ||||
| Other |
| inancial review |
inancial review |
inancial review |
inancial review |
||||||
|---|---|---|---|---|---|---|---|---|---|
| Review ofthe charity's | financial | Para | 1 21 | ||||||
| position at | the end ofthe | period | |||||||
| Statement | explaining | the | policy | Para | 1 22 | The Charity aims to maintain readily realisable |
|||
| for holding | reserves | stating | why | reserves that would be the equivalent oftwo |
|||||
| they are held | years of ils anticipated normal level of annual |
||||||||
| running costs. Shoukl it be that circumstances |
|||||||||
| arose which resulted in a significant loss of |
|||||||||
| incoming financial resources, that level of |
|||||||||
| reserves would enable the Charity to continue to |
|||||||||
| provide essential support services to CLL |
|||||||||
| patients and their supporters for an extended, |
|||||||||
| transitional period oftime. |
|||||||||
| The Trustees have also agreed that, as a | |||||||||
| minimum, an amount that is the equivalent of |
|||||||||
| 150vk of 12 months' planned expenditure should |
|||||||||
| be held in the form of liquid reserves to ensure |
|||||||||
| both continued financial security and to provide |
|||||||||
| for contingencies. | |||||||||
| In determining these figures, the Trustees have |
|||||||||
| considered the need to hold back some funds as |
|||||||||
| reserves, using the categories set out in the |
|||||||||
| Charity Commission Guidance Document CC19: |
|||||||||
| Charity reserves: building resiTience. |
|||||||||
| Amount of | reserves | held | Para | 1.22 | At the end ofthe period the Charity held reserves |
||||
| ofF378,495 | |||||||||
| Reasons for | holding | zero | Para | 1.22 | |||||
| reserves | |||||||||
| Details of fund materially | in | Pere | 1.24 | None | |||||
| deficit | |||||||||
| Explanation | ofany | uncertainties | Para | 1.23 | None in the immediately foreseeable future |
||||
| about the charity continuing | as | ||||||||
| a going concern |
| A description | ofthe principal | Para 1.46 |
|---|---|---|
| risks facing | the charity | |
| Other |
| Description ofcharity's trusts: |
||||
|---|---|---|---|---|
| Type of governing document: |
Para 1.25 | Trust Deed | dated 22m | May 2018 |
| How is the charity constitutedf | para 1.25 | Charitable | Incorporate | Organisation |
| Trustee selection method |
Para 1.25 | Election by | a majority | ofthe existing Trustees |
| induding details of any |
||||
| constitutional provisions |
| ou may | choose to indude | further | statements |
|---|---|---|---|
| Policies | and procedures | Para 1.51 | |
| adopted | for the induction | and | |
| training | oftrustees | ||
| The charity's organlsatlonal |
Para 1.51 | ||
| structure | and any wider network | ||
| with which the charity works | |||
| Relationship with any related |
Para 1.51 | ||
| parties | |||
| Other |
| eference and a | dministrativ | e details |
e details |
|
|---|---|---|---|---|
| Charity name | Chronic Lymphocytic Leukaemia Support Association |
UK | ||
| (CLLSA) | ||||
| Other name the charity uses | (i) CLLSupport (ii) CLL Support Association |
|||
| Registered charity |
number | 1178482 | ||
| Charity's principal |
address | Suite 112-8 The Bridge, Chippenham, | Wilts. SN161FY |
| ofthe charity tru | stees wh | o | manage | the charity | ||||||
|---|---|---|---|---|---|---|---|---|---|---|
| Trustee name | Office | (if | any) | Dates ear |
acted | ifnot | for whole | Name to a |
ofperson (or body) entitled int trustee lf an |
|
| Auckland, Merc |
Chair | |||||||||
| Beazley, Ruperl | ||||||||||
| Gardom, Brian |
||||||||||
| Grant, Norah |
| fteatticted | Eh7fewm ant |
|||
|---|---|---|---|---|
| fenrte | rttnrfk. | |||
| rrfttaalatea" | t rtaaraat 8 | |||
| 877!788 | ||||
| Totrrf Crriaf&tunrhr | ||||
| (arraa~ | vdat ta)tapta aar )tata)acta ~)i |
Unrestrhrhet | ......Ethetrirrtrrrt | Snrfearrnent. |
| hrrfrttrttittdttittitd'd'd'dthrrrrta | fttnCLe |
| I | I I | I I I I I I |
I I I | I I I | I I I | I | I I | I I | ||
|---|---|---|---|---|---|---|---|---|---|---|
| II | II II | II | I | I | 11 | |||||
| UrtaarUUIUU | ||||||||||
| dd | I | |||||||||
| F4)araaaarrarb aasst |
'""""""""""""""""""."'."8'earatdtaaaraa Gr)ar I |