## 

## 

## 

|bjective|s and|activit|ies||||
|---|---|---|---|---|---|---|
||||||SCRP reference||
|Summary|ofthe purposes||of|the|Para 1.17|1.To relieve sickness snd to preserve<br>and|
|charity as|set out|in its||||protect health<br>by providing<br>support to chronic|
|governing|document|||||lymphocytic<br>leuksemia<br>(CLL) patients<br>and their<br>carers. (CLL includes<br>similar related conditions|
|||||||such as SLL).|
|||||||2. To advance<br>public education<br>in CLL related|
|||||||matters<br>primarily<br>in the UK through<br>publications|
|||||||and the internet|
|||||||3.To promote<br>and support scientific research|
|||||||into the treatment<br>and care of all CLL patients.|
|Summary<br>in relation|ofthe main activities<br> to those purposes<br>for||||Para 1 17and<br>1.19|1.The provision<br>of up to date snd accessible<br>information<br>about CLL, the range oftreatments|
|the pubfic|benefit,|in parlicular,||||currently<br>available<br>and the latest research<br>into|
|the actMties, projects or||||||the care snd treatment<br>of CLL, through<br>the|
|services identtfied||in the||||Chartty's<br>website, webinars,<br>member|
|accounts.||||||conferences,<br>publications<br>and a telephone|
|||||||helpline,|
|||||||2.The development<br>ofopportunities<br>to share|
|||||||understanding<br>and personal<br>experience<br>by|
|||||||bringing<br>CLL patients together,<br>snd by creating|
|||||||mutual<br>support<br>groups<br>and networks.|
|||||||3.Acting as a voice for CLL patients,|
|||||||representing<br>their interests<br>with the|
|||||||pharmaceutical<br>industry,<br>ctinicians,<br>NHS, cancer|
|||||||care policy snd drug regulatory<br>authorities,|
|||||||funding<br>snd commissioning<br>groups<br>and|
|||||||Government.|
|||||||4.The promotion<br>of an awareness<br>ofCLLSA,|
|||||||together<br>with its role amongst<br>health care|
|||||||providers<br>and decision makers,<br>providers<br>of non-|
|||||||healthcare<br>products<br>and services, other blood|
|||||||cancer patient groups snd the wider public.|





|Statement<br>confirming|whether|Para 1.18|In undertaking<br>these activities, the Trustees||
|---|---|---|---|---|
|the trustees<br>have had regard to|||confirm that they have had regard to the||
|the guidance<br>issued|by the||guidance<br>issued<br>by the Charity Commission|on|
|Charity Commission|on public||the matter ofpublic benefit.||
|benefit|||||



## 

## 

|ou may c|hoose to|include furth|er statements<br>whe|er statements<br>whe|
|---|---|---|---|---|
||||SORP reference||
|Policy on|grant making||Para|1.38|
|Policy on|social investment||Para|1 38|
|induding|program|related|||
|investment|||||
|Contribution<br>made||by|Para|1.38|
|volunteers|||||
|Other|||||



## 




## 




|Investment|performance|against|Para|1.41|
|---|---|---|---|---|
|objectives|||||
|Other|||||



## 

|inancial<br>review|inancial<br>review|inancial<br>review|inancial<br>review|||||||
|---|---|---|---|---|---|---|---|---|---|
|Review ofthe charity's||||financial|||Para|1 21||
|position at|the end ofthe||||period|||||
|Statement|explaining|||the|policy||Para|1 22|The Charity aims to maintain<br>readily realisable|
|for holding|reserves||stating|||why|||reserves that would be the equivalent<br>oftwo|
|they are held|||||||||years of ils anticipated<br>normal<br>level of annual|
||||||||||running<br>costs. Shoukl<br>it be that circumstances|
||||||||||arose which resulted<br>in a significant<br>loss of|
||||||||||incoming<br>financial resources,<br>that level of|
||||||||||reserves<br>would enable the Charity to continue to|
||||||||||provide essential<br>support services to CLL|
||||||||||patients<br>and their supporters<br>for an extended,|
||||||||||transitional<br>period oftime.|
||||||||||The Trustees have also agreed that, as a|
||||||||||minimum,<br>an amount<br>that is the equivalent<br>of|
||||||||||150vk of 12 months'<br>planned<br>expenditure<br>should|
||||||||||be held<br>in the form of liquid reserves to ensure|
||||||||||both continued<br>financial security and to provide|
||||||||||for contingencies.|
||||||||||In determining<br>these figures, the Trustees have|
||||||||||considered<br>the need to hold back some funds as|
||||||||||reserves,<br>using the categories set out in the|
||||||||||Charity Commission<br>Guidance<br>Document CC19:|
||||||||||Charity reserves: building<br>resiTience.|
|Amount of|reserves||held||||Para|1.22|At the end ofthe period the Charity<br>held reserves|
||||||||||ofF378,495|
|Reasons for||holding|zero||||Para|1.22||
|reserves||||||||||
|Details of fund materially|||||in||Pere|1.24|None|
|deficit||||||||||
|Explanation||ofany|uncertainties||||Para|1.23|None<br>in the immediately<br>foreseeable<br>future|
|about the charity continuing||||||as||||
|a going concern||||||||||



## 



|A description|ofthe principal|Para 1.46|
|---|---|---|
|risks facing|the charity||
|Other|||



## 

|Description<br>ofcharity's trusts:|||||
|---|---|---|---|---|
|Type of governing<br>document:|Para 1.25|Trust Deed|dated 22m|May 2018|
|How is the charity constitutedf|para 1.25|Charitable|Incorporate|Organisation|
|Trustee selection<br>method|Para 1.25|Election by|a majority|ofthe existing Trustees|
|induding<br>details of any|||||
|constitutional<br>provisions|||||



## 

|ou may|choose to indude|further|statements|
|---|---|---|---|
|Policies|and procedures||Para 1.51|
|adopted|for the induction|and||
|training|oftrustees|||
|The charity's<br>organlsatlonal|||Para 1.51|
|structure|and any wider network|||
|with which the charity works||||
|Relationship<br>with any related|||Para 1.51|
|parties||||
|Other||||



## 

|eference and a|dministrativ|e<br>details|e<br>details||
|---|---|---|---|---|
|Charity name||Chronic Lymphocytic<br>Leukaemia Support Association||UK|
|||(CLLSA)|||
|Other name the charity uses||(i) CLLSupport<br>(ii) CLL Support Association|||
|Registered<br>charity|number|1178482|||
|Charity's<br>principal|address|Suite 112-8 The Bridge, Chippenham,|Wilts. SN161FY||



## 

|ofthe charity tru|stees wh|o|manage|the charity|||||||
|---|---|---|---|---|---|---|---|---|---|---|
|Trustee name|Office|(if|any)|Dates <br>ear|acted|ifnot|for whole|Name <br>to a|ofperson (or body) entitled<br>int trustee<br>lf an||
|Auckland,<br>Merc|Chair||||||||||
|Beazley, Ruperl|||||||||||
|Gardom,<br>Brian|||||||||||
|Grant,<br>Norah|||||||||||







## 

## 

## 


## 

## 


## 



## 



||||fteatticted|Eh7fewm<br>ant|
|---|---|---|---|---|
||||fenrte|rttnrfk.|
||||rrfttaalatea"|t rtaaraat 8|
|||877!788|||
||Totrrf Crriaf&tunrhr||||
|(arraa~|vdat ta)tapta aar )tata)acta<br>~)i|Unrestrhrhet|......Ethetrirrtrrrt|Snrfearrnent.|
|||hrrfrttrttittdttittitd'd'd'dthrrrrta||fttnCLe|



|I|I I|I I I<br>I I I|I I I|I I I|I I I|I|I I|I I|||
|---|---|---|---|---|---|---|---|---|---|---|
||II|II II|II|I|I||11||||
|||||||||||UrtaarUUIUU|
||||||||||dd|I|
|||F4)araaaarrarb<br>aasst|||||'""""""""""""""""""."'."8'earatdtaaaraa<br>Gr)ar I||||





## 

