Trustees' Annual Report for the period
Period start date Period end date 1 04 2024 31 03 2025
From
To
Section A Reference and administration details
Charity name
United Kingdom Photopheresis Society
Other names charity is known by Registered charity number (if any) 1178321
Charity's principal address The Rotherham NHS Foundation Trust
Moorgate Road Rotherham Postcode S60 2UD
Names of the charity trustees who manage the charity
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee(if any) |
|---|---|---|---|---|
| Dr Arun Alfred | Treasurer | |||
| Prof A.Gennery | President | |||
Names of the trustees for the charity, if any, (for example, any custodian trustees)
Name Dates acted if not for whole year
TAR
March 2012
1
Names and addresses of advisers (Optional information)
Type of adviser Name Address
Name of chief executive or names of senior staff members (Optional information)
Section B Structure, governance and management
Description of the charity’s trusts
Type of governing document
Constitution
- (eg. trust deed, constitution)
CIO How the charity is constituted
- (eg. trust, association, company)
Appointed by UK Photopheresis Society members Trustee selection methods
- (eg. appointed by, elected by)
Additional governance issues (Optional information)
You may choose to include additional information, where relevant, about:
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policies and procedures adopted for the induction and training of trustees;
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the charity’s organisational structure and any wider network with which the charity works;
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relationship with any related parties;
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trustees’ consideration of major risks and the system and procedures to manage them.
Section C Objectives and activities
Summary of the objects of the charity set out in its governing document
To advance health by promoting the knowledge of Photopheresis, stimulate research in this field, and disseminate knowledge at meetings, via publications and guidelines and work to develop best standards in clinical practice for the advancement of care to the health benefit of our patients. The Society would wish to represent the application of Photopheresis to UK Healthcare organisations and facilitate collaboration with International organisations to foster research and medical advance in this field. This would include but not be limited to provisions of grants to help achieve the objectives of the Society.
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March 2012
2
Annual education meeting Award of research /educational grant in field of Photopheresis
Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)
Additional details of objectives and activities (Optional information)
You may choose to include further statements, where relevant, about:
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policy on grantmaking;
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policy programme related investment;
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contribution made by volunteers.
TAR
March 2012
3
Section D Achievements and performance
Summary of the main achievements of the charity during the year
UKPS Annual Meeting 2024 Date: Friday 29th November 2024 - 09.30-16.30 Venue: Friends House, 173-177 Euston Road, London 09:30 - 09:55 Registration, Coffee 09:55 - 10:00 Welcome Mallinckrodt Sponsored Session 10:00 - 11:00 11:00 - 11:30 Coffee 11:30 - 12:30 Nurse-led Symposium – Update on ECP in Low Body Weight patients Anne McDermott 12:30 - 13:30 Lunch and Poster viewing 13:30 - 14:00 UKPS Business meeting 14.00 - 14:45 Non -erythrodermic Sezary – when to treat & how? Dr. Duncan Murray, University Hospital Coventry/Hospital St. Cross Rugby 14:45 - 15:15 Coffee 15:15 - 15:45 E-CLAD Trial – How does ECP alter the immune response? Mr Steven Bolton, Newcastle University 15:45 - 16:15 ECP, EV and Paediatric aGvHD – Kimberly Schell, Newcastle University 16:15- 16:30 Summary & Close
Travel Grants: to nursing team to support attendance at educational meeting in London.
Research Grants:
‘Mechanisms of action of ECP therapy for GvHD, focusing on the role of EV-derived microRNAs”, which aims to further understanding the molecular mechanisms of ECP action, including EV microRNAs, as well as identify biomarkers for using ECP as first line or pre-emptive GvHD therapy.’
Dr Rachel Crossland newcastle University
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March 2012
4
Section E Financial review
Brief statement of the The charity’s finances are presented regularly at the charity’s policy on reserves Annual meeting and reviewed with regards to holding adequate appropriate resources
Details of any funds materially in deficit
None
Further financial review details (Optional information)
You may choose to include additional information, where relevant about:
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the charity’s principal sources of funds (including any fundraising);
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how expenditure has supported the key objectives of the charity;
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investment policy and objectives including any ethical investment policy adopted.
Section F Other optional information
Section G Declaration
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s)
Full name(s) Dr Arun Alfred Position (eg Secretary, Chair, Treasurer etc)
Date 30/01/26
TAR
March 2012
5
Statement of accounts for the UKPS for April 2024 to March 2025
Charity registration number: 1178321
1/4/24: Opening balance £102,587.26
26/7/24: Educational travel grant to ECP nurses to attend UKPS annual meeting: £453.05
26/7/24: Speaker fees Dr Nina Worel : £447.89
31/10/24: Therakos Ltd sponsorship funding: £5,000.00
28/11/24: RES/0280/0876; ECP therapy for GvHD £3082.05
09/12/2024: Friends House venue for annual meeting £3,430.00
19/3/25 £14,479.92 Newcastle University Research grant RES/0280/0876
31/3/25 Account charges: £60.00
Current balance 31/3/25: £85,634.35
Dr Arun Alfred 31/01/2026
Treasurer UKPS