## **Trustees' Annual Report for the period**
Period start date Period end date 1 04 2024 31 03 2025
**From**
**To**
## Section A Reference and administration details
**Charity name**
United Kingdom Photopheresis Society
**Other names charity is known by Registered charity number (if any)** 1178321
**Charity's principal address** The Rotherham NHS Foundation Trust
Moorgate Road Rotherham **Postcode S60 2UD**
## **Names of the charity trustees who manage the charity**
|1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Name of person (or body) entitled**
**to appoint trustee(if any)**|
|---|---|---|---|---|
||Dr Arun Alfred|Treasurer|||
||Prof A.Gennery|President|||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
## **Names of the trustees for the charity, if any, (for example, any custodian trustees)**
**Name Dates acted if not for whole year**
**TAR**
March **2012**
1
## **Names and addresses of advisers (Optional information)**
**Type of adviser Name Address**
## **Name of chief executive or names of senior staff members (Optional information)**
## **Section B Structure, governance and management**
## **Description of the charity’s trusts**
Type of governing document
Constitution
- (eg. trust deed, constitution)
CIO How the charity is constituted
- (eg. trust, association, company)
Appointed by UK Photopheresis Society members Trustee selection methods
- (eg. appointed by, elected by)
## **Additional governance issues (Optional information)**
You **may choose** to include additional information, where relevant, about:
- policies and procedures adopted for the induction and training of trustees;
- the charity’s organisational structure and any wider network with which the charity works;
- relationship with any related parties;
- trustees’ consideration of major risks and the system and procedures to manage them.
## **Section C Objectives and activities**
**Summary of the objects of the charity set out in its governing document**
To advance health by promoting the knowledge of Photopheresis, stimulate research in this field, and disseminate knowledge at meetings, via publications and guidelines and work to develop best standards in clinical practice for the advancement of care to the health benefit of our patients. The Society would wish to represent the application of Photopheresis to UK Healthcare organisations and facilitate collaboration with International organisations to foster research and medical advance in this field. This would include but not be limited to provisions of grants to help achieve the objectives of the Society.
**TAR**
March **2012**
2
Annual education meeting Award of research /educational grant in field of Photopheresis
**Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)**
**Additional details of objectives and activities (Optional information)**
You **may choose** to include further statements, where relevant, about:
- policy on grantmaking;
- policy programme related investment;
- contribution made by volunteers.
**TAR**
March **2012**
3
Section D Achievements and performance
**Summary of the main achievements of the charity during the year**
**UKPS Annual Meeting 2024** Date: Friday 29th November 2024 - 09.30-16.30 Venue: Friends House, 173-177 Euston Road, London 09:30 - 09:55 Registration, Coffee 09:55 - 10:00 Welcome Mallinckrodt Sponsored Session 10:00 - 11:00 11:00 - 11:30 Coffee 11:30 - 12:30 Nurse-led Symposium – Update on ECP in Low Body Weight patients Anne McDermott 12:30 - 13:30 Lunch and Poster viewing 13:30 - 14:00 UKPS Business meeting 14.00 - 14:45 Non -erythrodermic Sezary – when to treat & how? Dr. Duncan Murray, University Hospital Coventry/Hospital St. Cross Rugby 14:45 - 15:15 Coffee 15:15 - 15:45 E-CLAD Trial – How does ECP alter the immune response? Mr Steven Bolton, Newcastle University 15:45 - 16:15 ECP, EV and Paediatric aGvHD – Kimberly Schell, Newcastle University 16:15- 16:30 Summary & Close
**Travel Grants:** to nursing team to support attendance at educational meeting in London.
## **Research Grants:**
‘Mechanisms of action of ECP therapy for GvHD, focusing on the role of EV-derived microRNAs”, which aims to further understanding the molecular mechanisms of ECP action, including EV microRNAs, as well as identify biomarkers for using ECP as first line or pre-emptive GvHD therapy.’
Dr Rachel Crossland newcastle University
**TAR**
March **2012**
4
## **Section E Financial review**
**Brief statement of the** The charity’s finances are presented regularly at the **charity’s policy on reserves** Annual meeting and reviewed with regards to holding adequate appropriate resources
**Details of any funds materially in deficit**
None
## **Further financial review details (Optional information)**
You **may choose** to include additional information, where relevant about:
- the charity’s principal sources of funds (including any fundraising);
- how expenditure has supported the key objectives of the charity;
- investment policy and objectives including any ethical investment policy adopted.
## **Section F Other optional information**
## **Section G Declaration**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
## **Signature(s)**
**Full name(s)** Dr Arun Alfred **Position (eg Secretary, Chair,** Treasurer **etc)**
**Date** 30/01/26
**TAR**
March **2012**
5
## **Statement of accounts for the UKPS for April 2024 to March 2025**
## **Charity registration number: 1178321**
1/4/24: Opening balance £102,587.26
26/7/24: Educational travel grant to ECP nurses to attend UKPS annual meeting: £453.05
26/7/24: Speaker fees Dr Nina Worel : £447.89
31/10/24: Therakos Ltd sponsorship funding: £5,000.00
28/11/24: RES/0280/0876; ECP therapy for GvHD £3082.05
09/12/2024: Friends House venue for annual meeting £3,430.00
19/3/25 £14,479.92 Newcastle University Research grant RES/0280/0876
31/3/25 Account charges: £60.00
Current balance 31/3/25: £85,634.35
Dr Arun Alfred 31/01/2026
Treasurer UKPS