OpenCharities

Wales Orphan And Rare Lung Disease (World)

Wales Orphan And Rare Lung Disease

Country
England & Wales
Charity number
1177810
Status
Registered
Reporting
Up to date Last filed Jan. 31, 2026. Filing history
Registered
April 4, 2018
Legal form
CIO

Address

Address
Newton House
Llandyfan
Ammanford
Dyfed
SA18 2UD

Activities

The preservation and protection of good health for the public benefit, by promoting the awareness and understanding of rare lung disease in West Wales.WORLD promotes discussion, engagement, support, knowledge and research.

Objects: The Preservation And Protection Of Good Health For The Public Benefit In West Wales, Specifically The Counties Of Pembrokeshire, Ceredigion And Carmarthenshire, By Promoting The Awareness And Understanding Of Rare Lung Diseases Through Such Means As The Trustees Think Fit Including:-Providing A Forum For Rare Lung Disease Patients And Their Carers To Meet And Share Experiences;-Offering Emotional And Educational Support To Rare Lung Disease Patients, Their Families And Carers Including Signposting To Other Relevant Bodies;-Engaging Respiratory Specialists To Refer Other Patients To The Forum;

Classification

How
Provides Advocacy/advice/information
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
Who
Children/young People, Elderly/old People, People With Disabilities, Other Defined Groups

Geography

Region
Throughout Wales

Finances

Period end Filed Income Expenditure
April 1, 2025 Jan. 31, 2026On time £1,782 £496
April 1, 2024 March 9, 202536 days late £1,172 £3,642
April 1, 2023 May 24, 2024113 days late £1,666 £1,289
April 1, 2022 March 14, 202341 days late £2,026 £1,156
April 1, 2021 March 23, 202250 days late £6,046 £2,175

Trustees

Name Appointed
Michelle Dunning (Chair) Nov. 1, 2025
Dr Keir Lewis Professor Feb. 27, 2018
Gethin James Dec. 5, 2025
Graham Evans Oct. 23, 2018
Joseph Annandale Feb. 27, 2018
Leslie Dale Dec. 5, 2025
Marie James Aug. 26, 2022
Sylvia Evans Oct. 23, 2018