# WALES ORPHAN AND RARE LUNG DISEASE (WORLD)

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1177810
- **Other names:** WALES ORPHAN AND RARE LUNG DISEASE
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** April 4, 2018
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1177810


## Contact

- **Address:** Newton House, Llandyfan, AMMANFORD, Dyfed
- **Postcode:** SA18 2UD
- **Phone:** 07902 036945
- **Email:** joinusatworld@outlook.com
- **Website:** joinusatworld.com



## Activities

**Objects:** THE PRESERVATION AND PROTECTION OF GOOD HEALTH FOR THE PUBLIC BENEFIT IN WEST WALES, SPECIFICALLY THE COUNTIES OF PEMBROKESHIRE, CEREDIGION AND CARMARTHENSHIRE, BY PROMOTING THE AWARENESS AND UNDERSTANDING OF RARE LUNG DISEASES THROUGH SUCH MEANS AS THE TRUSTEES THINK FIT INCLUDING:-PROVIDING A FORUM FOR RARE LUNG DISEASE PATIENTS AND THEIR CARERS TO MEET AND SHARE EXPERIENCES;-OFFERING EMOTIONAL AND EDUCATIONAL SUPPORT TO RARE LUNG DISEASE PATIENTS, THEIR FAMILIES AND CARERS INCLUDING SIGNPOSTING TO OTHER RELEVANT BODIES;-ENGAGING RESPIRATORY SPECIALISTS TO REFER OTHER PATIENTS TO THE FORUM;

**Activities:** The preservation and protection of good health for the public benefit, by promoting the awareness and understanding of rare lung disease in West Wales.WORLD promotes discussion, engagement, support, knowledge and research.




## Classification

- **How:** Provides Advocacy/advice/information
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Defined Groups



## Geography

- Throughout Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Michelle Dunning** | Chair | Nov. 1, 2025 |
| Dr Keir Lewis Professor |  | Feb. 27, 2018 |
| Gethin James |  | Dec. 5, 2025 |
| Graham Evans |  | Oct. 23, 2018 |
| JOSEPH ANNANDALE |  | Feb. 27, 2018 |
| Leslie Dale |  | Dec. 5, 2025 |
| Marie James |  | Aug. 26, 2022 |
| Sylvia Evans |  | Oct. 23, 2018 |




