Aniridia Network (Registered charity, number 1176792) Financial statements for the year ended 31 March 2023
| Page | Contents |
|---|---|
| 2 - 4 | Trustees’ annual report |
| 5 | Independent examiner’s report |
| 6 | Receipts & payments account |
| 7 | Statement of assets & liabilities |
| 8 | Notes to the accounts |
Aniridia Network Trustees’ annual report for the year ended 31 March 2023
Full name Aniridia Network
Organisation type Charitable incorporated organisation
Registered charity number 1176792
Principal address 22 Cornish House, Adelaide Lane, Sheffield, S3 8BJ
Trustees (held office throughout year unless noted otherwise)
Katie Atkinson, Chair James Buller, Trustee Andrew Baghurst, Trustee
Independent examiner
John O’Brien, employee of Community Accounting Plus, Units 1 & 2 North West, 41 Talbot Street, Nottingham, NG1 5GL
Governance and management
The charity is operated under the rules of its governing document adopted 23/01/2018.
Trustees are recruited via adverts on the Aniridia Network’s communications channels to members and followers. Trustees are appointed by members at Annual General Meetings or, on an interim basis, co-opted by the existing trustees (in accordance with the charity’s governing document).
Objectives and activities
The objects of the CIO are, for the public benefit, in the British Isles:
(1) the protection and advancement of health, of people with aniridia, in particular but not exclusively by:
(a) promoting and facilitating research into the causes, effects and treatments of aniridia
(b) providing information to educate people with aniridia, their family members and relevant professionals about the causes, effects, treatments and management of aniridia.
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Aniridia Network
(2) the relief of people suffering from aniridia and their families, in particular but not exclusively by:
(a) providing a network of families, individuals and professionals in order to share: ideas, knowledge and experiences plus give practical and emotional support
(b) providing information and services to people with aniridia, their family members and relevant professionals regarding education, health, employment and social security plus life skills relevant to having aniridia.
(3) the education of the public, in all areas relating to aniridia by:
(a) publicising the needs, stories and achievements of people affected by and working with aniridia
For the purpose of this clause ‘aniridia’ means the genetic conditions causing iris defects (such as aniridia and iris hypoplasia) usually causing visual impairment. Where they occur in people with aniridia it also encompasses related conditions such as: dry eye, keratopathy, nystagmus, cataracts, glaucoma, auditory processing disorder and WAGR.
Summary of the main activities undertaken for the public benefit
Aniridia Network supports people in the UK affected by aniridia: those who have it plus their family, carers, doctors, educators and others. The charity wants all these people to be hopeful, confident, supported and well informed regarding aniridia. For them we: organise conferences, meetups and befriending, provide access to professionals and distribute or signpost to useful information.
Public benefit statement
The Trustees confirm that they have complied with the duty in section 17 of the Charities Act 2011 to have due regard to the Charity Commission's general guidance on public benefit, 'Charities and Public Benefit'.
Summary of the main achievements during the period
Patron – secured a new distinguished patron in Professor Tony Moore MA FRCS FRCOphth FMedSCi.
Advocacy – responded to a Department of Health and Social Care call for evidence on the Down Syndrome Act, on behalf of those with WAGR.
Enquiries – 9 medical enquiries on a variety of topics.
Befriending – 7 new members referred to service, 5 requested a buddy. Parent information packs sent to all. 2 existing members requested further buddies.14 buddy relationships set up in total.
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Aniridia Network
Education – 12 requests for education advice. Information sent out included: pupil passports, EHCP Appendix 1 resource, aniridia links to Development Matters and links to RNIB Early Years resources. Apart from parents, requests also came from 2 Qualified Teachers of Vision Impairment (QTVIs), an Educational Psychologist, a nursery provider and a teacher from Singapore, all of whom were supporting children with aniridia.
Conference – online conference held on 13 August 2022 which included a talk on the benefits of a low vision assessment for children and adults with aniridia, a medical presentation on the prevention of and current therapies for the failure of cornea stem cells, and an introduction to a qualitative study of attitudes to internet use in adults with aniridia.
The charity’s policy on reserves
The charity has no specific policy with regard to the level of reserves.
Signed on behalf of the charity’s trustees:
Signed Date 10/08/2023
Andrew Baghurst, Trustee
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Independent examiner’s report to the trustees of Aniridia Network for the year ended 31 March 2023
I report to the trustees on my examination of the accounts of Aniridia Network (the charity) for the year ended 31 March 2023.
Responsibilities and basis of report
As the trustees of the charity you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’). I report in respect of my examination of the charity’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner’s statement
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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accounting records were not kept in respect of the charity as required by section 130 of the Act; or
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the accounts do not accord with those records.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Signed ____ Date __10/8/23____ John O’Brien MSc, FCCA, FCIE Employee of Community Accounting Plus
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Aniridia Network Receipts & payments account for the year ended 31 March 2023
| 2022 Total Unrestricted Funds Funds £ Note £ Receipts 22185 Grants & donations 2 3180 2 Exchange rate gains 3 22187 Total receipts 3183 Payments 220 Training - 10273 Conference - 3485 Conference - transfer to Aniridia Spain - 1933 Conference - returned to funders - - European Aniridia Conference grants 664 - Events 251 18 Internal services - Education - 293 Internal services - IT 587 50 Membership fees 103 - Independent examination fees 420 - Insurance 96 178 Printing and postage 175 - Trustee expenses 52 2487 Election Fees 81 272 Bank Fees 4 286 Website Fees 320 40 Volunteer awards 60 19535 Total payments 2813 2651 Net receipts/(payments) 370 49391 Cash funds at start of this period 52042 52042 Cash funds at end of this period 52412 |
Restricted Funds £ - - - - - - - - - - - - - - - - - - - - - - - - |
2023 Total Funds £ 3180 3 |
|---|---|---|
| 3183 | ||
| - - - - 664 251 - 587 103 420 96 175 52 81 4 320 60 |
||
| 2813 | ||
| 370 52042 |
||
| 52412 |
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Aniridia Network Statement of assets and liabilities at 31 March 2023
| 2022 | 2023 | |
|---|---|---|
| £ | Cash assets | £ |
| 52042 | Bank accounts | 52412 |
| 52042 | 52412 | |
| Assets retained for the charity’s own use | ||
| 414 | General equipment. | 414 |
| Liabilities | ||
| (420) | Creditors - Independent examination fee | (438) |
| (420) | (438) |
These financial statements are accepted on behalf of the charity by:
Signed Date 10/08/2022 Andrew Baghurst, Trustee
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Aniridia Network Notes to the accounts for the year ended 31 March 2023
1. Receipts & payments accounts
Receipts and payments accounts contain a summary of money received and money spent during the period and a list of assets and liabilities at the end of the period. Usually, cash received and cash spent will include transactions through bank accounts and cash in hand.
2. Grants & donations
| CAF Donate Give As You Live Justgiving Paypal Giving Fund Other |
Unrestricted £ 2437 108 14 26 594 3180 |
Restricted Total £ £ - 2437 - 108 - 14 - 26 - 594 - 3180 |
|---|---|---|
3. Premises & staff
The Aniridia Network has no staff employed and no premises.
4. Trustees’ remuneration
Trustees received no expenses, remuneration or benefits in this period.
5. Related party transactions
There were no related party transactions in this period.
6. Glossary of terms
Creditors: These are amounts owed by the charity, but not paid during the accounting period.
Restricted funds: These are funds given to the charity, subject to specific restrictions set by the donor, but still within the general objects of the charity.
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