OpenCharities

Aniridia Network

Aniridia Network UK

Country
England & Wales
Charity number
1176792
Status
Registered
Registered
Jan. 23, 2018
Legal form
CIO

Address

Address
22 CORNISH HOUSE
ADELAIDE LANE
SHEFFIELD
SOUTH YORKSHIRE
S3 8BJ

Contact

Activities

We support people in the UK affected by aniridia: those who have it plus their family, carers, doctors, educators and others. We want all these people to be hopeful, confident, supported and well informed regarding aniridia.For them we: organise conferences, meetups and befriending, provide access to professionals and distriubute or signpost to useful information.

Objects: The Objects Of The CIO Are, For The Public Benefit, In The British Isles And Elsewhere: (1) The Protection And Advancement Of Health, Of People With Aniridia, In Particular But Not Exclusively By:(a) Promoting And Facilitating Research Into The Causes, Effects And Treatments Of Aniridia(b) Providing Information To Educate People With Aniridia, Their Family Members And Relevant Professionals About The Causes, Effects, Treatments And Management Of Aniridia.(2) The Relief Of People Suffering From Aniridia And Their Families, In Particular But Not Exclusively By:(a) Providing A Network Of Families, Individuals And Professionals In Order To Share: Ideas, Knowledge And Experiences Plus Give Practical And Emotional Support(b) Providing Information And Services To People With Aniridia, Their Family Members And Relevant Professionals Regarding Education, Health, Employment And Social Security Plus Life Skills Relevant To Having Aniridia. (3) The Education Of The Public, In All Areas Relating To Aniridia By:(a) Publicising The Needs, Stories And Achievements Of People Affected By And Working With Aniridia For The Purpose Of This Clause 'Aniridia' Means The Genetic Conditions Causing Iris Defects (Such As Aniridia And Iris Hypoplasia) Usually Causing Visual Impairment. Where They Occur In People With Aniridia IT Also Encompasses Related Conditions Such As: Dry Eye, Keratopathy, Nystagmus, Cataracts, Glaucoma, Auditory Processing Disorder And Wagr.

Classification

How
Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
The Advancement Of Health Or Saving Of Lives, Disability
Who
People With Disabilities

Areas of operation

Country
Ireland, Northern Ireland, Scotland
Region
Throughout England And Wales

Finances

Period end Income Expenditure
March 31, 2025 £11,090 £2,564
March 31, 2024 £4,365 £7,635
March 31, 2023 £3,183 £2,813
March 31, 2022 £22,186 £19,535
March 31, 2021 £5,394 £1,402

Trustees

Name Appointed
Katherine Atkinson (Chair) April 14, 2018
Andrew Baghurst Sept. 1, 2021
James Buller April 14, 2018