Trustees’ Annual Report for the period
From 1 January 2024 To 31 December 2024
Charity name: Arrhythmogenic Cardiomyopathy Trust
Charity registration number: 1176790
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT, RELATING TO INHERITED HEART CONDITIONS AND IN PARTICULAR ARRYTHMOGENIC CARDIOMYOPATHY BY FUNDING RESEARCH PROJECTS, SUCH PROJECTS CAN BE DIAGNOSTIC, CURATIVE, THERAPEUTIC OR PALLIATIVE IN NATURE AND TO ENSURE THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
Further fundraising, with a view to funding a second project in 2026. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | This guidance has been noted by the trustees of the charity. |
Achievements and Performance
| SORP reference Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. Para 1.20 During the year, the charity has successfully raised a further £7,055 to support its objectives of funding medical research projects focussed on Arrhythmogenic Cardiomyopathy, a heart muscle disease that affects young people. |
|
|---|---|
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of the period |
Para 1.21 | The charity had cash reserves of £35,023 at year end. The charity holds only cash deposits, with no debt. |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | Reserves will be held on an ongoing basis until a research project is successfully funded. |
| Amount of reserves held | Para 1.22 | £35,023 |
| Reasons for holding zero reserves |
Para 1.22 | n/a |
| Details of fund materially in deficit |
Para 1.24 | n/a |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | No concerns |
Structure, Governance and Management
| Description of charity’s |
||
|---|---|---|
| ~~t~~ ~~t~~ Type of governing document (trust deed, royal charter) |
Para 1.25 |
CIO governing document |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | CIO |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more |
Para 1.25 | Trustees appointed by resolution of existing trustees |
| ~~trustees~~ |
Reference and Administrative details
| Charity name | Arrhythmogenic Cardiomyopathy Trust |
|---|---|
| Other name the charity uses | ACT |
| Registered charity number | 1176790 |
| Charity’s principal address | 97 Rosebank, Holyport Road, London SW6 6LJ |
Names of the charity trustees who manage the charity
| Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee |
|
|---|---|---|---|---|
| 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 |
James Minch | Trustee | ~~(if any)~~ | |
| Kate Minch | Trustee | |||
| Rachel Bailey | Trustee | |||
Corporate trustees – names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
Trustee name Dates acted rf not for whole year
Funds held as custodian trustees on behalf of others
| Description of the assets held in this capacity |
n/a |
|---|---|
| Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects |
n/a |
| Details of arrangements for safe custody and segregation of such assets from the charity’s own assets |
n/a |
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
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Charity Name No (if any)
Arrhythmogenic Cardiomyopathy Trust 1176790
Receipts and payments accounts CC16a
For the period Period start date Period end date
To
from 01-Jan-24 31-Dec-24
Section A Receipts and payments
Unrestricted Restricted Endowment
Total funds Last year
funds funds funds
to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £
A1 Receipts
Donations 7,055 - - 7,055 -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total (Gross income for
AR) [ 7,055 ] - - 7,055 -
A2 Asset and investment sales,
(see table).
- - - -
- - - - -
Sub total - - - - -
Total receipts 7,055 - - 7,055 -
A3 Payments
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total [ - ] - - - -
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total [ - ] - - - -
Total payments - - - - -
Net of receipts/(payments) 7,055 - - 7,055 -
A5 Transfers between funds - - - - -
A6 Cash funds last year end - - - - -
Cash funds this year end 7,055 - - 7,055 -
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CCXX R1 accounts (SS)
31/10/2025
1
Section B Statement of assets and liabilities at the end of the period
| Categories Signed by one or two trustees on behalf of all the trustees B5 Liabilities B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use B1 Cash funds |
Details Details Total cash funds (agree balances with receipts and payments account(s)) Cash at bank Details Details Details Signature |
Unrestricted funds Restricted funds to nearest £ to nearest £ 35,023 - - - - - 35,023 - Agreement Error OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) - - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name |
Endowment funds to nearest £ - - - |
|---|---|---|---|
| - | |||
| OK | |||
| Endowment funds to nearest £ - - - - - - Current value (optional) - - - - - Current value (optional) - - - - - - - - - When due (optional) Date of approval |
CCXX R2 accounts (SS)
31/10/2025
2