
## **Trustees’ Annual Report for the period** 

**From 1 January 2024             To 31 December 2024** 

**Charity name: Arrhythmogenic Cardiomyopathy Trust** 

## **Charity registration number: 1176790** 

## **Objectives and Activities** 

||SORP reference||
|---|---|---|
|Summary of the purposes of<br>the charity as set out in its<br>governing document|Para 1.17|TO PROMOTE AND PROTECT GOOD<br>HEALTH FOR THE PUBLIC BENEFIT,<br>RELATING TO INHERITED HEART<br>CONDITIONS AND IN PARTICULAR<br>ARRYTHMOGENIC CARDIOMYOPATHY<br>BY FUNDING RESEARCH PROJECTS,<br>SUCH PROJECTS CAN BE<br>DIAGNOSTIC, CURATIVE,<br>THERAPEUTIC OR PALLIATIVE IN<br>NATURE AND TO ENSURE THE<br>PUBLICATION OF THE USEFUL<br>RESULTS OF SUCH RESEARCH.|
|Summary of the main<br>activities in relation to those<br>purposes for the public<br>benefit, in particular, the<br>activities, projects or<br>services identified in the<br>accounts.|Para 1.17 and<br>1.19|Further fundraising, with a view to funding<br>a second project in 2026.|
|Statement confirming<br>whether the trustees have<br>had regard to the guidance<br>issued by the Charity<br>Commission on public<br>benefit|Para 1.18|This guidance has been noted by the<br>trustees of the charity.|



**Achievements and Performance** 



||SORP reference<br>Summary of the main<br>achievements of the charity,<br>identifying the difference the<br>charity’s work has made to<br>the circumstances of its<br>beneficiaries and any wider<br>benefits to society as a<br>whole.<br>Para 1.20<br>During the year, the charity has<br>successfully raised a further £7,055 to<br>support its objectives of funding medical<br>research projects focussed on<br>Arrhythmogenic Cardiomyopathy, a heart<br>muscle disease that affects young people.|
|---|---|





## **Financial Review** 

|**Financial Review**|||
|---|---|---|
|Review of the charity’s<br>financial position at the end<br>of the period|Para 1.21|The charity had cash reserves of £35,023 at<br>year end. The charity holds only cash<br>deposits, with no debt.|
|Statement explaining the<br>policy for holding reserves<br>stating why they are held|Para 1.22|Reserves will be held on an ongoing basis<br>until a research project is successfully<br>funded.|
|Amount of reserves held|Para 1.22|£35,023|
|Reasons for holding zero<br>reserves|Para 1.22|n/a|
|Details of fund materially in<br>deficit|Para 1.24|n/a|
|Explanation of any<br>uncertainties about the<br>charity continuing as a going<br>concern|Para 1.23|No concerns|





## **Structure, Governance and Management** 

|Description of charity’s<br><br>|||
|---|---|---|
|~~t~~<br>~~t~~<br>Type of governing document<br>(trust deed, royal charter)|<br>Para 1.25|CIO governing document|
|How is the charity<br>constituted?<br>(e.g unincorporated<br>association, CIO)|Para 1.25|CIO|
|Trustee selection methods<br>including details of any<br>constitutional provisions e.g.<br>election to post or name of<br>any person or body entitled<br>to appoint one or more<br>|Para 1.25|Trustees appointed by resolution of existing<br>trustees|
|~~trustees~~|||



## **Reference and Administrative details** 

|Charity name|Arrhythmogenic Cardiomyopathy Trust|
|---|---|
|Other name the charity uses|ACT|
|Registered charity number|1176790|
|Charity’s principal address|97 Rosebank, Holyport Road, London SW6 6LJ|
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**Names of the charity trustees who manage the charity** 

||**Trustee name**|**Office (if any)**|**Dates acted if not for**<br>**whole year**|**Name of person (or body)**<br>**entitled to appoint trustee**<br>|
|---|---|---|---|---|
|1 <br>2 <br>3 <br>4<br>5<br>6<br>7<br>8<br>9<br>10<br>11<br>12<br>13<br>14<br>15<br>16<br>17<br>18<br>19<br>20|James Minch|Trustee||~~**(if any)**~~|
||Kate Minch|Trustee|||
||Rachel Bailey|Trustee|||
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Corporate trustees – names of the directors at the date the report was approved 

## **Director name** 

Name of trustees holding title to property belonging to the charity 



Trustee name
Dates acted rf not for whole year

**Funds held as custodian trustees on behalf of others** 

|Description of the assets<br>held in this capacity|n/a|
|---|---|
|Name and objects of the<br>charity on whose behalf the<br>assets are held and how this<br>falls within the custodian<br>charity’s objects|n/a|
|Details of arrangements for<br>safe custody and<br>segregation of such assets<br>from the charity’s own assets|n/a|



## **Exemptions from disclosure** 

Reason for non-disclosure of key personnel details 

## **Other optional information** 







**----- Start of picture text -----**<br>
Charity Name No (if any)<br>Arrhythmogenic Cardiomyopathy Trust 1176790<br>Receipts and payments accounts CC16a<br>For the period  Period start date Period end date<br>To<br>from 01-Jan-24 31-Dec-24<br>Section A Receipts and payments<br>Unrestricted  Restricted  Endowment<br>Total funds Last year<br>funds funds funds<br>to the nearest      £  to the nearest £ to the nearest £ to the nearest £ to the nearest £<br>A1 Receipts<br>Donations                        7,055                               -                                 -                           7,055                             -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>Sub total  (Gross income for<br>AR)  [                       7,055 ]                              -                                 -                           7,055                             -<br>A2 Asset and investment sales,<br>(see table).<br>                               -                                 -                                 -                               -<br>                               -                                 -                                 -                               -                                 -<br>Sub total                                 -                                 -                                 -                               -                                 -<br>Total receipts                   7,055                            -                            -                         7,055                          -<br>A3 Payments<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>                               -                               -                                 -                                 -                               -<br>Sub total [                               - ]                              -                                 -                                 -                               -<br>A4 Asset and investment<br>purchases, (see table)<br>                               -                                 -                                 -                               -<br>                               -                                 -                                 -                               -<br>Sub total [                               - ]                                -                                 -                               -                                 -<br>Total payments                            -                             -                             -                               -                             -<br>Net of receipts/(payments)                    7,055                           -                             -                      7,055                        -<br>A5 Transfers between funds                           -                          -                           -                                 -                          -<br>A6 Cash funds last year end                            -                          -                           -                            -                          -<br>Cash funds this year end                    7,055                           -                             -                      7,055                        -<br>**----- End of picture text -----**<br>


CCXX R1 accounts (SS) 

31/10/2025 

1 



**Section B Statement of assets and liabilities at the end of the period** 

|**Categories**<br>Signed by one or two trustees on<br>behalf of all the trustees<br>**B5 Liabilities**<br>**B3 Investment assets**<br>**B2 Other monetary assets**<br>**B4 Assets retained for the**<br>**charity’s own use**<br>**B1 Cash funds**|**Details**<br>**Details**<br>**_Total cash funds_**<br>(agree balances with receipts and payments<br>account(s))<br>Cash at bank<br>**Details**<br>**Details**<br>**Details**<br>Signature|**Unrestricted**<br>**funds**<br>**Restricted**<br>**funds**<br>**to nearest £**<br>**to nearest £**<br>**35,023**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**35,023**<br>**-**<br>Agreement Error<br>OK<br>**Unrestricted**<br>**funds**<br>**Restricted**<br>**funds**<br>**to nearest £**<br>**to nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Fund to which**<br>**asset belongs**<br>**Cost (optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Fund to which**<br>**asset belongs**<br>**Cost (optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Fund to which**<br>**liability relates**<br>**Amount due**<br>**(optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>Print Name|**Endowment**<br>**funds**<br>**to nearest £**<br>**-**<br>**-**<br>**-**|
|---|---|---|---|
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||||OK|
||||**Endowment**<br>**funds**<br>**to nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Current value**<br>**(optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Current value**<br>**(optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**When due**<br>**(optional)**<br>Date of<br>approval|



CCXX R2 accounts (SS) 

31/10/2025 

2 

