Trustees’ Annual Report for the period
From 1 January 2022 To 31 December 2022
Charity name: Arrhythmogenic Cardiomyopathy Trust
Charity registration number: 1176790
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT, RELATING TO INHERITED HEART CONDITIONS AND IN PARTICULAR ARRYTHMOGENIC CARDIOMYOPATHY BY FUNDING RESEARCH PROJECTS, SUCH PROJECTS CAN BE DIAGNOSTIC, CURATIVE, THERAPEUTIC OR PALLIATIVE IN NATURE AND TO ENSURE THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
Further fundraising. Second tranche of grant made to UCL for project “A Clinical and Molecular Platform for Disease Stratification in Arrhythmogenic Cardiomyopathy.” Project will complete in October 2023. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | This guidance has been noted by the trustees of the charity. |
Achievements and Performance
SORP reference
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | During the year, the charity has successfully raised a further £4,293 to support its objectives of funding medical research projects focussed on Arrhythmogenic Cardiomyopathy, a heart muscle disease that affects young people. This means that the charity has raised almost £155,000 to achieve its objectives. Following the receipt of a satisfactory progress report for the research project undertaken by UCL ‘Disease Stratification in Arrhythmogenic Cardiomyopathy,’ we were pleased to release the second tranche payment of £57,651 in the year. The project is due to conclude in October 2023, after which its findings will be presented to the trustees. |
|
|---|---|---|---|
Financial Review
| Financial Review | ||
|---|---|---|
| Review of the charity’s financial position at the end of theperiod |
Para 1.21 | The charity had cash reserves of £25,007 at year end. The charity holds only cash deposits, with no debt. |
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | Reserves will be held on an ongoing basis until a research project is successfully funded. |
| Amount of reserves held | Para 1.22 | £25,007 |
| Reasons for holding zero reserves |
Para 1.22 | n/a |
| Details of fund materially in deficit |
Para 1.24 | n/a |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | No concerns |
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | CIO governing document |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | CIO |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Trustees appointed by resolution of existing trustees |
Reference and Administrative details
----- Start of picture text -----
Charity name Arrhythmogenic Cardiomyopathy Trust
Other name the charity uses ACT
Registered charity number 1176790
Charity’s principal address 97 Rosebank, Holyport Road, London, SW6 6LJ
----- End of picture text -----
Names of the charity trustees who manage the charity
----- Start of picture text -----
Dates acted if not for whole Name of person (or body) entitled
Trustee name Office (if any)
year to appoint trustee (if any)
1 James Minch Trustee
2 Kate Minch Trustee
3 Rachel Bailey Trustee
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
----- End of picture text -----
– Corporate trustees names of the directors at the date the report was approved
Director name
Name of trustees holding title to property belonging to the charity
Trustee name Dates acted if not for whole year
Funds held as custodian trustees on behalf of others
Description of the assets n/a held in this capacity Name and objects of the n/a charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for n/a safe custody and segregation of such assets from the charity’s own assets
Exemptions from disclosure
Reason for non-disclosure of key personnel details
Other optional information
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signatures(s) Rachel Bailey Full name(s) James Minch Position (eg Secretary, Trustee Trustee Chair, etc) Date 31.10.23
Arrhythmogenic Cariomyopathy Trust 1176790 Receipts and payments accounts CC16a For the period 01/01/2022 31/12/2022 To from
Section A Receipts and payments
----- Start of picture text -----
Unrestricted Restricted Endowment
Total funds Last year
funds funds funds
to the nearest
to the nearest £ to the nearest £ to the nearest £ to the nearest £
£
A1 Receipts
Income 4,923 - - 4,923 48,591
- - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total (Gross income for
4,923 - - 4,923 48,591
AR)
A2 Asset and investment sales,
(see table).
- - - -
- - - - -
Sub total - - - - -
Total receipts 4,923 - - 4,923 48,591
A3 Payments
Expenses 137 - - 137 562
Grant's made 57,651 - - 57,651 57,651
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total [ 57,788 ] - - 57,788 58,213
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total [ - ] - - - -
Total payments 57,788 - - 57,788 58,213
Net of receipts/(payments) - 52,864 - - - 52,864 - 9,622
A5 Transfers between funds - - - - -
A6 Cash funds last year end 77,871 - - 77,871 -
Cash funds this year end 25,007 - - 25,007 - 9,622
----- End of picture text -----
CCXX R1 accounts (SS)
31/10/2023
1
| Section B Statement of assets and liabilities at the end of the period | Section B Statement of assets and liabilities at the end of the period | Section B Statement of assets and liabilities at the end of the period | |
|---|---|---|---|
| Categories Signed by one or two trustees on behalf of all the trustees B5 Liabilities B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use B1 Cash funds |
Details Details Total cash funds (agree balances with receipts and payments account(s)) Details Details Details Signature |
Unrestricted funds Restricted funds to nearest £ to nearest £ 25,007 - - - - - 25,007 - OK OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) - - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name James Minch |
Endowment funds to nearest £ - - - |
| - | |||
| OK | |||
| Endowment funds to nearest £ - - - - - - Current value (optional) - - - - - Current value (optional) - - - - - - - - - When due (optional) Date of approval 31.12.23 |
CCXX R2 accounts (SS)
31/10/2023
2