## **Trustees’ Annual Report for the period**
**From 1 January 2022 To 31 December 2022**
**Charity name: Arrhythmogenic Cardiomyopathy Trust**
## **Charity registration number: 1176790**
## **Objectives and Activities**
||SORP reference||
|---|---|---|
|Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|TO PROMOTE AND PROTECT GOOD HEALTH FOR
THE PUBLIC BENEFIT, RELATING TO INHERITED
HEART CONDITIONS AND IN PARTICULAR
ARRYTHMOGENIC CARDIOMYOPATHY BY
FUNDING RESEARCH PROJECTS, SUCH PROJECTS
CAN BE DIAGNOSTIC, CURATIVE, THERAPEUTIC
OR PALLIATIVE IN NATURE AND TO ENSURE THE
PUBLICATION OF THE USEFUL RESULTS OF SUCH
RESEARCH.|
|Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or services
identified in the accounts.|Para 1.17 and
1.19|Further fundraising. Second tranche of grant
made to UCL for project “A Clinical and
Molecular Platform for Disease Stratification in
Arrhythmogenic Cardiomyopathy.” Project will
complete in October 2023.|
|Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|This guidance has been noted by the trustees of
the charity.|
## **Achievements and Performance**
SORP reference
||Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|During the year, the charity has successfully
raised a further £4,293 to support its objectives
of funding medical research projects focussed on
Arrhythmogenic Cardiomyopathy, a heart
muscle disease that affects young people. This
means that the charity has raised almost
£155,000 to achieve its objectives.
Following the receipt of a satisfactory progress
report for the research project undertaken by
UCL ‘Disease Stratification in Arrhythmogenic
Cardiomyopathy,’ we were pleased to release
the second tranche payment of £57,651 in the
year. The project is due to conclude in October
2023, after which its findings will be presented
to the trustees.|
|---|---|---|---|
## **Financial Review**
|**Financial Review**|||
|---|---|---|
|Review of the charity’s
financial position at the end
of theperiod|Para 1.21|The charity had cash reserves of £25,007 at year
end. The charity holds only cash deposits, with
no debt.|
|Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|Reserves will be held on an ongoing basis until a
research project is successfully funded.|
|Amount of reserves held|Para 1.22|£25,007|
|Reasons for holding zero
reserves|Para 1.22|n/a|
|Details of fund materially in
deficit|Para 1.24|n/a|
|Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|No concerns|
## **Structure, Governance and Management**
|Description of charity’s
trusts:|||
|---|---|---|
|Type of governing document
(trust deed, royal charter)|Para 1.25|CIO governing document|
|How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|CIO|
|Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|Trustees appointed by resolution of existing
trustees|
## **Reference and Administrative details**
**----- Start of picture text -----**
Charity name Arrhythmogenic Cardiomyopathy Trust
Other name the charity uses ACT
Registered charity number 1176790
Charity’s principal address 97 Rosebank, Holyport Road, London, SW6 6LJ
**----- End of picture text -----**
**Names of the charity trustees who manage the charity**
**----- Start of picture text -----**
Dates acted if not for whole Name of person (or body) entitled
Trustee name Office (if any)
year to appoint trustee (if any)
1 James Minch Trustee
2 Kate Minch Trustee
3 Rachel Bailey Trustee
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
**----- End of picture text -----**
– Corporate trustees names of the directors at the date the report was approved
## **Director name**
Name of trustees holding title to property belonging to the charity
**Trustee name Dates acted if not for whole year**
## **Funds held as custodian trustees on behalf of others**
Description of the assets n/a held in this capacity Name and objects of the n/a charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for n/a safe custody and segregation of such assets from the charity’s own assets
## **Exemptions from disclosure**
Reason for non-disclosure of key personnel details
## **Other optional information**
## **Declarations**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signatures(s)** Rachel Bailey **Full name(s)** James Minch **Position (eg Secretary,** Trustee Trustee **Chair, etc) Date** 31.10.23
**Arrhythmogenic Cariomyopathy Trust 1176790 Receipts and payments accounts CC16a For the period** 01/01/2022 31/12/2022 **To from**
## **Section A Receipts and payments**
**----- Start of picture text -----**
Unrestricted Restricted Endowment
Total funds Last year
funds funds funds
to the nearest
to the nearest £ to the nearest £ to the nearest £ to the nearest £
£
A1 Receipts
Income 4,923 - - 4,923 48,591
- - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total (Gross income for
4,923 - - 4,923 48,591
AR)
A2 Asset and investment sales,
(see table).
- - - -
- - - - -
Sub total - - - - -
Total receipts 4,923 - - 4,923 48,591
A3 Payments
Expenses 137 - - 137 562
Grant's made 57,651 - - 57,651 57,651
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total [ 57,788 ] - - 57,788 58,213
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total [ - ] - - - -
Total payments 57,788 - - 57,788 58,213
Net of receipts/(payments) - 52,864 - - - 52,864 - 9,622
A5 Transfers between funds - - - - -
A6 Cash funds last year end 77,871 - - 77,871 -
Cash funds this year end 25,007 - - 25,007 - 9,622
**----- End of picture text -----**
CCXX R1 accounts (SS)
31/10/2023
1
|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**||
|---|---|---|---|
|**Categories**
Signed by one or two trustees on
behalf of all the trustees
**B5 Liabilities**
**B3 Investment assets**
**B2 Other monetary assets**
**B4 Assets retained for the**
**charity’s own use**
**B1 Cash funds**|**Details**
**Details**
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
**Details**
**Details**
**Details**
Signature|**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**25,007**
**-**
**-**
**-**
**-**
**-**
**25,007**
**-**
OK
OK
**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**
**-**
**-**
**-**
**-**
**-**
Print Name
James Minch|**Endowment**
**funds**
**to nearest £**
**-**
**-**
**-**|
||||**-**|
||||OK|
||||**Endowment**
**funds**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**Current value**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**Current value**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**When due**
**(optional)**
Date of
approval
31.12.23|
CCXX R2 accounts (SS)
31/10/2023
2