2023-12-31-accounts - My Mito Mission

This text was generated using OCR and may contain errors. Check the original PDF to see the document submitted to the regulator.

	My Mito Mission	My Mito Mission	My Mito Mission	No (if any)	CC16a
	For the period from	01/01/2023	To	31/12/2023

Section A Receipts and payments
A1 Receipts	Unrestricted funds to the nearest £ 78,658 19,413 - - - - - 98,071 - - - 98,071 2,752 10,965 26,703 7,525 4,149 9,639 - - - 61,733 - - - 61,733 36,338 - 28,582 64,920	Restricted funds to the nearest £	Endowment funds to the nearest £	Total funds to the nearest £	Last year to the nearest £
Grants		10,500	-	10,500	-
Fundraising& Donations	78,658	-	-	78,658	-
Event income	19,413	-	-	19,413	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
*Sub total*(Gross income for AR)	98,071	10,500	-	108,571	-

A2 Asset and investment sales, (see table).
	-
	-				-
*Sub total*	-				-
*Total receipts* A3 Payments
					-

Support Costs	2,752				-
Awareness Costs	10,965				-
StaffingCosts	26,703				-
FundraisingCosts	7,525				-
Other Admin/Insurance etc	4,149				-
Event costs	9,639				-
	-				-
	-				-
	-				-
*Sub total*	61,733				-

A4 Asset and investment purchases, (see table)
	-	-	-	-
	-	-	-	-
*Sub total*	-	-	-	-	-
*Total payments* *Net of receipts/(payments)* A5 Transfers between funds A6 Cash funds last year end *Cash funds this year end*
					-

	36,338	500	-	36,838	-
	-	-	-	-	-
	28,582	-	-	28,582	-
	64,920	500	-	65,420	-

The above cash funds include designated funds and cash reserves for 2024 as detailed in Annual Report

CCXX R1 accounts (SS)

11/09/2024

Section B Statement of assets and liabilities at the end of the period

Details Details *Total cash funds* (agree balances with receipts and payments account(s)) Bank Cash in Hand Details	Unrestricted funds to nearest £	Restricted funds to nearest £	Endowment funds to nearest £
	64,870	500	-
	50	-	-
	-	-	-
	64,920	500	-
			OK
			Endowment funds to nearest £
			-
			-
			-
			-
			-
			-
			Current value (optional)
		-	-
		-	-
		-	-
		-	-
		-	-
Details	Fund to which asset belongs	Cost (optional)	Current value (optional)
		-	-
		-	-
		-	-
		-	-
		-	-
		-	-
		-	-
		-	-
		-	-
Details Signature	Fund to which liability relates Amount due (optional) - - - - - Print Name Christine Beal		When due (optional)






			Date of approval
	Christine Beal		24/04/2024

CCXX R2 accounts (SS)

11/09/2024

Trustees’ Annual Report for the period

From 1[st] January 2023 to 31[st] December 2023

Charity name: My Mito Mission

Charity registration number: 1176616

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	1) To promote and protect the physical and mental health of sufferers of Mitochondrial Disease through the provision of support, education and practical advice. 2) To advance the education of the public in general (and particularly among scientists and health professionals) in all areas relating to Mitochondrial Disease and to promote research for the public benefit into the causes and treatment of the disease, with the useful results of such research to be disseminated.
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	Foreveryone with mito: Support, Education & Practical Advice by means of: The use and awarding of funds for • Research - to increase hopes of treatments and a cure • Support - to reduce isolation and bring validation • Awareness - to gain equity in mito’s recognition, support and care. The provision of • Website – Directory/Information • Social Media/PR • Events • Promotional materials • Merchandise • Volunteering Opportunities Forthose with mito who wish, all the above PLUS …

		• Provision of and support to run an individual ‘Mission’ – a personalised ‘mini charity’ under our umbrella through which they can raise awareness, funds for research and gain understanding and support from those around them • Missionee Meet Up Weekend • Missionee Zoom Meetings • Missionee Facebook Group • Missionee WhatsApp Group • Missionee Counselling Service
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	The trustees have had regard to the guidance issued by the Charity Commission.

Additional information (optional) You may choose to include further statements where relevant about:

	SORP reference
Policy on grant making	Para 1.38	We aim to award a minimum of 50% of our publicly raised funds to research through The Lily Foundation, the largest UK mito charity, in order to benefit from their established processes and expertise in: • ensuring the quality of research bids • ascertaining what the wider mito community wants by way of research and support. We continue to involve our missionees in the decisions of what we fund. We will remain open to alternative options and keep this decision under annual review.
Policy on social investment including program related investment	Para 1.38	N/A
Contribution made by volunteers	Para 1.38	Contributions made by volunteers in both assisting operating our charity and helping with awareness events and fundraising continue to be invaluable. Without our volunteer workforce the amount of activity we do would have to be significantly reduced in order to still deliver our key objectives. Volunteer contribution enables such as events to be run, ebay and merchandise sales, social media output, partnership engagement. Time commitments from our volunteers ranges from a few hours ad hoc to full time.

Other

Achievements and Performance

	SORP reference
Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	In 2023, in consultation with our missionees, we switched from awarding grant funding in the Spring to ‘front loading’ The Lily Foundation (TLF)’s grants fund in Autumn. In this way, we enable additional research rather than ‘replace’ Lily funding, as such. We have committed £50k to award to the 2023/24 research call. This augments TLF’s £200k to £250k. Bids were invited in September 2023, awards to be finalised Spring 2024 and payable August 2024. We achieved our second support weekend for our missionees in mid-October 2023 and a grant to support it of £10k from the National Lottery Community Fund. 64 people impacted by mito came together from all over the UK. Special guests scientist Prof. Kostas Tokatlidis and Fara Van der Schans attended to talk about mitochondrial research advances. Prof. Grainne Gorman, Dr. Yi Ng and Dr. Renae Stefanetti presented a medical workshop. We also had a bereavement workshop, crafting projects, professional photos, petting/therapy animals and holistic therapy treatments. This year, we were delighted to also include a bespoke counselling service, by a qualified counsellor with personal experience of coping with a mito diagnosis. 8 people undertook a ‘taster’ session over the weekend, extended for some beyond. We will apply for grant funding to create a counselling pilot scheme in 2024. 9 new missions joined us from England and Scotland. We made our Charity Manager position into a permanent role after the original one-year contract ended in March. Despite the additional capacity enabled by this role, the growth of the charity still brings a substantial reliance on our voluntary CEO and leaves gaps in our capacity to achieve all we wish. The trustees committed to a new temporary 6-

months post – Charity Assistant - in the new
year to address this issue with hopes to
secure grant funding to support the role
longer-term.
We gratefully settled into our donated office
space at KT Hydraulics in Elland. It became
apparent that with more staff and volunteer
posts planned in the future, we need to
upgrade our allocated space to accommodate
more people comfortably, or reluctantly
source a new home. The MD confirmed the
arrangement was sound for the long term and
gave permission for upgrade work. Our large
storage cupboards were moved into shared
small office next door and plans made to
invest in upgraded furniture and office
equipment in our dedicated large office. Grant
bid made to local Masons to financially
support this project.
We completed our Business Plan and Financial
Forecasts with some professional local
support. These will be invaluable for future
planning, decision-making and grant
applications.
Substantial research was undertaken about
the following new systems:
- Customer Relationship Management /
Database
- Internal Organisation / Planning
- Financial Accounting
… in order to assess which would best suit
our needs going forward. These will be
implemented in the new year and
dramatically improve our record keeping and
data analysis. In turn, this will increase our
efficiency and ability to withstand growth.
A large body of work was completed in order
to transfer our website to an alternative
webhost. This had become increasingly
urgent due to the website size exceeding
capacity limits and causing technical delays
and errors, and resulting in our Charity
Manager’s time being regularly
compromised. Our new (pro bono) webhost
now takes on this aspect, freeing up the CMs
time.
We increased our partnership working and
building including:
• Further Rotary and other talks by our Chair
and attendance for the first time to the
Rotary District Conference in Scarborough

• Forging links with Huddersfield University including a Public Lecture jointly with Prof. Michael Ginger in October • Further working with Aspire Biosciences in conjunction with The Lily Foundation and eminent mito researcher Antonella Spinnazzola to forge links with more research organisations. • Our second online collaboration with The Wellcome Centre for Mitochondrial research in their ‘Twitter Takeover’ for World Mito Week. • Corporate networking, principally with SAM Networking group leading to donated goods and services from office chairs to a new printer, events participation and possible new grant funding opportunities. • Participation for the first time in the Newcastle Specialist Clinic’s Patient Information Day. Whilst this unfortunately clashed with our Meet Up, we were able to submit a video, leaflets and appropriate giveaways for attendees. We held our first charity ball themed ‘T’Yorkshire Ball’ in April with 240 attendees and raising £10k. My Mito Mission also runs our founding mission, Emma’s Mito Mission (EMM). EMM repeated its success at Brighouse Gala and Brodstock Music Festival. For the first time, we took part in the latter’s big raffle - raising £1k in ticket sales. We re-established The Big Push for Mito event to tie in with World Mito Week and again were instrumental in lighting up buildings green for World Mito Week in September and joining in the worldwide campaign highlighting the condition. We completed or Marketing Plan as part of our Business Plan. To increase our social media presence, we have formulated a plan which doubles posting to around 4 / 5 a day on both facebook and Instagram and introducing regular X (Twitter) posts for the first time. Our LinkedIn presence is very weak and needs addressing. We launched a ‘MitoTed on a Mission’ campaign as part of our ‘Mito Matters to Millions’ message.

We achieved our first year with income exceeding £100k. This was largely due to our increased events, grants and mission activity levels – with 5 missions (including centrally run Emma’s) raising £55k+ between them. As a result of our activities: • awareness of the illness was raised amongst thousands of people, reducing the isolation felt by those impacted. Thousands also became more aware of the importance of mito research and its benefits and implications to millions.
• the support we funded brought increased peer support, a sense of community and belonging and practical information to our beneficiaries impacted by the illness.

Additional information (optional) You may choose to include further statements where relevant about:

----- Start of picture text -----
Achievements against Para 1.41
objectives set
Performance of fundraising
activities against objectives Para 1.41
set
Investment performance Para 1.41
against objectives
Other
----- End of picture text -----

Financial Review

Review of the charity’s financial position at the end of the period	Para 1.21	We ended 2023 with £65,332 in the bank. Aside from reserves of £6.7k for ongoing expenses (as below), we have designated £50k to research. A balance of around £9k is left towards funding more support and awareness projects this year.
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	Trustees discussed reserves at their April 2023 meeting and confirmed a retained level of £6.7k, which equates to approximately 12 weeks’ worth of unrestricted expenditure. This will help My Mito Mission to withstand a number of scenarios including a sustained increase in inflation combined with a fall in income, to provide the capability for trustees to then make sure expenditure could be reduced in a managed fashion, avoiding the need to halt important work abruptly and cover staffing costs. My Mito Mission has very few recurring ongoing costs, with levels of expenditure determined by income banked through previous fundraising. All reserves over and above this retained amount are designated to charitable activities.
Amount of reserves held	Para 1.22	£56.7k
Reasons for holding zero reserves	Para 1.22
Details of fund materially in deficit	Para 1.24
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23

Additional information (optional) You may choose to include further statements	Additional information (optional) You may choose to include further statements	where relevant about:
The charity’s principal sources of funds (including any fundraising)	Para 1.47	Our principal source of funding remains publicly raised donations and fundraising. This is either through our own, our missions’ or our supporter’s efforts. These funds were raised for the purpose of increasing awareness, research and support and it is therefore imperative for us to keep as much of these funds as possible for this direct purpose and to fulfil our charity objects. Our continued growth means that we need to spend more on charity infrastructure eg increased staffing, improved systems, training, expertise etc. We completed a large body of work to create a business plan to support funding bids which could bring in such core

		funding. We also continue to put time and effort into building Corporate support which may assist with core costs. 2022 saw us receive a small grant of £500 from the Marsh Charitable Trust for this purpose, as the first step to this aim. We also received £10,000 from The National Lottery Community Fund to support our second annual ‘My Mito Meet Up’. These two grants increased our grants income from 2.6% of the total income in 2022, to 9.67% in 2023.
Investment policy and objectives including any social investment policy adopted	Para 1.46
A description of the principal risks facing the charity	Para 1.46	Our Business Plan identified several high-risk areas for our sustainability: - Not having foundations in place to support our continual growth. Threat of current staff ‘burnout’. To mitigate this, we are seeking funding for core costs, introducing a temporary Charity Assistant post and increasing our volunteer force. - Reliance on our Chair’s voluntary full- time CEO role. Mitigation as above. - Outgrowing our office space. To mitigate this we secured expansion approval at the current donated premises, and subsequently applied for grant funding.
Other

Structure, Governance and Management

Description of charity’s trusts:
Type of governing document (trust deed, royal charter)	Para 1.25	Trust Deed
How is the charity constituted? (e.g unincorporated association, CIO)	Para 1.25	Charitable Trust
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	Appointed by resolution of the existing Trustees at a Special Meeting

Additional information (optional) You may choose to include further statements where relevant about:

Policies and procedures adopted for the induction and training of trustees	Para 1.51
The charity’s organisational structure and any wider network with which the charity works	Para 1.51
Relationship with any related parties	Para 1.51
Other

Reference and Administrative details

Charity name	My Mito Mission
Other name the charity uses
Registered charity number	1176616
Charity’s principal address	Registered Address: 44d Long Ridge, Brighouse, HD6 3RZ Office Address: c/o KT Hydraulics, Gannex Mills, Dewsbury Road, Elland, HX5 9AF

Names of the charity trustees who manage the charity

Trustee name	Office (if any)	Dates acted if not for whole year
Christopher Appleby
Christine Beal	Chair
Amanda Caldwell
Bethany Ellis	Treasurer
Dr Martin Haigh MBE		17th July 2024
Francesca Sevilla- Rebelderia

– Corporate trustees names of the directors at the date the report was approved

Director name

Name of trustees holding title to property belonging to the charity

Trustee name Dates acted if not for whole year

Funds held as custodian trustees on behalf of others

Description of the assets held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Type of	Name	Address
adviser

Name of chief executive or names of senior staff members (Optional information)

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date
	Christine Beal	Beth Ellis
	Chair	Treasurer
	1stMay 2024
	1stMay 2024

CHARITY COMMISSION FOR ENGLAND AND WALES Independent examinerfs report on the accounts Section A Independent Examiner's Report Report to the tru8tee8 My MIY• MISSO On accounts for tho year frnded IZ. loL3 Charlty no (If any) 117 66 1 Sot out on p•ges I r8POrt to the truste88 on my examlnation of the accounts of the above charlty {Ihe TTUSt') for th8 year ended R•sponslbllltlos and basls of roport As the charftys tru$tee8, you are re8ponslbl8 for the preparatlon of the accounts In accordance wlth the requiremènts of the Chartties Act 2011 {Ihe Acf). I report In respect of my bxaminatlon of the Trust's accounts carrled out undèr saction 145 of the 2011 Act and in carying out my examination, I have followed all Ihe appllcable Dlrectlons given by th6 Charity Commlsslon under Sedon 145(5)Ib) of the Act. Independenl rrhe charlty's gross Income exceeded £250,000 and l am qualified to gxamlnovs statement undertake the examination by b8ing a qualrfied member of [insert name of appllcable118t8d bt)dyll. Delete I l Mnot appllc8bh. I have completed my examlnation. I confinn that no materlal matters have come to my attentlon In connectlon with the examination {other than thal disdosed below '} whlch glves me use to belleve that in, any materlal respect: th8 accounting records were not k8Pt In a¢¢ordance vAth sectlon 130 of the Charities Act; or the accounts dkl not ac(x)rd vAth the accountlng records: or the accounts did not comply with the applicable requirements concemlng the form and content of accounts set out in the Charltl88 (Accounts and Reports) Regulations 2008 othor than any requlrement that the accounts give a 'tru8 and fair, view whlch is not a matter considered as part of an independent examination. I have no conc8ms and have com8 across no other matt8rs in connectbn with the examlnation to which attention should be drawn in this report In order to enable a proper understanding of the a¢Unts to be re8ched. . Plèase delete the words in tha brackets If they do not apply. Slgnod: PuwilGI. Date: Name: PHILIPIA JANC Relevant professlonal qualificatlon(s> or body Aggoci Aiiorj OE AC(rtJowTifvJ & T&c*4fvJi CIAfvI S IER Oct 2018

Ilf any): Address: CLOSC LÉA Section B Disclosure Only complete if the examiner needs lo highlight material matters of concern (see CC32. Independenl examination of charlty accounts.. directlons and guidance for examiners). Glve here brief detalls of any itoms that tho •xaminerwi$hos to dlselose. IER Oct 2018