||**My Mito Mission**|**My Mito Mission**|**My Mito Mission**|**My Mito Mission**|**No (if any)**|**No (if any)**|**No (if any)**|**CC16a**| |---|---|---|---|---|---|---|---|---| ||**For the period**
**from**|01/01/2023||**To**||31/12/2023||| |||||||||| |**Section A Receipts and payments**||||||||| |**A1 Receipts**|**Unrestricted**
**funds**
**to the nearest £**
**78,658**
**19,413**
**-**
**-**
**-**
**-**
**-**
**98,071**
**-**
**-**
**-**
**98,071**
**2,752**
**10,965**
**26,703**
**7,525**
**4,149**
**9,639**
**-**
**-**
**-**
**61,733**
**-**
**-**
**-**
**61,733**
**36,338**
**-**
**28,582**
**64,920**|**Restricted**
**funds**
**to the nearest £**||**Endowment**
**funds**
**to the nearest £**||**Total funds**
**to the nearest £**||**Last year**
**to the nearest £**| |Grants||**10,500**||**-**||**10,500**||**-**| |Fundraising& Donations|**78,658**|**-**||**-**||**78,658**||**-**| |Event income|**19,413**|**-**||**-**||**19,413**||**-**| ||**-**|**-**||**-**||**-**||**-**| ||**-**|**-**||**-**||**-**||**-**| ||**-**|**-**||**-**||**-**||**-**| ||**-**|**-**||**-**||**-**||**-**| ||**-**|**-**||**-**||**-**||**-**| |**_Sub total_**_(Gross income for_
_AR)_|**98,071**|**10,500**||**-**||**108,571**||**-**| |||||||||| |**A2 Asset and investment sales,**
**(see table).**||||||||| ||**-**|||||||| ||**-**|||||||**-**| |**_Sub total_**|**-**|||||||**-**| |**_Total receipts_**
**A3 Payments**||||||||| |||||||||**-**| |||||||||| |Support Costs|**2,752**|||||||**-**| |Awareness Costs|**10,965**|||||||**-**| |StaffingCosts|**26,703**|||||||**-**| |FundraisingCosts|**7,525**|||||||**-**| |Other Admin/Insurance etc|**4,149**|||||||**-**| |Event costs|**9,639**|||||||**-**| ||**-**|||||||**-**| ||**-**|||||||**-**| ||**-**|||||||**-**| |**_Sub total_**|**61,733**|||||||**-**| |||||||||| |**A4 Asset and investment**
**purchases, (see table)**||||||||| ||**-**|**-**||**-**||**-**||| ||**-**|**-**||**-**||**-**||| |**_Sub total_**|**-**|**-**||**-**||**-**||**-**| |**_Total payments_**
**_Net of receipts/(payments)_**
**A5 Transfers between funds**
**A6 Cash funds last year end**
**_Cash funds this year end_**||||||||| |||||||||**-**| |||||||||| ||**36,338**|**500**||**-**||**36,838**||**-**| ||**-**|**-**|
|**-**||**-**||**-**| ||**28,582**|**-**||**-**||**28,582**||**-**| ||**64,920**|**500**||**-**||**65,420**||**-**| The above cash funds include designated funds and cash reserves for 2024 as detailed in Annual Report CCXX R1 accounts (SS) 11/09/2024 1 ## **Section B Statement of assets and liabilities at the end of the period** |**Categories**
Signed by one or two trustees on
behalf of all the trustees
**B5 Liabilities**
**B3 Investment assets**
**B2 Other monetary assets**
**B4 Assets retained for the**
**charity’s own use**
**B1 Cash funds**|**Details**
**Details**
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
Bank
Cash in Hand
**Details**|**Details**
**Details**
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
Bank
Cash in Hand
**Details**|**Unrestricted**
**funds**
**to nearest £**|**Unrestricted**
**funds**
**to nearest £**|**Restricted**
**funds**
**to nearest £**|**Restricted**
**funds**
**to nearest £**|**Endowment**
**funds**
**to nearest £**| |---|---|---|---|---|---|---|---| ||||**64,870**||**500**||**-**| ||||**50**||**-**||**-**| ||||**-**||**-**||**-**| ||||**64,920**||**500**||**-**| ||||||||OK| ||||||||**Endowment**
**funds**
**to nearest £**| ||||||||**-**| ||||||||**-**| ||||||||**-**| ||||||||**-**| ||||||||**-**| ||||||||**-**| ||||||||**Current value**
**(optional)**| ||||||**-**||**-**| ||||||**-**||**-**| ||||||**-**||**-**| ||||||**-**||**-**| ||||||**-**||**-**| ||**Details**||**Fund to which**
**asset belongs**||**Cost (optional)**||**Current value**
**(optional)**| ||||||**-**||**-**| ||||||**-**||**-**| ||||||**-**||**-**| ||||||**-**||**-**| ||||||**-**||**-**| ||||||**-**||**-**| ||||||**-**||**-**| ||||||**-**||**-**| ||||||**-**||**-**| ||**Details**
Signature||**Fund to which**
**liability relates**
**Amount due**
**(optional)**
**-**
**-**
**-**
**-**
**-**
Print Name
Christine Beal||||**When due**
**(optional)**| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||| ||||||||Date of
approval| ||||Christine Beal||||24/04/2024| ||||||||| CCXX R2 accounts (SS) 11/09/2024 2 ## **Trustees’ Annual Report for the period** ## **From 1[st] January 2023 to 31[st] December 2023** ## **Charity name: My Mito Mission** ## **Charity registration number: 1176616** ## **Objectives and Activities** ||SORP reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|**1) To promote and protect the physical and**
**mental health of sufferers of Mitochondrial**
**Disease through the provision of support,**
**education and practical advice.**
**2) To advance the education of the public in**
**general (and particularly among scientists and**
**health professionals) in all areas relating to**
**Mitochondrial Disease and to promote**
**research for the public benefit into the causes**
**and treatment of the disease, with the useful**
**results of such research to be disseminated.**| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|**For****_everyone_ with mito:**
**Support, Education & Practical Advice by**
**means of:**
**The use and awarding of funds for**
• **Research - to increase hopes of treatments**
**and a cure**
• **Support - to reduce isolation and bring**
**validation**
• **Awareness - to gain equity in mito’s**
**recognition, support and care.**
**The provision of**
• **Website – Directory/Information**
• **Social Media/PR**
• **Events**
• **Promotional materials**
• **Merchandise**
• **Volunteering Opportunities**
**For****_those with mito who wish_, all the above**
**PLUS …**| |||• **Provision of and support to run an**
**individual ‘Mission’ – a personalised ‘mini**
**charity’ under our umbrella through which**
**they can raise awareness, funds for**
**research and gain understanding and**
**support from those around them**
• **Missionee Meet Up Weekend**
• **Missionee Zoom Meetings**
• **Missionee Facebook Group**
• **Missionee WhatsApp Group**
• **Missionee Counselling Service**| |---|---|---| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|**The trustees have had regard to the guidance**
**issued by the Charity Commission.**| **Additional information (optional)** You may choose to include further statements where relevant about: ||SORP reference|| |---|---|---| |Policy on grant making|Para 1.38|**We aim to award a minimum of 50% of our**
**publicly raised funds to research through The**
**Lily Foundation, the largest UK mito charity,**
**in order to benefit from their established**
**processes and expertise in:**
• **ensuring the quality of research bids**
• **ascertaining what the wider mito**
**community wants by way of research and**
**support.**
**We continue to involve our missionees in the**
**decisions of what we fund.**
**We will remain open to alternative options**
**and keep this decision under annual review.**| |Policy on social investment
including program related
investment|Para 1.38|**N/A**| |Contribution made by
volunteers|Para 1.38|**Contributions made by volunteers in both**
**assisting operating our charity and helping**
**with awareness events and fundraising**
**continue to be invaluable. Without our**
**volunteer workforce the amount of activity**
**we do would have to be significantly reduced**
**in order to still deliver our key objectives.**
**Volunteer contribution enables such as events**
**to be run, ebay and merchandise sales, social**
**media output, partnership engagement. Time**
**commitments from our volunteers ranges**
**from a few hours ad hoc to full time.**| Other ## **Achievements and Performance** ||SORP reference|| |---|---|---| |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|**In 2023, in consultation with our missionees,**
**we switched from awarding grant funding in**
**the Spring to ‘front loading’ The Lily**
**Foundation (TLF)’s grants fund in Autumn. In**
**this way, we enable additional research rather**
**than ‘replace’ Lily funding, as such.**
**We have committed £50k to award to the**
**2023/24 research call. This augments TLF’s**
**£200k to £250k. Bids were invited in**
**September 2023, awards to be finalised**
**Spring 2024 and payable August 2024.**
**We achieved our second support weekend for**
**our missionees in mid-October 2023 and a**
**grant to support it of £10k from the National**
**Lottery Community Fund. 64 people impacted**
**by mito came together from all over the UK.**
**Special guests scientist Prof. Kostas Tokatlidis**
**and Fara Van der Schans attended to talk**
**about mitochondrial research advances. Prof.**
**Grainne Gorman, Dr. Yi Ng and Dr. Renae**
**Stefanetti presented a medical workshop. We**
**also had a bereavement workshop, crafting**
**projects, professional photos, petting/therapy**
**animals and holistic therapy treatments. This**
**year, we were delighted to also include a**
**bespoke counselling service, by a qualified**
**counsellor with personal experience of coping**
**with a mito diagnosis. 8 people undertook a**
**‘taster’ session over the weekend, extended**
**for some beyond. We will apply for grant**
**funding to create a counselling pilot scheme**
**in 2024.**
**9 new missions joined us from England and**
**Scotland.**
**We made our Charity Manager position into a**
**permanent role after the original one-year**
**contract ended in March. Despite the**
**additional capacity enabled by this role, the**
**growth of the charity still brings a substantial**
**reliance on our voluntary CEO and leaves gaps**
**in our capacity to achieve all we wish. The**
**trustees committed to a new temporary 6-**| |**months post – Charity Assistant - in the new**| |---| |**year to address this issue with hopes to**| |**secure grant funding to support the role**| |**longer-term.**| |**We gratefully settled into our donated office**| |**space at KT Hydraulics in Elland. It became**| |**apparent that with more staff and volunteer**| |**posts planned in the future, we need to**| |**upgrade our allocated space to accommodate**| |**more people comfortably, or reluctantly**| |**source a new home. The MD confirmed the**| |**arrangement was sound for the long term and**| |**gave permission for upgrade work. Our large**| |**storage cupboards were moved into shared**| |**small office next door and plans made to**| |**invest in upgraded furniture and office**| |**equipment in our dedicated large office. Grant**| |**bid made to local Masons to financially**| |**support this project.**| |**We completed our Business Plan and Financial**| |**Forecasts with some professional local**| |**support. These will be invaluable for future**| |**planning, decision-making and grant**| |**applications.**| |**Substantial research was undertaken about**| |**the following new systems:**| |-
**Customer Relationship Management /**| |**Database**| |-
**Internal Organisation / Planning**| |-
**Financial Accounting**| |**… in order to assess which would best suit**| |**our needs going forward. These will be**| |**implemented in the new year and**| |**dramatically improve our record keeping and**| |**data analysis. In turn, this will increase our**| |**efficiency and ability to withstand growth.**| |**A large body of work was completed in order**| |**to transfer our website to an alternative**| |**webhost. This had become increasingly**| |**urgent due to the website size exceeding**| |**capacity limits and causing technical delays**| |**and errors, and resulting in our Charity**| |**Manager’s time being regularly**| |**compromised. Our new (pro bono) webhost**| |**now takes on this aspect, freeing up the CMs**| |**time.**| |**We increased our partnership working and**| |**building including:**| |• **Further Rotary and other talks by our Chair**| |**and attendance for the first time to the**| |**Rotary District Conference in Scarborough **| • **Forging links with Huddersfield University including a Public Lecture jointly with Prof. Michael Ginger in October** • **Further working with Aspire Biosciences in conjunction with The Lily Foundation and eminent mito researcher Antonella Spinnazzola to forge links with more research organisations.** • **Our second online collaboration with The Wellcome Centre for Mitochondrial research in their ‘Twitter Takeover’ for World Mito Week.** • **Corporate networking, principally with SAM Networking group leading to donated goods and services from office chairs to a new printer, events participation and possible new grant funding opportunities.** • **Participation for the first time in the Newcastle Specialist Clinic’s Patient Information Day. Whilst this unfortunately clashed with our Meet Up, we were able to submit a video, leaflets and appropriate giveaways for attendees. We held our first charity ball themed ‘T’Yorkshire Ball’ in April with 240 attendees and raising £10k. My Mito Mission also runs our founding mission, Emma’s Mito Mission (EMM). EMM repeated its success at Brighouse Gala and Brodstock Music Festival. For the first time, we took part in the latter’s big raffle - raising £1k in ticket sales. We re-established The Big Push for Mito event to tie in with World Mito Week and again were instrumental in lighting up buildings green for World Mito Week in September and joining in the worldwide campaign highlighting the condition. We completed or Marketing Plan as part of our Business Plan. To increase our social media presence, we have formulated a plan which doubles posting to around 4 / 5 a day on both facebook and Instagram and introducing regular X (Twitter) posts for the first time. Our LinkedIn presence is very weak and needs addressing. We launched a ‘MitoTed on a Mission’ campaign as part of our ‘Mito Matters to Millions’ message.** - **We achieved our first year with income exceeding £100k. This was largely due to our increased events, grants and mission activity levels – with 5 missions (including centrally run Emma’s) raising £55k+ between them. As a result of our activities:** • **awareness of the illness was raised amongst thousands of people, reducing the isolation felt by those impacted. Thousands also became more aware of the importance of mito research and its benefits and implications to millions.** - • **the support we funded brought increased peer support, a sense of community and belonging and practical information to our beneficiaries impacted by the illness.** **Additional information (optional)** You may choose to include further statements where relevant about: **----- Start of picture text -----**
Achievements against Para 1.41
objectives set
Performance of fundraising
activities against objectives Para 1.41
set
Investment performance Para 1.41
against objectives
Other
**----- End of picture text -----**
## **Financial Review** |Review of the charity’s
financial position at the end
of the period|Para 1.21|**We ended 2023 with £65,332 in the bank.**
**Aside from reserves of £6.7k for ongoing**
**expenses (as below), we have designated**
**£50k to research. A balance of around £9k is**
**left towards funding more support and**
**awareness projects this year.**| |---|---|---| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|**Trustees discussed reserves at their April 2023**
**meeting and confirmed a retained level of**
**£6.7k, which equates to approximately 12**
**weeks’ worth of unrestricted expenditure.**
**This will help My Mito Mission to withstand a**
**number of scenarios including a sustained**
**increase in inflation combined with a fall in**
**income, to provide the capability for trustees**
**to then make sure expenditure could be**
**reduced in a managed fashion, avoiding the**
**need to halt important work abruptly and**
**cover staffing costs. My Mito Mission has very**
**few recurring ongoing costs, with levels of**
**expenditure determined by income banked**
**through previous fundraising. All reserves**
**over and above this retained amount are**
**designated to charitable activities.**| |Amount of reserves held|Para 1.22|**£56.7k**| |Reasons for holding zero
reserves|Para 1.22|| |Details of fund materially in
deficit|Para 1.24|| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|| |**Additional information (optional)**
You may choose to include further statements|**Additional information (optional)**
You may choose to include further statements|where relevant about:| |---|---|---| |The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|**Our principal source of funding remains**
**publicly raised donations and fundraising. This**
**is either through our own, our missions’ or our**
**supporter’s efforts. These funds were raised**
**for the purpose of increasing awareness,**
**research and support and it is therefore**
**imperative for us to keep as much of these**
**funds as possible for this direct purpose and**
**to fulfil our charity objects.**
**Our continued growth means that we need to**
**spend more on charity infrastructure eg**
**increased staffing, improved systems, training,**
**expertise etc. We completed a large body of**
**work to create a business plan to support**
**funding bids which could bring in such core**| |||**funding. We also continue to put time and**
**effort into building Corporate support which**
**may assist with core costs.**
**2022 saw us receive a small grant of £500**
**from the Marsh Charitable Trust for this**
**purpose, as the first step to this aim. We also**
**received £10,000 from The National Lottery**
**Community Fund to support our second**
**annual ‘My Mito Meet Up’.**
**These two grants increased our grants income**
**from 2.6% of the total income in 2022, to**
**9.67% in 2023.**| |---|---|---| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|| |A description of the principal
risks facing the charity|Para 1.46|**Our Business Plan identified several high-risk**
**areas for our sustainability:**
-
**Not having foundations in place to**
**support our continual growth. Threat of**
**current staff ‘burnout’. To mitigate this,**
**we are seeking funding for core costs,**
**introducing a temporary Charity**
**Assistant post and increasing our**
**volunteer force.**
-
**Reliance on our Chair’s voluntary full-**
**time CEO role. Mitigation as above.**
-
**Outgrowing our office space. To mitigate**
**this we secured expansion approval at**
**the current donated premises, and**
**subsequently applied for grant funding.**| |Other||| ## **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document
(trust deed, royal charter)|Para 1.25|**Trust Deed**| |How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|**Charitable Trust**| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|**Appointed by resolution of the existing**
**Trustees at a Special Meeting**| **Additional information (optional)** You may choose to include further statements where relevant about: |Policies and procedures
adopted for the induction
and training of trustees|Para 1.51|| |---|---|---| |The charity’s organisational
structure and any wider
network with which the
charity works|Para 1.51|| |Relationship with any related
parties|Para 1.51|| |Other||| ## **Reference and Administrative details** |Charity name|My Mito Mission| |---|---| |Other name the charity uses|| |Registered charity number|1176616| |Charity’s principal address|Registered Address:
44d Long Ridge, Brighouse, HD6 3RZ
Office Address:
c/o KT Hydraulics, Gannex Mills, Dewsbury Road, Elland, HX5 9AF| ||| ## **Names of the charity trustees who manage the charity** |1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole year**|**Name of person (or body) entitled to**
**appoint trustee(if any)**| |---|---|---|---|---| ||**Christopher Appleby**|||| ||**Christine Beal**|**Chair**||| ||**Amanda Caldwell**|||| ||**Bethany Ellis**|**Treasurer**||| ||**Dr Martin Haigh**
**MBE**||**17th July 2024**|| ||**Francesca Sevilla-**
**Rebelderia**|||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| – Corporate trustees names of the directors at the date the report was approved **Director name** Name of trustees holding title to property belonging to the charity **Trustee name Dates acted if not for whole year** ## **Funds held as custodian trustees on behalf of others** Description of the assets held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** |**Type of**|**Name**|**Address**| |---|---|---| |**adviser**||| **Name of chief executive or names of senior staff members (Optional information)** ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details ## **Other optional information** ## **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** |**Signature(s)**
**Full name(s)**
**Position (eg Secretary,**
**Chair, etc) **
**Date**||| |---|---|---| ||Christine Beal|Beth Ellis| ||
Chair|Treasurer| ||1stMay 2024|| ||1stMay 2024|| CHARITY COMMISSION FOR ENGLAND AND WALES Independent examinerfs report on the accounts Section A Independent Examiner's Report Report to the tru8tee8 My MIY• MISSO On accounts for tho year frnded IZ. loL3 Charlty no (If any) 117 66 1 Sot out on p•ges I r8POrt to the truste88 on my examlnation of the accounts of the above charlty {Ihe TTUSt') for th8 year ended R•sponslbllltlos and basls of roport As the charftys tru$tee8, you are re8ponslbl8 for the preparatlon of the accounts In accordance wlth the requiremènts of the Chartties Act 2011 {Ihe Acf). I report In respect of my bxaminatlon of the Trust's accounts carrled out undèr saction 145 of the 2011 Act and in carying out my examination, I have followed all Ihe appllcable Dlrectlons given by th6 Charity Commlsslon under Sedon 145(5)Ib) of the Act. Independenl rrhe charlty's gross Income exceeded £250,000 and l am qualified to gxamlnovs statement undertake the examination by b8ing a qualrfied member of [insert name of appllcable118t8d bt)dyll. Delete I l Mnot appllc8bh. I have completed my examlnation. I confinn that no materlal matters have come to my attentlon In connectlon with the examination {other than thal disdosed below '} whlch glves me ￿use to belleve that in, any materlal respect: th8 accounting records were not k8Pt In a¢¢ordance vAth sectlon 130 of the Charities Act; or the accounts dkl not ac(x)rd vAth the accountlng records: or the accounts did not comply with the applicable requirements concemlng the form and content of accounts set out in the Charltl88 (Accounts and Reports) Regulations 2008 othor than any requlrement that the accounts give a 'tru8 and fair, view whlch is not a matter considered as part of an independent examination. I have no conc8ms and have com8 across no other matt8rs in connectbn with the examlnation to which attention should be drawn in this report In order to enable a proper understanding of the a¢￿Unts to be re8ched. . Plèase delete the words in tha brackets If they do not apply. Slgnod: PuwilGI. Date: Name: PHILIPIA JANC Relevant professlonal qualificatlon(s> or body Aggoci Aiiorj OE AC(rtJowTifvJ & T&c*4fvJi CIAfvI S IER Oct 2018 Ilf any): Address: CLOSC LÉA Section B Disclosure Only complete if the examiner needs lo highlight material matters of concern (see CC32. Independenl examination of charlty accounts.. directlons and guidance for examiners). Glve here brief detalls of any itoms that tho •xaminerwi$hos to dlselose. IER Oct 2018