OpenCharities

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2020-12-31-accounts

SORP reference SORP reference
Summary ofthe purposes of Para 1.17 The objects of the charity are to preserve
and
the charity as set out in its protect the health of sufferers of autoimmune
governing document conditions
and diseases by:
(i) promoting
research
for the
public
benefit
into developing
treatments
and funding
a cure
for
autoimmune
conditions
and
diseases,
including
their prevention,
and to disseminate
the useful results ofsuch research;
(ii) relieving
sickness amongst
persons
who are
suffering
from
an
autoimmune
condition
or
disease; and
(iii) advancing
the education
of the
public in
general
on
the
subject
of
autoimmune
conditions
and diseases.
Summary
activities
ofthe main
in relation to those
Para
1 19
1 17and Fundraising:
sale ofChristmas
Cards; hosting
a Christmas
Carol Service.
of
purposes
benefit,
for the public
in particular,
the
Application
offunds raised: award off14,300
activities, projects or to Drs Oni and Wright ofAlder Hey Hospital
services rdentified in the towards
developing
the 'IgA-VAS' scoring tool
accounts. and discovering
urinary
biomarkers
in
childhood
immunoglobulin
A vasculitis;
decision to award f15,000 over athree year
period to Dr Pain of Alder Hey Hospital and Dr
Chieng of Royal Manchester
Children's
Hospital
to research immunogenetic
factors in
juvenile
onset connective tissue disease.
Statement confirming Para 1.18 Confirmed
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit

Para 1.38
Policy on grant making
Para 1.38
Policy on social investment
including program related
investment
Para 1.38
Contribution made by
volunteers
Other

Achievements against Para 1.41
objectives set
Performance
offundraising
activities against objectives
Para 1.41
Se't

Investment performan against objectives P8ra 1.41 Other

inancial
Review
inancial
Review
Review ofthe charity's Para 1.21 The charity held cash at bank in the amount of
financial
position at
the end f24,748at the end of the period
ofthe
eriod
Statement
explaining
the Para 1.22 The reserves are held in order to fund future
policy for holding
reserves
research projects approved by the trustees.
statin
wh
the
are
held
Amount
ofreserves
held Para 1.22 f24,748
Reasons for holding zero Para 1.22 N/A
reserves
Details offund materially in Para 1.24 N/A
deficit
Explanation
ofany
Para 1.23 N/A
uncertainties
about
the
charity continuing
as a going
concern
concern
Additional
information
(optional)
You ma
choose to include further statements
where relevant about:
Social events; sales ofChristmas cards;
donations from supporters
The charity's
principal
sources offunds (including
Para 1.47
any fundraising)
N/A
Investment
policy and
objectives
including
any
Para 1.46
social investment
policy
adopted
N/A
A description
ofthe principal
Para 1.46
risks facing the charity
Other

Structure,
Governa
nce and Manag ement
Description
of charity's
trusts:
Type ofgoverning
document
CIO Constitution
rr
I lar rlr
l d
vQ'I/al
r
How is the charity Para 1 25 CIO
constituted?
(B.g unllncoi'pof atea
association.
CIG
Trustee selection methods Para 1 25 The board oftrustees acting collectively
including
details ofany
identifies and appoints trustees
constitutional
provisions
e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees
Additional
information
(optional)
You ma
choose to include further statements
where relevant about:
Policies and procedures
adopted for the induction Para 1.51
and training
oftrustees
The charity's
organisational
structure
and any wider
Para 1.51
network
with which the
charity works
Relationship
with any related
Para 1.51
parties
Other

Charity name FAIR (FUNDING AUTO IMMUNE RESEARCH) RESEARCH)
Other name the charity uses
Registered
charity
number 1176388
Charity's
principal
address Pen-y-Gardden Hall, Pen-y-Gardden, Tatham Road, Ruabon,
Wrexham
LL14
6RE
mes ofthe charity ofthe charity trust ees who manage the charity
Trustee name Oflice (ifany) Dates acted ifnot for whole
ear
Name
to a
ofperson (or body) entitled
oint trustee
ifan
Mrs Grainne Chair Trustees collectively
Dennison
Dr Gavin Cleary Trustees collectively
Mrs Alexandra Bould Trustees collectively
Mrs Alexandra Trustees collectively
Abberton
Mr)ohn Melia Trustees collectively
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
Funds held as custodian trustees on behalf ofothers Funds held as custodian trustees on behalf ofothers
Description
ofthe assets
held in this capacity
Name and objects ofthe
charity on whose behalf the
assets are held and how this
falls within the custodian
charity's objects
Details ofarrangements for
safe custody and
segregation
ofsuch assets
from the charity's
own
assets

O CHARITY COMMISSION
FOR ENGLAND
AND WALES
CHARITY COMMISSION
FOR ENGLAND
AND WALES
CHARITY COMMISSION
FOR ENGLAND
AND WALES
CHARITY COMMISSION
FOR ENGLAND
AND WALES
CHARITY COMMISSION
FOR ENGLAND
AND WALES
CHARITY COMMISSION
FOR ENGLAND
AND WALES
Receipts and payments Receipts and payments Receipts and payments accounts accounts CC&sa
For the period
from
01/01/2020
To
31/12/2020
'
- -
~ ~ ~ ~
Unrestricted
funds
Restricted
funds
Endowment
funds
Totalfunds Last year
to the nearest
f
to the nearest 6 tothe nearest 6 to the nearest 5 to the nearest 6
A1 Receipts
6,693 6,693 16,445
u tote ross mcome or
AR) 6,693 6,693 16,445
A2 Asset and investment
sales
(see table).
u oa
A3 Pa ments
15,609 15,609 2,743
Sub total 15,609 15,609 2,743
A4 Asset and investment
urchases see table
Sub total
Total payments 15.609 - - 15,669 2,743
Net ofreceiptsl(payments) 8,916 8,916 13,702
A5 Transfem bebsreen funds
A6 Cash funds last year end
Cash funds this year end 24,748 24,748 13,702
~ ~ ~
~
~ ~ ~
Unrestricted Restricted Endowment
Details funds funds funds
to Il88fast F. to nearest K to nearest B
B1Cash funds Cash at Bank
Total cash funds 24,748
(agree balances with receipts and payments
ecccctll(s))
Unrestricted Restricted Endowment
funds funds funds
Detaiis to nearest
K
to nearest K to nearest f
B2Other monetary assets
Details Fund to which
asset baton e
Cost (optional) Current value
o tional
B3Investment assets
Details Fund towhich
asset belch
8
Cost (optional) Current value
8 tional
B4Assets retained for the
charity's own use
Fund towhich Amount due When due
Details liabili
relates
o ional o tional
B5Liabilities
Signed by one or lwo trustees
behalf of all the trustees
on Signature Print Name Date of
a
rove(
gGHAJ HQ. &~
CCXX R2 tSS 23/1 0/2021