| SORP reference | SORP reference | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| Summary | ofthe purposes | of | Para 1.17 | The objects of the charity are to preserve and |
|||||||
| the charity | as | set out | in its | protect the health of sufferers of autoimmune | |||||||
| governing | document | conditions and diseases by: |
|||||||||
| (i) promoting research for the public |
benefit | ||||||||||
| into developing treatments and funding a cure |
|||||||||||
| for autoimmune conditions and |
diseases, | ||||||||||
| including their prevention, and to disseminate |
|||||||||||
| the useful results ofsuch research; | |||||||||||
| (ii) relieving sickness amongst persons |
who are | ||||||||||
| suffering from an autoimmune condition |
or | ||||||||||
| disease; and | |||||||||||
| (iii) advancing the education of the |
public | in | |||||||||
| general on the subject of autoimmune |
|||||||||||
| conditions and diseases. |
|||||||||||
| Summary activities |
ofthe main in relation to those |
Para 1 19 |
1 17and | Fundraising: sale ofChristmas Cards; hosting a Christmas Carol Service. |
of | ||||||
| purposes benefit, |
for the public in particular, the |
Application offunds raised: award off14,300 |
|||||||||
| activities, | projects | or | to Drs Oni and Wright ofAlder Hey Hospital | ||||||||
| services | rdentified | in | the | towards developing the 'IgA-VAS' scoring tool |
|||||||
| accounts. | and discovering urinary biomarkers in |
||||||||||
| childhood immunoglobulin A vasculitis; |
|||||||||||
| decision to award f15,000 over athree year | |||||||||||
| period to Dr Pain of Alder Hey Hospital | and Dr | ||||||||||
| Chieng of Royal Manchester Children's |
Hospital | ||||||||||
| to research immunogenetic factors in |
juvenile | ||||||||||
| onset connective tissue disease. | |||||||||||
| Statement | confirming | Para | 1.18 | Confirmed | |||||||
| whether | the trustees | have | |||||||||
| had regard to the | guidance | ||||||||||
| issued by the Charity | |||||||||||
| Commission | on public | ||||||||||
| benefit |
| Para 1.38 | ||||
|---|---|---|---|---|
| Policy on | grant making | |||
| Para 1.38 | ||||
| Policy on | social investment | |||
| including | program | related | ||
| investment | ||||
| Para 1.38 | ||||
| Contribution | made | by | ||
| volunteers | ||||
| Other |
| Achievements | against | Para 1.41 |
|---|---|---|
| objectives set | ||
| Performance offundraising activities against objectives |
Para 1.41 | |
| Se't |
Investment performan against objectives P8ra 1.41 Other
| inancial Review |
inancial Review |
|||||
|---|---|---|---|---|---|---|
| Review ofthe charity's | Para 1.21 | The charity held cash | at bank in the amount of | |||
| financial position at |
the end | f24,748at the end of | the | period | ||
| ofthe eriod |
||||||
| Statement explaining |
the | Para 1.22 | The reserves are held | in order to fund future | ||
| policy for holding reserves |
research projects approved | by the trustees. | ||||
| statin wh the are |
held | |||||
| Amount ofreserves |
held | Para 1.22 | f24,748 | |||
| Reasons for holding | zero | Para 1.22 | N/A | |||
| reserves | ||||||
| Details offund materially | in | Para 1.24 | N/A | |||
| deficit | ||||||
| Explanation ofany |
Para 1.23 | N/A | ||||
| uncertainties about |
the | |||||
| charity continuing as a going |
||||||
| concern |
| concern | ||||||
|---|---|---|---|---|---|---|
| Additional information |
(optional) | |||||
| You ma choose to include further statements |
where relevant | about: | ||||
| Social events; sales ofChristmas | cards; | |||||
| donations | from supporters | |||||
| The charity's principal sources offunds (including |
Para 1.47 | |||||
| any fundraising) | ||||||
| N/A | ||||||
| Investment policy and objectives including any |
Para 1.46 | |||||
| social investment policy |
||||||
| adopted | ||||||
| N/A | ||||||
| A description ofthe principal |
Para 1.46 | |||||
| risks facing the charity | ||||||
| Other |
| Structure, Governa |
nce | and Manag | ement | |
|---|---|---|---|---|
| Description of charity's |
||||
| trusts: | ||||
| Type ofgoverning document |
CIO Constitution | |||
| rr I lar rlr l d vQ'I/al r |
||||
| How is the charity | Para 1 25 | CIO | ||
| constituted? | ||||
| (B.g unllncoi'pof atea | ||||
| association. CIG |
||||
| Trustee selection methods | Para 1 25 | The board oftrustees acting collectively | ||
| including details ofany |
identifies and appoints trustees | |||
| constitutional provisions |
e.g. | |||
| election to post or name | of | |||
| any person or body entitled | ||||
| to appoint one or more | ||||
| trustees | ||||
| Additional information |
(optional) | |||
| You ma choose to include further statements |
where relevant | about: | ||
| Policies and procedures | ||||
| adopted for the induction | Para 1.51 | |||
| and training oftrustees |
||||
| The charity's organisational |
||||
| structure and any wider |
Para 1.51 | |||
| network with which the |
||||
| charity works | ||||
| Relationship with any related |
Para 1.51 | |||
| parties | ||||
| Other |
| Charity name | FAIR (FUNDING | AUTO IMMUNE | RESEARCH) | RESEARCH) | ||
|---|---|---|---|---|---|---|
| Other name the charity uses | ||||||
| Registered charity |
number | 1176388 | ||||
| Charity's principal |
address | Pen-y-Gardden | Hall, Pen-y-Gardden, | Tatham | Road, Ruabon, | |
| Wrexham LL14 |
6RE |
| mes | ofthe charity | ofthe charity | trust | ees who manage | the charity | |||
|---|---|---|---|---|---|---|---|---|
| Trustee name | Oflice (ifany) | Dates acted ifnot for whole ear |
Name to a |
ofperson (or body) entitled oint trustee ifan |
||||
| Mrs Grainne | Chair | Trustees collectively | ||||||
| Dennison | ||||||||
| Dr Gavin | Cleary | Trustees collectively | ||||||
| Mrs Alexandra | Bould | Trustees collectively | ||||||
| Mrs Alexandra | Trustees collectively | |||||||
| Abberton | ||||||||
| Mr)ohn | Melia | Trustees collectively | ||||||
| 6 | ||||||||
| 7 | ||||||||
| 8 | ||||||||
| 9 | ||||||||
| 10 | ||||||||
| 11 | ||||||||
| 12 | ||||||||
| 13 | ||||||||
| 14 | ||||||||
| 15 | ||||||||
| 16 | ||||||||
| 17 | ||||||||
| 18 | ||||||||
| 19 | ||||||||
| 20 |
| Funds held as custodian trustees on behalf ofothers | Funds held as custodian trustees on behalf ofothers |
|---|---|
| Description ofthe assets |
|
| held in this capacity | |
| Name and objects ofthe | |
| charity on whose behalf | the |
| assets are held and how | this |
| falls within the custodian | |
| charity's objects | |
| Details ofarrangements | for |
| safe custody and | |
| segregation ofsuch assets |
|
| from the charity's own |
|
| assets |
| O | CHARITY COMMISSION FOR ENGLAND AND WALES |
CHARITY COMMISSION FOR ENGLAND AND WALES |
CHARITY COMMISSION FOR ENGLAND AND WALES |
CHARITY COMMISSION FOR ENGLAND AND WALES |
CHARITY COMMISSION FOR ENGLAND AND WALES |
CHARITY COMMISSION FOR ENGLAND AND WALES |
Receipts and payments | Receipts and payments | Receipts and payments | accounts | accounts | CC&sa | ||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| For | the period from |
01/01/2020 To |
31/12/2020 | |||||||||||
| ' | ||||||||||||||
| - | - | |||||||||||||
| ~ | ~ | ~ | ~ | |||||||||||
| Unrestricted funds |
Restricted funds |
Endowment funds |
Totalfunds | Last year | ||||||||||
| to the | nearest f |
to the nearest 6 | tothe nearest 6 | to the nearest 5 | to the nearest 6 | |||||||||
| A1 Receipts | ||||||||||||||
| 6,693 | 6,693 | 16,445 | ||||||||||||
| u | tote | ross | mcome | or | ||||||||||
| AR) | 6,693 | 6,693 | 16,445 | |||||||||||
| A2 Asset | and | investment sales |
||||||||||||
| (see table). | ||||||||||||||
| u | oa | |||||||||||||
| A3 Pa ments | ||||||||||||||
| 15,609 | 15,609 | 2,743 | ||||||||||||
| Sub total | 15,609 | 15,609 | 2,743 | |||||||||||
| A4 Asset | and | investment | ||||||||||||
| urchases | see table | |||||||||||||
| Sub total | ||||||||||||||
| Total | payments | 15.609 | - | - | 15,669 | 2,743 | ||||||||
| Net ofreceiptsl(payments) | 8,916 | 8,916 | 13,702 | |||||||||||
| A5 Transfem | bebsreen | funds | ||||||||||||
| A6 Cash | funds last year end | |||||||||||||
| Cash funds this | year | end | 24,748 | 24,748 | 13,702 |
| ~ | ~ | ~ ~ |
~ | ~ ~ | |||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| Unrestricted | Restricted | Endowment | |||||||||
| Details | funds | funds | funds | ||||||||
| to Il88fast F. | to | nearest K | to nearest B | ||||||||
| B1Cash | funds | Cash at Bank | |||||||||
| Total | cash funds | 24,748 | |||||||||
| (agree balances | with receipts and payments | ||||||||||
| ecccctll(s)) | |||||||||||
| Unrestricted | Restricted | Endowment | |||||||||
| funds | funds | funds | |||||||||
| Detaiis | to nearest K |
to | nearest K | to nearest f | |||||||
| B2Other monetary assets | |||||||||||
| Details | Fund to which asset baton e |
Cost | (optional) | Current value o tional |
|||||||
| B3Investment | assets | ||||||||||
| Details | Fund towhich asset belch 8 |
Cost | (optional) | Current value 8 tional |
|||||||
| B4Assets retained for the | |||||||||||
| charity's | own | use | |||||||||
| Fund towhich | Amount due | When due | |||||||||
| Details | liabili relates |
o | ional | o tional | |||||||
| B5Liabilities | |||||||||||
| Signed by one or lwo trustees behalf of all the trustees |
on | Signature | Name | Date of a rove( |
|||||||
| gGHAJ | HQ. | &~ | |||||||||
| CCXX | R2 | tSS | 23/1 0/2021 |