## ## ## ## ## ## ||||||||SORP reference|SORP reference|||| |---|---|---|---|---|---|---|---|---|---|---|---| |Summary||ofthe purposes||||of|Para 1.17||The objects of the charity are to preserve
and||| |the charity||as|set out||in its||||protect the health of sufferers of autoimmune||| |governing||document|||||||conditions
and diseases by:||| ||||||||||(i) promoting
research
for the
public|benefit|| ||||||||||into developing
treatments
and funding
a cure||| ||||||||||for
autoimmune
conditions
and|diseases,|| ||||||||||including
their prevention,
and to disseminate||| ||||||||||the useful results ofsuch research;||| ||||||||||(ii) relieving
sickness amongst
persons|who are|| ||||||||||suffering
from
an
autoimmune
condition||or| ||||||||||disease; and||| ||||||||||(iii) advancing
the education
of the|public|in| ||||||||||general
on
the
subject
of
autoimmune||| ||||||||||conditions
and diseases.||| |Summary
activities||ofthe main
in relation to those|||||Para
1 19|1 17and|Fundraising:
sale ofChristmas
Cards; hosting
a Christmas
Carol Service.||of| |purposes
benefit,|for the public
in particular,
the||||||||Application
offunds raised: award off14,300||| |activities,||projects||or|||||to Drs Oni and Wright ofAlder Hey Hospital||| |services|rdentified|||in|the||||towards
developing
the 'IgA-VAS' scoring tool||| |accounts.|||||||||and discovering
urinary
biomarkers
in||| ||||||||||childhood
immunoglobulin
A vasculitis;||| ||||||||||decision to award f15,000 over athree year||| ||||||||||period to Dr Pain of Alder Hey Hospital|and Dr|| ||||||||||Chieng of Royal Manchester
Children's|Hospital|| ||||||||||to research immunogenetic
factors in|juvenile|| ||||||||||onset connective tissue disease.||| |Statement||confirming|||||Para|1.18|Confirmed||| |whether|the trustees||||have||||||| |had regard to the||||guidance|||||||| |issued by the Charity|||||||||||| |Commission|||on public||||||||| |benefit|||||||||||| ## |||||Para 1.38| |---|---|---|---|---| |Policy on|grant making|||| |||||Para 1.38| |Policy on|social investment|||| |including|program||related|| |investment||||| |||||Para 1.38| |Contribution||made|by|| |volunteers||||| |Other||||| ## ## |Achievements|against|Para 1.41| |---|---|---| |objectives set||| |Performance
offundraising
activities against objectives||Para 1.41| |Se't||| Investment performan against objectives P8ra 1.41 Other ## |inancial
Review|inancial
Review|||||| |---|---|---|---|---|---|---| |Review ofthe charity's|||Para 1.21|The charity held cash|at bank in the amount of|| |financial
position at|the end|||f24,748at the end of|the|period| |ofthe
eriod||||||| |Statement
explaining|the||Para 1.22|The reserves are held|in order to fund future|| |policy for holding
reserves||||research projects approved||by the trustees.| |statin
wh
the
are|held|||||| |Amount
ofreserves|held||Para 1.22|f24,748||| |Reasons for holding|zero||Para 1.22|N/A||| |reserves||||||| |Details offund materially||in|Para 1.24|N/A||| |deficit||||||| |Explanation
ofany|||Para 1.23|N/A||| |uncertainties
about|the|||||| |charity continuing
as a going||||||| |concern||||||| |concern||||||| |---|---|---|---|---|---|---| |Additional
information|(optional)|||||| |You ma
choose to include further statements|||where relevant||about:|| ||||Social events; sales ofChristmas|||cards;| ||||donations|from supporters||| |The charity's
principal
sources offunds (including||Para 1.47||||| |any fundraising)||||||| ||||N/A|||| |Investment
policy and
objectives
including
any||Para 1.46||||| |social investment
policy||||||| |adopted||||||| ||||N/A|||| |A description
ofthe principal||Para 1.46||||| |risks facing the charity||||||| |Other||||||| ## |Structure,
Governa|nce|and Manag|ement|| |---|---|---|---|---| |Description
of charity's||||| |trusts:||||| |Type ofgoverning
document|||CIO Constitution|| |rr
I lar rlr
l d
vQ'I/al
r||||| |How is the charity||Para 1 25|CIO|| |constituted?||||| |(B.g unllncoi'pof atea||||| |association.
CIG||||| |Trustee selection methods||Para 1 25|The board oftrustees acting collectively|| |including
details ofany|||identifies and appoints trustees|| |constitutional
provisions|e.g.|||| |election to post or name|of|||| |any person or body entitled||||| |to appoint one or more||||| |trustees||||| |Additional
information|(optional)|||| |You ma
choose to include further statements|||where relevant|about:| |Policies and procedures||||| |adopted for the induction||Para 1.51||| |and training
oftrustees||||| |The charity's
organisational||||| |structure
and any wider||Para 1.51||| |network
with which the||||| |charity works||||| |Relationship
with any related||Para 1.51||| |parties||||| |Other||||| ## ## |Charity name||FAIR (FUNDING|AUTO IMMUNE|RESEARCH)|RESEARCH)|| |---|---|---|---|---|---|---| |Other name the charity uses||||||| |Registered
charity|number|1176388||||| |Charity's
principal|address|Pen-y-Gardden|Hall, Pen-y-Gardden,||Tatham|Road, Ruabon,| |||Wrexham
LL14|6RE|||| |mes|ofthe charity|ofthe charity|trust|ees who manage|the charity|||| |---|---|---|---|---|---|---|---|---| ||Trustee name|||Oflice (ifany)|Dates acted ifnot for whole
ear|Name
to a|ofperson (or body) entitled
oint trustee
ifan|| ||Mrs Grainne|||Chair||Trustees collectively||| ||Dennison|||||||| ||Dr Gavin|Cleary||||Trustees collectively||| ||Mrs Alexandra||Bould|||Trustees collectively||| ||Mrs Alexandra|||||Trustees collectively||| ||Abberton|||||||| ||Mr)ohn|Melia||||Trustees collectively||| |6||||||||| |7||||||||| |8||||||||| |9||||||||| |10||||||||| |11||||||||| |12||||||||| |13||||||||| |14||||||||| |15||||||||| |16||||||||| |17||||||||| |18||||||||| |19||||||||| |20||||||||| |Funds held as custodian trustees on behalf ofothers|Funds held as custodian trustees on behalf ofothers| |---|---| |Description
ofthe assets|| |held in this capacity|| |Name and objects ofthe|| |charity on whose behalf|the| |assets are held and how|this| |falls within the custodian|| |charity's objects|| |Details ofarrangements|for| |safe custody and|| |segregation
ofsuch assets|| |from the charity's
own|| |assets|| ## ## ## |O|CHARITY COMMISSION
FOR ENGLAND
AND WALES|CHARITY COMMISSION
FOR ENGLAND
AND WALES|CHARITY COMMISSION
FOR ENGLAND
AND WALES|CHARITY COMMISSION
FOR ENGLAND
AND WALES|CHARITY COMMISSION
FOR ENGLAND
AND WALES|CHARITY COMMISSION
FOR ENGLAND
AND WALES|||Receipts and payments|Receipts and payments|Receipts and payments|accounts|accounts|CC&sa| |---|---|---|---|---|---|---|---|---|---|---|---|---|---|---| |||||||||For|the period
from|01/01/2020
To|||31/12/2020|| |||'||||||||||||| ||||-|-||||||||||| |~|||||~||~|~||||||| |||||||||Unrestricted
funds||Restricted
funds|Endowment
funds||Totalfunds|Last year| |||||||||to the|nearest
f|to the nearest 6|tothe nearest 6||to the nearest 5|to the nearest 6| |A1 Receipts||||||||||||||| ||||||||||6,693||||6,693|16,445| |u|tote||ross|mcome||or||||||||| |||||||AR)|||6,693||||6,693|16,445| |A2 Asset|and||investment
sales|||||||||||| |(see table).||||||||||||||| ||||||u|oa||||||||| |A3 Pa ments||||||||||||||| ||||||||||15,609||||15,609|2,743| ||||||Sub total||||15,609||||15,609|2,743| |A4 Asset|and||investment|||||||||||| |urchases||see table||||||||||||| ||||||Sub total|||||||||| ||||Total|payments|||||15.609||-|-|15,669|2,743| |Net ofreceiptsl(payments)|||||||||8,916||||8,916|13,702| |A5 Transfem|||bebsreen||funds|||||||||| |A6 Cash|funds last year end|||||||||||||| |Cash funds this|||||year|end|||24,748||||24,748|13,702| ||||||~|~|~
~|~||~ ~|| |---|---|---|---|---|---|---|---|---|---|---|---| ||||||||Unrestricted|Restricted|||Endowment| |||||Details|||funds||funds||funds| ||||||||to Il88fast F.|to|nearest K||to nearest B| |B1Cash|funds|||Cash at Bank|||||||| ||||||Total|cash funds|24,748||||| |||||(agree balances|with receipts and payments||||||| |||||||ecccctll(s))|||||| ||||||||Unrestricted|Restricted|||Endowment| ||||||||funds||funds||funds| |||||Detaiis|||to nearest
K|to|nearest K||to nearest f| |B2Other monetary assets|||||||||||| |||||Details|||Fund to which
asset baton e|Cost||(optional)|Current value
o tional| |B3Investment||assets|||||||||| |||||Details|||Fund towhich
asset belch
8|Cost||(optional)|Current value
8 tional| |B4Assets retained for the|||||||||||| |charity's|own|use|||||||||| ||||||||Fund towhich|Amount due|||When due| |||||Details|||liabili
relates||o|ional|o tional| |B5Liabilities|||||||||||| |Signed by one or lwo trustees
behalf of all the trustees|||on|Signature|||Print|Name|||Date of
a
rove(| ||||||||gGHAJ|HQ.||&~|| |CCXX|R2|tSS|||||||||23/1 0/2021|